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Ever go to the doctor and feeling like total crap?  I mean, you want to feel good when you go to the doctor, right?  You gotta feel real good if you can get teleported from Northern Virginia to Nashville, Tennessee in the passenger seat of the starship minivan and not remember anything, including driving further south to see a blizzard!  Apparently I had the “We’re going to miss both NFL championship games flu”. 

I’d also be happy not to remember the closed MRI.  Ever go to the MRI thinking you’re going to have an open MRI and you find out first that it’s closed and second that there’s no valium and third none of the techs are Steeler fans?

So the real story is that my MRI was “pretty much the same” as my MRI three years ago.  Dr. Sriram and two other doctors there looked at the 2005 films.  We got a kick out of the third doctor who said, “looks like she has MS”. Little did he know Ken and I were observing the whole thing! You know I wanted to say, DUH?!  But of the 3 years I only had 1 year on ABXⁱ and two on fun stuff like Novantrone and IVIG – don’t ever do Novantrone or IVIG.  They are icky.  I had a kick from the initial Novantrone visits, but not towards the end.  It made the whites of my eyes blue then I peed blue – don’t do it.  That was before the wonderful world of ABXⁱ!

Dr. Sriram is doing some serious pondering.  We asked if my protocol should change.  The wheels were turning and there was a long silence.  He said to keep it the way it was.  Then we asked, “What would you consider changing it to if you did?”  He thought again and said there was no reason to change it.  Most questions we asked resulted in visible pondering and intermittent silence.  We wondered if it’s related to the trial he’s conducting.  We have a friend who calls this “filtering”.  Filtering is when you have something to say, but you are not in an appropriate place to say it – your boys are playing rock, paper, scissors in church and you’ve only asked them 500 times to stop.  My friend says I don’t filter enough.  Do you believe that?

I must not look anything like a turnip.  They took tons of blood out of me.  More than made up for not being allowed into the blood drive.  So get this, Dr. Sriram says I have a very high level of clamydial antibodies.  He seems to think that measuring these might help gauge when to it’s time to start backing off of the protocol.  Maybe this is news?

I nearly did a face plant on the 25-foot walk.  I think the tile moved.  Here I am, I feel so sick that even the boys are behaving, and Ken wants to video my walk.  Excuse me - that was Ken’s face that was going to get planted. Sorry, I could do without these mood swings! He has always been my savior through all this!  So there’s no video of my beating 6 seconds even with the super graceful moving toe point extension step.  The camera is now mysteriously broken and in route to the Panasonic Repair Center.

So after one year I feel pretty good.  Good means I have made it through with out any exacerbations, I have not progressed and most importantly I am getting back my life!

Here We Go Stillers, Here We Go, Kim

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RRMSⁱⁱ since 3/84; SPMS since 2/05. Rifampin, Azithromycin, Tindamax Flagylⁱⁱ Copaxone, Avonex, Novantrone, Provigil, 5gm NACⁱ, 5gm VitC, 5000IU VitD3 & more. EDSS 5.5 to 6.5.  Can't wa