More on the bitter-sweet pill.

It was only three weeks ago that I wrote about my 30th pulse and how easy and 'pleasant' it had been, so easy in fact that I was able to carry on taking Flagyli for 14 days.   Well it just goes to show that one good pulse does not a pattern make... Day two post pulse 31 and my mouth is still full of bitters, my maxilla still aches, my eyes are itchy, my ankles are swollen, my ears are throbbing and my urine is still dark.   But MIRACLE OF MIRACLES the pain in my gut is hardly there and I have regularly been sleeping 7 or 8 hours a night.

I think that my experience is an example of that Tipping Point that Jim and others talk about.   Enough Cpni cells have died in the cell for apoptosisi to take place... 

Comments

ah yes, the flagyli

ah yes, the flagyli curse!

Just on day 3 of my 375 mg 1 a day pulse & compared to last time, I am on an emotional roller coaster.

I am very happy you are sleeping better, that alone can be a life saver!

CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonin">i, GABA, tarazadone, triazolam, novocyclopine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 1-3-08 5th pulse 1 X 375 mg 4day

CFIDSi/ME, FMSi, MCS, IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplementsi+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyli/day-5 days<

Michele - Thanks for sharing

Michele - Thanks for sharing your experience.  It really does amaze me how Flagyli seems to effect people with CPNi.  I hope you feel your normal right self soon!

Daisy-Caregiver- Balo's Concentric Sclerosis.  CAPi 5/07.  Minoi, Roxy, Diflucan 1-31, Rifampin, Bactrim DS,  Novantrone, Doxyi<, Azith

Daisy - Husband on CAPi 5/07.  Husband died from Acute Myelogenous Leukemia Secondary to the Infusion of Novantrone.  Ie - the treatment with the conventional MSi drugs killed him.

Daisy on her own CAP 11/2012. 

I thought my last pulse was

I thought my last pulse was easy but spoke to soon as it got me later in week or I was fighting a virus. I am feeling better now but I agree you can't count on any type of pattern. Glad to hear less pain and more sleeping! On Wheldon protocol for MSi since April, 2006.  doxyi 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli Pulses start end Sept., LDNi 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30.

5oo mgs Ceftin 2 x/day, 500 mgs Zithromax, 500 mgs 2 x tinii pulses,100 mg diflucan, 4.5 ldni; Wheldon protocol for MSi April, 2006 to May 2008. 2008 MRI shows NO NEW DISEASE ACTIVITY, 2012 MRI no new disease activity.