Morgallons

I didnt know what morgallons was and i had never heard of it so i looked it up. I was a bit horrified when it talked about ant- crawling -skin -itch because this was one of my main symptoms when i was sickest back in the 1990's and it surfaced again when i started on naci as i recently posted. The first thing that came to my mind was my theory about cpni EBi's being an allergen so i went researching this disease. The first site i pulled up suggested that those with pos western blots who complained of this phenomenum got better with abxi therapy which suggested that this is a disease of lyme. However, the next site i brought up was a site which apparently was posted by an independant researcher who obtained "samples" and that one of his best guesses was an organism like cpn. This fits with my cpn eb allergen theory, so i was just wondering if anyone knows of anything or any sites with info that is reliable and valid regarding a correlation between morgallons and cpn.

Thanks, and thanks to the person who posted it on the other page

 

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CPNi pcrii and antibody positive , treating MSi, CFSii, TMJ, trigeminal neuralgia, IBSii neutropenia, pus found in facial bone, Doxyii 100x2,Doxy 200x2 zithro 250x1 alternate days. Metroii pulses each month.

Ah, Clammed, Cpni EBi's seem

Ah, Clammed, Cpni EBi's seem to end up in the skin, getting stuck and lodged in cappillary beds (remember those red blood cells with EB's on the front page? They get stuck in small cappilaries). So a lot of us got skin itch and burning when starting NACi. Dr. Stratton thinks the skin may be a reservoir for Cpn EB's, so if you are killing them, itch don't bitch! Wink Well, best rhyme I could think of!

CAP for Cpn 11/04. Dx: 25yrs CFSi & FMSi. Protocol: 200mg Doxyi, 250mg MWF Azith, Tinii 1000mg/day pulses; Vit D1000 units, Iodoral 50mg, T4 & T3

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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3

 I itch like crazy at times

 I itch like crazy at times and I do bitch about it Jim, but usually some cortisone cream helps to calm it down if neccessary. I think that Dr Stratton's theory about the skin capillaries being a reservoir for Cpni is spot on.

New Forest, UK. Progressive MSi dx 12/06 LDNi 3/07 CAP 6/07: Wheldon version.

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Progressive MSi dx2006. LDNi & CAPi: Wheldon version. All supps. Doxyi 200mg. Zithi 250mg. Metroi 400mg.Pulses #13...I can because I think I can.

Just kidding about the

Just kidding about the rhyme. I'm the king of bitch when I'm hurting! Morgallons is not just itch but these wierd extrusions from the skin, so diagnostically needs more than the itching. Dr. Stratton told me about a patient who had finished treatment completely but wanted to do a round of Rifamycin, a very potent anti-chlamydial to be sure. The main symptom they had was a wave of itching that kept them up for a couple nights then ebbed: clearly not an allergic reaction. He could only attribute this to killing remaining Cpni in the subdural layers.

CAPi for Cpn 11/04. Dx: 25yrs CFSi & FMSi. Protocol: 200mg Doxyi, 250mg MWF Azith, Tinii 1000mg/day pulses; Vit D1000 units, Iodoral 50mg, T4 & T3

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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3

I will throw in here. 

I will throw in here.  Since I have been in 9 kinds of porphyriai hell - itching can be porphyria peeking through.

When my husband first started antibioticsi - he itched and itched and itched.  This his back broke out in dozens of huge whelping pustules - only his back.  This was probably not porphyria but other thoughts described above.

Starting to itch and especially intense itching after you have been on antibiotics for a while can be porphyria and by increasing anti-porphyria measures you may be able to get some sweet RELIEF!

AsI look back on some of Karl's posts after he had been on antibiotics for several months in which he reports intense itching/herxing of long duration - it was quiet possibly a sign of porphyria. 

The more I learn the less I know.

Daisy - Husband on CAPi 5/07.  Minoi, Roxyi, Diflucan round two 1-31, Rifampin, Bactrim DS, Prednisone, Novantrone, Doxyi, Azithromycin, Flagyli

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Daisy - Husband on CAPi 5/07.  "When Going Thru Hell, Just Keep Going", Winston Churchill

"The more I learn the less I

"The more I learn the less I know."  

 

Isn't that the truth?!!

 

 

On Combined Antibiotic Protocol for Cpni in Rosaceai 01/06 - 07/07, On Vit D3 + NACi since 07/07 and daily FIRi Sauna since 08/07

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On Combined Antibiotic Protocol for Cpni in Rosaceai 01/06 - 07/07, On Vit D3 + NACi since 07/07 and daily FIRi Sauna since 08/07

Red - A BIG AMEN ! Daisy -

Red - A BIG AMEN !

Daisy - Husband on CAPi 5/07.  Minoi, Roxyi, Diflucan round two 1-31, Rifampin, Bactrim DS, Prednisone, Novantrone, Doxyi, Azithromycin, Flagyli

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Daisy - Husband on CAPi 5/07.  "When Going Thru Hell, Just Keep Going", Winston Churchill

clammed_up,  Morgellons is

clammed_up,  Morgellons is horrible and a fascinating mystery that is being unravelled as we speak.  Yes, it does appear to be linked with Lyme; a connection with Cpni is news to me.  Here is a link touting the view that it is a combination of microbes working in concert, a "willing coalition."  There is mention of an opinion of what those fibers are.  Here is another link that presents a different explanation of what those fibers are.  The second link is to one of the better websites on Morgellons.

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi).  CAPi since August 06, Cpn, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity. 

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Joyce~caregiver-advocate in Dallas for Steve J (SPMSi).  CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity. 

Cypriane,  on the second

Cypriane,  on the second site you listed, if you look to the right of the screen there are some links. The link thats says " carnicom " is the one i was talking about. It appears that the researcher used 7 samples from both those with outwards manifestations of morgellons and those without outwards symptoms.It said that the findings suggest " The prevalence and degree of the anomalies do appear to correspond to the visible manifestation of the Morgellons condition". What was found was apparently forms that at best guess resemnbled CPni and possibly mycoplasma from one another sample.

here is the page on samples 1-4

http://www.carnicom.com/morgobs6.htm 

and here is the link on samples 5,6,7

http://www.carnicom.com/morgobs5.htm

Now keep in mind this site is considered as "unrelaible" as any other thing we read on the net. 

Anyway the lyme article was really interesting,  thanks for the information. I also read something about agrobacteria somewhere as well. I'll look for thats link too. Its actually a plant pathogen.

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CPNi pcri and antibody positive , treating MSi, CFSi, TMJ, trigeminal neuralgia, IBSi neutropenia, pus found in facial bone, Doxyi 100x2,Doxy 200x2 zithro 250x1 alternate days. Metroi pulses each month.

Also just wanted to mention

Also just wanted to mention that back in the 90's when i was fully ridden with cpni manifestations, bronchitus and athsma, ana, and fibro..., I was digging things out of my skin swearing up and down that i had scabies. I had a rash from head to toe that looked like pustules and streaks and my entire face was so red i would go to the ER crying that that i had infection in my face. It crawled under my skin so much i was convinced it was flesh eating disease. So from this my belief is that most people get cpn exposure but the degree of severity of infection determine the manifestation of itch degree,,, ranging from no itch, ocassional itch, severe ant-like itch, visible lesions causing itch --> morgallons. Thats my take, but i hypothisize endlessly on this stuff. But anyway thanks so much for posting on this stuff cypriane. Lyme is just as possible and Its still probably either neither or both

Jim, so if its the capilliaries breaking that are the itch, why is this? Is it the skin nerves reacting or do capilliaries release chemicals? I sometimes think the EBi are spores that are allergy producing like fungus... or maybe just Im allergic to them since they have been in me for so damn long.

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CPNi pcri and antibody positive , treating MSi, CFSi, TMJ, trigeminal neuralgia, IBSi neutropenia, pus found in facial bone, Doxyi 100x2,Doxy 200x2 zithro 250x1 alternate days. Metroi pulses each month.

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