It ain't over til Sam plays it again

Jan 11, 2009 was a day of celebration followed by several months of very near (old) normalcy. I had done four years and four months of protocol and finished with weeks of the supreme test. Confidence and well-being reigned.

Then - in the way known to each of us - the stealthy creeping began - a little fatigue (it was the middle of kidding season), a little functional deficiency (it was the middle of kidding season and LOTS of hard work), some brain fog and lots of fatigue and foot drag (it was the middle of kidding season - though approaching the end - lots of hard work, long hours, and clipping and packing for the show).

Something is going on. We veterans can fill in the blanks - I AM NOT DONE! My protocol now is from the original horse and includes all the supplementsi: I am for six months on basically the original. It is Doxycycline, 100 mg bidi; Rifampin, 300 mg bidi; Amoxicillini, 500 mg bid; Azithromycin, 250 mg MWF; flagyli 500 mg bid.

Yesterday, several days after beginning the whole thing, I spent the day as a zombie - the culmination of several days of almost-zombiehood. Today is much, much better. I compared it to a trash crew strike: the trash accumulated in the streets, the strike ended, the crew came yesterday, and now there is only the usual amount. BUT - with the environment being improved and recycling coming into full swing, there will soon be NO trash being deposited - at least that is the six month plan of total extermination of these incredibly crafty creatures. Where were they hiding? They wasted no time, the few that were left, in setting up their little factories and spewing out their poison. I could feel it coming - we here learn to listen to our bodies - in the end that will save us.

For the last week, I was afraid the whole six months was going to be like the first few days; now I realize I have not regressed four and a half years but caught this very, very early. Already I am back physically and mentally to where I was in January.  I can do this.

Rica

Comments

Rica Are and always will be

Rica

 Are and always will be one of my Dearest Friends, if anyone can beat this and keep up the fight I Know it is YOU !!!!!!!

As always Ed

I find it so amazing when

I find it so amazing when the things Ive discovered on my own through trial and error are actually the same as the things that Dr s has concluded through his ongoing research. I knew niacin">i worked to make me feel better but i just figured it was because it thinned my blood and allowed more abxi to get to necrotic tissue sites. I didnt know it actually kills cpni in wbc's! And ofcourse this makes so much sense since im deficient in neutrophils, well at least i was anayway:) This is good news because i really respond to niacin. I hope someone can find the literature.

 

 

 

 

 

&nbs

Isoniazid (INHi) is the

Isoniazid (INHi) is the antibiotic that was found effective at clearing Cpni from white blood cells.  I was on it continuously last year for 2 months.  I got to the point where it was too much so I backed off on it.  It might be worth doing again, perhaps combined with Flagyli pulses.  However, if Niacin">i is as effective, it certainly will be an option as well.

best, John

RRMSi/EDSSi was 4.5, 5, 6, 6.5, 6.9999, 6.5 on Wheldon/Stratton Protocol beginning 04/12/2006
naci 4x600 mg/day
doxycycline 2x100mg/day
azithromycin 3x250mg/day MWF
metronidazolei 3x400mg/day then 3x500mg/day

We don't know the 'how' of

We don't know the 'how' of it, but niacin">i is one of the things Stratton has tested against Cpni, and found to be effective. In particular, other antibioticsi have trouble clearing Cpn from white blood cells (monocytes and macrophages), but niacin is effective at it. This is not a big surprise, since niacin is a proven agent against atherosclerosis, in which Cpn is strongly implicated.

Yes, extended release niacin is to be avoided, as it's much harder on the liver, and probably not as hard on the Cpn.

I can't find my old notes

I can't find my old notes from Dr. P, but as I remember, niacin">i kills cpni at the dosage of 2500 mg. I turn red as a beet after I take it. This is not time released niacin. I think regular niacin is the one that works, and it's easier on the liver. If someone has more up to date or accurate info, please jump in.

minocycline, azithromycine, metronidazolei 2007-2009, chelation for lead poisoning, muscle pain, insomnia, interstitial cystitisi (almost well), sinus, dry eyes, stiff neck, veins, hypothyroid, TMJ, hip joints (no longer hurt)

Niacini? How does niacin

Niacin">i? How does niacin work against CPNi ?

 

 

 

 

 

&nbs

Another thing to try, for

Another thing to try, for these final stages of the protocol, might be niacin">i or INHi: an agent active against Cpni infecting macrophages.

Rica, I'm sure that your

Rica, I'm sure that your husband and your doctors have reviewed all possibilities, but all the same it may be worth considering Ella's experience.   A couple of months after stopping the protocol she was plagued with constant and recurring bladder infectionsi and each one made her feel as though she was relapsing.   In hindsight it may have been some deep seated bug that the protocol kept at bay but got free reign when she stopped doing it, as it was a bladder infection that would not go away that precipitated her devastating relapse.   
Just a thought.

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.

Rica, I can't help wondering

Rica, I can't help wondering how much of this is due to excess of kidding, since it is the first time in donkey's years that you have done it without the help of abxi.  All the same, it is better to be safe than sorry and six months will be gone in a flash..............Sarah  

An Itinerary in Light and Shadow

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Louise,I did two series of

Louise,

I did two series of intermittent, and thought I was successful.  Now, I look back and think I wasn't paying close attention.  I thought I  was clear, maybe a little tired and logy, but now realize it was more than that.

Rica 

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Rica, Sorry to hear about

Rica, Sorry to hear about your temporary downturn of events.  Can I ask how many rounds of intermittent you took after January if any?  I was not clear back then if you were planning to go intermittent but it sounded if you were taking a full stop after your Rifampin months.   Have you considered a short course of cholestyramine for the potential to clear the zombie effect?   It has generally worked for me to clear my bouts of brainfog.  Louise

  • CAPi(TiniOnly): 06/07-02/09 for CFSi<
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDNi 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support
  • <

Hey, I hope you feel better

Hey, I hope you feel better and that this is temporary and that you get the miracle eventually. Have ypu considered taking a few heavy few pulses of a quinolone before tapering right off?

 

 

 

 

 

 

&nbs

Another zombie day. I

Another zombie day. I believe this is a result of all abxi together. Both times it has been the day after Azithromycin - last week I felt so rotten I couldn't have differentiated. Today is not as bad as two days ago so maybe it will continue to lessen. We may need to increase our "supreme test" to this very strong protocol to enxure complete success for those of us who have been incubating this infection for so many decades. I could not have done this at the very beginning.

Rica

 

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Rica, So sorry they crept

Rica, So sorry they crept back but glad to hear you got them! Hang in there!

5oo mgs Ceftin 2 x/day, 500 mgs Zithromax, 500 mgs 2 x tinii pulses,100 mg diflucan, 4.5 ldni; Wheldon protocol for MSi April, 2006 to May 2008. 2008 MRI shows NO NEW DISEASE ACTIVITY, 2012 MRI no new disease activity.

Rica, lead the way girl, we

Rica, lead the way girl, we are all behind you!

RRMSi since 3/84; SPMS since 2/05. Rifampin, Azithromycin, Tindamax Flagyli< Copaxone, Avonex, Novantrone, Provigil, 5gm NACi, 5gm VitC, 5000IU VitD3 & more. EDSS 5.5 to 6.5.  Can't wa

As ever your story gives us

As ever your story gives us a blue print for progress in the treatment.   I do hope you can get rid of these last few critters and get back to what you had achieved a few months ago.   I am rooting for you.

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.

Go Rica, Go!  Go Rica Go! 

Go Rica, Go!  Go Rica Go!  Kick them critters right where it hurts! :-) I have no idea where they were hiding but regardless of that, they aren't hiding anymore!

best, John

RRMSi/EDSSi was 4.5, 5, 6, 6.5, 6.9999, 6.5 on Wheldon/Stratton Protocol beginning 04/12/2006
naci 4x600 mg/day
doxycycline 2x100mg/day
azithromycin 3x250mg/day MWF
metronidazolei 3x400mg/day then 3x500mg/day

Rica, good luck in killing

Rica, good luck in killing all cpni once and for all. You can do it.

 I wish you all the best and a great summer with no more cpn!!

, Maria 

Cpni since sep 2006. Autoimmune thyroid,hypofunction.levaxin,b12+folic acid">i.All classic cpn,porphyriai and toxinsymtoms.Not able to work.Selftreating cpninfection with AllicinMax(garlic), NACi, high vitamin D3. CAPi for over 3 years. Back to work and life