Here am I

This has been an on again off again thing for the past several weeks but here goes….I have made it through pulse 7 and 8 and can now finally understand why I didn’t really feel like a post. I would occasionally read about folks here but really felt like I had nothing of value to add.  My pulses were uneventful and I was prepared as to how my body would react. Or at least so I thought. I could not wrap my thoughts around anything tangible. That is until I read Todybears post. Her title “discouraged” caught my eye and I was brought to tears. Like sifting through sand and finding a gold treasure. It was all revealed to me in my own thoughts. I never imagined ME, ever feeling lonely or cast out like someone’s beloved pet in a kennel waiting to be rescued. But somehow todybear helped me tap into the cobwebs in my mind.  I know every one has “one of those days” but I never thought I’d store it all up for one major brain cramp. Now I can understand a part of me that was dormant and deal with it. Don’t get me wrong, I’ve been dealing with it for over ½ my life and I have a very good understanding of  what I need to do to keep me upright. Emotion has EVERYTHING to do with it. Thank you todybear for cracking the code for me!

I refuse to feel “stuck in the house” or that me friends don’t see me as a shiny penny anymore. Frankly I think they wish they could have the spirit WE have to deal with just “plain old everyday problems”!    I can hold my head high and know that I am making a change for no one else but ME!    I can be greedy can’t I?

I started going to a water aerobics class and this was too an awakening. I did not know what to expect and was a tad out of my element. I witnessed about 20 or so gals suited up and making their way to the pool. I see folks with canes and walkers with determination and smiles. I was humbled when I witnessed their transformation. The parked their “cars” on the side of the rail and were slowly relieved of the weight that stopped them on land.  These ladies were walking, running, cycling, doing jumping jacks and lifting weights. A total goose bumps moment to witness. Knowing how tied down my body can feel sometimes this was like winning the lottery and eating all the candy in the store at the same time!!!! I know I will grow up to be just like them someday, but first things first!Wink 

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RRMSii since 3/84; SPMS since 2/05. Rifampin, Azithromycin, Tindamax Flagylii Copaxone, Avonex, Novantrone, Provigil, 5gm NACi, 5gm VitC, 5000IU VitD3 & more. EDSS 5.5 to 6.5.  Can't wa

Kim, You know, you're a

Kim, You know, you're a shiny penny to us and to Ken and that's all that matters! This treatment isn't a cakewalk, but it's the only game in town, so we persevere. And, getting back into girl shoes was critical for me, too. I'm there and it's worth it.

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

I think Kim's going to get

I think Kim's going to get sick of me saying ......

"But look at how much you've improved in the last 8 months, it's amazing"

I'll cross link with my TIMS thread here:

http://www.thisisms.com/ftopic-4375-124.html

I LOVE YOU!!!!

Ken

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In pursuit of ABX

Don't Allow What You Know To Get In The Way Of What Might Be

We love her from afar

We love her from afar too.   Kim, your spirit shines through and you are right it is all about being positive, whilst at the same time acknowledging your sad thoughts and desperate moments.   We all have doubts at times but the people that make it are the the ones that hold hope in their hearts.

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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.

From one person fighting

From one person fighting the fight to another, be honest about your feelings and gentle with yourself. If you need to reach out for support, do so. We all benefit from sharing one another's journey. It takes courage it's true, but we don't know who else is going through the same struggles and will be encouraged by our determination. It is not defeat to seek help, it is the proof that we have not given up.

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Lived with MSi since 1991. Completed 16 months of full CAPi plus supplementsi. Currently in full remission. Not on any antiobiotics anymore but taking all supplementsi incl NACi.

Kim, I love this place and

Kim, I love this place and the people in it. I have a feeling that you will never have good reason to be or feel alone. Your joining the water group is great and I love the fact that you went to the "normal" group. After all, we are "norrmal", we're just slow! When I read that Ken says "Look at how much you've improved" and Todybear's daughter says the same thing, it is incredible.

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3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amoxicillini 1000, Doxyi 200, MWF Azith 250, flagyli 1000. Caffeine pills with AM abxi Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1

Kim I enjoyed reading your

Kim I enjoyed reading your sharing with us.  Looking forward to hearing more about your water athletics!  Louise

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6-07WheldonCAP CFS20+yr

(11-29-07 started Cholestyramine HS PRNi x 7d for porphyrin+endotoxinsi removal)

Check out Louise's Blog at; http://www.cpnhelp.org/blog/louise for the details of my treatment adventure!

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