Cpnhelp.org

Mary Ann,

We know that heavy metals are bad for us, and that several of us have undergone or are undergoing chelation.  I hope that they will come and comment.  I believe that may well be part or most of your problem, but that is only based on the discussions here and from a few friends over the years.  It certainly will be a good idea to test you and I would bet you are elevated.  Best luck.

Rica 

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3/9 Symptoms returning. Began 5 abxⁱ protocol 5/9 Rifampin 600, Amoxicillinⁱ 1000, Doxyⁱ 200, MWF Azith 250, flagylⁱ 1000. Caffeine pills with AM abxⁱ Began Sept 04 PPMSⁱ EDSSⁱ 6.7 Now good days EDSS 1

Mary Ann, my recent post on Mark Hyman, MD's book

http://www.cpnhelp.org/seven_keys_utrawellness_b

begins with his personal story which includes Mercury toxicity.     Louise

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6-07WheldonCAP CFS20+yr

(11-29-07 started Cholestyramine HS PRNⁱ x 7d for porphyrin+endotoxinsⁱ removal)

Check out Louise's Blog at; http://www.cpnhelp.org/blog/louise for the details of my treatment adventure!

Thanks Louise.  I just bought it at Amazon.com and it is on my Kindle now.  Anxious to start reading it. Hope he covers chelation!

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Mary Ann

SPMSⁱ. Dxⁱ 1991. EDSSⁱ 6.0, 6.5, 6.9; Weldon CAPⁱ. started 3/08.  All supps, NACⁱ, Doxyⁱ, Azrith, 13 flagy pulses, 5th tini pulse 11/13/09, 19 total pulses, no improvements, worsening condition 

Mary Ann, this IS an excellent book ... he does cover detoxification but doesn't go into a specific protocol per se.. (Chapters 10, and 26)  As well as stressing the importance of glutathione, food and herbs (some supplementsⁱ on page 374).

You may find this article interesting...... "The Klinghardt Neurotoxin Elimination Protocol" it was actually in a post  quite some time ago lauding the benefits of Chorella (which is excellent for metal toxicity) as well as Cilantro and some other information regarding detoxification.  

 

I, also, had my amalgams removed and immediately noticed a difference in how my jaws and face felt.   I was fortunate to have glutathione IV's afterwards.  I think you are wise to be tested to see what your levels are.    (I just received a urine metal toxicity test kit from my doctor a week ago and plan to take it soon.)

JeanneRoz

 

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JeanneRoz ~ DXⁱ'd w/ CPNⁱ 4/2007; 6/07 -"officially" dx'd w/CFIDSⁱ/FM; also: HHV6, EBVⁱ, IBSⁱ-C, 100 Doxyⁱ:BIDⁱ;250 AzithM/W/F; Tindamax Pulses, B12 shots, ERFA Dessicated Thyroid,Cortef, Iodoral 25 mg, Vit D-6,000 units, Supp's

Dr. P found that many of his patients have high levels of lead. I got tested and had high lead (though normal mercury.) I've started chelation with OSR, and my gums have turned gray-blue.

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minocycline, azithromycine, metronidazoleⁱ 2007-2009, chelation for lead poisoning, Lauricidin: muscle pain, insomnia, interstitial cystitisⁱ (almost well), sinus, dry eyes, stiff neck, veins, hypothyroid, TMJ, hip joints (all well now)

Mary Ann,

 I was tested for heavy metals with a urine test given to me by my doctor. It was a home test and the results came back with mercury and lead toxicity.

 Many of us are learning that heavy metals can compromise our treatment due to   mercury can lower WBC chemotaxis. This is known as lower killer cell function.

 Jeanne and Louise have given you a good resource with Dr. Hymen's book. I too, have purchased this book and have educated myself on infectionsⁱ and detox.

 It was explained to me by my doctor that some things are helpful in reducing these metals.  The use of chlorella, glutathione, seleniium, and alpha-lipoic acid. And using the sauna will also help metals to be evacuated via sweat.

 I hope this maybe helpful and blessings to better health.

 

 Bonnie

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started Wheldon capⁱ 4/21/08 for Cpnⁱ, CMV, EBVⁱ, CFSⁱ. Cap hold 4/09vascultis. Restart 9/09 with Dr.Powell. Nitro patch, restore gut, 6000 D3, supplementsⁱ, T3, , 1/13/10 biofilm protocol, 1/10 Amoxicillinⁱ 500mgs. 1/23 Azith. MWF. Chelation for heavy metal

You may want to look into OSR. It is a sulphur compound that raises glutathione levels which releases heavy metals from the body. Your doctor will have to order it for you as they are not yet selling it to the public. Go easy. I took 100mgs a day for a week and got slammed by muscle aches, headaches,stinky sweat and urine and just generally feeling awfulⁱ. I can now take it without these side effects and it gives me a wonderful increase in energy.

Beware that it can stimulate yeast growth. My doctor recommends molybdenum picolinate twice a day to counteract this.

Here is the web site:

https://www.ctiscience.com/CTIScience/

Lauricidin also helps keep yeast in check, BTW.

You are wise to consider chelation,

Raven

 

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Feeling 95% well-going for 100. Still testing + for Cpnⁱ. CAPⁱ since 8-05 for Cpn/Mycoplasma P.for MSⁱ and/or CFSⁱ. Also EBVⁱ and HHV6. Amoxy,Doxyⁱ, Azith, Tiniⁱ pulses. NACⁱ, Iodoral, T3, BHRT, MethyB12 injections, Nitro patch,

Please tell me some more; I can't go into my dr. and ask him to order something that I don't know anything about.  Why did you take it?  Is this considered something to be used for chelation. How did you find out about it??  What kind of dr do you have, etc.  My dr. is a GP and a close family friend.  I live in an area where there aren't many drs.  And he is a good dr and friend!  From your signature, it looks like you have well on CAPⁱ although it looks like you have have gone beyond the norm.  THANKS    BTW, I'm anticipating that my dr will not be receptive to idea of mercury poisoning and chelation.

 

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Mary Ann

SPMSⁱ. Dxⁱ 1991. EDSSⁱ 6.0, 6.5, 6.9; Weldon CAPⁱ. started 3/08.  All supps, NACⁱ, Doxyⁱ, Azrith, 13 flagy pulses, 5th tini pulse 11/13/09, 19 total pulses, no improvements, worsening condition 

Can some one post what lab or where the test kit is obtained and processed so Mary Ann can bring that info to her MD as a first step? 

You can take it one step at a time Mary Ann.  First establish if and what heavy metals you may have in your body. 

Then if the test comes back postive, you can approach the step of how to lower your load and the use of a chelation substance and procedure. 

This OSR seems to be something fairly recent. 

Perhaps your GP can consult with Dr P, it has been suggested to me as a possibility, a bit like folks whose MDs consulting with Dr S.   

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6-07WheldonCAP CFS20+yr

(11-29-07 started Cholestyramine HS PRNⁱ x 7d for porphyrin+endotoxinsⁱ removal)

Check out Louise's Blog at; http://www.cpnhelp.org/blog/louise for the details of my treatment adventure!

There is a list of medical practitioners on the CtiScience site that are using OSR. https://www.ctiscience.com/CTIScience/FindDoctor.do

If you do a web search for OSR Chelation, you will find some message boards. Also a Yahoo group. You can follow OSR on Twitter:

http://twitter.com/OSR1

As I said in the previous post OSR is a sulphur compound that raises glutathione levels which releases heavy metals from the body. It is not being sold as a chelator although it does this. As it is a new supplement, I would proceed with caution. There is not much history to it in terms of use.

And be aware there is a lot of controversy over the whole heavy metal chelation thing. Mostly in the autism community at this point. Not everyone sees the value in it.

Hope this helps,

Raven

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Feeling 95% well-going for 100. Still testing + for Cpnⁱ. CAPⁱ since 8-05 for Cpn/Mycoplasma P.for MSⁱ and/or CFSⁱ. Also EBVⁱ and HHV6. Amoxy,Doxyⁱ, Azith, Tiniⁱ pulses. NACⁱ, Iodoral, T3, BHRT, MethyB12 injections, Nitro patch,

Found this interview with Boyd Haley, inventor of OSR:

http://www.facebook.com/topic.php?uid=37224417547&topic=6279

Raven

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Feeling 95% well-going for 100. Still testing + for Cpnⁱ. CAPⁱ since 8-05 for Cpn/Mycoplasma P.for MSⁱ and/or CFSⁱ. Also EBVⁱ and HHV6. Amoxy,Doxyⁱ, Azith, Tiniⁱ pulses. NACⁱ, Iodoral, T3, BHRT, MethyB12 injections, Nitro patch,

As ever Raven, you are a wealth of background information.  The heavy metal debate as you know is not new and still rages actively.   A dentist that my husband recently saw recently gave him the there is not harm in filling teeth with amalgams just last week! 

People need to be fully informed and have no available mercury in their teeth before encouraging it's mobilization in the body leading to elemination.   If you have mercury amalgams on board in quantity removing them all as MaryAnn and I have and in quadrants over the course of 4 treatments is tedious not to mention the expense.   And even dental insurances are resistant to this approach.

I cannot say I felt any better with the amalgams removed, I continued to get sicker over the course of the next three years but my issue was CPnⁱ and until that infection was addressed, I certainly would have continued on the slippery downward slope to ??????.   Thankfully I began antibiotic treatment and I guess with my 40 year old amalgams history I responded to CAPⁱ.   I did have them removed under oxygen and high dose Vit C prep, rubber dams and agressive suctioning.  Both the dentist and the assistant had on biofiltration masks and I know for a fact that the dentist had been seeing the local chelating doctor  on a regular basis until he left the area as a personal precaution.   The dentist that did my work was given state awards for his work regarding his work with the mercury issue.

So self chelation can be a hazard if entered into without the proper knowledge and supportive medical/dental care as I believe Raven is cautioning.   Certainly this is why Dr. Hyman's book does not go into specifics, it is making a case not a how to manual regarding the mercury toxicity issue.    Still he give good information that can be presented to one's doctor to support testing and the need for treatment of this potential block to successful treatments.       Louise

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6-07WheldonCAP CFS20+yr

(11-29-07 started Cholestyramine HS PRNⁱ x 7d for porphyrin+endotoxinsⁱ removal)

Check out Louise's Blog at; http://www.cpnhelp.org/blog/louise for the details of my treatment adventure!

Raven's link to Dr. Haley's interview is well worth reading.

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minocycline, azithromycine, metronidazoleⁱ 2007-2009, chelation for lead poisoning, Lauricidin: muscle pain, insomnia, interstitial cystitisⁱ (almost well), sinus, dry eyes, stiff neck, veins, hypothyroid, TMJ, hip joints (all well now)

 Raven, do you think OSR would be enough to take heavy methals out of our bodies, or we should some other chelating agents like,chlorella, sipirulina,DMSA etc... What's your experience on that?

  yılmaz.

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KEREM'S TAKECARER;

Suspıcıon of MSⁱ (transient nystagmus during conjugated gaze on february 2008, blepharospazms and some optic complaints on february 2009-no plaque on MRI), Vit D3 started 400 IU and elevated to 2000 ıu ın 40 days.

The "Urine Toxic Metals" test kit I have in front of me is from Doctor's Data..... they provide the test kit (and components) as well as process the kit for the test results.  The fee is $60 (most insurance companies do not cover this test, but you would have to check with yours) .  I also had to fill a script for 1 (one) 250 mg. DMPS compounded capsule to take before the test.  This was $26.00 (for the one pill)

Physicans may call (US & Canada) 1-800-323-2784 or inquiries@doctorsdata.com.  Their website is:

www.doctorsdata.com

 Hope this helps.

JeanneRoz

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JeanneRoz ~ DXⁱ'd w/ CPNⁱ 4/2007; 6/07 -"officially" dx'd w/CFIDSⁱ/FM; also: HHV6, EBVⁱ, IBSⁱ-C, 100 Doxyⁱ:BIDⁱ;250 AzithM/W/F; Tindamax Pulses, B12 shots, ERFA Dessicated Thyroid,Cortef, Iodoral 25 mg, Vit D-6,000 units, Supp's

Yilmaz, I was eating a bunch of cilantro every day for weeks to help with metals but did not experience a real detox reaction until I took OSR. It is suggested that even when taking OSR, you use something like chlorella to help absorb toxins in the intestinal tract. As for how may are removed and from where--your guess is as good as mine. There just have been no tests done to measure this that I know of. I missed out on the initial metals challenge test because I got the OSR and began taking it without the test. So I will never know what my starting levels were. But I am glad I took it anyway. Raven

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Feeling 95% well-going for 100. Still testing + for Cpnⁱ. CAPⁱ since 8-05 for Cpn/Mycoplasma P.for MSⁱ and/or CFSⁱ. Also EBVⁱ and HHV6. Amoxy,Doxyⁱ, Azith, Tiniⁱ pulses. NACⁱ, Iodoral, T3, BHRT, MethyB12 injections, Nitro patch,

Dr P has me taking Garden of Life Detoxyfiber to absorb toxins so I don't reabsorb them.

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minocycline, azithromycine, metronidazoleⁱ 2007-2009, chelation for lead poisoning, Lauricidin: muscle pain, insomnia, interstitial cystitisⁱ (almost well), sinus, dry eyes, stiff neck, veins, hypothyroid, TMJ, hip joints (all well now)

Janice, is that supplement a powder form?  Do you take the standard dose according to the label?    I  had not heard about this product thanks for pointing it out as another possible detoxifier.  Next time I go to the healthfood store I will see if they have it and take a look at the label.  Our store often has promoliterature about G of L products.

Are you still taking the ursodiol while you are off your abxⁱ for now?    Louise

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6-07WheldonCAP CFS20+yr

(11-29-07 started Cholestyramine HS PRNⁱ x 7d for porphyrin+endotoxinsⁱ removal)

Check out Louise's Blog at; http://www.cpnhelp.org/blog/louise for the details of my treatment adventure!

Louise, that supplement is a powder that mixes into water. I am supposed to take Ursodiol. I am taking OSR, and although I think I have the big bulk of lead out, I still react a little to it. I react the most now to niacinⁱ, with next-morning vomitting. I used to only get redness with niacin.

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minocycline, azithromycine, metronidazoleⁱ 2007-2009, chelation for lead poisoning, Lauricidin: muscle pain, insomnia, interstitial cystitisⁱ (almost well), sinus, dry eyes, stiff neck, veins, hypothyroid, TMJ, hip joints (all well now)

Janice, is the Ursodiol from your understanding seen as part of the detoxification support supplementsⁱ?   If yes or no what is your understanding as to why you are supposed to be taking it?   Louise

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6-07WheldonCAP CFS20+yr

(11-29-07 started Cholestyramine HS PRNⁱ x 7d for porphyrin+endotoxinsⁱ removal)

Check out Louise's Blog at; http://www.cpnhelp.org/blog/louise for the details of my treatment adventure!

I understand the Ursodiol makes the liver lump its toxins out in the bile. Something like DetoxyFiber then absorbs those dumped toxins, and cholestyramine absorbs porphyrins, so they don't get reabsorbed and recirculated. Dr. P has me taking Ursodiol and Detoxyfiber. I think the DetoxyFiber must have helped me clear out the lead, because I no longer have symptoms from OSR.

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minocycline, azithromycine, metronidazoleⁱ 2007-2009, chelation for lead poisoning, Lauricidin: muscle pain, insomnia, interstitial cystitisⁱ (almost well), sinus, dry eyes, stiff neck, veins, hypothyroid, TMJ, hip joints (all well now)

Just wanted to add that I had 10 mercury fillings removed properly with dam etc...and then IV Vit C immediately after every time. Did not help me and I kind of regret doing it. My white fillings have cracked since then and they were very good quality. In some cases the mercury fillings were very deep and the dentist really never should have removed them because you can risk losing the tooth. I never felt better afterwards, even with proper detox, nor did my mercury readings (mildly elevated) change with before and after testing. One thing that did greatly improve my health (after a year or so of die-off) was doing the CAPⁱ antibioticsⁱ : ) Be well everyone.

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CAPⁱ since 11/06 for Cpnⁱ, Lyme, Bartonella, Babesia, Myco P, CMV, HHV-6 infectionsⁱ. Rifampin 600mg daily, Zithromax 500mg daily. NACⁱ 2250mg daily. All other supplementsⁱ. Now Bicillin LA 2.4 mil injection weekly.