Cpnhelp.org - Chlamydia Pneumoniae Treatment

Lee,

You're not comparing apples to apples here. Minocin is brand name minocycline and Doryx is brand name doxycycline. Maybe you might want to try the generic minocycline? I used generic mino for several years while on the MP and am planning to use it again on the CAPi. I asked Dr Stratton about it and he said either was fine but doxy is cheaper mainly.

MP for 3 1/2 yrs. NACi 1200 mg/2x day, Iodoral 25 mg, myco+ I (still) want my life back! CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addison's

When I change what I believe I change what I do

___________________________________________________________

NACi 2400 mg, Zithi 250mg/MWF, minoi 100mg/BID, Tinii 500mg/BID pulses, Iodoral 25mg, Supps, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addisons

Don't believe everything you think!  

I have been on generic minocin and it did not work as well either. I have been on full cpni protocol for 2 1/2 years and was just starting to see very good improvement. There must be a reason why the patent has it on the preferred list. I find it odd that when I switched I started back sliding. zero negative sjogren's diagnosed 2/03, 200mg doryx daily, mwf zithromax, flagyli every 3 weeks.

___________________________________________________________
zero negative sjogren's diagnosed 2/03, 200mg minocin daily, biaxin,plaquinel mwf, flagyli every 3 weeks.

I would like to read the "Vanderbilt Patent" if anyone has a link for it. 

I didn't realize there was an additional protocol and patent so would like to read if someone would provide a link for it.  I'm not sure what exactly I'm looking for online as I thought I had already seen and read the Stratton Protocol and patent which uses doxyi and Zithi. TIA

MPi for 3 1/2 yrs. NACi 1200 mg/2x day, Iodoral 25 mg, myco+ I (still) want my life back! CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addison's

When I change what I believe I change what I do

___________________________________________________________

NACi 2400 mg, Zithi 250mg/MWF, minoi 100mg/BID, Tinii 500mg/BID pulses, Iodoral 25mg, Supps, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addisons

Don't believe everything you think!  

Reenie,  Check out the "Links" tab at the top of the page.

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi).  CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity. 

___________________________________________________________

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi).  CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity. 

  I  also have been on  minomycin with no adverse effects but i recently swapped to the generic and am now trying to hunt down the cause for an

unwelcome new symptom.Its interesting to hear of others experiences.

lou-d(Adelaide ,S.A.)

CAPi since dec 2007   about to start 4th flagyll pulse.MSi .diagnosed 1995.

___________________________________________________________
l de la

Joyce,

I've read the Stratton Patent and the links on all of the tabs several times, thanks, but I don't see anything labeled "Vanderbilt Patent" as was mentioned in this blog. 

Also, from talking with Dr Stratton as well as reading all of the charts and graphs comparing protocolsi, the "drug of choice" as Lee called it says doxyi and that's even what Dr Stratton had said on the phone to me himself.  

So where specifically does it list the brand name of Minocin?  Would you please be a little more specific?  TIA

 

MP for 3 1/2 yrs. NACi 1200 mg/2x day, Iodoral 25 mg, myco+ I (still) want my life back! CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addison's

When I change what I believe I change what I do

___________________________________________________________

NACi 2400 mg, Zithi 250mg/MWF, minoi 100mg/BID, Tinii 500mg/BID pulses, Iodoral 25mg, Supps, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addisons

Don't believe everything you think!  

Are not the Vanderbilt/Stratton Protocol AND patent authored by Drs. Stratton, Sriram, et al? (I think the original members here tend to use the terms interchangeably. Sounds like you've already read it, Reenie.)

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

___________________________________________________________

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

http://www.patentstorm.us/patents/6884784-fulltext.html zero negative sjogren's diagnosed 2/03, 200mg doryx daily, mwf zithromax, flagyli every 3 weeks.

___________________________________________________________
zero negative sjogren's diagnosed 2/03, 200mg minocin daily, biaxin,plaquinel mwf, flagyli every 3 weeks.

Reenie,  It seems that you are asking me to do your investigational work for you.  No thanks; I have my own investigational projects, and finding what you seek is a project.  Perhaps it's time to remind any newcomers that no user associated with this site receives a paycheck---that includes Jim, Michele, Marie, DW, et al.  I think bleu gets paid for doing programming/IT work occasionally, and he should get paid for it.  I'm not rapping your knuckles here, just hoping to influence your thinking and expectations a bit.

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi).  CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity. 

___________________________________________________________

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi).  CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity. 

Joyce,

I started to send you a pm but I thought it best to publicly respond under the circumstances. (I don't want anyone else reading this site to feel intimidated and afraid to ask for info or help. This site doesn't seem like that sort of a place.)

First off, I am not asking you or anyone else to do my investigative work for me. I can manage that myself and have done so, thank you very much but I have been asking for some clarity from the folks in this thread and I think they are trying to help with that and I appreciate that very much.

As for reading over the links and info here, it is clear to me that there is some misunderstanding somewhere (and I don't see it's mine) about what drugs are being used mainly in the patent if we are referring to the patent here online labeled as the "Stratton Patent."

As Mac says, I believe the names Vanderbilt and Stratton are used interchangeably and I wanted to be sure I was getting accurate info and not assuming this.

I've spent hundreds of online hours literally, researching Vit D papers, antibioticsi protcols and reading the 95 page Stratton Patent TWICE in its entirety and can not find the brand name minocin used as the basis for CPn treatment so when Lee referred to "the original Vanderbilt Patent" using minocin rather than doxyi or even the generic form of mino, I simply wanted to clarify where he was obtaining this info so I could read it for myself as it's different than ALL of the references for CAPi I can find on this site and other links.

I still don't see any place where the brand name minocin is being used/suggested. Is this info correct? (I just want to know!) This is what started this whole big long drawn out discussion... <sigh>

So, with that said now, please don't jump to conclusions about me as what you consider a "newbie." Not everyone that comes along in this site will be asking for help but may have something to offer others and to the site and can help out as I've done for the past several years on the MP site answering questions too for other suffering patients who are not as pc literate and may have trouble navigating the info.

I feel I have alot to offer to this site and other newbies looking for help from my personal experiences even prior and as I get my feet wet here. I plan to be here for a really long time and so I hope we can all be supportive and sharing and caring to one another as is much needed while working towards wellness.

MP for 3 1/2 yrs. NACi 1200 mg/2x day, Iodoral 25 mg, myco+ I (still) want my life back! CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addison's

When I change what I believe I change what I do

___________________________________________________________

NACi 2400 mg, Zithi 250mg/MWF, minoi 100mg/BID, Tinii 500mg/BID pulses, Iodoral 25mg, Supps, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addisons

Don't believe everything you think!  

Reenie, we don't differentiate between branded/unbranded/various brands of antibioticsi on this site. We use brand names/generic names interchangably. E.g. most people use the brand name "flagyl" insted of the generic "metronidazolei", yet most of us are taking a generic metronidazole.

The brand name "Minocin" isn't mentioned in the Stratton patent. "Minocycline" is mentioned 17 times though.

People use brand names usually because they are easier to type/remember/say. 

CFSi. Started CAPi 03-07. Currently: Roxi 600mg + Doxyi 200mg + Rifamp 300mg . 13 Pulses done. Sauna every other day. D 7200IU

___________________________________________________________
Hunter: Don't think - experiment

Lee,

Thanks for the link.  As I scanned it, I still don't see anywhere that it's saying specifically to use the brand name minocin. 

Is this something your Dr suggested?  Obviously from your experiences, it's noteworthy of how the different tetracyclines and whether brand name or generic affects some folks and it's good to make note, IMOi for anyone struggling or not getting the results they feel they ought to be from the CAPi.

I mentioned earlier that I'm planning on using generic mino mainly due to some "stories" I've heard about people having more light sensitivity issues from doxyi (which may not be from the drug but from treating the illness) and how I feel more comfortable with my past experiences from mino.  

OTOH, I've recently talked with another patient beginning the CAP and has been on mino for the past couple of years while on the MPi so her Dr suggested switching to doxy due to being on mino already for quite some time.  

So, in a nut shell... I think it's useful to decipher how one of the base meds affects various individuals, just like the batricidals and various supplementsi. 

 

MP for 3 1/2 yrs. NACi 1200 mg/2x day, Iodoral 25 mg, myco+ I (still) want my life back! CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addison's

When I change what I believe I change what I do

___________________________________________________________

NACi 2400 mg, Zithi 250mg/MWF, minoi 100mg/BID, Tinii 500mg/BID pulses, Iodoral 25mg, Supps, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addisons

Don't believe everything you think!  

Garcia,

Thanks for clearing that up. 

MPi for 3 1/2 yrs. NACi 1200 mg/2x day, Iodoral 25 mg, myco+ I (still) want my life back! CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addison's

When I change what I believe I change what I do

___________________________________________________________

NACi 2400 mg, Zithi 250mg/MWF, minoi 100mg/BID, Tinii 500mg/BID pulses, Iodoral 25mg, Supps, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addisons

Don't believe everything you think!  

Reenie, Off topic and in response to your comments to Joyce, and hers to you... Please, if you haven't, read JimK's post 'New Folks, help us out, please'. While you may have already read the linked info he lists there, the POINT of the post is my point here today. Lately, we've been absolutely slammed with new members. The number of new posters is kind of staggering. While this is a good thing (a really good thing), it's also taxing on the established members here, ALL of whom have been extraordinarily helpful and generous of spirit and precious time with those coming aboard these past three years. It's the driving force and the reason Michele has been burning the midnight oil trying to put together the 'Getting Started' pages. What has been difficult, of late, is the sheer number of people all asking the same questions, which we've all been answering repeatedly, repeatedly, yet without fail. Several people here, like Joyce, are giving time and effort to new posters who are unaware that these folks are also fighting their own brutal fight, either for themselves or for their loved ones (in Joyce' case, both), and have to sandwich their OWN personal research time into days filled with jobs, their own health issues and then, on top of it, caregiver roles for their loved ones with cpni. When someone on the board directs you/anyone to a search or a general area, it's because they don't have time or the wherewithal, for whatever reason, to do it for you. A general answer with directions on where to hunt for the answer may be all that's available to them, but it's a start, rather than leaving the questioner high and dry. I do this myself frequently. I see a post, I point the person in the same direction I myself would have to go hunt for it in order to answer them, and I send them there. Why? Because often I am answering at work and can't afford to risk my job by doing the hunt for them, but I can show them how to do it themselves. 'Teach a man to fish' instead of feeding him fish, comes to mind. Sometimes, it's the best we can do under the circumstances. I think Garcia has answered your question about meds, so I won't readdress it.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

___________________________________________________________

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Minocin is not mentioned. However minocycline is mentioned as the perferred drug choice. Brand name works better for ME, having done both. The question I am having is ...if minocycline is the preferred drug why is doxyi used here instead? There is an awful lot of evidence that minocin or minocycline gets into the tissues better that doxy because of it smaller molecule size. I just was looking for other peoples responsed that have done both. I am back sliding signifigantly on doryx and plan on going back on the minocin. zero negative sjogren's diagnosed 2/03, 200mg doryx daily, mwf zithromax, flagyli every 3 weeks.

___________________________________________________________
zero negative sjogren's diagnosed 2/03, 200mg minocin daily, biaxin,plaquinel mwf, flagyli every 3 weeks.

I've used both doxyi & minoi, and I'd seriously consider switching back to mino if it wasn't so darn expensive. Its more expensive than any other abxi I've tried, and unlike the others shopping around doesn't get you anything much cheaper. 

I think both drugs are good, but have differing effects. Mino seemed to have good CNSi penetration. 

Although in this protocol we don't distinguish between brands, in other protocolsi (e.g. Road back) they claim that minocycline brands do seem to matter. This page has more info for anyone interested. 

CFSi. Started CAPi 03-07. Currently: Roxi 600mg + Doxy 200mg + Rifamp 300mg . 13 Pulses done. Sauna every other day. D 7200IU

___________________________________________________________
Hunter: Don't think - experiment