I'm still in there

A week ago we came home from the National Dairy Goat Show in Loveland, Colorado, a drive of four days - I do all the driving.  When we pulled into the barn area our trip odometer said 2012.7.   It was a four day trip - one of us was so heavy that he "couldn't get off the ground", so any upward slope slowed us to 50 or 55 MPH.  There were four in our caravan going and three coming.

We left July 3, arriving July 6, with eleven goats -  ten milkers and one dry yearling.  She went second in her class of more than fifty, with our milkers going tenth, fifteenth and sixteenth.  We didn't get National Champion (did that before) but were pleased with our showings.  And the trip was really wonderful!

We saw people who were children thirty years ago who were there with their children.  One had a picture of her and me taken where I judged a 4H show and she was fourteen.  She was there with her nineteen year old son.  When I figure out how this keeps happening, I will let you know.

Something I very rarely do is go off my meds.  Beginning several weeks before our trip, I did charcoal every day and several days did it twice.  This was very special, so I went off all abxi for three days, but took all supplementsi every day.  I stopped abxi the night before junior show day, staying off for the next day (milker show day) and the morning of the next  day, two of my sisters, their families, Richard's daughter, children and father-in-law, (sixteen altogether) came to visit. 

The place for the show was "The Ranch", a huge complex in CO.  We were penned  - 2500 to 3000 goats - in at least three barns and three tents and the show was in a separate barn several hundred feet away.  I was very nearly normal, with my old unbounded energy and my walking was very close to what it was before this stupid disease.  I was able to lead whoever needed to be led and spent hours in the show ring.  Many people commented on my incredible progress over the years.

Another thing is that the barns were probably two hundred feet by two hundred feet.   We were penned on the far side so it was two hundred fifty feet to the bathroom at least.  I stopped counting steps one time at one hundred ninety and still had far to go.  The amazing point is that I walked, walked, walked all day and never got tired.  When night came, we lay down on our cots by the goats and slept soundly. 

Since the long, long heavy trailer went to Montana to deliver a horse and visit family, we came home in three days, six hundred, seven hudred fifty, and six hundred miles,  We stayed at very nice "horse hotels" on the way home.  One of our caravan was a professional horse person, and had a long list of good places.  She discovered goats recently and found how delightful they are.  One of the places was in Lexington, MO and does Civil War reenactments for Nat Geographic.

Now we are home and I am back on all meds, again taking charcoal almost every day.  For several days after we got home I took none and my legs got heavier and heavier.  The main things I have to say again are:  I do not make a good invalid, and if you give this your all, I bet it will work for you, too.

Rica 

Comments

Hi SphinxMy return of

Hi Sphinx

My return of abilities IS amazing.  You had some return, too, apparently.  What seems to be slowly emerging is that, for some of us, the three abxi protocol doesn't dig far enough in.  That certainly seems to be the case with me, though I am convinced that I could never have survived the whole Stratton Protocol at the beginning.  When I sank back halfway to oblivion three years ago and began the five abxi protocol, it was almost but not quite like starting over. 

My progress continues.  Every day - though I had the three days off (I was flying!), I take all five abx (I take 125 mg of Azitromycin every night).  Right now our temperature is 100 degrees F with a heat index of 108.  Eight years ago I had horrible heat intolerance, but can now (uncomfortably) go to the barn twice a day and do our two to two and a half hours of "chores".  We are literally dripping and standing in front of the fan is a welcome break.  BUT - it gets done. 

I take Azithromycin, Amoxicillini and flagyli at night because I need to have my wits in the barn.  So I sleep through the worst.  Every morning, two hours after supplementsi, I take Rifampin, Amoxicillin, Doxycycline, and flagyl, while I am still in the barn.  I am usually in the house when the worst reaction hits.  But NONE of the reaction is comparable to three years ago.

Were you able to get out of your wheelchair?  Keep exercising and don't give up till you have tried all of this - as long as it takes.  If you had improvements, I think they will be back.  Do you use moppers and do you take B-12?  Now that you are back on abx, can you hold a pen?

Rica

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Thank you

for your kind answer, Rica. I copie your answer for my doctor.I´m not sure if I can handle the full Stratton protocol at the moment. But you encourage me to talk to my doc about this again.

It´s helpful to hear that your progress continues. I´m glad that it doesn´t get worse for me at the moment. All the improvements  I had are back , nothing is toturing me and I can write as good as before so abxi helped me, again.

I take moppers, B12 , all supps, as before.

I changed : because after Dr Klinghardt (who is practising in the USA, but sometimes he´s in Germany) I have a lack of acethylcholin, which is an element for myeline.One of the causes he says is an infection with chlamydia pneumoniae!!

 

His therapy  is: phosphatidylserin, Acetyl-L-carnitine, alpha lipon, Omega 3, mangan, taurin etc.

So I added phosphatydilserin and I also added creatine, ha!you should see my growing arm muscles, but I need some mor for my legs.

Thank you for your encouraging  words, I won´t give up. It´s so good that you are around.

 

sphinx

 

I exercise a lot, but I don´t  get out of my wheelchair, because I can´t lift one leg at all.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 Wheldon CAPi May 2008,   52  Tinii pulses - stopped Nov.2013- Buhner´s protocol Dec. 2013 till  June 2014 - cpni free Oct. 2014

Does that mean only a leg or

Does that mean only a leg or both legs, one at a time?

Rica

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

It means

that my right leg doesn´t lift at all, plus foot drop. My left leg is getting worse , because I don´t move in a walking way. I just change from wheelchair to bed or couch, that´s not enough.

 

sphinx

 Wheldon CAPi May 2008,   52  Tinii pulses - stopped Nov.2013- Buhner´s protocol Dec. 2013 till  June 2014 - cpni free Oct. 2014

Happy

Hi Rica,

I´m so happy for you. What  you are able to do again is such a "miracle" .

So if you don´t take your meds every day, symptoms come back?

 

 I would like to try intermittent again, but I´m so scared, because last year all symptoms came back after 8 months intermittent. It took 7 months to reach the level before I went intermittent .I`m still in my wheelchair, but I enjoy life.

 

sphinx

 

 

 

 Wheldon CAPi May 2008,   52  Tinii pulses - stopped Nov.2013- Buhner´s protocol Dec. 2013 till  June 2014 - cpni free Oct. 2014

Spam - deleted

spam - deleted

(MacK)

Rica, You truly are an

Rica, You truly are an inspiration.  To think, when we first 'met' (before we actually met), you were selling off the herd and preparing to move into a wheelchair!  All I can say is WOW.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Rica, you never fail to amaze

Rica, you never fail to amaze and delight. (I like you too, Richard.)

PPMSi-misdiagnosed 2001-diagnosed 2006. Probably caught cpni in birth canal but it didn't pass BBBi until my 40s. Minocycline 7 mos.- resulting bronchitis 5 months.Go to private m.d. out-of-plan. Wheldon CAPi 3/2/07 Stopped 12/12; resumed 12/13