Instructions on Getting Started page

I have just had a misunderstanding with a good friend / doctor's PA.

Having been asked this morning to put together a primary school type guide to the drug schedule of the Wheldon protocol / regeme for a patient that is already taking all the bacterostatics, I have had to read through a pile of exasperating texts. The prescribing doctor has said that I was wrong. A screenshot of a paragraph of the Getting Started page showing 100 mg of doxycycline to be taken each day. They failed to read on to where it later says to take 2 x 100 mg of doxycycline. It isn't obviously clear to those that don't know what they're doing or health professionals that don't have basic comprehension ability what to do. This really could be re-written so that it cannot be mistaken ... even by health professionals.

I think that the patient will now given a write-up containing the wrong information. I shall ring this patient and give my input later on. But, as you can imagine, I am not a doctor and telling someone that I am right and the prescribing  doctor is wrong can sound pretty arrogant.

This patient is finally about to pulse. This patient does not use the Internet.

Anyway, what I am suggesting is that the getting started page be ammended to initially show what the full dose of doxycycline is and then to state that patients are to start at HALF DOSE of 100 mg per day.

Right, I am going to take a blood pressure reading and perhaps a few Vallium.

SG, Done.  

Please take a look?

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Thanks MacK. I am much obliged to you. I have absolutely no doubt that my version of correct will still be challenged. No worries though; I have plenty of Vallium that I can pop.  I suppose that I should now ring up the patient concerned ... or should I just have a Southern Comfort & Coke?

Laughing

G

“Don't believe everything you read on the internet.”

―    Abraham Lincoln<

Glenn, of course your version will be challenged, since most medical doctors knowledge of doxycycline will not extend beyond what they learnt in a few weeks of studying antibioticsi when they were medical students.  All you can do is show them the reason, both here and on David's site: http://www.davidwheldon.co.uk/ms-treatment.pdf<.

Beyond that, remember that valium, prozac and so on, are quickly addictive, so you are much better with your Southern Comfort and Coke..........................Sarah

                                                  

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

My drug of choice is generally Bacardi dark and Coke, but Valium's an option when dealing with unutterably stupid people.  lol

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

MacK ...


I have never actually seen the 1999 movie "The Sixth Sense" but I have no trouble recalling the iconic line from that film: "I see dead people".


I have sometimes felt like I was on a film set and have had to hold back from screaming out "I see stupid people!"

Have a Bacardi & Coke on me, Hun.

Cool

G.

“Don't believe everything you read on the internet.”

―    Abraham Lincoln<

My medication is The High Commissioner, a blended whisky from the Loch Lomond distillery. A couple of glasses and you feel like a High Commissioner yourself.

 

As for health professionals, Sarah’s neurologist has to take the biscuit. Having given her a diagnosis of terminal SPMSi he was angry when she disobeyed him and improved. He refused to look at the repeat MRI scans which showed the lesions melting away. Apparently he threw a tantrum in the radiologist’s office. I have never heard of such professional enragement. What a fragile ego.

D W - [Myalgia and hypertension">i (typically 155/95.) Began (2003) taking doxycycline and macrolide and later adding metronidazolei. No medication now. Morning BP typically 110/75]

Will do, SupaGuy.  And the sooner, the better.  (Been dealing with stupid people today.)

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Sounds good, DW.  Will pass that along to the Spirits Minister in my life.  Smile

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Do, Mac! Whisky contains numerous health-giving antioxidantsi, chiefly polyphenols and biofavonoids; these include quercetin. (They are probably derived from the casks in which the spirit is matured.)

D W - [Myalgia and hypertension">i (typically 155/95.) Began (2003) taking doxycycline and macrolide and later adding metronidazolei. No medication now. Morning BP typically 110/75]

I was asked to thank you for the suggestion and ..."please pass on to him my recommendation for Auchentoshan. It's a single malt, but it's aged in American Oak and has a wonderful flavor."

So, I suppose the cask comes into play, yet again?

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Hi Glenn,

I printed out the getting started pages for him, he lost it. He refuses to log on, and as i'm not his mother, i answer his quetions but apart from that, he can sort himself out. He buys supplementsi at the most expensive place in Swansea. He works on a computer and does have both home and personal wifi. I have written down the best sites for cheap supplementsi and where to get abxi. As his latest MRI scan showed no new lesions, I really think the proto col will help him so i persevere with banging my head on the wall every week i see him. 

xx



Hi Moggie!

The good news is that the chap in question recently completed his first metronidazolei pulse (3 tabs). I won't say that it hasn't been a very long time getting him there. I won't say that he isn't hard work. For anyone suffering from low blood pressure, he could indeed be a great asset. After popping anything upwards of 20 to 25 mg of Vallium, he really isn't a problem.

Regarding the getting started page. As it was, it did lead to confusion - and not just to those afflicted by MSi - but, in one case, by staff at a doctor's office. Gladly, the worlding on the Getting Started page has been slightly altered now, thus making the doxycycline schedule crystal clear.

Our mutual friend will hopefully be less reliant on that doctor's office for advice for this treatment these days.  He had been told numerous times to feel free to ring me at any time. I have developed and honed my skills at hiding my exasperation from him. I accept that I am rather renowned for having the tact of a rounders bat.

Hey Moggie, I know that you have your problems but I hope that you're doing OK.

G.

“Don't believe everything you read on the internet.”

―    Abraham Lincoln<

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