Cpnhelp.org

Oh boy, Kim

Do I empathize! But it sounds like you may have come forward a few steps. As you well know, we have to revel in that feeling before we look around and say "wha, what - where did it go - it was right here..." Nice, though. Rica

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3/9 Symptoms returning. Began 5 abxⁱ protocol 5/9 Rifampin 600, Amoxicillinⁱ 1000, Doxyⁱ 200, MWF Azith 250, flagylⁱ 1000. Caffeine pills with AM abxⁱ Began Sept 04 PPMSⁱ EDSSⁱ 6.7 Now good days EDSS 1

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

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CAPⁱ for Cpnⁱ 11/04. Dxⁱ: 25yrs CFSⁱ & FMSⁱ. Currently: 250 aithromycin mwf, doxycycline 100mg BIDⁱ, Tiniⁱ 1000mg/day pulses; Vit D2000 units, T4 & T3, 12mg Iodoral

Think I'll print this post out and pop it on my fridge door every time I do a Flagylⁱ pulse! It might warn the family that I'm on the warpath and to not even consider starting an argument with me! (should be interesting with a 14 year old teenager in the house).

By the way it seems that having Cpnⁱ seems to affect everyone's sense of humour. Every second post I read is either witty, clever or downright hilarious. Maybe there is a benefit to having Cpn!

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CFSⁱi / sarcoidosis. Cpn diagnosed 2002. Doryx and nutritional supplementsⁱ since 2002. Added NACⁱ and zithro 2007. Flagylⁱ pulses Jan 2009.

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6-07WheldonCAP CFS20+yr

(11-29-07 started Cholestyramine HS PRNⁱ x 7d for porphyrin+endotoxinsⁱ removal)

Check out Louise's Blog at; http://www.cpnhelp.org/blog/louise for the details of my treatment adventure!

Louise,

I totally agree.  All you need to do is spent a few weeks on some other website where there is a lot of off-topic and symptom sorrow to see how ground breaking it is to be on ABXⁱ.  I believe that the folks here have the WILL to act on their curiosity and to WILL to fight for what they want.  I suppose it was about two years ago that I was inspired by Rica and her goats and her sense of empowerment.  I think we all have a little bit of that here.

Action > Pity

How simple is that?  Ken

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In pursuit of ABX

Don't Allow What You Know To Get In The Way Of What Might Be

Pretty simple, Ken. What a nice surprise to hear that I inspired someone. But...you have to want and be open to inspiration for it to work. Self-pity doesn't work, is a turn-off, and is entirely self-defeating. You'all are obviously embracing life with its frustrations , challenges, and rewards.

Rica

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3/9 Symptoms returning. Began 5 abxⁱ protocol 5/9 Rifampin 600, Amoxicillinⁱ 1000, Doxyⁱ 200, MWF Azith 250, flagylⁱ 1000. Caffeine pills with AM abxⁱ Began Sept 04 PPMSⁱ EDSSⁱ 6.7 Now good days EDSS 1

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CAPⁱ for Cpnⁱ 11/04. Dxⁱ: 25yrs CFSⁱ & FMSⁱ. Currently: 250 aithromycin mwf, doxycycline 100mg BIDⁱ, Tiniⁱ 1000mg/day pulses; Vit D2000 units, T4 & T3, 12mg Iodoral

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RRMSⁱ since 3/84; SPMS since 2/05. Rifampin, Azithromycin, Tindamax Flagylⁱ Copaxone, Avonex, Novantrone, Provigil, 5gm NACⁱ, 5gm VitC, 5000IU VitD3 & more. EDSS 5.5 to 6.5.  Can't wa

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RRMSⁱ since 3/84; SPMS since 2/05. Rifampin, Azithromycin, Tindamax Flagylⁱ Copaxone, Avonex, Novantrone, Provigil, 5gm NACⁱ, 5gm VitC, 5000IU VitD3 & more. EDSS 5.5 to 6.5.  Can't wa