grrrr....so frustrating

I've told many people with asthmai about my experience getting rid of asthma and how they could possibly get rid of theirs too. I'm continually amazed by their lack of interest. I explain to them this is not some silly breathing exercise or magical herbal supplement I'm talking about. I explain that there is real medical research to showing a relation to certain bacterial infectionsi and asthma and that treatment with abxi works. They always respond with something like "well my asthma's from allergies" or "my asthma's from smoking pot as a teen" or some other silly reason they feel destined to live with it forever. After that they just tune me out like I'm some sort of annoying vaccuum cleaner saleman at their door. I can't even get them to go to a website and read the reasearch for themselves. Asthma is so miserable to live with it just baffles me why anyone wouldn't show at least a tiny spark of interest if there was any chance at all that what I was saying might actually be true. It's driving me nuts. (sigh)

Yes, it is.  And there is nothing you can do EVER to change that.  You know that we learn every day that there are many like that.. It is like changing the past - it cannot be done.  So... tell people about it, making sure they have the website correct, smile, and drop the subject - or walk away.  I have two sisters, one of whom has asthmai and MSi, and the other MS.  I have another sister who has chronic bronchitis, and another with Rosaceai.  NONE of them do this.  There are five girls altogether - no boys.   There is only so much that you can do - make your energy count.   I know how much you care about this, BUT...

Rica

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Wow, it must be especially frustrating when you have to watch helplessly as your own sisters suffer needlessly. You must want to shake them and scream sometimes. It's just so sad to see someone every day and know that, if they'd just listened to me when I told them a year ago, they'd possibly be asthmai-free today. But, there they are, still coughing and puffing inhalers, for no good reason at all. So sad.

It's one thing to be skeptical. I was when I first read about cpni and abxi related to asthma. But I was still curious about it. Skepticism I can understand. But with the people I've told, it isn't just skepticism. It's absolute total lack of any sort interest whatsoever, as if I'm trying to convince them to come join me while I sit and watch paint dry. That's what I find so odd.

It sounds kind of terrible to say this, but I think what we're dealing with is Darwin's theory of survival of the fittest. It isn't enough to be born with genesi that help us stave off illness or fight it better than other animals out there. We also have to have the emotional make up to be curious, to be self-motivated and to be stubborn enough to start and continue this treatment.

I know two people with MSi that's badly affecting their lives, but they won't move forward on abxi, preferring to accept the 'devil they know', rather than take on the devil they don't know. I've never been a 'status quo' kind of girl, and I don't think anybody here is, either. That's why we will survive this disease when others around us won't.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

You got it, I am sorry to say.    And Sunni, I know exactly whatyou mean - it's not just my sisters, but some others with the disbelief and skepticism "writ large".  Focus on others.

Rica

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

I only can help people, who are interested.

I´m happy, that there are more and more  , doing the Wheldon protocol. These are the ones, who take care for themselves.

In my project, there are 15 people with MS, 2 are interested, the others only mention, well, you still can´t walk.

  I smile , ....

 

sphinx

 Wheldon CAPi May 2008,   52  Tinii pulses - stopped Nov.2013- Buhner´s protocol Dec. 2013 till  June 2014 - cpni free Oct. 2014

Keep smiling, sphinx

Mine gets a little wider each good day (on the ones that aren't so good, I just smile a little less).

Rica

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

ahhh yes, the disbelief.  It is very frustrating.  I think that had my sister got on board our crazy train she wouldn't be having the very serious heart & weight problems she now has.  But I am just the crazy lady who has been on abxi for almost 3 years now!  If they could just spend a little time reading, but there has to be a will & God knows, we all have the freedom of choice.

keep on keeping on, we can plant the seed & leave the rest to the rest. 

peace

r

 

CFIDSi/ME, FMSi, MCS, IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplementsi+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyli/day-5 days<

I was just thinking that Mac--survival of the fittest. If that's what it is, so be it. People I have talked to about this bug and the treatment think I'm an off-kilter health nut wacko. Even trying to tell people about vitamin Di--might as well be speaking another language from another planet. Raven

Feeling 98% well-going for 100. Very low test for Cpni. CAPi since 8-05 for Cpn/Mycoplasma P.,Lyme, Bartonella, Mold exposure,NACi,BHRT, MethyB12 FIRi Sauna. 1-18-11 begin new treatment plan with naturopath

It took me a year to get a friend with anklosing spondylitis to take vitamin Di. He finally did and was amazed at the dramatic improvement in his condition within just a few weeks. I said, so now that you see I knew what I was talking about with the D will you go get tested for Cpni? Nope, not interested. Ugh. You'd think the D experience would have earned me a little credibility.
This is survival of the fittest. I think it takes the mindset to walk through the fire to reach the quiet stream. And for myself, I would have been so gratefull if someone had shared this treatment with me many years ago. I have a friend who is getting worse with fibromyalgiai. I finally got her to make an appointment to see my lyme doctor for testing. I am going with her in two weeks, it's a two hour drive one way. It has not been easy for her to understand this treatment but at least she is looking into cpni with interest.

started Wheldon capi 4/21/08 for Cpni, CMV, EBVi, CFSi. Cap hold 4/09vascultis. Restart 9/09 with Dr.Powell, restore gut, 4000 D3, supplementsi,  Pos. Bartonella and Babesia, Rifampin 600 mgs and Biaxon 1 gram. 

Sunni and all, this is a great thread.  It is wonderful to hear from you Bonnie that you have a friend that is willing to take the jump and see your "local area" Abxi prescribing MD.   I too travel over 2 hours to see my "Local" practitioner.  Last time I checked he was closed to new patients, perhaps it opens from time to time I should ask periodically.   Sometimes I hesitate to make suggestions as I have no one to send folks to at this point.   So much non-interest in the powerful treatment on both sides of the coin.  I too find it frustrating.   And have had the reactions to the concept of long-term abxi that have put me on guard as to how much I share and how fast I share it. 

I guess if I were just approaching people on the street with an introduction card that had the address of the website on it it would be much easier.  Spreading the word to some who might ultimately listen with anonimity.  Maybe I will think about this as a possibility.   With the ability to do self (business like) cards on one's computer it is totally doable.

I see people in public with many symptoms or over hear them complaining to someone else, stepping over and handing a card I think could be doable for me, and then walking away.   A bit like paying it forward for the benefit of this information but avoiding the looney association by those who know me and that would not listen if I paid them too!

Perhaps this sounds a bit cowardly but personally I do not enjoy bad publicity.   Thing about sharing your medical problems openly is that folks will remember the problem for a long time and forget the parts about what is making you better very quickly.  

You quickly get identified with your complaints if you air them publicly.

I have seen it happen to other people, like reference;  "You know that woman with MS, or Asthmai, or Lupus,  they forget the persons name but not their limitations or challenges."

Perhaps with talking about CPni, and if you can stand up and move around a bit, like as has been mentioned by others here, folks do not BELIEVE that you have any illness, just lazy, unmotivated, can't measure up.

Thanks for sharing this topic Sunni.   I will begin to notice how often I could give out a card with the website on it and a few sentences about the problems helped or something.  I truely would like to reach more people too!

Louise

 

 

  • CAPi(TiniOnly): 06/07-02/09 for CFSi<
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDNi 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support
  • <
I had business cards saying "CPNHELP.ORG" made three years ago and they cost 9.99 for a thousand at a local print shop. The guy kept asking if I wanted anything else on the card, but I decided to keep it simple. I think Staples will do this pretty reasonably, as well. If I think I can be of help personally, I scribble my phone number on the card (which happens once in maybe ten cards).

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Good idea. Maybe in addition to cards I'll print some fliers to hang on billboards in local restaurants and stores that have them. Fliers will be easier to catch people's attention with. Maybe catch their attention with their ailment. If they have arthrits you'll be more likely to catch their attention with "arthritis" than "cpni.org", which probably means nothing to them, so they won't even know they should be interested. Maybe something like:

Arthritis?

Asthmai?

Chronic Fatigue?

Fibromyalgiai?

Multiple Sclerosisi?

CPNHELP.ORG

 

 

Sunni, here is an online company that has a interactive website so that you can create your own brochure or even the letterhead could be used to produce a flyer.   I have used these folks for business cards.    Over the years I have gone to others and in the end I am the one that ends up designing what I want to they have been good.

www.printsmadeeasy.com<

There may be others that will do it cheeper but this is fun to play with and you can save your creations, do double sided cards and much more.

I'd love to see what you come up with in the end.      Louise

  • CAPi(TiniOnly): 06/07-02/09 for CFSi<
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDNi 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support
  • <

Comment viewing options

Select your preferred way to display the comments and click "Save settings" to activate your changes.