my dad's alzhiemer's-doctor in Nashville

Hey's folks -ain't it funny how God works. I started on this path for my wife's CFSi beginning with possible Viral agents(Shell start supplementsi/naci nov 1.) then i linked up here after labs where negative for all but CPNi and i found this place. Now my dad's(ALZ dx 8mos) neuroi is sending him to Nashville (home of Vanderbilt U) to see a specialist in the treatment of CPn. My mom just told me -don't have a name or backgrouund yet. I'll probably be driving him up from Pensacola FL for his appt Dec 1- I hope to take my wife also if I can get her an appt. More to come-thanks lwbell

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Welcome lw, There are many

Welcome lw, There are many stories here - as my husbasnd says "It's a plot". However, instead of waiting for your appointments, why not start (everyone including yourself) on the supplementsi, especially NACi now? Watch for reactions to the NAC (for your own edification) which for most if not all, are flu-like symptoms, though usually not as bad as real flu. Having been through MY version, I know that it is not unbearable. By all means, keep on with your reading and learning. There is so much here and it will only help you when you go to Vanderbilt - that is, after all, where this all originated.

 

Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 47 pulses NC USA

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Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 53 pulses LDNi Rifampin 8/08 again NC USA

 wbell, I do so often

 wbell, I do so often marvel at the syncrhonicity of life.  You set out to look for an answer.  Seems that is what DW did.  Dr Stratton shared his info  for the good of humanity and it was found by DW.  DW and Sarah did the process and reaped the rewards.  Several other folks found them and started discussions.  Jim K got the BRILLIANT idea to start this website  and has learned to manage it, though not his primary occupation.  I found this site in the same way you did, most of my labs were unremarkable intitially,  except for CPnii, high for past and active infection.  I google Chlamydia Pheumoniae ( and that e on the end is important) had I left it off as I found out on another search it would not have come up for me). 

With your Dad' referral, was it your asking that motivated the referral  or did it come unsolicited from the neurologist? 

I say when your Dad shows the neuroi the connection of improvement  the natural extention is that that Neuo may begin to think out of the box and helf so many other folks with neuro symptoms that are manifestations  of intracellularii infectionsii.  

It is most exiting to think about the impact of each seemingly small event in the grand progression of folks returning to wellness.

Thanks for your inpirational post.  It reminds me that each one can reach one, we just don't know when that sharing will come to fruition.    Louise

Louise, USA, Northern New England. CPn, Bb(Borrelia B., Lyme,) CFSi. Started CAPi 6/24/07 Doxy400, NAC1200. Currently 9/24/07, Doxy 200 mg, NAC 2400 mg.

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Louise  CFSi, CPN+/Bb+, Wheldon CAPi 6/07, Cholestyramine 1-2 pks @ HS for Porphoria & Endotoxinsi PRN, Doxy100daily, Roxi300BID, Tinii 500mgBID pulses, VitD3-4000IU, Magnascent Iodine,{S.O.D.3/QD[KAL Brand], +Pyruvate 3.75G +SAM-e For Energy support

Welcome aboard the ship MAD

Welcome aboard the ship MAD CAPpers!

We are a funny bunch, but hey; we are getting better & that is all that matters.

I would dearly love to get my Dad treated; but my mother is dead set against anything from the "internet"  oooh scary, booo!! (it's Halloween)  He and my mother are both plagued with bronchial conditions regularly.

soo just jump in, get your feet wet, we are here for support!

CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonini, GABA, tarazadone, temazepam, novocyclopine, allergy formula, 2 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 10-31-07 3rd pulse 2 X 250 mg 2day

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CFIDSi/ME 32 yrs, FMSi, IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#14 1000 mg X 5 days 9-19-08

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