I've not been posting much, and I am very puzzled, so a bit of a recap may be appropriate. I am still fooling around with the gray skin problem. When I'm fatigued, the skin around my eyes goes charcoal. With increasing exertion, it starts showing up other places.
In order of increasing severity, they are: my cheeks and nose, my hands, my groin, my forehead, my shoulders. If I hyperventilate, the grayness dissipates, in roughly reverse order. This, coupled with its distribution, indicates it's not just lack of sleep or allergic shiners.
Its presence has been verified independently -- "What's with your hands? In this light, I thought you were wearing gloves." From the reactions of the medical people who I've asked, it's not any standard symptom. No one seems willing to risk more than a "Huh" as explanation. Oh, well, at least some of them have seen the phenomenon. No one's taken me up on my offer to hyperventilate as a demonstration.
So, I am on my own. Or, almost. There's always my Dianna! She asked her chiropractor about it, and he said, "Oh, he needs to see Dr. ______. Whenever I see a gray person, I send them to her and they come back nice and pink." I'd settle for pink, nice would be gravy. So, off to see Dr. ______.
She is treating me with chelation. Twice now she's had me do a challenge. The first time I tested somewhat high for cadmium and uranium. She said that was weird; no one my age ever tests anything but very high for lead.
Leaded gas -- I used it as a parts cleaner, killed wasp nests with it, and adjusted the carbs on running vehicles in a closed garage. I was a geeky kid -- I'd go back to the Chem lab after lunch and, among other things, play with a 10 kg jar of mercury I found there. Shined coins with it, stuck my hands down into the pool, etc.
Twenty treatments later, we retested. Cadmium was down, uranium still high, still no elevated levels of mercury or lead.
I remembered the NACi and mercury thread on this forum http://www.cpnhelp.org/nac_and_mercury and reviewed it. Here's what I suspect: the NAC that I take is interfering with the challenge tests. It is displacing the edetate or hiding the heavy metals so the test doesn't see them, who knows? At any rate, I'd appreciate any evidence that I've guessed right -- or wrong, for that matter. Anyone have any experience with it, or enough chemistry background to figure it out?
Ron
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Ron
On CAPi for CFSii starting 01/06 (NE Ohio, USA)
Currently: doxyii & zithii -- continuous; metronidazoleii -- 5 days on, 9 days off.
Get the research results you paid for: support Open Access
Wow, Ron, this is amazing
Wow, Ron, this is amazing stuff you are finding out. Have you looked into using Iodoral for detox from heavy metals? Here's an interesting blog from patients of one of the iodine research docs: Here
I never would have believed it---but as I ramped up to 50 mgs of it, I was detoxing like crazy for about 3 weeks. Just recently ran the dosage up to 100 mgs. No detox signs but increased energy, better stamina and sharpness.
Keep us posted on your progress,
Raven
CAPi since 8-05 for Cpni and Mycoplasma P. for MSi and/or CFSi
Also EBVi and HHV6
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98% well and going for 100! CAPi since 8-05 for Cpni and Mycoplasma P. for MSi and/or CFSi Also EBVi and HHV6 My grateful thanks to all the CAP docs!!!
I heard on NPR that only
I heard on NPR that only about 1/3 of the iodized table salt tested has the recommended levels of iodide. How can they do that?
Anyway, didn't think about Iodoral; I'll start checking it out -- and I'll ask Dr. _____, too.
Thanks for the tip -- I wonder what it would do to the heavy metal testing?
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Ron
On CAPi for CFSi starting 01/06 (NE Ohio, USA)
Currently: doxyi & zithi -- continuous; metronidazolei -- 5 days on, 9 days off.
Get the research results you paid for: support Open Access
Hi Ron, I wonder, too.
Hi Ron,
I wonder, too. Had read that the Iodoral is good for mercury/heavy metal detox. And this is what S--- of Skips pharmacy asked me, when I called to see if it was contraindicated when taking LDNi. It's not. But he asked, "why do you want to put a heavy metal in your body?"
I don't know exactly what it's doing for me, except that it's helping. It does give me high energy and is starting to alleviate many symptoms of secondary porphyriai and MS pseudo-relapse. Doctor now has me ramped up to 25mg/day.
I hope that if you take it, after you ask your doctor, that it helps you, too. I don't know what to think about your gray skin, but it really would be amazing if Iodoral can prevent it for you. Please keep us posted. --Minai
RRMSi, diagnosed 2/04. NACi 4/06. Started Wheldon/Stratton regime 8/30/06. Doxycycline, 8/06, Azith, 10/06. Switched to Roxithromycin 11/06. Psuedo relapse/die-off with hospitalization 1/07. GAD-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY. LDN 4/07. 1st Tinidazole Pulse, 8/11/07. Keflex 2/08. IV Rocephini 3/08. IV Clindamycin 5/08.Still don't know anything
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Ron
On CAPi for CFSi starting 01/06 (NE Ohio, USA)
Currently: doxyi & zithi -- continuous; metronidazolei -- 5 days on, 9 days off.
Get the research results you paid for: support Open Access
Ron are you going to take a
Ron are you going to take a temporary NACi vacation to clear it and see what the baselines are for the heavy metals? Since you are on the abxi seems like a reasonable thing to do to sort this out. What are you taking for chelation? Is it IV or PO?
My battery of tests early on was extensive and heavy metals were not indicated however CPni was, I am glad that I had all that testing done yet it was quite a total bill for labs when all is said and done. It sure sounds like life history for you could point in that direction for sure.
Is your heart rate stable during the graying events. I would guess that this has been looked at by you, take your pulse for a full minute at different points of time during the day with different activities if you have not already done this type of exploration.
If hyperventilation improves the situation then is it a periodic depression of regular respiration, one that you don't even notice. Just brain storming out loud from an extremely basic physiologic perspective.
I've not studied the effects of heavy metal toxicity ( sure would have if I thought that I had it of course) (Just like I crave knowledge about stealth pathogens in my personal incubator!)
When people go of posting here it is always a curiosity, are they doing so well that life is so big that they have little time. Or are there challenges and difficulties that are up for them.
Good to see your post and will be watching the progression of the responses.
Louise
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Louise CFSi, CPN+/Bb+, Wheldon CAPi 6/07, Cholestyramine 1-2 pks @ HS for Porphoria & Endotoxinsi PRN, Doxy100daily, Roxi300BID, Tinii 500mgBID pulses, VitD3-4000IU, Magnascent Iodine,{S.O.D.3/QD[KAL Brand], +Pyruvate 3.75G +SAM-e For Energy support
Hi, Louise Yes, I'm going
Hi, Louise
Yes, I'm going to lay off the NACi until my next heavy metal evaluation at least and rely on the antibioticsi to deter CPni for that time. The chelation is by IV -- the first 20 were just a big 2-minute syringe, now I'm getting a 3-hour bagful.
Heart rate stable? What an interesting question! I hadn't thought of it at all. Let's see -- when I am gray, I tend to get short of breath when I bend down, but not when I am pink. I haven't taken my pulse or BP at various graynesses, but I will try that.
I wonder about the depression of respiration, too. I'm not sure how I'd measure it. I haven't had 'air hunger' for quite a while, now, but it used to be associated with the grayness, so, maybe.
I slowed down my posts because my progress is so hard to express clearly. I'm only posting if I see there's something that no one else has covered -- but most questions get answered thoroughly before I get involved.
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Ron
On CAPi for CFSi starting 01/06 (NE Ohio, USA)
Currently: doxyi & zithi -- continuous; metronidazolei -- 5 days on, 9 days off.
Get the research results you paid for: support Open Access