Hold onto your hats: CFS/Cpn Article republished by Immune Support Newsletter

Well friends, expect another rush of interest in Cpnhelp.org. I sent the link to my recent article on CFS/FM & Cpn to Immunei Support, who publish a regular newsletter on CFS and FM topics. They were very interested in the article and published it, with some introductory commentary, in their Patient Opinion section of the CFS newsletter. You can find the article at:

http://www.immunesupport.com/library/showarticle.cfm?id=7938&T=CFIDS_FM&B1=EM042507C

Outed again!

Jim,  I'm so impressed

Jim,  I'm so impressed with this piece that I'm emotional, imagining how useful it is going to be in disseminating information on Cpni infection and treatment.  You've turned out some terrific work before, but this is spectacular.  Thank you for shedding light on those early Cpn research efforts at Vanderbilt, and you're right, it is tragic that those findings were not published back in those days.  How much further ahead would Cpn research have moved by now?  How much disease progression could have been halted and reversed?  How much pain could have been avoided?  If I were a Brit, I'd say "smashing!"

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi) / Cpn indicated by reactions; Mpn, EBVi, CMV positive; elevated heavy metals; gluten+casein sensitive / Wheldon CAPi since Aug. '06 - doxycycline+azithromycin+flagyl pulses; antivirals; chelation; LDNi.

Jim, that's a very good

Jim, that's a very good article; it's most informative, and well-written. The secondary porphyric aspect of chronic C. pneumoniae infection is almost unknown. Charles Strattoni discusses the critical interference by C. pneumoniae at the mitochondrioni / host interface (and the disorders of hemei synthesis which result) in an article in Antimicrobics and Infectious Diseasesi Newsletter. It's very well worth reading. (I thought I had the reference, though I can't now find it.) The functional Vitamin B12 deficiency of chronic C. pneumoniae infectionsi is likewise almost unknown.

Smashing!

D W - [Myalgia and hypertensioni (typically 155/95.) Began (2003) taking doxycycline and macrolide and later adding metronidazolei. Now normotensive; on intermittent treatment.]

As a Brit I will reiterate

As a Brit I will reiterate what Joyce and DW said, "Smashing!".......Sarah
 
An Itinerary in Light and Shadow
Wheldon regime since August 2003, for very aggressive SPMSi.  Intermittent therapy after one year. 2006 still take this, now two weeks every three months.  EDSS was about 7, now 2. United Kingdom.

Two thumbs up, way up!   

Two thumbs up, way up!    Excellent work Jim...    

 

On Combined Antibiotic Protocol for Cpni in Rosaceai since 01/06

Jim, Great, informative

Jim,

Great, informative article!  I am printing it and giving it to our GP - he is very openminded and is learning a lot from our pursuit of AP originally, now CAPi.  Thanks!  I, receive the immunesupport letter, but I didn't read it - is this article in the most recent letter?

 

Goodwife

Hubby dx scleroderma Aug '06; Minoi 200mg/day Nov '06; Cpni/Mpn Jan '06; NACi Feb '06; Azith Feb 14, '06

I'll refrain from using

I'll refrain from using smashing, instead I say excellent Jim.

I was particularly taken by the following extract... 

 "It is ironic that physicians who see nothing wrong in pumping patients full of multiple chemotoxic agents for cancer treatment will balk at the suggestion of far less harmful multiple antibiotic agents, calling it "polypharmacy."

This is something that was very obvious to me during Hamish's recent treatment for leukemia.   He had heavy doses of chemotherapy, large doses of immunosupressents, his lungs were coated with an antivaral agent, but when he caught a nasty upper respiratory infection (Cpni?) that spread to his lungs and sinuses, they prescibed one week's antibioticsi and when it did not clear up after the given course refused to give him more.   Another 6 weeks on he is still unwell and weak.  We argued for 20 minutes with the hospital doctor and I tried to make him understand that resistance is more likely to build up through intermittent antibiotics than continuous treatment to no avail. 

Michele: Wheldon CAP1st May 2006 IBSi, sinusitis, alopeciai, asthmai, peripheral neuropathy. 26th March 2007 continuous Flagyli at 400mg with 5 day pulses at 1200mg every three weeks. Spokesperson for Ella, RRMSi Cap Started 16 March 2006

Yes, excellent, Jim. This

Yes, excellent, Jim. This article explained things that I have wondered about for several years - now that I have some clarity of mind to do that with, I can wonder much more purposefully!

 

Rica PPMSi  EDSSi 6.7 at beginning - now 2.  Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith,  cont. flagyli  total 41 pulses NC USA

Wow, what a great article,

Wow, what a great article, Jim! I am also printing it to take to my new GP. Even if he doesn't have a lot of time, if he reads this it paints the complete picture in an excellent narrative. Very convincing, even if I am a member of the choir! Raven CAPi since 8-05 for Cpni and Mycoplasma P. for MSi and/or CFSi.

My goodness, lovely and

My goodness, lovely and kudos on getting it in print for others to read! It is a clear logical progression of ideas that gets all the main points in without getting overy technical and hard to understand. Well done!
marie
On CAPi since Sept '05 for MSi, RAi, Asthmai, sciatica. EDSSi at start 5.5. Currently on: Doxy 200, Azith 3x week, Tini 2x month, all supplementsi.
"Color out side the lines!"

Excellent article Jim.Miss

Excellent article Jim.

Missy

Thanks Jim, you are the

Thanks Jim, you are the reason I am here.  Praise God, more information, my prayer answered.

Kudos

blessings

R

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