Second week on NAC -
Other supplementsi = Methyl B12, calcium, magnesium, selenium, Vit. C & Liv-Gall Cleanse (milk thistle, silymarin, tumeric, curcumin, dandelion,inulin & artichoke) - the rest are on order and I will add them one by one when I receive them.
4/27/08 - Sun. (600 mg. NAC x1)
I woke up feeling 'myalgia' in most areas, feet, legs, arms, hands, neck & back. You know ... felt like you were a bit beat up as it were. Self massaged the worst areas with some relief. But the queasy tummy bothered me the most. My eyes are irritated especially my right eye as is the usual along with my right temple feeling numbish. Bronchials acting up so had a wheezy sound when the infrequent cough occurs. Sneezing also infrequent with same watery discharge. Head & sinus pressure has increased but feels more tingly and numbish then the sharper pain I often experience. So around 11 AM I decided it was time to take another NAC 600 mg. capsule. After I took it all the sore & painful areas changed to tingly mildly burning. My head, sinuses & nose became increasing tingly and numbish. Except for the small bursts of pain that randomly shoot suddenly and then disappear that are occurring anywhere and everywhere infrequently. 7 PM - Sneezing episode & watery discharge. Bronchial airways irritated and coughing after 7:30 PM. Some chest pain around my heart and some pains in my ovaries. My nostrils burn a little bit. My left thigh and left shoulder ache. My stomach burns.
4/28/08 - Mon. (No NAC today.)
Felt quite a bit better today. The 'myalgia' is just as bad but I had more energy and a sense of well being. No sneezing. Bronchial irritation down. Eyes are still burning.
4/29/08 - Tues. (600 mg. NAC x1)(started activated charcoal at night x1)(started vit. E)
Myalgia is worse today. Right leg/hip joint was hurting so much when I got out of chair I could not walk on it for awhile. But thankfully it eased up later. Aches and pains everywhere. Had one big sneezing episode then no more. Eyes are worse today and hard to read PC monitor. Blurry. Tonight had a sudden episode of anger. Haven't had one of those for a long time. UGH. I hate it. Bronchial airways flared up for a short time once today too.
4/30/08 - Wed. (No NAC today.)
Skin on arms is itching. Upper abdominal quadrant has sore areas at spleen or intestine left side and liver or gallbladder right side. Shoulders & neck are sore and achy. Legs ache and muscles want to cramp at night. Feet and hands have sore spots and finger tips go numb on me at times especially when sleeping. Brain pressure/vascular & sinus irritation seem better. But eyes are still very irritated and worse than yesterday burning & watering & blurry when I read.
5/01/08 - Thurs. (600 mg. NAC x1) (no charcoal taken - I slept through. When I wake up in the night I take it otherwise which is most nights.)
I had a wonderful 6 hrs. of deep sleep last night. This has made everything feel better today no doubt. Nice to have an entire day of symptoms at a lower hum and the energy to get things done. Great to get the biz bookkeeping done as the brain fog was less problematic today.
5/02/08 - Fri. (No NAC today.)
Didn't sleep as well last night. Symptoms starting flaring up last night and continue today. It was disturbing to have one of my finger tips go completely numb on me again but even worse when I woke up once last night my right arm and hand were dead asleep. I have a lot of burning in my body today like what occurred in my nose nostrils earlier. Heightened sense of smell this week for my own body odors of all things which aren't all unpleasant fortunately. LOL But can't seem to smell other things around which is an oddity I have been plagued with for years now. Pretty bad when you can smell your own BO but not the garbage can. DH assures me that I don't stink except once in awhile when I herx and sweat a lot. I take a whirlpool bath every other day for therapy. When the jets hit my right side I notice my sore spots more. My gallbladder area is much more sore today. My right arm and hand feel tingly today. Eyes are a bit less gritty then Wed. but were better yesterday. Right hip/leg joint flared up again today and I couldn't walk for a few minutes again.
5/03/08 - Sat. (600 mg. NAC x1)
Didn't sleep very good again. Took Melatonini at midnight to get to sleep but woke up again at 3 AM. Shoulders & neck were achy so hard to get comfortable. Right temple area numbish with little spikes of pain once in awhile. Skin on my face is getting dry and rough feeling. Felt chilled & fatigue was bad this morning so I laid down for an hour but didn't sleep. Upper abdominal quadrant discomfort continues on. Had a sneeze episode late afternoon. Evening felt fatigue again so lay on the couch while watching some TV. This is very unusual for me. Began to feel more achy so took 40 mg. Benicar early at 9 PM instead of 11 PM. I am taking it about every 12 hrs now which is down from 8 hrs.
Plan to try to take NAC 600 mg. x1 every day this week if possible. Wondering does anyone else have trouble with their nostrils drying out and a mild burning sensation in the tissues. Not raw or anything like that. Almost feels like when you inhale eucalyptus oil type burning.
___________________________________________________________
FM dx 2002 (sinusitis-rhinitis, dry eyes, bronchitis, cardiac, shoulder, liver, gallbladder issues) Started NACi: 4/19 (2400 mg daily 7/21) Start list supplementsii + Iodoral 12.5 mg. daily: 6/19 FIRii sauna, 100 mg Minoi 9/4.
Yes, I have the nostril
Yes, I have the nostril thing and the eye thing. Or rather, I had the nostril thing. I got round it by drinking loads of water. If I get sidetracked and forget then it comes back. I have a sports bottle that I fill up and just keep it with me. I try to drink at least 3 bottles a day. When you get the rest of your supps you'll find you have to drink more anyway just to get them all down.
Eyes change from one day to the next. I never know which glasses I'm going to need or whether I'll need any at all.
Melatonini I find doesn't put me to sleep, it just keeps me asleep.
Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.
NACi 2400mg. All supplementsi. Doxyi 200mg.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April 2008.
___________________________________________________________
Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.
NACi 2400mg. All supps. Doxyi 200mg. Zithi 250mg. Metroi 400mg.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April 2008. First pulse June 2008
HOPE + Andesine, Thank
HOPE + Andesine, Thank you for giving me some feedback on these issues. It is good to know someone else has dealt with the nose & eye thing as well.
The blurry eyes is so frustrating when trying to read all the info on this site. Add the foggy brain and it means slow progress. I won't give up though. I do have "stick to it-ness". I printed out some things as I find the glare from the PC monitor makes my eyes worse. Even though it is turned down. I should go back to wearing sunglasses I guess.
It is my habit to have a huge glass of water at my side at all times but now I seem to fail to drink it more frequently. In the past I was so thristy at all times I easily drank 16 oz. every 2-3 hours day & night. You can imagine how many trips to the bathroom I was making 24/7. But I lost that excessive thirst along the way. Another good reminder I still need to work at drinking more water is I noticed my urine is no longer colorless. Also I seem to sweat a lot .... was thinking it is hot flashes via menopause but on NACi it has increased. Perhaps it is part of the reaction I am experiencing to killing some the "little monsters" EBi's.
I must say I really like the NAC response I am having. That sounds crazy. But let me finish by saying I think I feel some real healing going on already. The symptoms are sure pesky but at the same time I am feeling more wellness occuring too. This gives me much HOPE I am on the right track.
Fibromyalgiai - dx 2002. Treatments: Mega supplementsi 2002-04. MP 2004-08. 4/19-22/08 - NAC 1x 600 mg. q48h - NAC cold/flu - almost an immediate response. No abxi. Benicar 40 mg. q12h. Heparin sodium BID 0.5cc x2.
___________________________________________________________
FM dx 2002 (sinusitis-rhinitis, dry eyes, bronchitis, cardiac, shoulder, liver, gallbladder issues) Started NACi: 4/19 (2400 mg daily 7/21) Start list supplementsi + Iodoral 12.5 mg. daily: 6/19 FIRi sauna, 100 mg Minoi 9/4.
MM, About your "hope"
MM,
About your "hope" comment...
I feel the same way lately. There seems to be an adjustment curve each time I make a new change like adding NACi, supplementsi like a multi vite, add more sun, etc. First, I feel more fluish and sluggish and FMSi achy but then, it levels out a bit and then it feels like time to add something but first I can feel the healing and the difference now.
Yes, it gives me hope and confidence I'm on the right track.
I'm sleeping less again, more like a normal person without collapsing and I'm getting a long list of springtime "honey dos" done before the heat of hell arrives here in the desert. It's so wonderful to go out and tan and know it's therapeutic now.
I watched THIS VIDEO LINK Red provided (thanks Red) from Dr Holick. I highly recommend it when you have about 45 mins to watch/listen or you can pause it and break it up. It was very inspiring and insightful along with the iodine book by Dr Brownstein and "The Potbelly Syndrome" that was also recommended here. David Wheldoni had written a book review HERE.
Lots of questions that weren't answered before for me on how/why we are sick were answered in those places for me and NOW I feel I'm on the right track as well.
BTW, I looked at some lab tests mom had from 2006 and her hemoglobin was has and hematocrit was high normal. I think that explains alot of her sun sensitivity which I learned at this site about dx'ing secondary porphyriai.
MP for 3 1/2 yrs. NAC 1200 mg/2x day, Iodoral 25 mg, myco+ I (still) want my life back! CFIDSi/FMS, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addison's
When I change what I believe I change what I do
___________________________________________________________
NACi 2.4g, Zithi 250mg/MWF, minoi 200mg, Tinii 1g/day pulses, Iodoral 25mg, Supps, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addisons
Don't believe everything you think!MM, welcome to the CAPi!
MM,
welcome to the CAPi! These sx likely will pass, they could come again, go away & return yet again. These are all good signs. If you haven't started, you might want to boost the anti toxin treatments to help you along.
Blessings
CFIDSi/ME 26yrs, FMSi,
IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#9 750mg 5.5 day, 4-25-8___________________________________________________________
CFIDSi/ME 32 yrs, FMSi,
IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#15 750 mg X 5 days 11-1-08Hey Reenie ... I just
Hey Reenie ... I just watched the vit. D vid. Pretty amazing! Yikes .... to think my 25(OH)D is immeasurable makes me very nervous now. What have I done to myself? A bit concerned with dropping large doses though and slam dunking my system like what happened pre-MPi causing me to think it was the problem instead of part of the solution.
Which brings me to point out ... I understand his findings are based on science but the way Dr. Michael Holick talks vit. D is "the answer" to all that ails us. That makes me nervous too. Anything extreme has a way of sending up red flags these days. He he he. You understand. Burned once ... learn a lesson ... burned twice... If you take what he says literally my FMSi will be cured by taking vit. D. Now where did I hear that before? Oh, yeh... 4 yrs. ago when my naturopath told me that. LOL Not to discount the value of vit. D but if that is all I need then why in the world do I need NACi & CAPi's? Just take mega doses of D ... save time and money and be well again. Don't take offense .... I learned a lot about vit. D listening to him.
Speaking of burn .... I have always worn massive sunscreen so I won't burn my fair skin. Living in the north I dare say I seldom sunbath as it is cool and windy here even during the summer most days. We seldom wear shorts let alone bathing suits. But I do love our moderate climate and would die in your desert. I had a couple sunny afternoons in two weeks time so I did run out and bare my legs for 15 min. I am trying to form a new habit. <wink>
This pot belly syndrome is very interesting to me. Metabolic syndrome runs in our family & I assume it is what is meant by the title of the book. I read the review by DW and understand it also addresses the infection aspect of it. I should order a copy and share it with my family. Like your mom my folks have been suffering from various disorders very much along the lines of Cpni induced secondary porphyriai. I don't know that I can help them much now though. Mom is sitting on a time bomb but scared to do anything about it. I understand she is between a rock and a hard place so either way she decides is most likely the same conclusion and it is her choice to make. I am sure you have the same frustration with your Mom's situation.
Yes, it is most refreshing to actually feel some healing instead of the constant spiraling down into the abyss of torment. I can handle the short trips I just no longer can handle the ones that last a couple of years. <wink> It is a great benefit to the body to have detoxifying measures especially when your liver & gallbladder have been giving you fits.
Oh ... on that note... in the vid Dr. MH talked about an experiment he did for psoriasis using a vit. D cream. The guy in the vid showed his arms and the placebo arm was red with the raised rash but the arm he used the vit. D cream on was smooth as a baby butt and no redness. Did you ever think of trying vit. D topical cream on the areas you have had that trouble? I think if it were me I would try it even if I had to make my own. He he. The relief would be worth it. Thinking my scalp sores would benefit.
Since I have been on the NAC my sun sensitivity level has significantly decreased. Perhaps I have killed enough EB's already to make a difference? The brain fog is slowly getting less as well. Yay!
Fibromyalgia - dx 2002. Treatments: Mega supplementsi 2002-04. MP 2004-08. 4/19-22/08 - NAC 1x 600 mg. q48h - NAC cold/flu - almost an immediate response. No abxi. Benicar 40 mg. q12h. Heparin sodium BID 0.5cc x2.
___________________________________________________________
FM dx 2002 (sinusitis-rhinitis, dry eyes, bronchitis, cardiac, shoulder, liver, gallbladder issues) Started NACi: 4/19 (2400 mg daily 7/21) Start list supplementsi + Iodoral 12.5 mg. daily: 6/19 FIRi sauna, 100 mg Minoi 9/4.
Thank you again Ruthless1
Thank you again Ruthless1 for your friendly welcome to your CAPi world. I don't mind the see saw action of getting well. Like I was telling Reenie ... after the trip I was just on this one should be pleasant. I just had the worst two years of my life so anything should be an improvement. LOL
I am taking 1-2 charcoal capsules during the night which works for me. Before bed I drink the Emergen-C too. In the day I suck on a glucose tablet if needed and am amazed over how it helps. Whodda thunk it? I am taking it slow and steady as she goes so haven't needed too much aid. Not wanting to go into any heavy torture as I am on a break. Trying to maintain a comfortable level for now. <wink> Am taking some antioxidanti sups and more on order. Should be here the end of the week. The Vitacost is a lot slower in shipping them then the iHerb website was. So I think I'm good.
Blessing in return
Fibromyalgiai - dx 2002. Treatments: Mega supplementsi 2002-04. MP 2004-08. 4/19-22/08 - NACi 1x 600 mg. q48h - NAC cold/flu - almost an immediate response. No abxi. Benicar 40 mg. q12h. Heparin sodium BID 0.5cc x2.
___________________________________________________________
FM dx 2002 (sinusitis-rhinitis, dry eyes, bronchitis, cardiac, shoulder, liver, gallbladder issues) Started NACi: 4/19 (2400 mg daily 7/21) Start list supplementsi + Iodoral 12.5 mg. daily: 6/19 FIRi sauna, 100 mg Minoi 9/4.
Hi Miying and Reenie, Here
Hi Miying and Reenie,
Here is another great video on Vit D3. This one is from Dr Vieth of Mount Sinai, Toronto (who just mentioned in an article that he has taken 8000 IU of Vit D3 personally for years btw):
Prospects for Vitamin D Nutrition by Dr. Reinhold Vieth
Enjoy...
On Combined Antibiotic Protocol for Cpni in Rosaceai 01/06 - 07/07, On Vit D3 + NACi since 07/07 and daily FIRi Sauna since 08/07
___________________________________________________________
Treatment for Rosaceai
MM, About the D for
MM,
About the D for psoriasis... I'm one step ahead of you... they already make an rx D3 cream called Dovonex which I've been applying.
The large lesions I had before beginning to get some reaction due to increase in bug kill I believe, did almost completely clear, but have lots of new little spots, almost like a rash.
I have to get rid of the cause of the inflammationi which the CAPi ought to do in order to quit breaking out.
MP for 3 1/2 yrs. NACi 1200 mg/2x day, Iodoral 25 mg, myco+ I (still) want my life back! CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addison's
When I change what I believe I change what I do
___________________________________________________________
NACi 2.4g, Zithi 250mg/MWF, minoi 200mg, Tinii 1g/day pulses, Iodoral 25mg, Supps, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addisons
Don't believe everything you think!