It was only three weeks ago that I wrote about my 30th pulse and how easy and 'pleasant' it had been, so easy in fact that I was able to carry on taking Flagyl for 14 days. Well it just goes to show that one good pulse does not a pattern make... Day two post pulse 31 and my mouth is still full of bitters, my maxilla still aches, my eyes are itchy, my ankles are swollen, my ears are throbbing and my urine is still dark. But MIRACLE OF MIRACLES the pain in my gut is hardly there and I have regularly been sleeping 7 or 8 hours a night.
I think that my experience is an example of that Tipping Point that Jim and others talk about. Enough Cpni cells have died in the cell for apoptosisi to take place...
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Michèle (UK) GFAi: Wheldon CAPii 1st May 2006. Daily Doxyii, Azi MWF, metroii pulse. Zoo keeper for Ella, RRMSii, At worse EDSSii 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006
I thought my last pulse was
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On Wheldon protocol for MSi since April, 2006. doxyi 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli Pulses start end Sept., LDNi 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30. Ma
Michele - Thanks for sharing
Michele - Thanks for sharing your experience. It really does amaze me how Flagyli seems to effect people with CPNi. I hope you feel your normal right self soon!
Daisy-Caregiver- Balo's Concentric Sclerosis. CAPi 5/07. Minoi, Roxy, Diflucan 1-31, Rifampin, Bactrim DS,
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Daisy - Husband on CAPi 5/07. "When Going Thru Hell, Just Keep Going", Winston Churchill
ah yes, the flagyli
ah yes, the flagyli curse!
Just on day 3 of my 375 mg 1 a day pulse & compared to last time, I am on an emotional roller coaster.
I am very happy you are sleeping better, that alone can be a life saver!
CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonini, GABA, tarazadone, triazolam, novocyclopine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 1-3-08 5th pulse 1 X 375 mg 4day
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CFIDSi/ME 32 yrs, FMSi,
IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#14 1000 mg X 5 days 9-19-08