Cpnhelp.org - Chlamydia Pneumoniae Treatment

Doxyi 100mg 2X's/day; Zithro 500mg MWF; Flagyli Pulses; NACi 2400mg; Testosterone 200mg; Armour thyroid 3 grains; Cortef 15mg; life extension vitamin/minerals

___________________________________________________________
Doxyi 100mg q12hr; Biaxin 500mg q12hr; Amoxicillini 500mg q12hr;  Armour 1 grain; T3;  Cortef 15mg; 4000 units Vitamin Di; Ursodiol; prescription enzymes; life extension vitamin/minerals

Keith, Oh, my gosh! Where to start!?! First, welcome! I'll answer a few and many more will come along to answer, too. Skin eruptions are nearly standard here at the beginning of treatment. Nothing to worry about there. Skin is your largest organ, so why wouldn't cpni toxins seep out through it if it's infected? Makes sense. Exhaustion may have zero to do with heart diseasei. Though, since arterial plagues often show cpn in them, you're doing yourself some good there, too, by undertaking antibiotic treatment. Most of us here have experienced that debilitating kind of exhaustion that makes you think you've lost your mind and not just your muscle tone! ;-) (That went away pretty early on for me, but I'm an MSer and your disease might manifest differently.) Several people here have done the chelation route. Watch, especially, for a post from Cypriane about this. Sounds like you're finally doing everything about as right as you can for yourself. And don't be surprised if you get a message from Michele asking you to privately provide your doctor's info for future (kept private and off the board) reference. Wow! Great to have you join us!

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

___________________________________________________________

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Hi Keith, I've sent you a private message explaining some of the vagueries of this site, and if you feel you can, please reply to it with the name and contact details of your doctor.   Please don't post it here unless you know he is happy to have his name associated publicly with this treatment.   We prefer the keep them off site.

Now for the questions:

-how long? - how long is a piece of string, not everybody's load is the same, but I would reckon on months rather than weeks.   I've been on the protocol close on two years and I still get skin erruptions although not as bad as in the first few months.   When you consider that Cpni is a vascular diseasei, it is not surprising that the skin is affected.   There are blood vessels to everypart of your skin so therefore there is probably Cpn too. 

-skin erruptions - very common, does get better.

-dilated pupils - could be a sign of some neurological involvement.   My daughter had this in one pupil.   Now more or less back to normal.

-exhaustion - very common does get better but can come on again at or after a pulse when the body is dealing with endotoxini and porphyriai.

Finally many of these questions have answers within the site and I recomment that you read parts of the handbook.   Take your time there is a lot of information here.   What we tend to do as members is to answer stuff we have personal experience of, so you won't get a complete answer from any one of us but you might well find the answers in the site.   Try doing a search for cholestyramine and mercury detox.

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

___________________________________________________________

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

I also have the dialation in one pupil (right eye)

pimples came with doxyi and night sweats.

fatigue; be careful with the strenuos exercise, these insidous bacterias deplete your cells energy (ATP) leaving them in a critical state nutrient deficient.  This may be deleterious to treatment and progression as it was in my case (kick boxer)

One of the main things that haulted my progression was not controlling yeast, so try to pay extra attention to that if it becomes a problem

Anyone who thinks Yoga is a sissy sport is dead wrong.  I say this because Yoga while sick may be a daunting task to say the least.  I kick box and Yoga wore me out and I relapsed hard.

Now stretching is the thing to work on.  Get your flexibilty up as much as possible.  It also creates an enormous amount of good blood flow with out over taxing your abilities.  I do a lot of my stretching in a hot tub with 2-3 cups of epsom salts and a chlorine removal ball. 

If you try this in the tub you will find your flexibilty increases enormously.

These bacterias are very inflammatory and this may be why your muscles are so tight.

While not advocated too much on this site, a trial of Benicar to tolerance will help ease some of your inflammationi along with the antibioticsi and proper supps and nutrition

I have more to say on this later

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 There has been some great comments here. I did want to add that you may or may not have gotten myco from the plant. Dont beat yourself up over that. The myco and CPNi is airborne. You could have gotten it at the grocery store, a co worker, going to mall, the mailman could have brought you a package to your front door and coughed.  My daughter is 11. I got her tested in december for myco and cpn just for a baseline (i have myco and cpn, my sister has myco).  My daughter had no symtpoms, no recent colds, coughs, etc. Much to my surprise, she came back positive for myco in acute form.  

I worked as a nurse on a cystic fibrosis floor. They have all kinds of stuff in their lungs. I may have gotten myco and cpn there, but not sure. I never had pneum or respiratory infection that needed treatment during those years, or ever. So, who really knows where I got it from.. so dont beat yourself up. I think we are just victims to something that we cant control..

Mphs, TN. CFSi, hypoT (Hashi), weak adrenals, 37 w/hormones of 80 yo. right arm neuropathy. + for cpn, myco, EBVi, CMV. on NACi 3600mg, doxyi 100-2xday, azith 250 m/w/f/sun, estriol, progesterone, synthroid, and pulsing w/flagyli.

___________________________________________________________

Mphs, TN. CFSi, hypoT (Hashi), adrenal fatigue, 37 w/hormones of 80,. right arm neuropathy. + cpni, myco, EBVi, CMV. NACi 4000mg, doxyi 100-2xday, azith 250 m/w/f/sun, progesterone, estriol, synthroid, pulse flagyli, tinii<

I also try to run. I can't work up any speed, and am worn out after 5 minutes. I do 10 chin ups letting my legs do most of the work. After doing this for 15 years, I chould have worked up to being able to do one chin up without my legs. I have started taking cholestyramine to mop up porphyrins. I think I have 50 years worth of porphyrins built up in my muscles. No wonder they are tight and won't work right. I get tired of physicians telling me I am healthy. I am glad you found a physician who will think outside the box. Combined Antibiotic Protocol minocycline, azithromycin, metronidazolei for muscle pain, insomnia, interstitial cystitisi, sinus, disphonia, dry eyes, stiff neck, veins, thyroid, TMJ.

___________________________________________________________
Combined Antibiotic Protocol minocycline, azithromycin, metronidazolei for muscle pain, insomnia, interstitial cystitisi, sinus, disphonia, dry eyes, stiff neck, veins, thyroid, TMJ.

I have done cleansing for heavy metals, candida as well as overall body.  Since starting the CAPi I haven't done anything else.

I am kicking around getting another Candida cleanse due to the signs of abdominal bloating.  It is difficult to keep everything in balance; but we do our best.

sounds like you are on the right track!  remember though, go slow & expect the unexpected!

CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonini, GABA, tarazadone, triazolam, novocyclopine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 1-3-08 5th pulse 1 X 375 mg 4day

___________________________________________________________

CFIDSi/ME 32 yrs, FMSi, IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#13 1240 mg X 3 days 8-7-08

Keith - Welcome to the site!

Here's my experience observing my husband.

1) skin conditions: exactly same problem with acne and red bumps - went away after a few months - skin actually now better than has been in long time

 2) sleepiness: my husband was extremely sleepy and lethargic - in bed maybe 23 hours a day - either asleep or just lying there - this too will get better - can't say how long - because each person is diff.

3) eczema / dermatitis :  has anyone seen relief or resolve from this? Yes - eczema on my husbands fingers and elbow cleared while on CAPi in first couple of months, dermatitis on scalp got worse, for other reasons took Diflucan and the dermatitis cleared too

4) dilated pupils:  Never observed this with my husband, mostly his eyes were just glassy and watery looking

5) mercury toxicity:  yes - BUT to chelate and treat with antibioticsi is hard on the body - for my husband we have decided to antibiotic first and then to chelate later - IMHOi you need a working immunei system to undergo chelation - antibiotics clear up your immune system

6)   NO endurance - my husband had this problem too - now he has very good endurance and can bike and walk several miles in a day

7)  anyone have ANY experience using accupuncture for lympatic drainage or to facilitate detox? how about yoga?   Yes - my husband has been treated with accupuncture with good results for both drainage and adrenal glad healing, he has also had lymphatic drainage massage (vodder) with good results, have also done Dahn Yoga

8)  anyone have experience on supplementsiii/prescriptions to help detox and removal of toxins?  has anyone tried cholestyramine?  i have tried (after physicians recommendations), but it really fatigues me for 24-48 hours..  any other suggestions?  we have tried epsom salt baths, bentonite clay baths, herbal baths, etc... with mixed results, time and drinking lots of water and going easy seems to be the only thing that has helped my husband

Good luck! 

Daisy-Caregiver- Balo's Concentric Sclerosis.  CAP 5/07.  Minoi, Roxy, Diflucan 1-31, Rifampin, Bactrim DS,  Novantrone, Doxyi, Azith

___________________________________________________________

Daisy - Husband on CAPi 5/07.  Roxithromycin, Rifampin, Bactrim DS, Tindamax 6-23, Tetra 7-3, azith, doxyi, minoi, diflucan, mepron, prednisone, Novantrone

Daisy, I'm curious. I've never heard of lymphatic massage therapy. What do you mean by "good results"? What did you notice that made you feel it was helping?

I get physical therapy massage for my tendonitis and I always feel horrible afterwards for days. I'm actually thinking I should stop the massage until I've been on abxi for a while and my toxin load is down some. They say massage releases toxins. Maybe that's a bad thing to do while the abxi are already causing toxin release. I'm thinking the double whammy is too much at once. But maybe lymphatic massage helps flush the toxins rather than releasing more?

Asthmai, chronic sinusitis/rhinitis, chronic tendonitis, hypothyroid. Jan 9, '08 started Azithromycin 1000mg/week.

___________________________________________________________
Asthmai, sinusitis/rhinitis, tendonitis, low back pain, hypothyroid. Started azi 1000mg/week Jan 9, '08. Increased azi to 250mg/day, added 20mg Benicar daily Mar 13, '08. First Flagyli pulse started June 30, '08. Added Doxyi 200mg/day Aug 16.

There is a type of massage - called manual lymph drainage.   Probably the best reserached is the Vodder Method.  Vodder method therapists are generally well trained and very knowledgable. 

Many plastic surgeons recommend Vodder massage pre and post plastic surgery to reduce swelling and improve recovery time.  Also many breast cancer patients who have lymph nodes removed find it very beneficial.  It's a very light touch - not like regular massage - but it really de-puffs you. 

For my husband specifically, we have done a lot of things to keep his lymph system moving to help hold down the side effects of everything and to help his body keep clearing toxins.  Vodder definitely gets your lymph moving. 

If you decide to try it -my recommendation is to book 3 appointments 3 days in a row and then decide if you like the results.  I like it personally because it helps your skin looked refreshed and glowing.  One treatment isn't enough to tell anything  you need at least 3 close together.

 

Daisy-Caregiver- Balo's Concentric Sclerosis.  CAPi 5/07.  Minoi, Roxy, Diflucan 1-31, Rifampin, Bactrim DS,  Novantrone, Doxyi, Azith

___________________________________________________________

Daisy - Husband on CAPi 5/07.  Roxithromycin, Rifampin, Bactrim DS, Tindamax 6-23, Tetra 7-3, azith, doxyi, minoi, diflucan, mepron, prednisone, Novantrone

One of the best, recent investments that I thought I had made was an Accuvibe massager. It is supposed to flush lactic acid from the muscles. Am hoping that it's flushing toxins, too. I usually do feel just great after using it. But, like Sunni, I have to wonder if my body is then getting rid of all of them.

 

Daisy:  thanks for the info on the Vodder method.

 

 

--Minai

 

 

RRMSi, diagnosed 2/04. NACi 4/06. Started Wheldon/Stratton regime 8/30/06. Doxycycline, 8/06, Azith, 10/06. Switched to Roxithromycin 11/06. Psuedo relapse/die-off with hospitalization 1/07. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY Restarted CAPi with NAC and Doxy 2/07. LDNi 4/07. Stopped NAC, started Roxi, again 5/07. Now on full doses of Doxy and Roxi. NAC, again, 7/07. 1st Tinidazole Pulse, 8/11/07. USA

Hello everyone, I am new to this site.. My daughter was just diagnosed with CFSi and CPNi..She is not quite 17 I had been taking her to the doctor and telling her that there was something wrong with here she had all these headaches and was sick all the time. She wasnt able to pay atten in school. Our ped just kept saying she is fine teenagers go through this blah blah blah.. Well I finally took her to someone else and said listen there is something wrong with her. I honestly thought it was her thyroid. He ran some tests and Said she has CFS now I just have to find out why and I noticed that your ped didnt do some tests that I thought she would have done so I am going to run those and I will let you know. it came back she had Ebstien barr Virus and CPN. ( I too am waiting for my results to come back since I have CFS( which I thought was my thyroid) and FMSi.. I am sure with everything I am reading that I have it since I have asthmai and chronic bronc. alot with Chronic sinus infectionsi and its contagious. Anyway enough about us.....our docs both do not know alot about the treatment for CPN and I need to make sure that she is getting the right treatment. He started her on 100mg Of Doxyi 2x a day. I also went on the same script for my current sinus infection and the start of bronchitus .. My doc says this way if I do have CPN then he can get a jump on it. Any way there I go rambling again. So I was saying I don't know that she is on the right treatment...So I was wondering I see all these people on all these things is that because alot of people on this board have MS ? or is that the standard treatment for everyone with CPN. I sure would appreciate any help since our docs around here really don't know what the treatment should be I want to make sure that she is not being undertreated. I do know the doxy must be working though because she is having a lot of pain she normally doesnt have so I am hoping that is the die off. I to have been in alot more pain then normal but I thought I was just going through a flare but guess we will see tomorrow when my blood tests come back if this is what is happening to me or just a flare.. and should she have that much reaction with just one med. Also does anyone have any idea if you just have CFS or CFS/FMS what the time frame is for this treatment or is it pretty much the same as for people with all condiitons ? .. I am sure I have alot more questions but Cant think of them right now.. I will start with these and hopefully go from there .. Thanks Kim 

Kalbrent, Kim, It would be wonderful if you started a blog about the treatment of your self and your daughter.  Then you will be able to find the responses that you get at anytime you have a question.

My response is yes if your 17 year old is having symptoms as you describe that is enough for now.  You will learn more about the protocol as you participate here.  Your self well sounds like this may help you as well.  Just to know the longer you have had CPni or other stealth bacterial infectionsi there is a fairly good chance that you will negative and still have the pathogen.  You Immunei system cannot see it at times as it can be quite well hidden from view inside your cells.

Hoping to follow your blog. Louise

CFSi/ME. CPnPositive.BbPositive.

Started6/24/07WheldonCAP.OnDoxy, Roxi, Tinii.

2/3/08TiniPulse#4 completed.

Day 9 post pulse Cholestyramine 2 packet Bedtime for Porphoria and Die-off Symptoms Of Fatigue, Brainfog, MoodDisturbances,BalanceFromApoptosis,

___________________________________________________________

Louise   CFSi Began Wheldon CAPi 6/07, Occ. Cholestyramine1-2packets HS/forporphoria&endotoxini sxi, S.O.D.3TID(KAL Brand),VitD3-4000IU, MagnascentIodine 8gtts 1-2x/d, Doxy100BID,Roxi150BID,Tini500mg BIDpulses,CPnPos,BbPos.