Cpnhelp.org - Chlamydia Pneumoniae Treatment

The range of illness amongst us is large -- a full spectrum from functioning to bed-ridden so it's impossible to generalize. I work part-time and do little else. If I intend to go to the gym on the weekend for an hour, the other 23 are spent resting as are the day before and after. Or, alternatively, I can do one sedentary activity like going to a play. But this will change for me and it will change for you too. The lack of "a life" is temporary. It is intended to humble us and make us introspective and thankful for what we have. It is also intended to make us seem heroic to our friends. You see, illness can make you temporarily superior to the plebians in the rest of society. So buck up -- soon enough you will rejoin the ordinary masses.

 

PPMSi-misdiagnosed 2001-diagnosed 2006. Minocycline 7 mos.- resulting bronchitis 5 months. Talked Hopkins neuroi. into: HRT (estriol and progesterone as neural protectant re Voskuhl,UCLA).Wheldon CAPi 3/2/07 - 200 doxyi; azith MWF. 4 pulses. Rockville,Md. Loo

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PPMSi-misdiagnosed 2001-diagnosed 2006. Also maybe csf and Lyme -- who knows?! Minocycline 7 mos.- resulting bronchitis 5 months. Deserted by Hopkins neurology dept. and going to private md. out-of-plan. Wheldon CAPi 3/2/07 - 200 doxyi; azith MWF. 5 pulses.

qkcam - Funny you should ask. I gave somebody information on this site earlier today and I told him it is heavily medical in nature and very supportive, but there's little here as far as the day-to-day management of disability or the 'stuff' associated with it, like disability-related items (scooters, canes, neck cushions, extension poles for grabbing things, etc.) He told me what a relief that would be for him because he didn't want to go down that road and concentrate on 'coping mechanisms'. He just wanted to know how to go about getting better! Here and there you'll see someone offer a link or a picture of some item that helped them (mostly small exercise items) and you'll see tons of references to ways to cope with a current problem someone asks for help with. "I feel toxic" will net you responses about cleansing agents and epsom salt baths. "My muscles are spastic" will get you a quick recommendation for magnesium. I think the reason for this is we've attracted a contingent of Type A's, who won't even consider 'coping' with disease. All they want to hear about is how to cope with the temporary side-effects of getting better. Fast! As far as friendships. Friends stay. Relationships that don't survive when you need those people most... well, they aren't worth giving more than a moment's thought to. Now, a dog - a dog will love you always and never complain when you're too tired to throw a ball. And they'll always be immensely loving and grateful when you're NOT too tired to throw a ball. Cherish it. In the meantime, you've got us to share it with; the good, the bad, the stalls, the hurdles, the land-mines and the triumphs. And there'll be some of every one of those, and more. p>The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Illness has a way of sorting the wheat from the chaff... As Mac says how good is a relationship of any kind if the friends/lover are not there in the hard times.   Many of us more 'healthy' people live in relationships that just exist rather than flourish.   You get to know what you want when you have been in dark places and you won't settle for less once you get better.

You might not think it now, and trials are always uncomfortable when you are in them, but you will come out of this a better, richer person.   Once you get them back, you get to appreciate relationships, social events, activities, even work, if you know what it feels like to have them all taken away from you.

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Qkam, I saw your post yesterday.  I wondered what it would generate and decided to sit and wait.  I say yes to all that has been said and look forward to other's responses.  As life comes back appreciation is fuller, joy is brighter.  I sometimes wonder how I could have held some of the critical assumptions that I have previously made,and perhaps others like myself have made about people, situations and causation. 

For myself I believe that I am a kinder and more compassionate soul having had the experience that I have had.  I intend to live life as fully as possibly regardless of any residual incapacity that I may or may not end up with. 

This online community is different, those that stick around have ups and downs but at the core we all have hope now, in situations that seemed all too hopeless in the past.  Hope is not a promise, it is a perspective that allows for the potential of improvement.

Thanks for bringing up the topic, q.

Louise  

 CFS/ME.CPni positive.Bb positive.

6/24/07WheldonCAPstartedDoxy&NACi.

11/3/07Roxi150mgBIDadded.

11/22/07#2PulseTinidazole500mgBIDadded.

11/27/07CholestyraminePostPulse/PorphoriaSymptomsAdded.

1/15/08 Cont.Cholesty.atBedtimeForFatigue,Brainfog,mood.

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Louise  CFSi, CPN+/Bb+, Wheldon CAPi 6/07, Cholestyramine 1-2 pks @ HS for Porphoria & Endotoxinsi PRN, Doxy100daily, Roxi300BID, Tinii 500mgBID pulses, VitD3-4000IU, Magnascent Iodine,{S.O.D.3/QD[KAL Brand], +Pyruvate 3.75G +SAM-e For Energy support

thanks for all the wonderful responses..It gives me hope to read them.  like a lot of folks here I've been dealingwith this along time, only I didn't know it was this...   Glad to have gotten to the core.    and the past 6 years I've gotten used to not really being able to make plans to do much of anything outside of work.      sometimes it gets lonely and sometimes it doesn't.   I do look forward to getting better,  I've work to change my diet some and that helps..and the Corvalen helps, although I quit taking it because I was having too much brain energy to get enough sleep.   

Now after working and some light exericse at the gym at lunch today I am pooped.   I sit a computer all day so when I get home from work it is kinda the last thing I want to do..  but I wanted to take time to let you all know I appreciated your responses and I look forward to learning more and getting better.   thanks and happy healing for everying!
q

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EBVi;hvs6; CPNi igGi 1024; HEP C in remission;high lead and mercury counts; medically senstive; medication. 2.5mg lexpro 3 x a week; vital ingreidents multivitamin;nadh;was taking corvalen Dribose, but i coulnd't sleep although it helped with energy.<

Well said Nancy!

CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonini, GABA, tarazadone, triazolam, novocyclopine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 1-3-08 5th pulse 1 X 375 mg 4day

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CFIDSi/ME 32 yrs, FMSi, IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#14 1000 mg X 5 days 9-19-08

Hi q,

welcome!  Glad you are here with us to share...

Alot of good information has been spoken above & there is alot of wisdom & experience here.

For me, my life is learning;  I have learned I can't burn the candle at both ends without the support of my heavanly Father.  I prayed for answers, he lead me here & so I have told others, & so on & so on.

My husband & I married, sold a house & both of us moved our "houses" together in 2005.  Not long after that, the honeymoon bubble burst & I finally succumbed to my illnesses in the fall of 2005.  I have the chain of events documented as to the relevance I felt they had in my Blog.

Unlike what the CDC in the USA says, my illness onset can definitely be tracked as I generally fell apart in time.  A serious motor cycle accident (my fault) & 5 other vehicle accidents, countless sports injuries, concussions, broken bones etc. did not help the situation.  I didn't know I was really ill because I wasn't willing to stop, smell the roses & take stock of what I was doing to myself by just doing WAY TOOO MUCH, for WAY TOO LONG.  I suppose, in the back of my mind, I had hoped I was invincible.

Well, as we know, that doesn't last long now does it???  Invincible I am not.  Determined I am, for a much better life, taking care of my body; praising God every step of the way for the many improvements I have had since starting the protocol.

My husband & I are still together, divorce is not an option; we promised each other, that is that.  That is not to say it is easy; in fact; it is incredibly difficult.  He works long hours (NOv - 281) so he isn't around much.  I am pretty much on my own.  I am now sharing more with him as I know he has the bacteria in a chronic cough for the past 4 years.  He had a reaction to the NACi, which scared him & he stopped taking it.  He has seen some of my "reactions" due to die off toxins & he is a bit leary.  He packs a piece for his work so must have his faculties about him at all times on duty.  We are going to have to take it really slow with him.

I also have my dog, my friend Stanley, my constant shadow companion; always loving, always forgiving & just a pleasure to have around. 

Chronic Illness has its challenges in that you lose contact with friends.  It is just really hard for people to understand.  I have some core support- close friends & my peeps from our We are the Church Church & this site;

Keep us posted, day or night, usually someone from around the world is up & reading!

Blessings on your journey & I propose a toast "To our 4 legged friends" (I have to mentioned Abby the cat, she is abnormal with 3 legs)  CHEERS

CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonini, GABA, tarazadone, triazolam, novocyclopine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NAC 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 1-3-08 5th pulse 1 X 375 mg 4day

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CFIDSi/ME 32 yrs, FMSi, IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#14 1000 mg X 5 days 9-19-08

cheers to Abbey the 3 legged cat!!

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EBVi;hvs6; CPNi igGi 1024; HEP C in remission;high lead and mercury counts; medically senstive; medication. 2.5mg lexpro 3 x a week; vital ingreidents multivitamin;nadh;was taking corvalen Dribose, but i coulnd't sleep although it helped with energy.<