My Cpn

Hello there, I found this site three days ago and it is very helpful.Beside the plenty of information, it is hard for me to find my answers by search and read. Three weeks ago I decided to go on lung examination, because got a long cough and nasal secretion. These symptoms started on 09.01.2011, like a mild flu (cold) and I continued working in the office. Next week I felt much better and went skiing for seven days, but while traveling I got cold again. I felt with the same symptoms, but worse. Anyway I continued skiing; just toke 3 times some homeopathic things and a Fervex sachet. After four days I went well again, but mild night cough and nasal secretion left. On 03.02.11 went for examination in special hospital. The doctor checked me and when I told her that before 8-9 years I got three winters with sinusitis, she sends me on blood tests for mycoplasma and Cpni<i<. My lungs sounded OK for her, a bit sore throat and bit white tongue base she said and X-ray showed opacity on lungs - thread for bronchitis for her. Blood showed following: ASAT U/l 79, ALAT U/l 84, GGT U/l 22, Mycolpasma pneum. IgGi<i< OD 1.6 and EIAgen Cl. pneumoniae IgG OD 2.4. The doctor said it is all from CPn, then daily for 14 days: 1xAvelox 500, 2xEssentiale 300 and Tussavit sirup. On day 14, had another examine where my lungs sounded bit worse to the doctor and sow candida on my tongue, she changed to daily for another 14 days: 4xFungostatin 100k, 2xNisoral 200, 2xEssentiale 300 and 1xAzythromycin 500. In ten days I'm finishing what she said and going again to her. Except those 2x4 days with cold symptoms and first week on Avelox, I haven't felt sick so far. Now on Azythromycin I feel sometimes stomach and belly discomfort. At the moment cough I very rare and not systematic, but nasal secretion is not so better going. Both secrets are white/colorless I stopped any sports meanwhile.Would like to ask for opinions about my symptoms with blood results, treatment with this diagnosis and ...too much things in my head now.I have read a lot here but still confused what to do.Respect for your work here, great site! Cheers,Gele Smile

Comments

I had a week on 2400mg of

I had a week on 2400mg of NACi and 1600iu of D3, still no reactions. My belly discomfort from last week seems was from other thing.

Gele, maybe the best time to

Gele, maybe the best time to start increasing doses or whatever is when you have a couple of days off work!   Also, maybe better to increase just one thing at a time so that you know which is affecting you the most.  I was already taking large amounts of D3 before I started the treatment but I never took any NACi until I had started on intermittent treatment..............Sarah

A  Journey through Light and Shadow

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Sara, I increased these days

Sara, I increased these days to 1800/1200 and today rised to 2400NAC/1600D3. Just before an hour got diarrhea, belly discomfort and some fever. It is very unpleasant, especially while working.

Sorry, Norman, I corrected

Sorry, Norman, I corrected it before I saw that you had already! Too much multi-tasking.....................Sarah
Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Uh, I don't think "24000gm"

Uh, I don't think "24000gm" of NACi, aka 24 kilograms, is quite what you took, Sarah. (2400 mg was presumably the figure intended.)

Gele, instead of paltering

Gele, instead of paltering around on such small amounts of NACi and D3, why not increase them to 2400mg of NAC and a minimum of 5000iu of D3? I started on these amounts straight away and managed perfectly well apart from NAC making my nose run like Niagara falls!.................Sarah A Journey through Light and Shadow
Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Waiting to see maybe the

Waiting to see maybe the proper doctor next week. He asked another blood test and the results are:

TSH - 0.8 uIU/ml, ref - 0.27-4.2

Cpni IgM - 6.8 ref less than 9

Cpn IgGi - 24.8 ref less than 9

I haven't stopped NACi 600mg/day and started D3 400uI/day. I feel good, no symptoms of nothing.

 

My doctor (neuroligist) told

My doctor (neuroligist) told me "Go away, don't come back, I don't want to see you any more.  You disobeyed my orders."  I had stopped Avonex.  This following his surprise and remark that he had expected me to be much worse - I was on antibioticsi.

Rica

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

So true, Gele; we tend to

So true, Gele; we tend to think our doctors are gods, and we believe what they tell us and we do what they tell us to do. I was that way until the neuroi said I had MSi. Then I did what you did. I researched and learned and sought out a treatment, despite my (former) doctor telling me this was useless and laughing at me for trying it. I think we know now who was right and who was wrong.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Mac it is so, but I do not

Mac it is so, but I do not believe my doctor so much, there are many reasons for that. I feel obliged to check for Cpni in all possible ways, before starting at least a year CAPi treatment. If I was not so curious, I wouldn't meet you here and would be "happy" with single abxi treatment from my doctor!

Gele, Your doctor says you

Gele, Your doctor says you have CPni. What you need to do is TREAT it. You need to start working on finding a way to obtain the correct medications to do so.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Thanks lleach. If I do not

Thanks lleach. If I do not have a NACi reaction, does it worth to do something like a Flagyli test for Cryptic formi?

I had a reaction at 600 mg

I had a reaction at 600 mg then again at 1200 mg, but no further reaction when I went up to 2400 mg per day.  Most of us here used NACi as a test for Cpni.  But if you have positive blood tests and your doctor started you on abxi already then maybe you won't have much of a reaction on NAC.  If you do start one of the protocolsi, it will be interesting to hear if you have a reaction to Flagyli.

Started CAPi for Cpni on 11/14/10 - Per my doctor, paused Abxi 5/18/13 - NACi, T3, St Johns Wort, B-complex, Vit C, Vit D3 (8,000/day), Vit E, Astragalus, Chlorella, Chelation with Alpha Lipoic Acid">i. Started Buhner protocal (2nd edition) on 8/30/16.

Four days on NAC 1x600mg

Four days on NAC 1x600mg and still no reactions so far. On monday will increase to 2x600mg.

I had little more than what

I had little more than what felt like it 'might be' a cold coming on, plus an unstoppable nasal drip. It came and went so quickly, I felt disappointed that I didn't have some big, dramatic reaction.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

It is my second day on

It is my second day on NAC 1x600mg and no reactions so far.

In general I feel healthy, just the nasal secretion is still present but slighter. Could be that my energy is a bit less, but there is no dramatical difference and could be from anything else.

It isn't commented on much

It isn't commented on much because one protocol is widely used and has proven to be effective. The one you are talking about is a little controversial, which you will learn as you read more here. Go buy some NACiWink

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Thanks to all! MacKintosh

Thanks to all!

MacKintosh you have right, I've already got an overview, but still miss some main points in whole info. While waiting for result from NACi, I shall decide which protocol is most suitable for me. I know it might not be best way to "read and treat by yourself", but still can not find the right doctor. Moxy, yes I will start Vit. D3, also the other main supplementsi.

I am wondering why this http://www.cpnhelp.org/emerging_stratton_protoco< is not so much commented?

I'm now checking pyruvate benefits to be reported.

Gele,  Sounds like you are

Gele,

  Sounds like you are going the right direction to me.  Use the NACi reaction as strong indicator to decide on the likelyhood of having a chronic Cpni infection.  The blood tests for IgA and IgGi if abnormal would also point in that direction, use the reference value as stated on the blood test itself to decide if abnormal but by how much means little really. 

  Maybe wait a week after the NAC to see its effect and start ramping up your Vitamin Di level, many think at least 60 ng/mL. 

Cpni, Mycoplasma, Chronic EBVi, M.S.(MRI, Spinal Tap-greater than 5 oligoclonal bands and VEP), PANDAS(OCD). Wheldon CAPi (started 12/08), Azithromycin/Clarithromycin(12/09), Lithium, Lamictal, NACi(2.4g/day), D3(15,000IU/day)

Okay, you posted again just

Okay, you posted again just when I was going to ask about NACi. Good for you! You'll also want to supplement with Vitamin D3.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Gele, Welcome! Yes, the

Gele, Welcome! Yes, the site is very hard to search, because of the repetition of certain terms in many, many places. Go to the top of the page and click on the tab for the 'Getting Started' section first. It will outline the basics of the protocol and give you the basics to speak about with your doctor. The treatment you are describing is not going to be enough to kill this infection.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Month after finishing

Month after finishing Azythromycin I went last week on another blood tests and results came as: ASAT U/l 19, ALAT U/l 25, Vit. D ng/ml 5.7 (reff. more than 30), IgA NTU 8.4 (reff. less than 9), IgGi NTU 29.6 (reff. less than 9). BP is 125/80 in the morning and 140/90 at random time. 

Today I started NACi and I'm waiting if I get flu like simptoms. I intend to read more and treat by myself.