Cpnhelp.org - Chlamydia Pneumoniae Treatment

WELCOME Jade,

These sites are great, aren't they!  Not to worry about your English, it is fine.  Now that you have a doctor prescribing the CAPi, have you looked at starting some of the vitaminsi?  They have been chosen to support our bodies during the abxi phase.

Blessings for your journey.

CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonini, GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 8th Pulse 2 X 375 mg 3day,375 2 d

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CFIDSi/ME 32 yrs, FMSi, IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#13 1240 mg X 3 days 8-7-08

I have alopeciai and one of the first thing the CAPi did for me was to promote hair growth.   I still have hair falling out but it continues to regrow and I think that this will carry on for me until I have got rid of all the Cpni.   I have never taken any of the medications you describe except for the antibioticsi, so do not know  on any contradindication that I can tell you about.

Michèle (UK) GFAi: Wheldon CAP 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Hi ruthless1, thank you very much for your answer. My english is not so good, I wrote my blog about 2 hours with vocabulary in my hands... I started CAPi with most of recommended suplements, at least basic ones,  but I have not some of it: Acetyl L Carnitine, Ubiquinone (coenzyme Q10), Alpha-lipoic acid, Evening Primrose Oil. The reason it, that I already have not money for it. Later I´d like to buy it too.

Wish you to feel good soon

Prague, Czech Republic, CAP since 10/2007, Stafylococcus Aureus, EBVi, Chlamydia Pneumonia, chronic fatigue syndrom

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Prague, Czech Republic, CAPi since 10/2007, Stafylococcus Aureus, EBVi, Chlamydia Pneumonia, chronic fatigue syndrom

Hi, Michele, thank you very much for your post, I have read your story many many times, your story is big solace for me. I´m very glad, that your hair continues to regrow. Unfortunately I have not  so good progress. I still have hair falling out, not so much as before, but about 300-400 pieces of hair during wash.

 I know I´m on the CAPi short time. Think you have alopeciai areata, and I heard that this type of alopecia is reversible. Androgenic alopecia is not reversible. It is not good thing for women, because men can cut it, and it looks better.

I asked about these medications because two of them are amino acids. (taurine and methionine). I have read the article:

http://www.cpnhelp.org/naturally_occurring_amino

and I am not sure if I can use these medications or no. Rogaine (minoxidil) is topical thing, but it can affect heard activity and blood pressure. It must be taken permanently. Not to lose effect. Druggist thinks there is no contradindication to abxi. I don´t know. 

Prague, Czech Republic, CAP since 10/2007, Stafylococcus Aureus, EBVi, Chlamydia Pneumonia, chronic fatigue syndrom

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Prague, Czech Republic, CAPi since 10/2007, Stafylococcus Aureus, EBVi, Chlamydia Pneumonia, chronic fatigue syndrom

Jade, I wouldn't give up hope on the hair! From months two to five on antibioticsi, I lot a LOT of hair. Mine is past my shoulders and it was frightening how much was falling out - in the shower, on the pillow, on people's shoulders when they hugged me... I posted about it quite a lot. Then, in month five, I noticed a bunch of tiny short hairs at the scalp. They grew out and filled in what was lost. My hair is back to normal now.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Hi, MacKintosh, it is amazing, that your hair grew out and filled in what was lost. My doctor thinks, I should use daily solution Rogaine or Neocapil to my scalp to save rest of my hair. "If it is androgenic type of hair loss it is possible to keep hair on head by permanent use of minoxidil only, suplements (vitaminsi) can help partly. "  This is her opinion, I did not believe her last year, but now I can see on my head - places without hair are on typical male places. Now I must say it is better than before I started CAP, but hair is still falling out much and have not enough time to grew out. Places without hair are larger and larger... And that´s why I´d like to know if I can use it on CAP.

Prague, Czech Republic, CAP since 10/2007, Stafylococcus Aureus, EBVi, Chlamydia Pneumonia, chronic fatigue syndrom

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Prague, Czech Republic, CAPi since 10/2007, Stafylococcus Aureus, EBVi, Chlamydia Pneumonia, chronic fatigue syndrom

For me too the top of the head is the last place to get a normal growth of hair, but I am hopeful that this will continue to fill out as there are a few short hairs growing in places where there were none before.   But it is the nature of Cpni that the areas affected are not cleared up in one go, so that the problem of falling hair goes on.   What I have noticed is that the patches of baldness are getting smaller.

The pattern for me has been:

First 4 months of CAPi, hair falling out, sore patches on scalp, some redness in round patches, no change at the top of head where I had only sparse white hair.

4 month to a year:   Dark hair grew back in places that had had no hair for a couple of years, not even white hair.   Occasional new patchers mainly at the back of the top of my head, very quick regrowth in those areas.   This remains the most changeable area of my head.

Year 1 to year 2, renewed bald patches that no longer spread to join each other.   Some light growth of dark hair on top of head where only white hair has been for the past 5 years.   When on Rifampicin or Flagyl I can feel my scalp tingling ( a bit like the feeling of having just been slapped), some tightness and then later on some bruised feeling in the active areas. 

I can't answer the questions about Regaine and other hair medication and I doubt anyone can as this is not a recognised treatment for alopeciai.   I do know of one person (not on this site) who is prescribed doxycycline for her hair loss, but as far as I know she does not use any other medication.

Michèle (UK) GFAi: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Hi Michele, thank you very much for your response and description of disease process. You are very very patient. It took long time to be better. I´m  very happy that now your hair are back on your head and your problems with CPNi are smaller. I sometimes feel some pain of skin on my head, so I cannot comb my hair. I´m not so patient as you and I´d like to stop the falling. I´m worried and I´d like to stop it in time. Spectral DNC, Rogaine or Neocapil are recommended for treatment of androgenic alopeciai, all doctors in Czech republic recommend it. But the treatment has some side effects, e.g. low blood pressure, palpitation, it is not possible to finish it without loss of effect... Because I´m not sure about taking amino acids on the basis of the article here, I´m thinking about to ask Mr. Wheldon for advice.

But it´s a wow!  Doxycycline is prescribed for hair loss too, I did not know about it, I only know that doxy is prescribed for treatment of acne. I must say, now I´m little better than before, only to stop the falling and start new growth...

Prague, Czech Republic, CAP since 10/2007, Stafylococcus Aureus, EBVi, Chlamydia Pneumonia, chronic fatigue syndrom

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Prague, Czech Republic, CAPi since 10/2007, Stafylococcus Aureus, EBVi, Chlamydia Pneumonia, chronic fatigue syndrom

Hi JADE, hi everyone.  Nice to receive and to help!

I am not a doctor, but by suffering an illness there's something I notice in Jade's case that cannot be ignored:  many symptoms, many illnesses and each one is being seen and treated separately, right? I think that's wrong!  Here in the US they treat a multi-symptomatic patient like an anxious one and will give you a pill to be calmed and relaxed. That is worse!

I think all your problems are due to ONE CAUSE; and are not separated situations.  All your symptoms are the result of one same illness, easy to take care of!!!!!

I found that this tiredness, joined with the hair loss, plus the other "problems" like the infection I think is a THYROIDITIS! Eureka!  oh, yeah, I know many Doctors, like the last one I saw, who say the thyroid cannot get infected because of its intake of iodine, but many other studies have shown what I say:  your thyroid is being infected by this Staphylococcus aurous massively in your nose and Chlamydia Pneumonia.  This infection goes down to your throat, infects your thyroid and then she - the thyroid is a she? - she is the master of the multisympthoms!!  hair loss, extreme fatigue _ I even called it force "G", like a "gravity" that doesn't let you move, stand up or do anything?

Yes, the thyroid gets infected and the treatment is not only the antibiotic, but sometimes some corticosteroids for the swellings, some betablockers if the heart is giving problems; and yes, of course the skin turns like a land full of volcanoes and craters due to the thyroid; the memory and mind concentration is another symptom, and more over the hair loss it is an obvious consequence of the thyroid problem... I mean, gather all the symptoms and they seem so like a THYROIDITIS that I dare to write about it here. 

You haven't say if you have changed your weight?  have you?  and is your heart fine or have you suffered palpitations or kind of "slow" palpitations? (bradicardia?).  

Jade, are you cleaning your nose with hot water and salt every day?  I bet this might help a lot!!!!  search info on how to do it the best way!

Hey, I started with symptoms like yours and I didn't have the gracious Doctor who accepted to make a test of my sinus, I've gone through this road the other way around - from the thyroid and feeling that these were my last days in this planet, to find the sinus infection and treating it and surviving.  My hair, my nails, my skin; my heart, all the cells of my body, my neck, my back.. Everything affected!!!  Of course had the depression and you know what I learned? from an acupuncturist:  take some drops of "liquid iodine" during a couple of days, and sleep for two weeks to restore the neurons.  But do not take too much iodine solution - this is NOT IODIDE THE YELLOW, THAT IS DANGEROUS- or better take some pills of KELP which is a marine algae ; because if you take too much you can hurt your thyroid and suffer all my nightmare...    this will take you away from depression.  Do not take medicines if you don't really need them!  Thank God for what you have, smile even if you can't!!!!!

So, I hope my point of vie can help Jade and others.  I'm getting strong now and I am decided to tell my experience to avoid others suffer as much as I did!

Ah, and the wonderful Doctor that dare to listen to me and really helped me, called Jorge E. Quintero in Colombia said that just 30% of the recovery are the doctors and their medicines and the other 70% is the attitude and care of the patient.  So, be positive, fight for it, you deserve it!!! yeahhhhh!

GOD BLESS YOU ALL, YOU WILL GET BETTER SOON.

 

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MariaPatri

I think I'll dare to add that many of us take throid T3. This is not Synthroid. It is in Armours. I'm not sure what is available in your country if your doctor prescribes it. Even if your blood tests are normal for thyroid, if your body temp is low, you could still respond well to T3. I have a bad hairline in front, but the rest of my hair is thick enough. I hope the combinatin of CAPi and Rogaine works for you. Iodoral is a good brand of iodine.

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Combined Antibiotic Protocol minocycline, azithromycin, metronidazolei for muscle pain, insomnia, interstitial cystitisi, sinus, disphonia, dry eyes, stiff neck, veins, thyroid, TMJ.

Janice,

Although you are correct that Synthroid is not T3, it is T4 replacement, Armour thyroid is a combination of BOTH T3 and T4 as it occurs naturally in animals.  Armour thyroid info can be found HERE on their website.

FWIW, I take both T3 (Cytomel) and T4 (Synthroid) replacement as I can monitor and adjust the doses on each one, something you simply can't do with Armour thyroid.  Also, it seems for some reason my Hashimoto's (antibodies) destroy the Armour.  I think it might be too bio identical to my natural thyroid and so the synthetics work best for me.  

I've recently been able to lower my Synthroid dose since being on Iodoral (iodine) and I'm hoping as I titrate the dose of Iodoral up I'll be able to lower the thyroid hormones even further! 

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NACi 2400 mg, Zithi 250mg/MWF, minoi 100mg/BID, Tinii 500mg/BID pulses, Iodoral 25mg, Recommended Supps, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addisons

When I change what I believe I change what I do

Yes, I think there are several of us here with thyroid issues taking some type of thryoid med.  I would like to make a correction ... not only does Armour have T3 and T4, it also has T1 and T2 (which they know helps us feel better but haven't  scientifically concluded why)

And, when you say from animals -- Armour (Forrest Pharmaceuticals) uses porcine thyroid -- not any old animal (or beef), LOL.   It is the closest to human thyroid replacement.

Armour thryoid, was of course, the only thyroid medication until about the time the gold standard of the "TSH" was put into place, I believe in the 60's.   That's when physican's stopped listening and knowing how to treat/diagnose thryoid problems..... they had that "gold standard TSH" to follow and starting labeling patients psychotic and ignoring subclinical thyroid issues that later became major thyroid and/or health problems because all they would look at were the TSH lab results.

As for being able to have better control with Synthroid, I personally disagree.  IMOi THAT is a mantra drilled into all Endo's, and other md's and they pass it on to the patients. They don't want to have to work with a patient for them to to feel better.  Control of what?  The lab values... and that is all.  I personally don't treat by lab values alone and am thankful for a doctor who works with me and understands this.

Not having a thryoid, I was forced to go the route of synthroid (and I've tried T3)  at the time of ablation (my only option by the endo)... I personally went through hell and there are hundreds of thousands of others feeling terrible on Synthroid but can't get their doctors to listen to them.  Some people just can't take the synthetics and do better on Armour.  The "control" statment ,in my opinion, is brainwash.

There was a study done by the mfgr's of synthroid years ago trying to prove that Synthroid was superior to armour and any of the other brands.  The study was withheld for over 6-7 years because it concluded  Armour and Synthroid were bioequivicable!  There was a major lawsuit involved .... Doctors in the US are not even taught about Armour.  It just gets a bad rap all the way around, IMO, due to the ignorance of the doctors (and pharmaceutical reps).

I definitely realize, now, that CPNi probably had a major role in my initial diagnosis of Graves' Disease.  I recently  added Iodine, been monitoring my temps (they have been increasing) and addressed my adrenals... I am improving,  but doubt if I'll be able to reduce my Armour dosage (actually I've been increasing it; but, then I don't have a thyroid.)

The thyroid is the Master Gland..... so for those of you who still have yours don't ever let them take it! (Sorry I just realized this became a Rant, !)

http://www.stopthethyroidmadness.com/ 

 

Jeanneroz

 

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JeanneRoz~CPNi diagnosed & started protocol  4/2007, also HV6, EBVi.  CFIDSi/FM diagnosed: 6/07; 100mg/doxyi/BID ~ 250 mg AZITH M/W/F ~1st Tinii pulse 4/17/08- 1 250 mg. tab for 2 days.  3RD pulse 7/7/2008=500 mgTINI:4days

I take armour for my thyroid.  For 2 years I told the doc that my very low "normal" lab results were too low for me with all the symptoms I had.  Skin like sandpaper, half my hair fell out a few years ago, my feet were freezing all the time - wore 3 pairs of thermal socks with houseshoes a comforter over my feet and an afghan on top! every time I laid down for a nap or bed.  My hands were like ice - I wore gloves in the house!  I finally found a doc that believed me and put me on armour.  Please pray that my appointment Friday will go well with him and that he'll put me on the protocol even though my blood test showed no cpni which I now know doesn't mean that I don't have it.  Jade, you need to get your thyroid checked just in case.

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FMSi/CFS since 1995. tinnitusi, ibsi,  chronic sinusitis, EBVi, HHV-6

 NAC 600mg 2 x day

Ignore this!  Sorry!

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FMSi/CFS since 1995. tinnitusi, ibsi,  chronic sinusitis, EBVi, HHV-6

 NAC 600mg 2 x day

Jeanner,

The link I furnished to the Armour page says it contains the two main T3 and T4.  I'm not familiar with the other ones you mentioned so can't comment, but, I would like to comment on Synthroid vs Armour.  

I am in complete agreement that many folks still fell horrid on Synthroid replacement alone, like I did.  I NEEDED to add a T3 replacement as well, which is Cytomel.  So now I take a combination of BOTH T3 (Cytomel) and T4 (Synthroid) everyday.  

Also, my endocrinologist is also very specific in not allowing my pharmacy to dispense the generic  version of these meds as they are not as well controlled for quality according to the endo's experience with them so if someone is using a generic, you might want to try to ask for the name brand of these meds instead.  It might make all the difference for you and the cost is not all that much more. 

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NACi 2400 mg, Zithi 250mg/MWF, minoi 100mg/BID, Tinii 500mg/BID pulses, Iodoral 25mg, Recommended Supps, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addisons

When I change what I believe I change what I do