Cpnhelp.org - Chlamydia Pneumoniae Treatment

There is an interesting idea called the Wilsons Sydrome on the subject of sub optimal T3 levels and how to correct it. My T3 is very low and we tried cytomel but it made me grumpy so I gave up on it. The Wislons syndrome site suggests that my discomfort was because I needed a extened release type compunded capsule rather than taking it all at once in the AM. Interesting! My temp is still low, and I am considering trying the Wilson approach. My doc is very open to the T3 idea. marie On CAP since Sept '05 for MSi, RA, Asthmai, sciatica. EDSSi at start 5.5. Currently on: Doxyi 200, Azith 3x week, Tinii cont. since April '07, all supplementsi. "Color out side the lines!"

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On CAPi since Sept '05 for MSi, RAi, Asthmai, sciatica. EDSSi at start 5.5.(early cane) Now 6 (cane full time) Currently on: Doxyi 200, Azith 3x week, Tinii cont. over summer '07, back to pulses of flagyli winter '08 all supplementsi. "Color out side the lines

Daisy and Marie, about the issue of low T3---not many doctors know how to figure out the ratio of Free T3 to Reverse T3 from the lab tests. Cpni infection of the liver causes it to make too much reverse T3 that doesn't fit receptors in the body. I also had very low body temps. When I was tested my ratio was 18---the lowest my doctor had ever seen. (Normal is 4). I took Cytomel for a while and then was switched to time release compounded T3.I also had to monitor my body temp 3 times a day and track it on a chart between 11am and 5pm. Too much T3 can cause people with heart problems some added stimulation that is not good. Finding the correct amount takes some experimenting. I am more in the normal temp.range now but still low in T3 since my last test (have come up to 11).

I am now taking 15 mcgs in the morning before food. I get if from this pharmacy: http://www.medmade4you.com/

This one medication did wonders for me. I lost fatigue, began sleeping better, better appetite, lost fat and had more energy. VERY important to have this checked as it affects all body systems.

Raven

CAPi since 8-05 for Cpn and Mycoplasma P. for MS and/or CFSi

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98% well and going for 100! CAPi since 8-05 for Cpni and Mycoplasma P. for MSi and/or CFSi Also EBVi and HHV6 My grateful thanks to all the CAP docs!!!

Here's a link to the Wilson's treatment site:

http://www.wilsonssyndrome.com/index.html

And they have the temp chart you can download and track your temperatures.

http://www.wilsonssyndrome.com/templog.htm

Raven

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98% well and going for 100! CAPi since 8-05 for Cpni and Mycoplasma P. for MSi and/or CFSi Also EBVi and HHV6 My grateful thanks to all the CAP docs!!!

My body temp was always lower than normal' and my doctors said that it was okay, as it was MY normal to run cooler than most. I've only taken my temperature a couple of times after the first six months of antibioticsi treatment and I think it was 98degrees even. Not 'normal' but much closer to normal than during my entire lifetime. (If I could find a thermometer in construction purgatory here, I would check for you right now.) In truth, I'm sure it's more normalized, though, because I don't have my lifelong cold nose, toes and hands anymore.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Hi there Daisy,

I have Secondary Hypothyroidism picked up by one of my docs who has CFIDSi.  I took my temp for 2 weeks am, pm & noon; the lowest it was 95.7.  He said that for every degree your temp is below normal the body functions at about 25% of its optimum.  Anyway, he put me on Armour (bovine) thyroid to which I later developed a resistance to.  I also have petuitary dysfunction which of course affects the thyroid function.

Most doctors don't know how to read the t3/t4 for secondary/Hashimotos.  The CFIDSi doc in the USA wanted me on a plant based formula I can't get in Canada but I have a compounded formula T3/T4 ratio 1:4 of I think thyrosine.  My temp has been below normal at about 97.8.

Ruth

CFIDS/ME, FMSi, IBSi, EBVi, Cpni, Babesia, insomnia (sleep- melatonini, GABA, tarazadone, temazepam, novocyclopine, allergy formula, 2 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, Doxyi 200 mg day pm, Azith 250 mg M/W/Fday

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CFIDSi/ME 32 yrs, FMSi, IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#13 1240 mg X 3 days 8-7-08

At 98.6 the body's enzymes are coiled in the proper shape to function. Doctors see so many people with suboptimal temperature that they think it must be normal. Combined Antibiotic Protocol minocycline, azithromycin, metronidazolei for muscle pain, insomnia, interstitial cystitisi, sinus, CFSi, weak constricted voice, dry eyes, stiff neck, veins, thyroid.

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Combined Antibiotic Protocol minocycline, azithromycin, metronidazolei for muscle pain, insomnia, interstitial cystitisi, sinus, disphonia, dry eyes, stiff neck, veins, thyroid, TMJ.

I self-experimented with T3, which certainly requires knowing what you're doing, as potentially fatal cardiovascular events can be prompted in the suceptible - I was confident in my heart and circulatory system, as I'm 26, used to be a serious endurance competitor, and was in fact running up to 6 miles at the time. My resting heart rate was around 48, so it would've taken a lot to make me tachycardic.

I'd had T3 and T4 measured in the past (free or bound or both, not sure) and they were normal. I once had a TSH slightly over 2, which some radicals think is a bit too high, IIRC. 

Basically I started at a robust dose and rapidly went up on a manic kick and felt absolutely stellar... but despite continuing the T3 at full dose (and even moving up) I went completely back to baseline in 2 days. What a disappointment. Great while it lasted. Instead of getting dreary after eating, I could feel 6 zillion gleaming enzymes ripping the food into monomers with a stiff whir like blades in an expensive blender. Heat poured off my skin (subjectively), I had about 5 trillion thoughts about biology, did truckloads of work, and felt fraternal benedictions toward every random stranger I passed in the hall. Well, something in my thyroid signaling apparatus, or something downstream (perhaps catecholamine networks), re-regulated in a big hurry.

Well, Dennis Wilson says that, but honestly I think he's a crank, though both he and (perhaps more commonly) T3 may have been helpful to some people. Does he address whether any healthy people also have lower temperatures?

It appears to be quite common for people with a Cpni infection to have thyroid problems.  Ella does, at the moment there does not seem to be any improvement in her thyroid function, but her basal temperature is much more normal now than when she started the treatment 15 months ago.  

Michele (UK) GFAi: Wheldon CAP1st May 2006 . Daily Doxyi, Azi MWF, Flagyli at 400mg for 7 days prior to 5 day pulses at 1200mg three weeks cycle. Spokesperson for Ella, RRMSi Wheldon CAP 16th March 2006

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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

For about 10 years my body temp has never been much above 96.7 degrees.  I have been monitoring it since I started capi... funny thing is when I am feeling warm and take my temp -- it's now normal!  It's not stable at 98.6, but it's getting better. My thyroid levels are also getting better.    I, too, have been the Dr. Wilson Syndrome route and took Cytomel for a while, but it was a bit "too much" for me.  I do take Armour Thyroid (made from porcine (pig) thyroid).  This was the very first thryoid medication made and works well for me... my liver could not convert the synthetic T4 (Synthroid) -- I turned orange along with a host of other problems the doctors didn't believe...   

Jeanne ~Diagnosed 4/2007 w/ CPNi; also have HHV6, EBVi, ME/CFSi, FM.~ IBSi, kidney infectionsi; food allergies, hypothyroid (RAI for Graves in 1998)~ Adrenal issues (hypo)~ Doxyi 200 mg/day, started 125 mg Azith Mon/Wed on 7/23/07, all supplementsi + NACi

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JeanneRoz~CPNi diagnosed & started protocol  4/2007, also HHV6, EBVi.  CFIDSi/FM diagnosed: 6/07; 100mg/doxyi/BID ~ 250 mg AZITH M/W/F ~1st Tinii pulse 4/17/08- 1 250 mg. tab for 2 days.  3RD pulse 7/7/2008=500 mgTINI:4day

This does seem to be a common thing with chronic  infectionsi. One culprit is endotoxinsi from the bacteria, which suppress body temp. In fact, Dr. Powell uses next morning drops in body temp as a rough indicator of how much bacterial kill one is getting from prior day FIRi sauna sessions. Since part of the use of the sauna is to get your body into artificial fever (above normal temp) which optimizes immunei and enzyme systems, the morning after drop in temp from your basal level suggests endotoxini presence, i.e. it worked!

I too am low body temp (96.7) even with T3 and T4 supplement. I'd be in reptilian range without it. But I no longer get the constant cold and chills from endotoxins that were a constant companion even in summer: this from the CAPi rather than the thyroid replacement. 

CAP for Chlamydia pneumonia since 11/04. 25yrs CFSi & FMSi- Currently: 300mg INHi, 200 Doxycycline, 500mg MWF Azithromycin, 1000mg Tinii daily (Taking a break from continuous protocol)

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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3

After having been cold for so many years, I am definitely normal now and it is wonderful not to be shivering when the temperature drops below 75 to 80 degrees F. I remember the few times my temperature was taken in the course of whatever initiated the act, and some remarks about its being low, and my response that I was always cold. I have never it given much thought, but would appreciate any opinion whether they are connected. I did a blog at one point on being cold and it appears that many of us are affected.

 

Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 44 pulses NC USA

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Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 52 pulses LDNi Rifampin 8/08 again NC USA

Thanks for all the replys!  I appreciate everyone's time and comments!

Daisy-Caregiver- Balo's Concentric Sclerosis. Began CAPi 5/10/07. Doxyi 200 mg, AZI 250mg MWF, NACi 1800mg, 2 Scoops Lauricidin, Colloidal Silver, Novantrone, Prednisone and daily pound of supplementsi.

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Daisy - Husband on CAPi 5/07.  "When Going Thru Hell, Just Keep Going", Winston Churchill

Update to include my husband's body temperature is now routinely within the range of 97.8 to 98.7 F.  With typical of late being 98.3F.

Before his illness, when you touched his skin, hands, etc... he always felt like a furnace to me (but no fever).  At his worse during this illness, his lips almost were turning blue he was so cold with body temp of 95.xF. 

Now his skin feels more normal and furnace like - very scientific observation.

Seriously - stumbled upon some information in PubMed regarding borrelia preferring lower body temperature (one reason ticks are so attactive) because it keeps the DNA coils of the borrelia more tightly coiled and therefore more resistant to the human immunei system. 

What mechanism borrelia use to suppress body temperature to a level more favorable to their survival is highly theorized but researchers are definitely using temperature to work with the bacteria in the lab. 

Suppose it's possible the same could be true for other cell wall deficients such as CPNi and why so many here report a normalization of body temperature over time on therapy. 

It's probably in Dr. Strattons patent - every time I read it I am blown away by the thoroughness of the information.

No point to this post, I suppose other than observation.

^{Daisy - Husband on CAPi 5/07.   Roxyi, Diflucan round three 4-4, Rifampin, Bactrim DS, Mepron 4-6, Prednisone, Novantrone, Doxyi, Azithromycin, Flagyli, Minoi}

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Daisy - Husband on CAPi 5/07.  "When Going Thru Hell, Just Keep Going", Winston Churchill

i have low temp. since I've started the new protocol. Even other people noticed around me that i am too cold all the time since then...

I have one comment re: low temp. My temp is normal if I am completely inactive, I mean lying about, resting. If I start moving around a bit like a bit of light housework my temp goes DOWN, and if I go out for a walk and I take my temp immediately after my return before having a rest, my temp is real low = 34.5°C or 35°C (normal in Celsius is ( 37°). My TSH was borderline normal at around 2 and this was already happening. My TSH has recently gone up to 5 but I haven't taken my temp lately. Any comment on this low temp with activity returning to normal with rest? Another question is: can one buy Armour thyroid without a script online in the USA? Nelly (France-neuroLyme and ????)

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Nelly (France-neuroLyme and ????)

Nelly,

Temperature drop with exertion is typical in CFSi/CFIDSi

 Ron

On CAPi for CFS starting 01/06 (NE Ohio, USA)

Currently: doxyi & zithi -- continuous; metronidazolei -- 5 days on, 9 days off.

Get the research results you paid for: support Open Access

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Ron

On CAPi for CFSi starting 01/06 (NE Ohio, USA)

Currently: doxyi & zithi -- continuous; metronidazolei -- 5 days on, 9 days off.

Get the research results you paid for: support Open Access