Cpnhelp.org - Chlamydia Pneumoniae Treatment

Marcia, this is ok..the anger thing might be a NACi die off reaction!

Your doc wants you to take an anti viral to get that under control.  In my life, keeping the viruses down to a dull roar is a common thing.  I have taken Valtrex & occasionally I take Famvir now when I am low on acidophillus & L Lysine.

These test results are diagnosis which is where you start fixing things.  If you don't know what is making you ill, what do you treat.  Personally, I don't think this need alter your CAPi journey.  See what others & the doc says.

Now about the pitty party, that is fine, but all that junk food is not good for the body healing.  I am sure you won't do that for an extended period of time.  Small amounts of indulging are allowed!

blessings for your journey

CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonini, GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NAC 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 8th Pulse 2 X 375 mg 3day,375 2 d

___________________________________________________________

CFIDSi/ME 32 yrs, FMSi, IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#13 1240 mg X 3 days 8-7-08

Marcia,  My husband Steve has those bugs too.  He has taken both Valtrex and Acyclovir---the Valtrex is definitely the better choice starting out, 500mg twice a day (or more).  The Acyclovir might be good for a change several months down the road.  Don't panic; it's better to know who your enemies are.

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi).  CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity. 

___________________________________________________________

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi).  CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity. 

Marcia, my CMV was 18.2 (greater than 1.1 is positive), and EBVi 216 (greater than  22 is positive)....doc did not offer me anything..he is never consistent ...anyway, i did a post about this a few weeks back..what i decided to do for now is take l lysine 1000mg twice a day, and fucoidan 300mg twice a day. they both have anti-viral functions. i was going to take these for couple of months to see how i felt. then maybe ask for valtrex. 

if you take the valtrex, please let me know if you can tell a difference. if you do, i'll see if he will give me a script for Valtrex. 

by the way, today, i called and cancelled my 3:00 appt with on for Friday. you maybe able to call amanda and see if the spot is still open.   

 Mphs, TN. CFSi, hypoT (Hashi), adrenal fatigue, 37 w/hormones of 80,. right arm neuropathy. + cpni, myco, EBV, CMV. NACi 4000mg, doxyi 100-2xday, azith 250 m/w/f/sun, progesterone, estriol, synthroid, pulse flagyli, tinii<

___________________________________________________________

Mphs, TN. CFSi, hypoT (Hashi), adrenal fatigue, 37 w/hormones of 80,. right arm neuropathy. + cpni, myco, EBVi, CMV. NACi 4000mg, doxyi 100-2xday, azith 250 m/w/f/sun, progesterone, estriol, synthroid, pulse flagyli, tinii<

Marcia -

Not to be discouraged - getting viral triggers under control can make lots of things go better.  Good for your doctor for checking for these and for prescribing antiviral.  This could well make the antibiotic portion of your treatment go easier - it's possible :)

Re acyclovir and Valtrex - doctor probably asked because of cost - acyclovir is generic and less expensive and Valtrex not generic and more expensive.

All fluff aside on Valtrex and acyclovir  difference- Valtrex is very quickly metabolized in gut into acyclovir.  Most pharm D's will tell you to save your money and go with the acyclovir as almost as soon as you swallow Valtrex it becomes acyclovir. 

If the acyclovir doesn't do the trick you can always pay for the more expensive Valtrex.

Either way - you win !

^{Daisy - Husband on CAPi 5/07.  Minoi, Roxyi, Diflucan round two 1-31, Rifampin, Bactrim DS, Prednisone, Novantrone, Doxyi, Azithromycin, Flagyli}

___________________________________________________________

Daisy - Husband on CAPi 5/07.  "When Going Thru Hell, Just Keep Going", Winston Churchill

 I'm with Daisy on this: good that your doc thought to test this, as any load on your immunei system, viral or bacterial, just makes it harder. You don't have to stop the CAPi, although you might want to give it a little time on the antiviral as you might get some die-off from viral kill. I'd go with the rx for a couple months with such high readings rather than start with herbal methods first, but that's a personal preference. Honestly, you'll feel better from getting the viral load down and freeing energy for dealing with the CPni. It's not unusual for viral loads to increase at first on the CAP, as infected immune cells die off, temporarily suppressing immune response. As new uninfected immune cells get produced the CAP will help with the viral control.

CAP for Cpn 11/04. Dx: 25yrs CFSi & FMSi. Protocol: 200mg Doxyi, 250mg MWF Azith, Tinii 1000mg/day pulses; Vit D1000 units, Iodoral 50mg, T4 & T3

___________________________________________________________

CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3

Marcia,

I'm not on a CAPi at the moment but I've had tests for many of the herpes viruses in the past as well and I recently began to take L-lysine (1000 mg 2/day) once again as a natural remedy for the sxs I get in the form of nerve pain much like shingles.  It does help me feel better.

Dr Teitelbaum routinely uses lysine (1000 mg/3x/day) and also it's suggested to lower intake of nuts due to arginine content.  It helps your own immunei system deal a little better with the herpes viruses and like Jim states w/o the added die off from your CAP. 

Was on the MPi for 3 1/2 yrs. Taking NACi, getting CPni tested, looking for answers, I (still) want my life back! CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi

The more I learn, the less I know!

___________________________________________________________

NACi 2400 mg, Zithi 250mg/MWF, minoi 100mg/BID, Tinii 500mg/BID pulses, Iodoral 37.5mg, Supps, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addisons

Sharon,

Thanks for the info.  Your numbers give me a better frame of reference.  Our doc is not consistent fm. pt to pt, nor fm visit to visit with the same pt.  I don't see "rhyme nor reason" sometimes.  

I think I will take Valtrex (or generic Acyclovoir) until the viral load goes down.  I will make a note of the Lysine and fucoidan as alternatives for later.  I'll let you know if it seems to help me feel better.

Wouldn't you know it?   I have an appt. with my PCP at 2:00 Friday.  I would like to see him before I leave town on Sat. Thanks

FMSi/CFSi 12 yrs., IBSi, Hypothryoid, EBVi, CMV, Sleep Apnea, Cardiac Arrythemia, Sjorgens, Depression, Brain Fog, Cpni, On CAPi since 10-1-07, Currently on NACi only, From Memphis-USA

___________________________________________________________
FMSi/CFSi 12 yrs., IBSi, Hypothryoid, EBVi, CMV, Sleep Apnea, Cardiac Arrythemia, Sjorgens, Depression, Brain Fog, Cpni, On CAPi since 10-1-07, Currently on NACi & Delta Fr. E  Valtrex, Lysine, and Guna Virus

Daisy,

Thanks.  I really was not sure of the difference in the 2 drugs.  I'm all for taking the less expensive if all else is equal.

FMSi/CFSi 12 yrs., IBSi, Hypothryoid, EBVi, CMV, Sleep Apnea, Cardiac Arrythemia, Sjorgens, Depression, Brain Fog, Cpni, On CAPi since 10-1-07, Currently on NACi only, From Memphis-USA

___________________________________________________________
FMSi/CFSi 12 yrs., IBSi, Hypothryoid, EBVi, CMV, Sleep Apnea, Cardiac Arrythemia, Sjorgens, Depression, Brain Fog, Cpni, On CAPi since 10-1-07, Currently on NACi & Delta Fr. E  Valtrex, Lysine, and Guna Virus

Joyce,

You are right.  I should not have panicked (which I did).  And, it is better to know your enemies.  I'm easily overwhelmed these days. I normally say, "Knowledge is Power" but my first response today was just feeling like I couldn't fight another battle. Thanks.  

FMSi/CFSi 12 yrs., IBSi, Hypothryoid, EBVi, CMV, Sleep Apnea, Cardiac Arrythemia, Sjorgens, Depression, Brain Fog, Cpni, On CAPi since 10-1-07, Currently on NACi only, From Memphis-USA

___________________________________________________________
FMSi/CFSi 12 yrs., IBSi, Hypothryoid, EBVi, CMV, Sleep Apnea, Cardiac Arrythemia, Sjorgens, Depression, Brain Fog, Cpni, On CAPi since 10-1-07, Currently on NACi & Delta Fr. E  Valtrex, Lysine, and Guna Virus

Ruth,

You are right of course.  Reading your response today helped me calm down.  Thank you. 

And after reading your and the other responses,  I realize that I probably don't have to delay the CAPi.  I am easily overwhelmed these days.  Thanks again.

FMSi/CFSi 12 yrs., IBSi, Hypothryoid, EBVi, CMV, Sleep Apnea, Cardiac Arrythemia, Sjorgens, Depression, Brain Fog, Cpni, On CAP since 10-1-07, Currently on NACi only, From Memphis-USA

___________________________________________________________
FMSi/CFSi 12 yrs., IBSi, Hypothryoid, EBVi, CMV, Sleep Apnea, Cardiac Arrythemia, Sjorgens, Depression, Brain Fog, Cpni, On CAPi since 10-1-07, Currently on NACi & Delta Fr. E  Valtrex, Lysine, and Guna Virus

You are right, of course, Jim.  I don't need anything making it harder for my immunei system.  I will go with the Rx for now-herbal later.  The only treatment specifics relating to CAP I could find were about Dr. Powell's approach.  That made me think I might have to delay weeks or months. I was frustrated.

Your explanation re viral load increase helps me understand how one effects the other.  Earlier today I wasn't ready to accept that I had another enemy to fight, let alone figure out how to fight it. 

All in all, ya'll helped me see that its probably not as bad as I thought it was.  I am so thankful for this website.

FMSi/CFSi 12 yrs., IBSi, Hypothryoid, EBVi, CMV, Sleep Apnea, Cardiac Arrythemia, Sjorgens, Depression, Brain Fog, Cpni, On CAP since 10-1-07, Currently on NACi only, From Memphis-USA

___________________________________________________________
FMSi/CFSi 12 yrs., IBSi, Hypothryoid, EBVi, CMV, Sleep Apnea, Cardiac Arrythemia, Sjorgens, Depression, Brain Fog, Cpni, On CAPi since 10-1-07, Currently on NACi & Delta Fr. E  Valtrex, Lysine, and Guna Virus

Thank you Reenie for the encouragement.  It looks like you and I have a lot of the same problems.  I too want my life back.  Maybe we can help each other do just that.  God bless you.

FMSi/CFSi 12 yrs., IBSi, Hypothryoid, EBVi, CMV, Sleep Apnea, Cardiac Arrythemia, Sjorgens, Depression, Brain Fog, Cpni, On CAPi since 10-1-07, Currently on NACi only, From Memphis-USA

___________________________________________________________
FMSi/CFSi 12 yrs., IBSi, Hypothryoid, EBVi, CMV, Sleep Apnea, Cardiac Arrythemia, Sjorgens, Depression, Brain Fog, Cpni, On CAPi since 10-1-07, Currently on NACi & Delta Fr. E  Valtrex, Lysine, and Guna Virus

Marcia, it sounds like you've got yourself a good plan...I know that it was difficult finding out about the and CMV and EBVi...Try to relax and have a great vacation. you deserve it (and need it).. 

Mphs, TN. CFSi, hypoT (Hashi), adrenal fatigue, 37 w/hormones of 80,. right arm neuropathy. + cpni, myco, EBV, CMV. NACi 4000mg, doxyi 100-2xday, azith 250 m/w/f/sun, progesterone, estriol, synthroid, pulse flagyli, tinii<

___________________________________________________________

Mphs, TN. CFSi, hypoT (Hashi), adrenal fatigue, 37 w/hormones of 80,. right arm neuropathy. + cpni, myco, EBVi, CMV. NACi 4000mg, doxyi 100-2xday, azith 250 m/w/f/sun, progesterone, estriol, synthroid, pulse flagyli, tinii<