It's a Summerdale Gold Kind of Spring...

With Springtime finally here and things going so well for me I thought it was about time for an update. Since the inclusion of Prilosec OTC and Calcium Pyruvate six weeks ago I have improved tremendously! I also added in Inositol and Ribose, and have doubled the Norwegian fish oil caps to support my nervous system while I discontinue antidepressants. I am still waiting for the other shoe to drop but here are the changes: 1. Able to successfully discontinue Wellbutrin XL 2. Able to tolerate Flagyli pulses now [timely and full dose] 3. Able to tolerate 600mg NACi daily[first time since I began CAP] 4. Beginning to gradually reduce Zoloft and Trazadone 5. No more strep-throat type neck aches, etc 6. Previously chronic low grade temp. is now a RARE event 7. Spasticity is erased, at least temporarily, by pyruvate 8. I have some energy and motivation, enough at least to finally get together with a couple gallons of Benjamin Moore "Summerdale Gold" and paint the foyer and hallway. What's on the horizon? A 5-day trial Rifampin pulse which I am hoping may pave the way toward the next phase of the CAP. I am a bit nervous about the Rif., but right now things are looking golden. -kk2 :)

Comments

kk, I am so happy for your

kk,

I am so happy for your progress, I am more motivated to take the prilosec with the 3gms of c ypruvate I am taking.

Summerdale Gold, what a beautiful name for a color!  Have fun!

CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonin">i, GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse8 750mg 4day,375X1 3-24-8

CFIDSi/ME, FMSi, MCS, IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplementsi+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyli/day-5 days<

  KK2, I thought like Joyce

 
KK2, I thought like Joyce that Summerdale Gold was going to be beer: a kind of nice, light, drinking in the evening on the terrace kind of beer.
  
You are suddenly doing so well and I am so pleased for you...........Sarah

An Itinerary in Light and Shadow...........Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still slowly improving and no exacerbation since starting. EDSSi was 7, now 2, less on a good day.

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Barbara, go here for some

Barbara, go here< for some answers.

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.

KK2, This is good news...

KK2, This is good news... Ella has been taking Rifampicin for a couple of weeks and is managing OK with it.   She says she feels like she is on a constant pulse when taking it but not as intense a pulse as with flagyl.   She started a pulse yesterday and now it is hitting home... so much so that she is going to cut the pulse short.   So watch out for fireworks when taking both.

David has said in the past that Rifampicin should not be pulsed.   I think Jim told me this was not a problem as long as it was taken in combination with other antibioticsi.

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.

KK2, So happy for you -

KK2, So happy for you - finally a turnaround! Can't believe you are painting! I am having beer problems too but I can still drink 1 glass of red wine with no problem. On Wheldon protocol for MS since April, 2006.  doxyi 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli Pulses start end Sept., LDNi 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30.

5oo mgs Ceftin 2 x/day, 500 mgs Zithromax, 500 mgs 2 x tinii pulses,100 mg diflucan, 4.5 ldni; Wheldon protocol for MSi April, 2006 to May 2008. 2008 MRI shows NO NEW DISEASE ACTIVITY, 2012 MRI no new disease activity.

 KK - Wow good news all the

 KK - Wow good news all the way around for you!  Looks like your summer may well be Golden!

Congratulations on these hard won improvements.

Daisy - Husband on CAPi 5/07.   Roxyi, Diflucan round three 4-3, Rifampin, Bactrim DS, Mepron, Prednisone, Novantrone, Doxyi, Azithromycin, Flagyli, Minoi<

Daisy - Husband on CAPi 5/07.  Husband died from Acute Myelogenous Leukemia Secondary to the Infusion of Novantrone.  Ie - the treatment with the conventional MSi drugs killed him.

Daisy on her own CAP 11/2012. 

  On Wheldon regime [Doxyi,

 

On Wheldon regime [Doxyi, Azith, and Flagyli]  for rrmsi since October '05.&nbsp Added Amoxicillini 1gm twice daily and LDNi 4.5mg qhs October '07; EDSSi was 6.5, now 5.5.  United States.

Wheldon Protocol for rrmsi since Oct '05.  Added LDN 4.5mg qhs Oct '07.  All supp's.  Positive IGGi's for Lyme Disease,Babesia, & Erlichiosis Sept. 2008.  Currently:  Mepron 750mg bid and Azithromycin 250mg qdi for Babesia.

i  am all over this how

i  am all over this how much prilosecd how -much pyruvate when. getting rid of spsticity how exciting barbara

0gm,magDoxy200 10-/14/07, NACi 2400Doxy200mgAzithMWF10/29/07 roxy300,doxy200,rifampin300aziyh mwfMS flagyli 1day 500x2 11/23/20074th pulse 2.8.081500mg 8days

NACi and glutathione push for years all supplementsi in protocol)IV vitaminsi b1-12,F10/29/07 roxy300,doxy200,rifampin300aziyh mwfMS flagyli 1day 500x2 11/23/20074th pulse 2.8.081500mg 8days 7/08 finished 10th pulse on 300 rifamp bidi, doxybid 7/2008

kk2,  That's fantastic

kk2,  That's fantastic news!  The only disappointment is that I thought Summerdale Gold was going to be beer, not paint.  You've worked so hard and have been so patient and faithful to earn this reward.  Now, it's finally your turn.  Congratulations and keep at it,

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi).  CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity. 

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi).  CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity. 

Thanks Joyce! I wish beer

Thanks Joyce! I wish beer and I could just get along, but no go since this life long infection. But you've given me a cuervo glimmer of hope--maybe when the Cpni is gone, then....? -kk2 ;)

 

On Wheldon regime [Doxyi, Azith, and Flagyli]  for rrmsi since October '05.&nbsp Added Amoxicillini 1gm twice daily and LDNi 4.5mg qhs October '07; EDSSi was 6.5, now 5.5.  United States.

Wheldon Protocol for rrmsi since Oct '05.  Added LDN 4.5mg qhs Oct '07.  All supp's.  Positive IGGi's for Lyme Disease,Babesia, & Erlichiosis Sept. 2008.  Currently:  Mepron 750mg bid and Azithromycin 250mg qdi for Babesia.