Hoping for a Higher Level
It seems much longer than the 20 days that have elapsed since my adventure in Wyoming. After returning only 3 weeks ago tomorrow, we (Richard and I) began flagyli 2 days later on Thursday night. My own response was the usual short hour until loss of function - a little less than usual - and mental confusion - much more than usual and the lethargy lasting for days. I still have the emotional flatness and great amounts of slow, fuzzy thinking. And the vertigo, something always present, this time in huge waves requiring me to hold on and wait till it passed every time I changed position. Even now, 13 days after ending the pulse, if I move suddenly, I must stop and wait, but briefly now. I look at this pulse in wonder. My walking deteriorated but less than in the past and for the first time I had a slight shortness of breath, now gone. It was very different from all the ones proceding it. My hope is that I am reaching a dividing line between the physical repair and beginning a much deeper burrowing into the brain. I have tried several times to extend my pulses with limited success and am almost looking forward (crazy!) to the next flagyl to see what the rewards will be.
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Comments
Yeah Rica, I hope the roof
Yeah Rica,
I hope the roof is repaired & you don't venture up the ladder to fly!
Please keep your feet on the ground for the time being "Crazy Goat Lady"
Blessings
Ruth
CFIDSi/ME, FMSi, IBSi, EBVi, Cpni, Babesia, insomnia (sleep- melatonini, GABA, tarazadone, temazepam, novocyclopine, allergy formula, 2 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, Doxyi 200 mg day pm, Azith 250 mg M/W/Fday
CFIDSi/ME, FMSi, MCS, IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplementsi+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyli/day-5 days<
Sensible to the utmost,
Sensible to the utmost, unlike Icharus, you know when not to fly... I appreciate your experience with flagyli pulses. They seem to change their effect time after time.
Michele (UK) GFAi: Wheldon CAP1st May 2006 . Daily Doxyi, Azi MWF, Flagyl at 400mg for 7 days prior to 5 day pulses at 1200mg three weeks cycle. Spokesperson for Ella, RRMSi Wheldon CAP 16th March 2006
Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.
VERY good. Very, very
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
Determined yes, pragmatic
Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyl total 44 pulses NC USA
3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan In for the duration.
Higher levels, eh? So you
Rica, Go, go, go! Now,
Rica, Go, go, go! Now, you climbing up the ladder and repairing the barn roof was exactly what I thought of also...when you mentioned having vertigo all the time. So you do it now because it needs doing and you are newly capable of doing it. Aren't you also terrified at the same time by the vertigo? Mmmmmmm......
Joyce~caregiver-advocate in Dallas for Steve J (SPMSi). CAP since August 06, antivirals, heavy metals chelation, LDNi, Metanx, Lunesta, GF/CF diet, Lauricidin, oral IgGi/lactoferrin/IGF-1 booster, astaxanthin, gamma oryzanol.
Joyce~caregiver-advocate in Dallas for Steve J (SPMSi). CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity.
Well done Rica...
Well done Rica... spiralling up to the higher levels. Though I'm only up to number 15 I have the same feeling now about looking forward to pulses even when the latest one has slammed into me leaving me wiped out, useless and in a panic for a weekend.........only you lot would understand the madness!
Elinor ..... from England on CAPi, doxyi/roxi/tini for ME/CFSi/lyme borreliosis, positive Cpni and borrelia. Started Aug05, stopped Jan06, started again Sept 06.
Rica, I hope you are
5oo mgs Ceftin 2 x/day, 500 mgs Zithromax, 500 mgs 2 x tinii pulses,100 mg diflucan, 4.5 ldni; Wheldon protocol for MSi April, 2006 to May 2008. 2008 MRI shows NO NEW DISEASE ACTIVITY, 2012 MRI no new disease activity.