It's a Summerdale Gold Kind of Spring...

User login

Navigation

Support Cpnhelp!

Donations allow us to avoid advertising to keep the site clearly member and mission focused. and are used to pay for site maintenance. Any additional balance is held in trust for future needs or will be donated for research. We are not non-profit so it's not tax deductible. Donations and expenditures overseen by a committee of members.
Write your own amount to give

Syndicate

Submitted by kitkat2 on Thu, 2008-04-03 12:18.

With Springtime finally here and things going so well for me I thought it was about time for an update. Since the inclusion of Prilosec OTC and Calcium Pyruvate six weeks ago I have improved tremendously! I also added in Inositol and Ribose, and have doubled the Norwegian fish oil caps to support my nervous system while I discontinue antidepressants. I am still waiting for the other shoe to drop but here are the changes: 1. Able to successfully discontinue Wellbutrin XL 2. Able to tolerate Flagyli pulses now [timely and full dose] 3. Able to tolerate 600mg NACi daily[first time since I began CAP] 4. Beginning to gradually reduce Zoloft and Trazadone 5. No more strep-throat type neck aches, etc 6. Previously chronic low grade temp. is now a RARE event 7. Spasticity is erased, at least temporarily, by pyruvate 8. I have some energy and motivation, enough at least to finally get together with a couple gallons of Benjamin Moore "Summerdale Gold" and paint the foyer and hallway. What's on the horizon? A 5-day trial Rifampin pulse which I am hoping may pave the way toward the next phase of the CAP. I am a bit nervous about the Rif., but right now things are looking golden. -kk2 :)

___________________________________________________________

Began Wheldon Protocol for rrmsi i October '05. Currently OFF all abxi i since June 26, '08 due to severe porphyriai i. Added LDN 4.5mg qhs October '07. All supplementsi i.

On Wheldon regime [Doxyi,

Submitted by kitkat2 on Thu, 2008-04-03 12:20.

On Wheldon regime [Doxyi, Azith, and Flagyli] for rrmsi since October '05. Added Amoxicillini 1gm twice daily and LDNi 4.5mg qhs October '07; EDSSi was 6.5, now 5.5. United States.

___________________________________________________________

Began Wheldon Protocol for rrmsi October '05. Currently OFF all abxi since June 26, '08 due to severe porphyriai. Added LDN 4.5mg qhs October '07. All supplementsi.

Login or register to post comments
Email this page

kk2, That's fantastic

Submitted by cypriane on Thu, 2008-04-03 13:50.

kk2, That's fantastic news! The only disappointment is that I thought Summerdale Gold was going to be beer, not paint. You've worked so hard and have been so patient and faithful to earn this reward. Now, it's finally your turn. Congratulations and keep at it,

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi). CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity.

___________________________________________________________

Login or register to post comments
Email this page

Thanks Joyce! I wish beer

Submitted by kitkat2 on Thu, 2008-04-03 14:14.

Thanks Joyce! I wish beer and I could just get along, but no go since this life long infection. But you've given me a cuervo glimmer of hope--maybe when the Cpni is gone, then....? -kk2 ;)

On Wheldon regime [Doxyi, Azith, and Flagyli] for rrmsi since October '05. Added Amoxicillini 1gm twice daily and LDNi 4.5mg qhs October '07; EDSSi was 6.5, now 5.5. United States.

___________________________________________________________

Began Wheldon Protocol for rrmsi October '05. Currently OFF all abxi since June 26, '08 due to severe porphyriai. Added LDN 4.5mg qhs October '07. All supplementsi.

Login or register to post comments
Email this page

KK - Wow good news all the

Submitted by Daisy on Thu, 2008-04-03 14:33.

KK - Wow good news all the way around for you! Looks like your summer may well be Golden!

Congratulations on these hard won improvements.

^{Daisy - Husband on CAPi 5/07. Roxyi, Diflucan round three 4-3, Rifampin, Bactrim DS, Mepron, Prednisone, Novantrone, Doxyi, Azithromycin, Flagyli, Minoi}

___________________________________________________________

Daisy - Husband on CAPi 5/07. "When Going Thru Hell, Just Keep Going", Winston Churchill

Login or register to post comments
Email this page

KK2, So happy for you -

Submitted by wiggy on Thu, 2008-04-03 16:24.

KK2, So happy for you - finally a turnaround! Can't believe you are painting! I am having beer problems too but I can still drink 1 glass of red wine with no problem. On Wheldon protocol for MS since April, 2006. doxyi 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli Pulses start end Sept., LDNi 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30.

___________________________________________________________
On Wheldon protocol for MSi since April, 2006. doxyi 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli Pulses start end Sept., LDNi 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30. Ma

Login or register to post comments
Email this page

i am all over this how

Submitted by jak7ham9 on Thu, 2008-04-03 18:58.

i am all over this how much prilosecd how -much pyruvate when. getting rid of spsticity how exciting barbara

0gm,magDoxy200 10-/14/07, NACi 2400Doxy200mgAzithMWF10/29/07 roxy300,doxy200,rifampin300aziyh mwfMS flagyli 1day 500x2 11/23/20074th pulse 2.8.081500mg 8days

___________________________________________________________

NACi and glutathione push for years all supplementsi in protocol)IV vitaminsi b1-12,F10/29/07 roxy300,doxy200,rifampin300aziyh mwfMS flagyli 1day 500x2 11/23/20074th pulse 2.8.081500mg 8days 7/08 finished 10th pulse on 300 rifamp bid, doxybid 7/2008

Login or register to post comments
Email this page

KK2, This is good news...

Submitted by Michele on Fri, 2008-04-04 05:54.

KK2, This is good news... Ella has been taking Rifampicin for a couple of weeks and is managing OK with it. She says she feels like she is on a constant pulse when taking it but not as intense a pulse as with flagyl. She started a pulse yesterday and now it is hitting home... so much so that she is going to cut the pulse short. So watch out for fireworks when taking both.

David has said in the past that Rifampicin should not be pulsed. I think Jim told me this was not a problem as long as it was taken in combination with other antibioticsi.

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

___________________________________________________________

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Login or register to post comments
Email this page

Barbara, go here for some

Submitted by Michele on Fri, 2008-04-04 06:17.

Barbara, go here for some answers.

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

___________________________________________________________

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Login or register to post comments
Email this page

KK2, I thought like Joyce

Submitted by Sarah on Fri, 2008-04-04 07:25.

KK2, I thought like Joyce that Summerdale Gold was going to be beer: a kind of nice, light, drinking in the evening on the terrace kind of beer.

You are suddenly doing so well and I am so pleased for you...........Sarah

An Itinerary in Light and Shadow...........Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent. Still slowly improving and no exacerbation since starting. EDSSi was 7, now 2, less on a good day.

___________________________________________________________

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after nearly four years, three of which intermittent. Still slowly improving and no exacerbation since starting. EDSSi was 7, now 2, less on a good day.

Login or register to post comments
Email this page

kk, I am so happy for your

Submitted by ruthless1 on Fri, 2008-04-04 15:25.

kk,

I am so happy for your progress, I am more motivated to take the prilosec with the 3gms of c ypruvate I am taking.

Summerdale Gold, what a beautiful name for a color! Have fun!

CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonini, GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse8 750mg 4day,375X1 3-24-8

___________________________________________________________

CFIDSi/ME 32 yrs, FMSi, ~~IBSi~~, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#14 1000 mg X 5 days 9-19-08

Login or register to post comments
Email this page

Cpnhelp.org - Chlamydia Pneumoniae Treatment