Cpnhelp.org

Hi Willow

Nice to hear the creative juices are flowing again.   Untypically we are having very hot weather here too. (30degrees C+) and airconditioning is not something we have needed up to now.  As I said to Ella even us ordinary mortals find the heat difficult to deal with...

I've had a look at your beautiful cabochons, its difficult to choose between them.   I prefer silver to gold myself but I think that the red horn coral might look good with a gold setting, copper complex too though.

Nice to read your post, gives us all hope and encouragement.   

Michele:  on Wheldon protocol since 1st May 2006 for a variety of long standing ailments, also spokesperson for Ella started Wheldon protocol 17th March 2006 for RRMSⁱ

Sussex, UK

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Michèle (UK) GFAⁱ: Wheldon CAPⁱ 1st May 2006. Daily Doxyⁱ, Azi MWF, metroⁱ pulse.

Willow- nice to hear your pleasure for life, for creative pursuits, glistening through in your post. Also nice to hear about your improved typing, a great telltale of lowered inflam and increased coordination. 

Combined Antibiotic Protocol for Chlamydia pneumonia in Chronic Fatigue Syndromeⁱ & Fibromyalgiaⁱ- Currently: 150mg INHⁱ, Doxycycline/Zithromycin, Tinidazole pulses. Northern Ohio, USA

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CAPⁱ for Cpnⁱ 11/04. Dxⁱ: 25yrs CFSⁱ & FMSⁱ. Currently: 250 aithromycin mwf, doxycycline 100mg BIDⁱ, Tiniⁱ 1000mg/day pulses; Vit D2000 units, T4 & T3, 12mg Iodoral

Willow,

So glad you are feeling a little better - I like the red coral stone the best - send us more pictures when you have completed your work - so beautiful.

The weather here is bad too - 90-100, we were up north in MI these past few days and it was 10 degrees cooler by the lake - I was so thankful to be away.

Good news on typing.

On Wheldon protocol for MSⁱ since April, 2006.  doxyⁱ 200 mgs daily, zithromax 250 mgs 3x/ week , LDNⁱ 2004

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On Wheldon protocol for MSⁱ since April, 2006.  doxyⁱ 200 mgs daily, zithromax 250 mgs 3x/ week , Flagylⁱ Pulses start end Sept., LDNⁱ 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30. Ma

Willow,  It's wonderful that you are feeling well enough to type more and plan your lapidary projects.  Now, about the heat...go to http://msolutions.org as a good source for cooling vests.  Spotty couldn't work at his job (their A/C doesn't keep up well enough) or go anywhere in the summer if he didn't have his to rely on.  If you can swing it, I would also order extra cooling packs.  He uses the Phase Change type, but the Kool Max looks like a good alternative and costs less.  I'm not exaggerating---this makes a huge difference in our lives.  Last night when we left work the temp was 107, but thank goodness it had cooled down to 106 by the time we got home!  Even though we have A/C in the car, just the going out and coming in for any trip during the summer here is enough to cause heat-related MS problems.  It's like walking through a convection oven every time we go outside after about 9 a.m.  Also, the humidity here is much higher than out west in the dryer regions...that makes it alot worse.  Please do this for yourself as soon as possible.  A funny note on this...Spotty's vest is blue, and every time we go shopping the store's customers think he works there and ask him all sorts of questions and to do all sorts of things.

Cypriane~~~MS caregiveer and advocate - Dallas

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Joyce~caregiver-advocate in Dallas for Steve J (SPMSⁱ).  CAPⁱ since August 06, Cpnⁱ, Mpn, B. burgdorferi, systemic candidiasis, EBVⁱ, CMV & other herpes family viral infectionsⁱ, elevated heavy metals, gluten+casein sensitivity. 

Willow and Cypriane,

I have a cooling vest I can not live without and I got it here http://www.msaa.com/programs/cooling.html

for free.  I have to return it when I recover - they give them out to people that need them.  Its very nice.  They also sent me neck, arm, feet coolers but I only really use vest as it takes me so long to get all of it on and I look like I am going on a space mission.  I hope I remember to send it back when I recover as I had to ask my husband "who sent me that vest" as I could not remember.

 Everyone with MS should get one if they have problems with heat - I went to beach with mine on and I lasted 2 hours.

On Wheldon protocol for MS since April, 2006.  doxyⁱ 200 mgs daily, zithromax 250 mgs 3x/ week , LDNⁱ 2004

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On Wheldon protocol for MSⁱ since April, 2006.  doxyⁱ 200 mgs daily, zithromax 250 mgs 3x/ week , Flagylⁱ Pulses start end Sept., LDNⁱ 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30. Ma

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Aggressive SPMSⁱ, EDSSⁱ 9, on CAPⁱ since 2005. Doxyⁱ 100mg 2x/day, Azithro 250mg MWF, NACⁱ 2400mg/day, Metroⁱ 1250mg/day 5 days on, 10 days off, charcoal 1250mg/day during Metro pulses.

Absolutely Willow! these are beautiful sets. I am so very pleased that you have gotten over your challenging month and back into movement and healing again. You are an inspiration
Blessing
Marie
On CAPⁱ since Sept '05 for MSⁱ, RAⁱ, Asthmaⁱ, sciatica. EDSSⁱ at start 5.5.
"Color out side the lines!"

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On CAPⁱ since Sept '05 for MSⁱ, RAⁱ, Asthmaⁱ, sciatica. EDSSⁱ at start 5.5.(early cane) Now 6 (cane full time) Originally on: Doxyⁱ 200, Azith 3x week, Tiniⁱ cont. over summer '07, Revamp of protocol in Summer '08 by Stratton due to functional loss; clarithromy

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zero negative sjogren's diagnosed 2/03, 200mg minocin daily, biaxin,plaquinel mwf, flagylⁱ every 3 weeks.