At last!

I haven't ever believed MSi is incurable, nor do I believe it's a stand-alone, simply definable disease, but what do I know? My neurologist had a, surprising, change of heart and , although British law says he could be struck-off if he prescribed so many ABXi, he intends to monitor my progress.

i'm only on day seven of Doxyi and , today I'm tired, although I don't blame MS or ABXi For that.  i've spent all se years trying  to convince others that i'm still a living being, prey to human frailties and strengths and don't intend to perpetuate the myth that everything is the fault of MS,  but yesterday my husband and I walked my gorgeous dog, which we do, nearly, every day, and I strode out like I haven't been able to do for years, which could be an immediate response to ABX or could be a psychosomatic  to hope!  Foot-drop happebed, but more slowly than usual  I won't count my chickens, I'm also very superstitious and won't tempt fate. If improvemen becomes apparent, I promise to donate to this wonderful site and spread the Wheldon word. As, I'm sure, my neurologist will also, after all, he's a dog-lover too!

Comments

Jane, I was just about to

Jane, I was just about to write to you to ask how you were getting on: Don't be disheartened if you find the initial striding out experience doessn't last because mine didn't.  However, I didn't end up any worse and from then onwards I only experienced a more gradual improvement, which has lasted.

Maybe your dog loving neurologist will become the first practising British neurologist to actually believe that MSi can be set off by a Cpni infection: mine could have done, but he wouldn't even look at my improved scans.  It's a shame that we didn't meet when we overlapped for a year at UCL, because he might have then seen my gradual slide downwards and then back up, which shouldn't have happened in his way of neurological thinking.....................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

BTW

Paul is very concerned that you might not realise all my typos are made be caus e I'm partially sighted, I did tell him the guide dog is a give away!

MSi symptoms began in 2001 DXi RRMSi in 2008, following an MRI, precipitated by some sight loss, Interferons, on and off, until 2012. New consultant prescribed chemo infusions, to slow progression.

I guessed that Jane! So will

I guessed that Jane! So will most people here..............Sarah 

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Thanks Sarah!

thank-you, Saeah.  I't's good to be  prepairedl  Now you've warned me, I won't be disheartened, but think of it as die-off, which must be more optimistic! I'vve always liked my neurologist and was surprised by his,   nitial,  response, but I hope he was just being careful.d My GP has surprised me with his negativity though! I'm fine with 'I don't know' as a response, but not with a blanket,  'No',which, I think, is your Neurologist's response! Thank God you had David! 

MSi symptoms began in 2001 DXi RRMSi in 2008, following an MRI, precipitated by some sight loss, Interferons, on and off, until 2012. New consultant prescribed chemo infusions, to slow progression.