A number of folks on the CAPi being treated for CFSi/ME and FMSi have been put on iodine supplementation as an adjunct. It is certainly not part of the recommended supplementsi, but some of the CFS doctors using the CAP for Cpni have found it helpful, especially where low energy, thyroid problems and brain fog are concerned.
Like any supplement, there are always concerns about usage and arguments can go two ways. You should look into it yourself before jumping in, of course, just like anything you hear on the web or elsewhere. I'd strongly recommend that anyone considering adding it in because of people posting their experiences they read about here, buy and read the following book: Iodine: Why You Need It, Why You Can't Live Without It (3rd Edition) - Book or DVD by Dr. David Brownstein
It is important to be informed because, for example, increasing iodine will also increase urinary excretion of bromine-- a toxic mineral used in a lot of modern foods and what not, which binds with iodine receptors-- and there are protocolsi for handling this and it's symptoms. Iodine supplementation may also make for better thyroid function which might require adjustment to thyroid medications.
It is helpful to understand the full rationale before initiating this or any other supplementation and, of course, consulting your doctor before adding anything to your protocol.
A useful introduction is this article: http://optimox.com/pics/Iodine/IOD-09/IOD_09.htm
A site which promotes the use of iodine to treat breast cancer, that also has a lot of useful information on iodine in general, is: http://breastcancerchoices.org/iodineindex.html
As I said, this is not, repeat not part of the recommended supplementsi, only one being used by some CAP patients at the recommendation of their physicians.
The recommended form of supplementation is Iodoral, which is formulated specially to avoid gastric upset.
Another form is Magnascent Iodine, about which Dr. Brownstein has not rendered an opinion as of yet. I use it because Iodoral made for urinary irritation and I appear to be able to better tolerate this form. I'm awaiting Dr. Powell's feedback on it after he researches this form more thoroughly, and I will post it here when I get it.
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CAPi for Cpni 11/04. Dxii: 25yrs CFSi & FMSi. Currently: 250 aithromycin mwf, doxycycline 100mg BIDii, Tiniii 1000mg/day pulses; Vit D2000 units, T4 & T3, 12mg Iodoral
jodie I LOVE my
jodieI LOVE my Iodoral....:)___________________________________________________________
jodieHi Jode, I see you have been
Hi Jode, I see you have been a user here longer than myself. What are you treating with CAPi?
Nice to see your post.
Louise
CFSi/ME. CPni posititve, Bb positive. Started CAP 6/24/07 Doxy & NACi 11/3/07 Macrolide 150mgBID added to Doxy100mgBID,NAC600mgBID 11/22/07 #1 Tini Full pulse 500mg BID 11/26/07Cholestyramine HS for porphoria/Lipo Endotoxini sxs x 1 week after pulses.
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6-07WheldonCAP CPnBb FMSi-CFS20+yr, 11-07Cholestyramine HSPRNx7d-porphyrin+endotoxini
3-08Iodoral, 5-08BHRT, 8-08Same+Bs, 10-08D-10,000IU
2-09Intermit-CAPDoxi
RoxiClari,Tinii, 2-09LDN-CFS1-10-IT+Ursodiol300Bid+Lauricidin
jodieHi Louise, I have/had
jodieHi Louise, I have/had Lyme, Babesia, Barotnella, EBVi, CMV and the good ole CPNi....Been on antibioticsi for about 8 years... And as we all know different protocolsi at different stages.:) As of now I am on D3, Zithi, NACi, Valcyte and Iodoral. Hope you have a Great Holiday! Jodie:)___________________________________________________________
jodieLove this phrase Jim,
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PPMSi-misdiagnosed 2001-diagnosed 2006. Also maybe csf and Lyme -- who knows?! Minocycline 7 mos.- resulting bronchitis 5 months. Deserted by Hopkins neurology dept. and going to private md. out-of-plan. Wheldon CAPi 3/2/07 - Now (1/10) doing 100 doxyi; 125
Well, has to be said!
Well, has to be said!
CAPi for Cpni 11/04. Dxi: 25yrs CFSi & FMSi. Protocol: 200mg Doxyi, 500mg MWF Azith, Tinii 1000mg/day pulses; Vit D1000 units, Cytotec 100mg, Plaquenil 100mg, Magnascent Iodine 12 drps/day, T4 & T3
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CAPi for Cpni 11/04. Dxi: 25yrs CFSi & FMSi. Currently: 250 aithromycin mwf, doxycycline 100mg BIDi, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3, 12mg Iodoral
Yes it does need to be said,
Yes it does need to be said, there could be complications
Discussed it with my doc & he said try the Iodoral. I have the thyroid & very annoying dry mouth. It seems like I have had the dry mouth forever & it is not relenting.
CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonini, GABA, tarazadone, triazolam, novocyclopine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi 1.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 12-3-07 4th pulse 1 X 375 mg 3day
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CFIDSi/ME, FMSi, IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplementsi+Sea Kelp,Iodorol, Inositol, Chitosan, L lysine Pulse#25 01-27-10 1gm Flagyli/day-5 days
Ruth- I don't have
Ruth- I don't have annoying dry mouth, but I do have an annoying big mouth. But nothing, not even Iodoral, seems to cure it.
CAPi for Cpni 11/04. Dxi: 25yrs CFSi & FMSi. Protocol: 200mg Doxyi, 500mg MWF Azith, Tinii 1000mg/day pulses; Vit D1000 units, Cytotec 100mg, Plaquenil 100mg, Magnascent Iodine 12 drps/day, T4 & T3
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CAPi for Cpni 11/04. Dxi: 25yrs CFSi & FMSi. Currently: 250 aithromycin mwf, doxycycline 100mg BIDi, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3, 12mg Iodoral
Try sucking on sugarless
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PPMSi-misdiagnosed 2001-diagnosed 2006. Also maybe csf and Lyme -- who knows?! Minocycline 7 mos.- resulting bronchitis 5 months. Deserted by Hopkins neurology dept. and going to private md. out-of-plan. Wheldon CAPi 3/2/07 - Now (1/10) doing 100 doxyi; 125
For a big mouth or for a dry
For a big mouth or for a dry mouth?
Michele (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006
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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.
Many chuckles, Michele. I
Many chuckles, Michele. I was thinking the same thing...
Sorry Arttile...
On Combined Antibiotic Protocol for Cpn in Rosaceai 01/06 - 07/07, On Vit D3 + NACi since 07/07 and daily FIRi Sauna since 08/07
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Treatment for Rosaceai
LOL Jim, It could be said I
LOL Jim,
It could be said I have both of those symptoms. I am hoping the Iodoral will help with one at least!
which one peepss!!
CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonini, GABA, tarazadone, triazolam, novocyclopine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi 1.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 12-3-07 4th pulse 1 X 375 mg 3day
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CFIDSi/ME, FMSi, IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplementsi+Sea Kelp,Iodorol, Inositol, Chitosan, L lysine Pulse#25 01-27-10 1gm Flagyli/day-5 days
I was sent some info on
I was sent some info on Iodoral a couple of weeks ago from a woman that heads a guai support group and Fibromyalgia Recovery web site. She is now suggesting that before folks start a protocol like guai or some other protocolsi they try using Iodoral and see if that causes improvement.
I think that's a good idea. Some folks may get enough improvement on Iodoral alone that they are satisfied. In fact, that's why I'd like to try it for myself.
I have the bottle sitting here and I have to say I'm afraid to take it!
I discussed it with my endo yesterday and he said he'd have to check my thyroid function monthly because "therapeutic iodine doses will blow out your thyroid" meaning according to him I'd have to up my dose.
He didn't say it was a bad idea to take it and so I was a little puzzled. From all I've read online, taking iodine can increase thyroid function not decrease it, right? I have some thyroid function but I've had to supplement now for over 20 yrs.
I am scared about any negative effects. Has anyone experienced anything really radical? and if so at what dose? TIA
MP for 3 1/2 yrs. NACi 1200 mg/2x day, myco+ I (still) want my life back! CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addison's
When I change what I believe I change what I do
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NACi 2.4g, Zithi 250mg/MWF, minoi 200mg, Tinii 5day/1g/5 pulses, Valcyte
Don't believe everything you think!Supplementsi, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Sec Addisons
Well said Jim. I have been
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Feeling 95% well-going for 100. Still testing + for Cpni. CAPi since 8-05 for Cpn/Mycoplasma P.for MSi and/or CFSi. Also EBVi and HHV6. Doxyi, Azith, Tinii pulses. NACi, Iodoral, T3, BHRT, MethyB12 injections, Nitro patch, LDNi, FIRsauna, methylation supps
As Arttile said, Love this
As Arttile said,
Love this phrase Jim, "consulting your doctor before adding anything to your protocol" -- as if!
A month ago, at a semi-annual check-up, I asked my doctor what he knew about iodine. He honestly replied 'nothing'. I also asked him if he thought that he had ever successfully treated Chlamydia. Again he honestly replied 'no'. Interesting.
There is also this page, http://www.alternativehealth.co.nz/diseases/candida.htm , suggesting that iodine might be very useful in treating candida. There is another page reporting that candida was treated in African AIDS patients with iodine as a mouthwash. Perhaps it would be useful in an antibiotic protocol but as you said Jim, it is important to understand the consequences before jumping.
My experience with Iodoral and Lugol's solution has been positive with managable side effects.
Bob
On Iodoral dosing, why are
On Iodoral dosing, why are some folks titrating the doses above the one 12.5 mg tablet a day? I am hoping I can stand to take ONE tab which I'm planning to start next week, but I notice lots of folks taking a whole lot more like 50 mg/day.
I've read where 50 - 100 mg is used for breast cancer issues but is there any reason to go beyond the one a day tab? TIA
MPi for 3 1/2 yrs. NACi 1200 mg/2x day, myco+ I (still) want my life back! CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addison's
When I change what I believe I change what I do
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NACi 2.4g, Zithi 250mg/MWF, minoi 200mg, Tinii 5day/1g/5 pulses, Valcyte
Don't believe everything you think!Supplementsi, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Sec Addisons
Can idodine help energy even
Can idodine help energy even if thyroid tests are within range do you think?
I have energy issues and extreme dry mouth (especially at night, wakes me up) but good thyroid levels.
How does it help dry mouth and breast cancer risk?
My GYN just recommended topical idodine for excruciating pre-menses breast pain. Christiane Northrup writes that iodine "decreases the ability of estrogen to adhere to estrogen receptors in the breast". Any link there to the breast cancer piece by chance?
I tried the topical iodine and it burned my skin like a sunburn, peeling skin and all. Not sure yet what could have caused that.
Cheers,
Marysia
CDC Lyme + 02/06; Cpni, HHV6, and EBVi + 03/08. 2 yrs slow improvement on variations of CAPi for Lyme. Currently slowly resuming treatment and changing to newly discovered (for me) Cpn protocol after a severe porphyriai attack 09/07 on Diflucan.
According to my doctor,
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Feeling 95% well-going for 100. Still testing + for Cpni. CAPi since 8-05 for Cpn/Mycoplasma P.for MSi and/or CFSi. Also EBVi and HHV6. Doxyi, Azith, Tinii pulses. NACi, Iodoral, T3, BHRT, MethyB12 injections, Nitro patch, LDNi, FIRsauna, methylation supps
Marysia, I found that it
Marysia, I found that it gave me a lift in energy. I took the the magnescent drops and the effect was very quick several days. My last thyroid tests T3, Reverse T3, T4 and TSH were within normal limits. I took T3 compounded for 6 mos ending in December. Louise
CFSi/ME.CPnPositive.BbPositive.WheldonCAPbegan6/24/07. NowNAC,Doxyi, Roxi, TiniPulse#4 Ended2/3/08. Cholestyramine at BedtimeforPhorphoria&liposacarideEndotoxinDie-OffExperiences.
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6-07WheldonCAP CPnBb FMSi-CFS20+yr, 11-07Cholestyramine HSPRNx7d-porphyrin+endotoxini
3-08Iodoral, 5-08BHRT, 8-08Same+Bs, 10-08D-10,000IU
2-09Intermit-CAPDoxi
RoxiClari,Tinii, 2-09LDN-CFS1-10-IT+Ursodiol300Bid+Lauricidin
Reenie, et al- I'd really
Reenie, et al- I'd really encourage you to get Dr. Brownstein's book. It covers the use well, including the issue Raven referred to of clearing the bromine from the receptors and tissues, and the use of salt to clear the bromine when needed. I don't think at the dose you describe you can "blow your thyroid out." If you are sensitive to stuff, start with something like the magnascent iodine (lugol's solution) and titrate.
I should mention that Dr. Brownstein responded to Dr. Powell's asking about the magnascent iodine by saying that it is not enough of a dosage to displace bromine, i.e. that you have to have more iodine in circulation than that for immediate use to displace the bromine so it is excreted, hence the Iodoral.
CAPi for Cpni 11/04. Dxi: 25yrs CFSi & FMSi. Protocol: 200mg Doxyi, 250mg MWF Azith, Tinii 1000mg/day pulses; Vit D1000 units, Iodoral 50mg, T4 & T3
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CAPi for Cpni 11/04. Dxi: 25yrs CFSi & FMSi. Currently: 250 aithromycin mwf, doxycycline 100mg BIDi, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3, 12mg Iodoral
Jim, Thanks for answering
Jim,
Thanks for answering my questions. I know some of this basic info from reading websites but the book (viewing the table of contents) looks good so I ordered it.
I am still curious though... the reason for taking more and more? To detox? Do you test to see what your optimal saturation point is? Do you back off at some point? I know, I know.... wait for the book!!! But if you would be so kind...
MPi for 3 1/2 yrs. NACi 1200 mg/2x day, myco+ I (still) want my life back! CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addison's
When I change what I believe I change what I do
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NACi 2.4g, Zithi 250mg/MWF, minoi 200mg, Tinii 5day/1g/5 pulses, Valcyte
Don't believe everything you think!Supplementsi, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Sec Addisons
just fyi, Before peri
just fyi, Before peri menopause I had such tender breasts, it was very painful. I now use progesterone cream (from yams) & the doc said, put some on your breasts. The girls haven't been sore since!
Last thermography had them in the no risk category for breast cancer too!
CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonini, GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse8 750mg 4day,375X1 3-24-8
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CFIDSi/ME, FMSi, IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplementsi+Sea Kelp,Iodorol, Inositol, Chitosan, L lysine Pulse#25 01-27-10 1gm Flagyli/day-5 days
Jim, Is it a goal to be
Jim,
Is it a goal to be excreting bromine? I just ordered the Magnescence drops and would be interested in knowing if you think Iodoral would be a better thing to take. My thyroid is low normal.
63 year old woman feels like 80! CFSi since 1998. Severe fatigue and awful reverse sleep main symptoms. No Fibro. Tested positive for CPN 3/07. Severe reaction to azithro (begun slowly in 5/07) - stopped. Started 100mg Doxyi 2X/day 1/11/08. Also t
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63 year old woman feels like 80! CFSi since 1998. Severe fatigue and awful reverse sleep main symptoms. No Fibro. Tested positive for CPN 3/07. Severe reaction to azithro (begun slowly in 5/07) - stopped.
Really, I'm no expert in
Really, I'm no expert in this. Ya gotta read da book! I'm just doing it to feel betta!
CAPi for Cpni 11/04. Dxi: 25yrs CFSi & FMSi. Protocol: 200mg Doxyi, 250mg MWF Azith, Tinii 1000mg/day pulses; Vit D1000 units, Iodoral 50mg, T4 & T3
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CAPi for Cpni 11/04. Dxi: 25yrs CFSi & FMSi. Currently: 250 aithromycin mwf, doxycycline 100mg BIDi, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3, 12mg Iodoral
Jim, I'm just tying to
Jim,
I'm just tying to clarify things and get your personal, subjective, "non expert" opinion re Iodoral vs. Magnescent Drops.
I am assuming that even though you said in your original post of 12/07 that the Iodoral irritated your urinary tract, you decided to go back on it after all (your signature indicates that this is what you are taking). It would have been helpful to know why as I am trying to see what people's experiences with both these Iodine supplementsi has been.
Your experience is not meant to be a substitute for reading a book, but Jim, you are usually very willing to share your experiences here. And I will be very happy to read the book.
63 year old woman feels like 80! CFSi since 1998. Severe fatigue and awful reverse sleep main symptoms. No Fibro. Tested positive for CPN 3/07. Severe reaction to azithro (begun slowly in 5/07) - stopped. Started 100mg Doxyi 2X/day 1/11/08. Also t
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63 year old woman feels like 80! CFSi since 1998. Severe fatigue and awful reverse sleep main symptoms. No Fibro. Tested positive for CPN 3/07. Severe reaction to azithro (begun slowly in 5/07) - stopped.
I second Jim's advice to get
I second Jim's advice to get informed before using iodine. I just discovered that some folks are allergic to it after researching why topical iodine burned my skin. Hopefully that won't preclude oral use of it, but may require an allergist's testing to find out. Hope that doesn't apply to anyone else here!
Marysia
CDC Lyme + 02/06; Cpni, HHV6, and EBVi + 03/08. 2 yrs slow improvement on variations of CAPi for Lyme. Currently slowly resuming treatment and changing to newly discovered (for me) Cpn protocol after a severe porphyriai attack 09/07 on Diflucan.
My doctor recommended that I
My doctor recommended that I use a substitute for Armour Thyroid which I'd been using for years. He wanted me to take dulce (which is sea weed) -- yuck. Hence my interest in either taking the Iodoral or the Magnescent Drops. He doesn't have any real knowledge of Iodoral or Magnescent Drops.
I cannot buy this book right now and I think the question I asked was a fairly benign one -- concerning the pro's and con's of Bromine release and whether Jim found it something to strive for.
But, I accept the response or rather non response I received. Cheers.
63 year old woman feels like 80! CFSi since 1998. Severe fatigue and awful reverse sleep main symptoms. No Fibro. Tested positive for CPN 3/07. Severe reaction to azithro (begun slowly in 5/07) - stopped. Started 100mg Doxyi 2X/day 1/11/08. Also t
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63 year old woman feels like 80! CFSi since 1998. Severe fatigue and awful reverse sleep main symptoms. No Fibro. Tested positive for CPN 3/07. Severe reaction to azithro (begun slowly in 5/07) - stopped.
Just got an expert opinion
Just got an expert opinion on bromine release and YES it is a good thing. Good to know.
63 year old woman feels like 80! CFSi since 1998. Severe fatigue and awful reverse sleep main symptoms. No Fibro. Tested positive for CPN 3/07. Severe reaction to azithro (begun slowly in 5/07) - stopped. Started 100mg Doxyi 2X/day 1/11/08. Also t
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63 year old woman feels like 80! CFSi since 1998. Severe fatigue and awful reverse sleep main symptoms. No Fibro. Tested positive for CPN 3/07. Severe reaction to azithro (begun slowly in 5/07) - stopped.
Denise- I apologize for any
Denise- I apologize for any snippeyness in my tone! I did not want to imply at all that your questions were off base. They were not. I just didn't have the energy to explain more after a long day of work. I have less time these days and more things to respond to.
I have to confess that my signature doesn't always reflect my current process because I'm doing a lot of experimenting with things but don't want to confuse new folks who often look to what I'm doing as the model. I had added in the iodoral for a bit, but am back to using the Magnascent because I'm trying some other directions and don't want to confuse the data in my responses.
I never got up to enough Iodorol to get to the bromine detox, so I don't have much to add from my own experience. Raven is a better source. I can say the Dr. Powell very much is behind this principle, and uses Brownstein's protocol to do so, and will work patients up to 100mg a day for a while depending on their reactions. He has found this has made a major difference for many people in energy and thyroid function. I have found use of the Magnascent to improve my energy and thinking during the day, but I suspect that at these quantities I'm not doing much to clear any bromine bound to receptor sites and create a more permanent change. I hope that gives a clearer read, and please don't take my fatigue as a personal comment on your curiosity! Mea culpa.
CAPi for Cpni 11/04. Dxi: 25yrs CFSi & FMSi. Protocol: 200mg Doxyi, 250mg MWF Azith, Tinii 1000mg/day pulses; Vit D1000 units, Iodoral 50mg, T4 & T3
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CAPi for Cpni 11/04. Dxi: 25yrs CFSi & FMSi. Currently: 250 aithromycin mwf, doxycycline 100mg BIDi, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3, 12mg Iodoral
Denise, there is a lot of
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Feeling 95% well-going for 100. Still testing + for Cpni. CAPi since 8-05 for Cpn/Mycoplasma P.for MSi and/or CFSi. Also EBVi and HHV6. Doxyi, Azith, Tinii pulses. NACi, Iodoral, T3, BHRT, MethyB12 injections, Nitro patch, LDNi, FIRsauna, methylation supps
Thanks so much Jim -- much
Thanks so much Jim -- much clearer now. I didn't understand you were so fatigued, but understand now and do appreciate your response. I apologize too -- for being less than gracious.
I can't imagine having this stupid condition AND working. So kudos to you. I'm always weak and exhausted and I DON'T work. Get some rest -- and please feel free to just tell me "I'm pooped and will answer you later."
I greatly appreciate your feedback on both Iodoral and the Magnescent Drops. Makes it easier to understand before I wade into the technical jargon. I get tired so quickly when I'm reading technical info, but will be reading the book (thanks to a very kind person here). And I will check out the links that Raven posted.
Your info is a big help to me as I'll be seeing my CFSi MD this week and discussing the Iodine issue with him. He is generally good, but doesn't have the interest/expertise in things other than dulce (seaweed).
I am looking forward to trying the Magnescent drops when they arrive and seeing what happens. You made the differences between Iodoral and Magnescent Drops very clear.
Have a good weekend Jim and thanks very very much. No need for mea culpas
denise
63 year old woman feels like 80! CFS since 1998. Severe fatigue and awful reverse sleep main symptoms. No Fibro. Tested positive for CPN 3/07. Severe reaction to azithro (begun slowly in 5/07) - stopped. Started 100mg Doxyi 2X/day 1/11/08. Also t
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63 year old woman feels like 80! CFSi since 1998. Severe fatigue and awful reverse sleep main symptoms. No Fibro. Tested positive for CPN 3/07. Severe reaction to azithro (begun slowly in 5/07) - stopped.