Let's Twitch Again

I'm feeling a bit like a 1960s pop hit at the moment. Four weeks in on CAPi, two weeks on Zithi and all is going fine....... except for the twitch. It's my right eyelid and it's annoying. Actually, annoying isn't the half of it, it's driving me nuts.

I've had something like it before when I'm over tired but this is nothing to do with lack of sleep; since I've had the Melatonin">i I sleep like a log. I'm pretty sure this is to do with CAP. It's the same eye as I had the worst of the Nystagmus in before I was diagnosed with MSi.

It's bad enough that I have this constant flickering that won't stop even if I rub my eye but, worse, some chap over the shop on Thursday thought I was winking at him and kept winking back. I stood in the queue mulling over the options for some fun but eventually had to point out that I really wasn't doing it on purpose, at which point the poor guy wished the ground would open up and swallow him.

I have an important business meeting on Tuesday morning and I just can't sit there winking at the clients. They might think I'm offering services above and beyond their web site development.

I thought about double sided sticky tape but having discussed this with Other Half, we reckon that would result in developing a look of constant surprise in one eye which would be marginally worse than the winking.

So before I resort to going all Rock Star and wearing dark glasses, does anyone have any suggestions how I stop this?

 

Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.

NACi 2400mg. All supplementsi. Doxyi 200mg. Zith 250mg M/W/F.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAP 20th April 2008.

 

Comments

Maybe we should all develop

Maybe we should all develop a twitch so that each meeting starts off with a laugh...

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.

Mmmm, you could try the wink

Mmmm, you could try the wink or maybe the left handed lurch for a change. On particularly bad days I figure I can go with the.....

If I'm waving at you with this hand, don't panic, I'm not leaving. If I'm waving at you with this hand then I've had enough and I'm really out of here. Laughing

Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.

NACi 2400mg. All supplementsi. Doxyi 200mg. Zithi 250mg M/W/F.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April 2008.

Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.

NACi 2400mg. All supps. Doxyi 200mg. Zithi 250mg. Metroi 400mg.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April

Congrats, Andesine! The

Congrats, Andesine!

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

OK business meeting over.

OK business meeting over. Told them up front that due to some medication I was taking I had developed a twitch which made it look like I was winking at them. If they saw me winking with my right eye, it was purely unintentional. If I winked with my left eye then I meant it.

I then winked at them with both eyes one after the other. Laughing They all laughed, we got on with the meeting and I got the contract.

Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.

NACi 2400mg. All supplementsi. Doxyi 200mg. Zithi 250mg M/W/F.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April 2008.

Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.

NACi 2400mg. All supps. Doxyi 200mg. Zithi 250mg. Metroi 400mg.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April

By Tuesday only turmeric

By Tuesday only turmeric and acupuncture. Place to pierce shown on the web side. Used to have multiple sclerosisi, on the intermittent Wheldon protocol since March 2006, EDSSi 0 for over 4 years

Cured of multiple sclerosisi, stopped the Wheldon's protocol in Nov,2008. Use only LDNi.

You want me to stick needles

You want me to stick needles in myself!!!!

ARE YOU MAD!!!!!

Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.

NACi 2400mg. All supplementsi. Doxyi 200mg. Zithi 250mg M/W/F.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April 2008.

Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.

NACi 2400mg. All supps. Doxyi 200mg. Zithi 250mg. Metroi 400mg.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April

Acupuncture, Botox,

Acupuncture, Botox, surgery. http://www.clinicalanswers.nhs.uk/index.cfm?question=5689< Used to have multiple sclerosisi, on the intermittent Wheldon protocol since March 2006, EDSSi 0 for over 4 years

Cured of multiple sclerosisi, stopped the Wheldon's protocol in Nov,2008. Use only LDNi.

  By

 Surprised

By Tuesday?!!! 

Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.

NACi 2400mg. All supplementsi. Doxyi 200mg. Zithi 250mg M/W/F.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April 2008.

Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.

NACi 2400mg. All supps. Doxyi 200mg. Zithi 250mg. Metroi 400mg.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April

Thanks but already taking

Thanks but already taking 300mg B Complex.

Here's the list of what I take daily:

Vitamin C 1G

Vit E 800iu

Selenium 200 mcg

Omega 3 fish oil

Evening primrose oil 1G

Acetyl L-Carnitine 500mg

Alpha Lipoic acid">i 150mg

Ubiquinone (Coenzyme Q10) 200mg - (except I was actually taking 400mg so I changed it to one every other day. Will try going back to 400mg a day unless anyone thnks that's too much)

N-acetyl cysteine 2400mg

Vitamin Di - 4000iu

Vitamin B12 - 4000mcg several times a day

Turmeric - 400mg

B complex 300mg

Magnesium, 300mg

Calcium 500mg

Melatonin">i 1.5mg

Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.

NACi 2400mg. All supplementsi. Doxyi 200mg. Zithi 250mg M/W/F.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April 2008.

Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.

NACi 2400mg. All supps. Doxyi 200mg. Zithi 250mg. Metroi 400mg.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April

C  I take 5 gms day & up to

C  I take 5 gms day & up to 8 or 10 to help with toxins

N-acetyl cysteine 2400mg

Vitamin Di<i< - 4000iu

Vitamin B12 - 4000mcg several times a day I take 5000 mcg X5X a day

Turmeric - 400mg I take Curcumin 500 mg 2 X day

B complex 300mg  in order to have the recommended doses of all the B's I take them seperately instead of in 1 pill

Magnesium, 300mg  I take a gm a day

Calcium 500mg I take 1.5 gm a day

I used to get the eye twitch, but for say 4 hrs at a time & then it would subside & come again another day.

Having been in sales, I would go with Michele's patch look.  It is pretty hard to make good eye contact when one lid is bouncing all over the place & the other eye is good!

good luckCool

 

CFIDSi/ME 26yrs, FMSi, IBSi<, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#10 1000 mg 3 days & 750mg 2 days, 5-17-8

CFIDSi/ME, FMSi, MCS, IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplementsi+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyli/day-5 days<

Andesine, Thanks for the

Andesine, Thanks for the laugh out loud here! One of my subordinates at work decided to get a degree in Chinese medicine and for months walked around with needles sticking out of his hand, his forehead and who knows where else. It was far more disconcerting than an eye twitch.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Ewwwwww gross. Berkshire,

Ewwwwww gross.

Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.

NACi 2400mg. All supplementsi. Doxyi 200mg. Zithi 250mg M/W/F.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April 2008.

Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.

NACi 2400mg. All supps. Doxyi 200mg. Zithi 250mg. Metroi 400mg.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April

I take Turmeric as and when

I take Turmeric as and when I need it, I don't think that upping yours would do much/any harm and I remember (oooh memory working!) that Sarah said that she increased Coenzyme Q10 when she needed more energy.

I had the eye twitch many years ago, but that was when we were getting obscene phone calls so I would go with stress on that occasion. I got a police whistle to keep by the phone to blast his ears drums the next time he rang. That stopped the twitch... 

New Forest, UK. Progressive MSi dxi 12/06 LDNi 3/07 CAPi 6/07: Wheldon version. Pulses so far #10

speedbird

How about vitamin B complex

How about vitamin B complex 100 mg twice a day for few days? Used to have multiple sclerosisi, on the intermittent Wheldon protocol since March 2006, EDSSi 0 for over 4 years

Cured of multiple sclerosisi, stopped the Wheldon's protocol in Nov,2008. Use only LDNi.

LOL. An eye patch! I tried

LOL. An eye patch! I tried the Pirate look back in the 80s, it just does nothing for me. Laughing Ummmm think I might pass on that one Michele but thanks for the suggestion. I take Turmeric daily and I also use this as a good excuse to have curry whenever I can. Yumm.

I'll give the CQ10 increase a go. I was taking double the daily dose, by accident. I had the wrong strength capsules so I reduced them to one every other day. Not certain but the twitches may have coincided with that.

Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.

NACi 2400mg. All supplementsi. Doxyi 200mg. Zithi 250mg M/W/F.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAP 20th April 2008.

Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.

NACi 2400mg. All supps. Doxyi 200mg. Zithi 250mg. Metroi 400mg.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April

This is a common symptom of

This is a common symptom of early treatment, fasciculation, eye twitching, ear crackling, nose popping, maybe anti inflammatory stuff like curcumin might help, it will disappear in time, in the mean time you might like to wear an eye patch when you meet your clients, they might well feel sorry for you then instead of thinking you are making a pass at them.

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.

Bob, you weren't by any

Bob, you weren't by any chance in a shop in the UK on Thursday were you? Wink

Tina, thanks but I take Mg on a daily basis. I think I take the max dose.

Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.

NACi 2400mg. All supplementsi. Doxyi 200mg. Zithi 250mg M/W/F.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April 2008.

Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.

NACi 2400mg. All supps. Doxyi 200mg. Zithi 250mg. Metroi 400mg.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April

Not this time. But I'll be

Not this time. But I'll be lookin' for ya next time. Cool

Tennessee, USA - Bb positive w/neuroi involvement, suspected CPn
Doxyi/Samento for Bb 2005-2007
Started CAPi 4/19/08 - NACi 2400mg, Pyruvate 6g, Doxy 200mg, Zithro 250mg M/W/F

Tennessee, USA - Bb positive w/neuroi involvement, suspected CPni<
Doxyi/Samento for Bb 2005-2007
Started CAPi 4/19/08 - NACi 2400mg, Pyruvate 6g, Doxy 200mg, Zithro 250mg M/W/F, Metroi pulses @ 3x500mg

Whenever something went a

Whenever something went a little wonky for me, I always upped the CoQ10 and it helped tremendously. It can't hurt.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

 How about magnesium or

 How about magnesium or magnesium with GABA?

Tina-MSi 37 years;EDSSi 4.5   1/1/08 Wheldon CAPi; Azith 250mg 3 x a week; Doxyi 200mg daily, NACi 2000 mg daily, started Flagyli pulse 4/14/08.

 Tina-MSi 37 years;EDSSi 4.5   1/1/08 Wheldon CAPi; Azith 250mg 3 x a week; Doxyi 200mg daily, NACi 2000 mg daily, started Flagyli pulse 4/14/08.

 

Yeah...me too, 'cept mine is

Yeah...me too, 'cept mine is the left eye.

Tennessee, USA - Bb positive w/neuroi involvement, suspected CPni<
Doxyi/Samento for Bb 2005-2007
Started CAPi 4/19/08 - NACi 2400mg, Pyruvate 6g, Doxy 200mg, Zithro 250mg M/W/F, Metroi pulse

Tennessee, USA - Bb positive w/neuroi involvement, suspected CPni<
Doxyi/Samento for Bb 2005-2007
Started CAPi 4/19/08 - NACi 2400mg, Pyruvate 6g, Doxy 200mg, Zithro 250mg M/W/F, Metroi pulses @ 3x500mg