Hugh of the Thousand (er, Nine Hundred Eighty Four) Days

I don't know how many of you are old enough to remember the 1960's movie about the life of Anne Boelyn entitled "Anne of the Thousand Days".  Apart from the candence of the title, it has nothing to do with this post.  As a young man, I did think Geniveve Bujold was one of the most beautiful women ever.  I wanted to marry a woman that looked like her.  Of course, as I grew up, my tastes changed and my wife looks nothing like Geniveve Bujold, but that's okay because so far I haven't had the urge to cut off her head.

I started counting down to retirement when there were 1,000 calendar days left.  Today it is 984 days to go. The place I intend to retire doesn't have access to broadband internet (yes, there are still places like that), so at that time I will permanently drop off this site, but until that I'll continue to drop by and share the fact that whatever you want to call it, the CAPi gave me my life back and I'm trying to use that time productively.

Comments

The lady in question

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Yep

How could a young man not be captivated by that face? 

CAPi for M.S. 8/2007 - 3/2009.  Twentieth pulse metronidazolei + INHi completed 3/12/2009.  Intermittent treatment thereafter until 11/20/2009.  

I'm smiling, because once

I'm smiling, because once upon a time (no, this is not one of your clever stories, hdwhit) my dad saw her on some magazine cover and said I looked like her.  By the time she was (almost) a Star Trek captain, the similarity had passed.

So, have you never done abxi after 2009?  I stopped after you did, then. 

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

End of Regular Therapy

I stopped the regular use of antibioticsi following my 20th pulse on March 12, 2009.  I chose to stop because I had gone through several pulses with no die-off reaction which I took to indicate that if I had not eradicated the Cpni, I had at least reduced its numbers to the the point where there weren't enough to cause significant adverse reactions when I killed off a fraction of the remaining propulation. 

I continued to do intermittent pulses of the antibiotics approximately monthly until November 2009 when I ran out of azithromycin.  The remaining antibiotics that I had have long ago expired.  

I had my last MSi exacerbation in November 2007 shortly after starting the CAPi.  I have had no new symptoms since then and the numerous symptoms that I had at the time have, with the exception of my optic neuritis, all completely resolved or greatly improved in the following years.  MRIs done since completing the CAP have, in the words of the Radiologist(s) reviewing them, been "remarkably stable".

Unlike Sarah Wheldon, my existing lesions have either remained unchanged or have shrunk only slightly; only a couple tiny ones have disappeared completely.  It take this to mean that while the Cpn has been largely (if not completely) eradicated, my body has not been as effective at repairing the damaged areas. 

CAPi for M.S. 8/2007 - 3/2009.  Twentieth pulse metronidazolei + INHi completed 3/12/2009.  Intermittent treatment thereafter until 11/20/2009.  

Hey, Only my more recent ones

Hey, only my more recent ones have either vanishes or faded: I am stuck with the older ones but I seem to have been able to work around them by and large.  I guess for this reason, a neurologist would say I still had MSi but for some strange reason my progression had stopped.  I don't care: I am still here.................................SARAH

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.