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Aggressive SPMSii, EDSSii 9, on CAPii since 2005. Doxyii 100mg 2x/day, Azithro 250mg MWF, NACi 2400mg/day, Metroi 1250mg/day 5 days on, 10 days off, charcoal 1250mg/day during Metro pulses.
I'm baaack. Good news, too.
Submitted by mswillow on Fri, 2009-07-17 16:23. Well, I did two pulses since the last post. The worst I felt, before charcoal on day 5, was "lousy." Even better, progress is finally happening - yesterday, I actually managed to stand with minimal help for 15 seconds. Way cool! Soon, I'll go fulltime on metroi, and be flying. Whee! :)
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Amazing - both your tenacity
Amazing - both your tenacity and the standing! What a thrill! No telling how far you will go.
Rica
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3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amoxicillini 1000, Doxyi 200, MWF Azith 250, flagyli 1000. Caffeine pills with AM abxi Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1
Congrulations mswillow,
Congrulations mswillow, it's really fascicilating.
YILMAZ.
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KEREM'S TAKECARER;
Suspıcıon of MSi (transient nystagmus during conjugated gaze on february 2008, blepharospazms and some optic complaints on february 2009-no plaque on MRI), Vit D3 started 400 IU and elevated to 2000 ıu ın 40 days.
Horray!!!
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MSi TMJ trigeminal neuralgia
cfsineutropeniaicystitisnephritisoptc-neuritissinusitis. Dox200 zith250 rif 600 daily. Treating cpn and TBI'sExcellent news!
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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
Willow, your tenacity never
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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.
Hi WillowI'm new but I'm so
Hi Willow
I'm new but I'm so pleased to hear of your progress. I see you're also a jewellery fiend from your previous posts - me too (within a tight budget!) - I'm about to commission a new ring (when I can get my brain to work again) probably in an Art Deco style with a deep green tourmaline or maybe a cool, pale prasiolite - I'm well excited.
love
Agatha
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RRMsi diagnosed 2008 (symptoms for 20 years). Also sinusitis, recurrent UTIs, IBS Wheldon protocol began 31/7/09 Doxyi 200mg, Azithro 250 3X week. Supplementsi B12, D3 Vit C, multivit, Fish oil, probiotics, NACi, vit E, turmeric
Msi. Willow, if you dont
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Mphs, TN. CFSi, hypoT (Hashi), adrenal fatigue-almost resolved, severe hormonal inbalance-resolved, right arm neuropathy-getting better. cpni, myco, EBVi, CMV. Capi began in 6/07. NACi 3000mg, minoi 100mg bidi, biaxin 500mg bidi. cytomel, tinii pulses
Willow I follow your blogs
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6-07WheldonCAP CFS20+yr
(11-29-07 started Cholestyramine HS PRNi x 7d for porphyrin+endotoxinsi removal)
Check out Louise's Blog at; http://www.cpnhelp.org/blog/louise for the details of my treatment adventure!
MsWillow, your story is the
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Cured of multiple sclerosisi, stopped the Wheldon's protocol in Nov,2008, but still occasionally pulsing. EDSSi 0 for over 6 years.
Thanks, everybody. It's
Agatha, that ring sounds interesting. I'd love pics when it's finished.
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Aggressive SPMSi, EDSSi 9, on CAPi since 2005. Doxyi 100mg 2x/day, Azithro 250mg MWF, NACi 2400mg/day, Metroi 1250mg/day 5 days on, 10 days off, charcoal 1250mg/day during Metro pulses.