At my appointment today, my doctor was telling me that Doxyi and Azith should not cause any problems and Flagyli only makes a few people feel "funny" but that is very rare. I explained the concept of die off effects to him and he looked at me with a very puzzled look on his face. He said that if it is true that people on the abxi feel very lousy on Flagyl, why doesn't everyone feel lousy on it as most people have Cpni in varying degress. He wondered why people get these die off effects on this abxi and not his patients that he prescribes Flagyl to for other reasons. I unfortunately could not answer him, can anyone answer that?
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SPMSii< Supplementsii & NACi, Doxyi 200 mg, Azith 250 mg 3X/wk, starting flagyli slowly
Tody- That most people
Tody- That most people don't have reactions to abxi or flagyli is exactly the point: you only have strong reactions to these meds if you are killing significant enough amounts of Cpni so as to release significant amounts of porphyrins and endotoxinsi.
In other words, the fact that most people don't respond negatively to antibiotics essentially confirms that they do not have significant amount of Cpn in their body. They may have titers for exposure, but their immunei system has been able to control it adequately.
The difference for those of us with Cpn and related disease symptoms (MS, ME, CFSi, FMSi, Sjogrens, etc, etc) is that our system has not been able to adequately control the Cpn so that the bacterial loadi is much higher and has invaded more tissues. So when we take these agents we are killing more Cpn and also probably a number of host cells as well, all of which causes us a much stronger reaction.
CAPi for Cpn 11/04. Dx: 25yrs CFS & FMS. Protocol: 200mg Doxyi, 300mg Roxithromycin, Tinii 1000mg/day pulses; Vit D1000 units, Iodoral 50mg, T4 & T3
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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3
ya, what Jim said, lol I was
ya, what Jim said, lol
I was also wondering, was he meaning treatment with one abxi at a time. Then there would be very few problems.
If you look at the list of "reactions" from the pharmacy that occur rarely on the abxi we take, some of them look very similar to the reactions we have resulting from porphyriai & toxins. Coincidence!! imhoi, I think not.
CFIDSi/ME 26yrs, FMSi,
IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#9 750mg 5.5 day, 4-25-8___________________________________________________________
CFIDSi/ME 32 yrs, FMSi,
IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#13 1240 mg X 3 days 8-7-08Wow Jim, good answer. I wish
Wow Jim, good answer. I wish I had that information earlier today. Makes perfect sense though cause if a Cpni load wasn't causing problems, we wouldn't be sick in the first place.
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SPMSi< Supplementsi & NACi, Doxyi 200 mg, Azith 250 mg 3X/wk, starting flagyli slowly
Indeed Ruthless. Many times
Indeed Ruthless. Many times when I go on a drug therapy, I seem to get that 1 in a million reaction that the doctor finds in the small print in his medical book. They always tell me it is because I am very drug sensitive and the reaction is very rare. Could be cause I have die off and start to feel effects.
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SPMSi< Supplementsi & NACi, Doxyi 200 mg, Azith 250 mg 3X/wk, starting flagyli slowly
Todybear, Tell your doctor
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
You might want to take a
You might want to take a look at this page:
Metronidazole Patient Database
What they call "Side effects" we call (intended) die-off effects.
There are quite a lot of people who react strongly to flagyl out there. Presumably many of them have an undiagnosed chlamydial infection (or some similar pathogen).
CFSi. Started CAPi 03-07. Currently: Roxi 600mg + INHi 600mg + Tinii 1000mg. 10 Pulses done. Sauna every other day. D 7200IU
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Hunter: Don't think - experiment
I agree with Garcia (and Jim
I agree with Garcia (and Jim of course). I was making that point in the FAQs page... What people often call side effects of drugs, are due to an unrecognised Cpni infection, exactly because Cpn is quite common this may be a 'side effect' that is often noted by patients and eventually gets recognised and listed in the advice sheet.
Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006
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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006
I can vouch for this.
I can vouch for this. Halfway through week 2 of Doxyi on its own, and I've developed a twitch. I've had a few odd stabbing pains, some bronchial clearance and some headaches.
Next week I add Zithi. Watch this space.
Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.
NACi 2400mg. All supplementsi. Doxy 200mg.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April 2008.
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Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.
NACi 2400mg. All supps. Doxyi 200mg. Zithi 250mg. Metroi 400mg.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April 2008. First pulse June 2008
It amazes me that a dr
It amazes me that a dr wouldnt understand the concept of die off. Im sorry that you have to educate him. What do they learn in school anway.
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CPNi pcri and antibody positive , treating MSi,
CFSi, TMJ, trigeminal neuralgia,IBSineutropenia, pus found in facial bone,Doxyi 100x2,Doxy 200x2 zithro 250x1 alternate days. Metroi pulses each month.