Hen or egg?

Most of the Doctors just look at a symptom and treat it the way they think;  - they know it all.  Then, the diagnose comes, like an etiquette of a product. Does someone looks what is behind the symptom?  Which is the cause, and the cause of this cause?

One Doctor -cardiologist-  saw me and when he found out I was multisymtomatic gave me some pills for the anxiety, nothing else. 

Then a regular family Doctor saw me, and when I told him I had gone to an acupuncturist long time ago who gave me some iodine for the thyroid, the Doctor almost threw me away from his office.  He order Synthroid, but after I took it for a couple of days and told him I didn't like it, he said that was all he could do for me, and recommend me to go to a specialist after charging me 650 dollars for some testing...  I stopped the Synthroid!

Then, the "specialist" - Endocrinologist - said that my thyroid was hurt by a virus so he gave me amoxicillini for 6 days, some steroids and said that I didn't even need to come back, that I will be fine... it's been almost two years of those sapient words.  I don't know what he did with the extensive list of symptoms I gave him in writing; did he add them to my folder o trashed them?

When, after much pain, palpitations, not being able to walk normally, total fatigue, etc, etc, I found some light in my very close tunnel thanks to this wonderful Doctor I knew in Colombia, when I lived there, Jorge Quintero.  He listened to me, by phone, and asked me to send him all the testing.  Mean while, he spoke about diet, exercise, daily routines.  He listened and talked; he shared and understood and mostly, was very compassionate. He ordered me to eat pieces of fruits and multigrain cookies every three hours!

After reviewing my testings and list of symptoms he considered treating me for a thyroiditis, but as an infectious one.  His dosage of antibioticsi was stronger - Azitromicin - and many days of careful treatments of steroids.  I told him that the antibiotics were not good, because i felt worse - now I know why- and then I took lots of Cyclobenzaprine..  he was not very happy with this decision I took.  

I started my roller coaster!  Good days, terrible ones.  Some semi good weeks, some semi bad ones...  but Doctor Quintero was not happy with the results.  He said that a Thyroiditis didn't behave like this; it should be gone months ago with his treatment.  So he asked me to look at my self to find any indicator of other problem on the road.  I found I was constantly swallowing!  There was a liquid coming from my nose even though my breathing was almost ok,  I felt from time to time, certain pressure in the nose, some blocking, but not something that I could say really bad or sinusitis.  

The egg was first, as the sinus was my cause of the thyroiditis.  The Doctor recommended me the flushing with water and salt.  I also used some nasal sprays - some homeopathic, some from the pharmacy.  In the morning I was cleaning, in the afternoon making it dry.  The most important, thinking how to "finish" this bacteria I found information about the "silver sinus" so applauded and so criticized, and decided to take the risk; and you know what?  it's been sooo worth it; such a blessing!!!!!!!

The magic was done:  without liquid coming down, my throat got better, the pain in the thyroid came down; the swelling in neck and shoulders came down too... everything got so much better.  I got muscles back, my black under the eyes was lighter, my stomach was not exploding, etc.  My sputum passed from brown green to totally clear!

Relapses?  many, all the time, until today!  At the point that my hands got swelling, I got pain in the wrists; got the nerve pain and some other issues.  I thought it was part of the "recovery" and just when I thought I was going to be totally fine, I got worse, every time.  It's been almost two years now.

So, in order to get some recent testing, I went to this other family Doctor of a Walk in Clinic, who happens to also be an endocrinologist.  He said I had no sinusitis, but to use a nasal spray with steroids for the swelling (so why it is swelling?); he also ordered me more steroids for the hands and neck swelling - that I didn't take, sorry- and said that those values of the thyroid, over 4.7 were not meaningful.   He said I was anemic, but ignored any possible cause.  He didn't want to listen my story and when finally I begged for testing of my sputum, he ordered a test that just looks for streptococcus aurous; so, it came back negative to which he justified his diagnostic.  Very unhappy...

So, looking for the hen, to see who was first, I found this website.  And, boom, every sentence I've read, every feeling I have gotten reading these stories seem like a mirror to me; it's even funny!  And I want to honestly praise everyone being so sharing, so understanding, so good!

So, in this long road, if the sinus caused the thyroiditis, and the sinus is been caused by a bacteria, how can I certainly know it is the temible Chamydia Pneumonia, or if it is just a perverse "candida"?  by the symptoms I would say it's both and more! but I still don't know what caused what...  One thing I know:  I worked here in the  US in a clinic, as a volunteer interpreter, for four years - and also had gone to many hospitals and private medical offices working as a medical interpreter too, so I guess there is where I got it... but I don't have a testing to certify what is it... "My symptoms and me" is the title, no diagnose!

So, I'm afraid I won't get a Doctor here who dares to treat me for the Chlamydia Pneumonia, and I urgently need help here, because I cannot buy the medicines my Doctor in Colombia might order for me because the pharmacies here do not accept prescriptions from Doctors abroad... nor orders to do testing... so here I am, with my swelling hands writing like a crazy one, - at 4 a.m. - hoping something good might happen! I'm very positive!! I've seen so many miracles that I know more are coming.

I would prefer to write a blog with information helping you guys, and it looks like I just complained...sorry!  hope next time!

Please tell all your beloved ones how much you appreciate having them around!

 GOD BLESS YOU ALL

Maria P. 

 

 

Comments

Maria, Yep, I am afraid

Maria,

Yep, I am afraid so; it is that hard to eradicate. (Stratton estimates 4 years for CFSi/CFIDSi.) However, I get better and better, so I just stay with the protocol and wait.

Ron

On CAPi for CFSi starting 01/06 (NE Ohio, USA)

Began rifampin trial 1/14/09

Currently: on intermittent

I'm happy to see Ron is

I'm happy to see Ron is getting better and better with the treatment; it really makes sense, but I don't see if you are getting treatment for fungi too, and these Doctors here recommend to treat fungal infectionsi at the same time. I have this idea that one bug cannot survive without the other, or at least that the bacteria needs and environment to "stick to" until she can move inside to other cells, so, attacking the fungi makes hes loose her base. I have had an incredible recovery using the silver sinus colloidal spray and I am willing to get other treatments for the fungi because I see it is vital in this process!

Hope this might help other people too!

Maria.

Note: still waiting to get my doctor. ah, and read this very interesting article from the Doctor "Gabe Mirkin, M.D." who has a radio program too? and he speaks about Chlamydia in sinus patients and how he has "cured" them through long treatments :"I have cured many of these patients with 500 mg azithromycin twice a week or 100 mg of minocycline twice a day or both together for 6 to 18 months". 

 

 

Maria.


 

God bless you all.

MariaPatri - living in a rollercoaster! (In Orlando, Fl).

Thyroiditis, sinus infection, heart, muscles and joints. 

Maria P., that is beautiful

Maria P., that is beautiful and profound. Thank you for the link. I do believe in the power of thought. It is a long journey with CAPi and we will need our energies and thoughts to be light and hopeful. 

Warmest wishes for you!

Corinna 

Corinna | GFAi. Wheldon Protocol: 4–8/08. Can't kill the yeast.

Hi Maria,I was also so

Hi Maria,

I was also so amazed when I found this site. You put it very well, we have found the hen.

I am new to CAPi but I have so much hope now, for the first time in many years and it is a solid thing.  

I wish you all the very best in your journey to wellness!

Corinna 

Corinna | GFAi. Wheldon Protocol: 4–8/08. Can't kill the yeast.

HOLA Corinna!!!

HOLA Corinna!!! WELCOME!

 Here's a friend for your way to wellness too!!!

I decided I was going to commit to being positive and happy, as my very big step!  So, today I want to share this beautiful site I found, it is called:

Celebrating what's right with the world, the link is:

http://www.celebratetraining.com/<

Made by a photographer of National geographic, who talks about his experience in a very motivating video.  In one part he says:

“The Vision controls our perception, and the perception becomes our reality” Dewitt Jones.

So, let's all have a very wonderful positive vision and make this our most imminent reality!!!  yujuuu!!!!! 

 Maria P.

God bless you all.

MariaPatri - living in a rollercoaster! (In Orlando, Fl).

Thyroiditis, sinus infection, heart, muscles and joints. 

 Hi Ron, hi everyone.Thank

 Hi Ron, hi everyone.

Thank you so much for your answer!!!!!!!!

The thing is that I just received this list of Doctors that   gkirilova posted for me!<

 They are Thyroid Doctors, but, it would be much better if someone knows about a Doctor in this area who specifically treats CPni<i<

Ron:

I see you are taking meds since 2006, and still have to take them so continuous?  why?  is it so hard to erradicate?  wowww! I thought I was two years on this pain due to lack of proper attention, but two years under medication and still...? woww, woww!

Not to get discouraged, just to know what we are up to!

Thank you, God bless

Maria P. 

God bless you all.

MariaPatri - living in a rollercoaster! (In Orlando, Fl).

Thyroiditis, sinus infection, heart, muscles and joints. 

Hello, Maria P. Don't worry

Hello, Maria P.

Don't worry about the thin line between describing symptoms and complaining. It is difficult to do one thing without the other.

It certainly sounds like a local doctor could be in a better position to help you.  If you can tell us where you live (just the nearest city will be fine, we don't want you to publish your home address!), someone may be able to tell you of a doctor who is near you and knows about CPni.

Ron

On CAPi for CFSi starting 01/06 (NE Ohio, USA)

Began rifampin trial 1/14/09

Currently: on intermittent