I Am Mad As Hell With A Certain Member Of The Media

Hi,

Paula wanted me to ring a local talk show about the links between M.E/CFSi and cpni.  The show is Metroi Radio and the host is Alan Robson.

Paula is concerned about the number of people with severe M.E. who are unable to use the internet and wanted me to talk about this site, just to give some people some hope.

I was on the show for 33 minutes.  It started out pretty well, especially when I talked about Paula's history of M.E.

Problems started because of his ignorance.  He may have been playing devil's advocate, but he seemed to believe that CFS is caused by depression.  He even quoted a nurse who contacts the show regularly and says that it is caused by depression.

I then mentioned Chlamydia Pneumoniae.  His nurse friend from Ohio said and I paraphrase - He has googled Chylamydia Albicans Pneumoniae and it says it is caused by being in bed for too long!!!  I told him I had never heard of this Albicans (Paula has since said that he is getting mixed up with Candida Albicans)

I was very annoyed with the way the conversation went as he wouldn't listen to what the correct name for cpn is.

I have sent him an email stating the confusion he had with Candida Albicans.  I also listed the cpnhelp website and a link to the immunesupport.com article by Jim on links between cfs and cpn infection.

Afterwards he stated on the radio that he had looked at the cpnhelp website and doesn't trust any health related website that :-

a) Asks for money

b) Has a disclaimer like this http://www.cpnhelp.org/?q=node/891< relating to contact a doctor before using the protocol.

Mad as a hatter I am!!!!!!!!!

Here is a link to email Alan Robson if anyone wants to :-

http://www.metroradio.co.uk/Article.asp?id=538207&spid=20377<

The show is still on if anyone wants to listen and is called Night Owls available to hear on the site.

Yell

Mark

 

Metroi Radio has publicly said on the radio that cpnhelp.org is just after everyone's money.  The Ohio nurse said the site was predatory.  God, this is what happens when I try to do some good.

Please see my post:-

http://www.cpnhelp.org/i_am_mad_as_hell_with_a_c<

Sorry Jim.

Mark

 

UK Carer of bedridden Severe ME/CFS Feb06. CPN dxi. Apr07. Samento 15 drops per day July07.  2400mg NAC 200mg Doxyi Jan 08.

UK Carer of bedridden Severe CFS Feb06. Tick bites Summer04.  CPNi dxi.Apr07. Borrelia dx Sept08. Samento 15 drps daily July07.  200mg Doxyi Jan08.  300mg Roxy Apr08 Stopped abxi Nov/Dec08. Building up on Supps again.

We have a saying in our house Mark that you can't educate pork and in this case, well I tried to listen to their live stream and it was dire music. I also looked at the bio. of the DJ on the site and here is a bit of it:

"He began his career in local rock bands and stand up comedy before becoming the North's best known and most popular radio broadcaster. So let us take a look at what Alan is all about:-
...
He was attacked and bitten by wild dogs in Transylvania needing stitches and ultimately leading to an infection and pneumonia that almost killed him."

He might be more interested in Cpni than he thinks...when he finds time amongst his witchcraft and poltergeist interests.

The trouble is that he has access to the airwaves in Tyneside and like a lot of late night commercial broadcasters can be as opinionated as he likes, so long as the advertisers aren't upset.

New Forest, UK. Progressive MSi dxi 12/06 LDNi 3/07 CAPi 6/07: Wheldon version.

speedbird

Thanks Speedbird.

Paula was really upset about what Metroi Radio said, especially that CFSi was caused by depression.  I don't think any doctor these days will say that.

But anyway, I wanted to point people in the North East Of England to cpnhelp.org and my argument was shot down in 1 minute by the radio station saying that all that cpnhelp was interested in was money and that cpnhelp was very predatory.

How many people with CFS will want to go on the site after that?

Yell 

Mark

UK Carer of bedridden Severe ME/CFS Feb06. CPN dxi. Apr07. Samento 15 drops per day July07.  2400mg NAC 200mg Doxyi Jan 08.

UK Carer of bedridden Severe CFS Feb06. Tick bites Summer04.  CPNi dxi.Apr07. Borrelia dx Sept08. Samento 15 drps daily July07.  200mg Doxyi Jan08.  300mg Roxy Apr08 Stopped abxi Nov/Dec08. Building up on Supps again.

Anyone want to email Night Owls show on Metroi Radio, describing why cpnhelp.org is not after people's money and they are definately not predatory, please go to this link and send your comments:-

 http://www.metroradio.co.uk/Article.asp?id=538207&spid=20377<

Mark

UK Carer of bedridden Severe ME/CFS Feb06. CPN dxi. Apr07. Samento 15 drops per day July07.  2400mg NAC 200mg Doxyi Jan 08.

UK Carer of bedridden Severe CFS Feb06. Tick bites Summer04.  CPNi dxi.Apr07. Borrelia dx Sept08. Samento 15 drps daily July07.  200mg Doxyi Jan08.  300mg Roxy Apr08 Stopped abxi Nov/Dec08. Building up on Supps again.

Just done it Mark - for all the good it will do.

--

Cpnhelp.org: This is website devoted to the understanding and treatment of Chlamydia Pneumoniae, an infectious bacteria implicated in a number of human illnesses. Cpnhelp.org is a *non-commercial, website run and supported by volunteers, and does not take monetary or other assistance from any other sources*.

www.cpnhelp.org was started by educated patients (like me, I have MSi ) who are themselves undergoing combination antibiotic treatment of diseasesi where Cpn has been implicated.

Your nurse from Ohio might just like to update herself and contact Dr Stratton at Vanderbilt University in Tennessee. He is the pioneer of research into this organism and has recently received further funding to expand his laboratory and further research into treatment.Further more a British microbiologist is also involved in refining the treatment.

Chlamydia Pneumoniae is a bacteria which causes respiratory illness and is nothing to do with the sexually transmitted Chlamydia. I see that you have had pnuemonia in the past, you may want to look into this bacteria more closely sometime.

Cpn was only discovered in the 1980's so many medics are unaware of it still - shame on them.

-- 

Yup, I used the home page text because I guess that's what they glanced at, not read and I was mad with him too.Wink

New Forest, UK. Progressive MSi dxi 12/06 LDNi 3/07 CAPi 6/07: Wheldon version.

speedbird

I emailed also. Cpni, babesiosis, Meniere's, IBSi; Doxyi 100mg qdi (x3 weeks), HRT
Cpni, babesiosis, Meniere's, IBSi; Doxyi 100mg qdi (x3 weeks), HRT

Thank you sooo much Mark & Paula for your efforts on our behalf.  I have copy & pasted our Birdies message & added a few "comments" of my own & sent it off via you comment link.

The media only wants to create negativity as that is what brings on the listeners & readers.  We battle this attitude in Canada & the USA.

No apology necessary, you done good!

Blessings brother & sister!

CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonin">i, GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 2-26-08 7th pulse 2 X 375 mg 2day

CFIDSi/ME, FMSi, MCS, IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplementsi+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyli/day-5 days<

Thanks everyone.

Has anyone heard of Chlamydia Albicans Pneumoniae, cos it seemed to shoot my argument down to hell at that point when he said that he had received an email stating that this was the real illness and Chylamidia Albicans Pneumoniae is caused by INACTIVITY!!!!!!!.

I don't think it even exists and there is a mixup with Candida Albicans.  I posted to the site that he was wrong, but he wouldn't post it (even though he posted the comment I made afterwards)

I did my best.

Please send your comments to :-

http://www.metroradio.co.uk/Article.asp?id=538207&spid=20377<

Yell

Off to bed next - it's 02.30am here in the UK.

 

UK Carer of bedridden Severe ME/CFS Feb06. CPNi dxi. Apr07. Samento 15 drops per day July07.  2400mg NAC 200mg Doxyi Jan 08.

UK Carer of bedridden Severe CFS Feb06. Tick bites Summer04.  CPNi dxi.Apr07. Borrelia dx Sept08. Samento 15 drps daily July07.  200mg Doxyi Jan08.  300mg Roxy Apr08 Stopped abxi Nov/Dec08. Building up on Supps again.

 Thanks all. Mark, don't worry about it. As they say, there is no such thing as bad publicity. If even a few people see the site for themselves and find it as a resource it's gold as far as our mission is concerned. As they say, no good deed goes unpunished.

CAPi for Cpni 11/04. Dxi: 25yrs CFSi & FMSi. Protocol: 200mg Doxyi, 500mg MWF Azith, Tinii 1000mg/day pulses; Vit D1000 units, Iodoral 50mg, T4 & T3

 

CAPi for Cpni 11/04. Dxi: 25+yrs CFSi & FMSi. Currently: 250 aithromycin mwf, doxycycline 100mg BIDi, restarted Tinii pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

Thanks Jim,

It's just that this has caused Paula a lot of stress tonight, especially the ignorance about CFSi and depression.  Also what they said about cpnhelp.org didn't help her at all.

Has anyone heard of Chlamydia Albicans Pneumoniae?  Does it exist?  If it doesn't I am going to play Holy Hell with Metroi Radio and get them to admit it.

Def. off to bed now.  Paula has relaxed a bit.

Thanks everyone.

Mark

UK Carer of bedridden Severe ME/CFS Feb06. CPN dxi. Apr07. Samento 15 drops per day July07.  2400mg NAC 200mg Doxyi Jan 08.

UK Carer of bedridden Severe CFS Feb06. Tick bites Summer04.  CPNi dxi.Apr07. Borrelia dx Sept08. Samento 15 drps daily July07.  200mg Doxyi Jan08.  300mg Roxy Apr08 Stopped abxi Nov/Dec08. Building up on Supps again.

First off, let me say 'ignorant'. My dad used to teach inner city kids and was astonished to learn they thought cows were the size of dogs. His response was 'you don't know what you don't know, so you can't fault people for what they don't know'. Every year thereafter, he took his classes on a field trip to a farm. In this case, someone who 'doesn't know' but who has the ear of the public has a responsibility to LEARN. Someone who will not learn and who spews false information is a detriment. As an aside, I think the verbiage in the margin regarding donations is quite clear. The money isn't used for wild parties or to support someone's palatial lifestyle. It is there to maintain the site and to set any overage apart for future needs and/or research.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

I've sent in my twopenneth also, but as you say I don't think it will make much difference.

This person does know what he doesn't know but he is using to prod and provoke.   Not sure whether responding to this kind of programme is going to do any good, but as Jim says there is no such thing as bad publicity.

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.

Had a bit of a think this morning.  I will not ring the show (I can't for at least a week anyway as they have a policy of not allowing people to ring more than once per week).

I have decided to ask for an email to be read from me on air stating a few facts about CFSi.

I will also if Jim allows, state about the help that this website does and that it is not selling anything and any money donated is for the upkeep of the server.  Many other voluntarily run sites do this too.

As for the mention of cpnhelp in my email - anyone else want to write a short statement for me - Jim?

During the show, there were a few very angry CFS people contacting the show - so I did stir up quite a hornet's nest.

I rang up originally on Paula's behalf as quite a few people have rang in the past asking for any information to help them with CFS.  In fact last week a caller was asking about MSi, so I rang Metroi Radio reception and gave them Dr Wheldon's and cpnhelp websites.

Paula is communicating via text with someone who is even worsely effected than her. This person is bedridden, tube-fed, has no family to help her out.  The only person she sees is a carer who comes to her 3 times per day to empty her bedpan.  She hasn't got enough energy to read or watch tv.  This woman can only manage to text a couple of times per day.  Paula thought that there may be many "hidden" people out there who have no hope and suggested I contact the show to give some hope.

Unfortunately because of some twisting of words and disinformation about CFS in general and the cpnhelp website by a "nurse" who rang the show, all my aims just went down the toilet as I am "just a layperson".

:-(

Mark

UK Carer of bedridden Severe ME/CFS Feb06. CPN dxi. Apr07. Samento 15 drops per day July07.  2400mg NAC 200mg Doxyi Jan 08.

UK Carer of bedridden Severe CFS Feb06. Tick bites Summer04.  CPNi dxi.Apr07. Borrelia dx Sept08. Samento 15 drps daily July07.  200mg Doxyi Jan08.  300mg Roxy Apr08 Stopped abxi Nov/Dec08. Building up on Supps again.

 

Crumbs, Mark!  I have had two experiences with local radio, one about teaching printmaking to teenagers with "learning difficulties" and one as local spokesman for Friends of the Earth on deforestation.  Accuracy is not their strong point and I wouldn't do it again unless I could talk live: there was way too much inaccurate editing and they didn't like my accent..........Sarah

An Itinerary in Light and Shadow...........Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still slowly improving and no exacerbation since starting. EDSSi was 7, now 2, less on a good day.

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Local radio is OK if you stick to uncontroversial subjects...

I e-mailed the programme setting them straight about the funding of this site and also about their mix up about CPni and Candida.   I don't think it will change anyone's mind, but any airing of the facts is probably better than letting falsehoods go unchallenged.  You only have to look at the way Alan Robson portrays himself to see what kind of reception Mark's information would receive...

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.

Anyone want to give me a hand to write a short statement to be read out on the show?  I don't have a massive amount of time and have to get ready to go to work next.  I won't be back until when the show starts again tonight and I reckon any statement will have the best impact if it is read out 24 hours after my grilling on the radio last night.

One thing you will all find about me is that I don't give in.  I hate injustice!

Tongue out

Thanks everyone.

Mark 

UK Carer of bedridden Severe ME/CFS Feb06. CPNi dxi. Apr07. Samento 15 drops per day July07.  2400mg NAC 200mg Doxyi Jan 08.

UK Carer of bedridden Severe CFS Feb06. Tick bites Summer04.  CPNi dxi.Apr07. Borrelia dx Sept08. Samento 15 drps daily July07.  200mg Doxyi Jan08.  300mg Roxy Apr08 Stopped abxi Nov/Dec08. Building up on Supps again.

A report from the money-grubbing dictator of Cpnhelp:

We have an accumulated grand total of $3653.80 in the till, all from donations. We are facing a major site overhaul to improve security and usability and upgrade to the latest version of Drupal. I'm still awaiting estimates, but that will probably take betwen $1000-2000. These dollars have been accumulating for over a year untouched, as that was the last time we had to pay for webmaster services.

Any remaining dollars I will consume in a massive binge of drinking and wild partying. Well at least as much as my porphyric tendencies will allow. Which means on a glass of wine one night with dinner. Well, actually I'll pay for that myself, but my intention is to blow all the money on a wild night if I could ever tolerate any such thing. A guy can have a fantasy, can't he? I'm a bad guy only in my fantasies, too much guilt proneness.

CAPi for Cpn 11/04. Dxi: 25yrs CFSi & FMSi. Protocol: 200mg Doxyi, 500mg MWF Azith, Tinii 1000mg/day pulses; Vit D1000 units, Iodoral 50mg, T4 & T3

 

CAPi for Cpni 11/04. Dxi: 25+yrs CFSi & FMSi. Currently: 250 aithromycin mwf, doxycycline 100mg BIDi, restarted Tinii pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

Mark, how about this (a bit expanded from what I e-mailed the radio station):

 

Cpnhelp.org is a website supporting people following a Combined Antibiotic Protocol to treat Cpn implicated in a number of chronic debilitating diseasesi, such as MS, CFSi, Fibromyalgiai, RA, Asthmai etc.   It is supported by the research of a team of doctors and scientists from Vanderbilt University, and a British Consultant Microbiologist.   The site is self-supporting by the contributions of the members, these contributions are totally voluntary and not a condition of membership.

Cpn (Chlamydophilla Pneumoniaei, also known as Chlamydia Pneumoniae but not to be confused with Candida Albicans) is a respiratory infection which is may cause little symptom at first but as it becomes chronic it can lead to a multitude of symptoms that manifests is various parts of the body.   Different people are affected differently possibly according to their genetic make-up.   The Bacterium itself has three life phases, one of them a dormant phase (called cryptic) which enables it to survive inside cells undetected by the body’s immunei system until conditions are right for it to become active again.

 

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.

Michele and Mark, I like Michele's expanded email.  Also I want to sa that it takes less energy to Love Justice and Love getting the word out about CPni and persistent intracelluar infectionsi.   Making the information freely available has been the best part of the start and continuation of this site in my opinion.   Without it I would not really know what to ask for and keep alert for new developments and the opportunity to ask them that have and are doing it about their experiences.   It's 24/7 better than any support meeting I have attended!

Louise

CFSi/ME.CPnPositive.BbPositive.WheldonCAPbegan6/24/07. NowNAC,Doxyi, Roxi, TiniPulse#4 Ended2/3/08. Cholestyramine at BedtimeforPhorphoria&liposacarideEndotoxinDie-OffExperiences.

  • CAPi(TiniOnly): 06/07-02/09 for CFSi<
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDNi 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support
  • <
Not to worry, the word is still getting out.  People will take a look at this website even if out of curiousity and see that it is a wonderful site to become educated on the subject.  A few days ago I talked with someone who was diagnosed within the past 6 months with MSi.  I gave him this website address, as well as a few others.  He called me last night to tell me he had read through the site and was convinced and wanted to make an appointment at  Vanderbilt to get started.  I told him to read everything on this site to become as educated as possible before he goes.  So my point is that once people read through information here they understand the relevance of this pathogen to their disease and want to proceed.  So as Jim said, even negative publicity is still publicity and people can make their own decisions once they get here.  Which is what we want them to do in the first place, right?
 
Lori
 
Started Vanderbilt protocol 1/9/08  Rifampin twice a day, azithromycin MWF, flagyli 7 days/month/B12 injection monthly NACi daily, DHA
 
Started Vanderbilt protocol 1/9/08  Rifampin once a day, b12 injection monthly , vitamin Di 50,000 IU weekly

Thanks Michelle and Jim.

Writing articles is not one of my strong points and that one above from you Michelle looks great.

Thanks again.  I'm gonna try to finish work early tonight and type it up.  I will ask it to be read on air.

Mark 

 

UK Carer of bedridden Severe ME/CFS Feb06. CPNi dxi. Apr07. Samento 15 drops per day July07.  2400mg NAC 200mg Doxyi Jan 08.

UK Carer of bedridden Severe CFS Feb06. Tick bites Summer04.  CPNi dxi.Apr07. Borrelia dx Sept08. Samento 15 drps daily July07.  200mg Doxyi Jan08.  300mg Roxy Apr08 Stopped abxi Nov/Dec08. Building up on Supps again.

Mark, Could you squeeze something in there about how this information is patented, but the study's authors released the information freely for compassionate reasons?

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

ok Mac 

 

UK Carer of bedridden Severe ME/CFS Feb06. CPNi dxi. Apr07. Samento 15 drops per day July07.  2400mg NAC 200mg Doxyi Jan 08.

UK Carer of bedridden Severe CFS Feb06. Tick bites Summer04.  CPNi dxi.Apr07. Borrelia dx Sept08. Samento 15 drps daily July07.  200mg Doxyi Jan08.  300mg Roxy Apr08 Stopped abxi Nov/Dec08. Building up on Supps again.

Mark I have noticed a couple of typos in the previous version... so here is one that hopefully does not have any... 

 

Cpnhelp.org is a website supporting people following a Combined Antibiotic Protocol to treat Cpn implicated in a number of chronic debilitating diseasesi, such as MS, CFSi, Fibromyalgiai, RAi, Asthmai etc.   It is supported by the research of a team of doctors and scientists from Vanderbilt University, and a British Consultant Microbiologist.   The site is self-supporting by the contributions of the members, these contributions are totally voluntary and not a condition of membership.

Cpn (Chlamydophilla Pneumoniaei, also known as Chlamydia Pneumoniae but not to be confused with Candida Albicans) is a respiratory infection which may cause little symptom at first but as it becomes chronic, can lead to a multitude of symptoms that manifests in various parts of the body.   Different people are affected differently possibly according to their genetic make-up.   The Bacterium itself has three life phases, one of them a dormant phase (called cryptic) which enables it to survive inside cells undetected by the body’s immunei system until conditions are right for it to become active again.

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.

Thanks Michelle,

Got it.

UK Carer of bedridden Severe ME/CFS Feb06. CPNi dxi. Apr07. Samento 15 drops per day July07.  2400mg NAC 200mg Doxyi Jan 08.

UK Carer of bedridden Severe CFS Feb06. Tick bites Summer04.  CPNi dxi.Apr07. Borrelia dx Sept08. Samento 15 drps daily July07.  200mg Doxyi Jan08.  300mg Roxy Apr08 Stopped abxi Nov/Dec08. Building up on Supps again.

I just had this reply,

I did not 'rubbish' them I suggested you should be careful taking
medical advice from any organisation run by people who are not medically
trained. Fair comment I think. Come on the show and talk about it! We
received comments from doctors that are saying the opposite of advice
given on the site. Everyone has a right to an opinion.

 

New Forest, UK. Progressive MSi dxi 12/06 LDNi 3/07 CAPi 6/07: Wheldon version.

speedbird

You might reply to that by saying that we do have medically trained people on the  website, we have at least three doctors as members and possibly four or five nurses.   The founders are a psychologist and a nurse.   We also have a number of scientists amongst our members.

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.

As well as several prescribing doctors!!! Mark, I'd be careful agreeing to go on that show. It will be all about trying to discredit and enrage you.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Thanks everyone.  Typing this from work and copying notes of everyone's comments.

Don't worry Mac - I'm not going on the show anymore - Just want to set the record straight with a statement that I want reading out on air, that's all.

Mark 

 

UK Carer of bedridden Severe ME/CFS Feb06. CPNi dxi. Apr07. Samento 15 drops per day July07.  2400mg NAC 200mg Doxyi Jan 08.

UK Carer of bedridden Severe CFS Feb06. Tick bites Summer04.  CPNi dxi.Apr07. Borrelia dx Sept08. Samento 15 drps daily July07.  200mg Doxyi Jan08.  300mg Roxy Apr08 Stopped abxi Nov/Dec08. Building up on Supps again.

Thanks Speedbird.

If calling this site "predatory" and stating "I wouldn't trust a site that demands money from people" isn't rubbishing cpnhelp.org I don't know what is. 

 

UK Carer of bedridden Severe ME/CFS Feb06. CPN dxi. Apr07. Samento 15 drops per day July07.  2400mg NAC 200mg Doxyi Jan 08.

UK Carer of bedridden Severe CFS Feb06. Tick bites Summer04.  CPNi dxi.Apr07. Borrelia dx Sept08. Samento 15 drps daily July07.  200mg Doxyi Jan08.  300mg Roxy Apr08 Stopped abxi Nov/Dec08. Building up on Supps again.

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