Hello i write on behalf of my brother,he has been on the capi for 2 years and 6 months, he is finding the side effects unbearable and has been for the last 6 months or so,He is wandering how to go about stopping the treatment so he could have a break,do we need to reduce the antibiotics slowley;or can they be stopped straight away.I write this as he is about to go into rest bite care for the first time,so i am hoping to be able to pass on some information as quickly as possible if anybody knows i really need some help



If you 'wind down', you run

If you 'wind down', you run the chance of getting into sub-clinical dosing, which could increase the possibility of developing resistance. If he's going to take a break, it should be a clean break. Just stop.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Hello Swells, if your

Hello Swells, if your brother really wants to stop or take a break, he can just stop all antibioticsi in one go:  it isn’t like taking medication to which you can become addicted, which would need to be gradually reduced...............Sarah

A Journey through Light and Shadow

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Hello Sarah, I firstly want

Hello Sarah, I firstly want to say thank you for your response, Friday was a stressful day in a kind of numb way. Anyway couldn't get any respite care for my brother which is not a bad thing, and what the visit from the gp did result in was a 3 day course of steroids - apparently if they are going to have any effect it can be either very quick or a few weeks. I spoke to my brother on Saturday and he was feeling much better - i haven't heard him sound like that for a long time. We stopped the antibioticsi on friday, just seemed like with the steriods it would be to much. My brother is going to start the CAPi again tomorrow, I dont really know how to advise him I have to say that I am just so pleased that he has had a few days of feeling better in any way. Serena