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CAPi since 11/06 for Cpnii, Lyme, Bartonella, Myco P, CMV, HHV-6 infectionsi.
Doxyii 200mg daily, Zithromax 250mg MWF. NACi 2250mg daily. All other supplementsii.
Good news: I can exercise again. Bad news: Porphyria
Submitted by mycoplasma1 on Sun, 2008-10-12 20:44. I have come a long way since 1.5 years ago when I began CAPi.
I now have the strength to exercise again and my muscles feel strong again and I have gained tone back. I have been working with a trainer, told her I was ill and we began a program slowly easing into it.
I tested my ability to recover from cardio and weights and there was no real fatigue after exercise which is a very good sign for me. I had always lifted light weights when I was ill to stay somewhat fit and it seemed to not set me back, but cardio was always a sure way to relapse. Not anymore!
It has been a few months now and I have been working out 4 times a week for an hour with reasonably heavy weights, cardio, stretching, squats etc...going very well. None of that oxygen deprived feeling I used to have.
But today I did notice increased agitation during my routine and anxiety as my trainer pushed me a little too hard (she doesn't really get what I have been through). Sweaty hands, a little nausea, panic building, some confusion. I think I might have began to hyperventilate a bit. I thought about it when I got home and realized it was porphyriai.
Can someone explain what happens in the body when those of us sick with these infectionsi push overdo the exercise? I feel fine now, no real lasting fatigue like I used to have, just that underlying anxiety and panic, jittery feeling. I did eat in the AM but probably not enough to keep the body satisfied.
Perhaps with an explanation I will be able to prevent this the next time. I know enough to take it slow and listen to my body when I signs of Porphyria pop up.
Thanks!
Chris
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I await the responses, too,
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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
P.S - One thing I did want
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CAPi since 11/06 for Cpni, Lyme, Bartonella, Myco P, CMV, HHV-6 infectionsi. Doxyi 200mg daily, Zithromax 250mg MWF. NACi 2250mg daily. All other supplementsi.
Maybe you exercised so much
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Combined Antibiotic Protocol minocycline, azithromycin, metronidazolei for muscle pain, insomnia, interstitial cystitisi, sinus, disphonia, dry eyes, stiff neck, veins, thyroid, TMJ.
Heya Chris... I remember
Heya Chris... I remember you having breathing problems from Azith! Great that you are able to now exercise and doing so much better (we started CAPi and had similar problems at about the same time).
Am curious, though, one of your last posts stated you had not pulsed yet... have you yet? (Since you think it may have been porphria.....) It's taken me almost a year before I reached the point of even being able to attempt a pulse (am only on my 5th pulse and not even up to the full dosage yet).
Hope all keeps going well for you!
JeanneRoz
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JeanneRoz~CPNi diagnosed & started protocol 4/2007, also HHV6, EBVi. CFIDSi/FM diagnosed: 6/07; 100mg/doxyi/BID ~ 250 mg AZITH M/W/F ~
1st Tinii pulse 4/17/08- 1 250 mg. tab for 2 days. Pulse 5: 9/28/08, 250 mg TINI BID, 3 days. SupNo, I have not attempted a
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CAPi since 11/06 for Cpni, Lyme, Bartonella, Myco P, CMV, HHV-6 infectionsi. Doxyi 200mg daily, Zithromax 250mg MWF. NACi 2250mg daily. All other supplementsi.
But Chris, though the
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Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 55 pulses LDNi Rifampin 8/08 again NC USA
Have to clear the
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CAPi since 11/06 for Cpni, Lyme, Bartonella, Myco P, CMV, HHV-6 infectionsi. Doxyi 200mg daily, Zithromax 250mg MWF. NACi 2250mg daily. All other supplementsi.
Hi Chris, You know when I
Hi Chris,
You know when I read your symptoms, they sound like porphyrins which may be a by product of HSP60 from cryptics especially if you're not doing a bactericidal agent as in pulses. I recall reading in some of the literature that there are two known entitities that can cause these endotoxinsi, (if I recall correctly) and that would be mycoplasma and chlamydia species.
So, although I don't know what might be happening when you exercise, I think your symptoms may be signalling you to do a pulse rather than trying to clear bart first as you say. Just my nickel's worth.
BTW, I do believe Lyme and it's co-infectionsi also go cystic to avoid the antibioticsi which might be why you're feeling better but still having these issues.
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NACi 2.4g, Zithi 250mg/MWF, minoi 200mg, Tinii 1g/day pulses, Iodoral 25mg, Supps, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addisons
Don't believe everything you think!Signor, I'm guessing you
Signor, I'm guessing you are already aware of buspirone? Lo, on introspection I descried within my own person the symptoms of "Generalized Anxiety Disorder," wherefore I quickly hastened to order buspirone, that I might eat thereof forthwith. Supposedly it has less tolerance and habituation potential than benzodiazapines. Another very sensible reason to take it is its extemely cool looking structure diagram - no joke, this is the coolest looking FDA approved molecule you can find, hands down... I would not pull your chain about a matter of such gravity. I hope it will do something - I don't get any lasting anxiolysis (or anything at all) from the many antidepressants I have sampled.
Re magnesium, I am still doin up the hard core cardiopulmonary jonx... and I had a little incident last spring where I ingested far too much Mg and ended up with some GI effects that still haven't totally gone away (quite possibly reflecting a semipermanent floral change) - not recommended dude! Indeed I still can't eat any amount of Mg whatever without nasty side effects, which is kind of inexplicable, but Nelly reports same. However I can tolerate very small amounts of epsom salt (magnesium sulfate heptahydrate) taken topically, dissolved in skin lotion (I haven't actually weighed the amounts I'm using, but I titrated up). The effects are bizarre - not only do I seem to be more vigorous, I also don't get sore even after heavy exercise of muscle groups I haven't used in ages. This is really strange. Even a normal person gets very sore under such circumstances. It's all the weirder since, earlier in my post-CFSi exercise regimes, I would get very sore every single time I ran - rather than only when out of shape as would happen to a normal person.
Two days ago I did a monster 30-minute piece on a rowing ergometer. I haven't erged in well over a year, nor done anything else with my lats or lower back. And the resulting soreness is barely even noticable. Totally crazy. Damn, I love to pump up some exercise.
Oddly, if I take too much Mg sulfate, another effect is that I have a brief, strong mania, followed by a longer rebound depression of comparable magnitude. This, along with a bad GI, will happen if I use, say, the amount of epsom suggested for a bath on the epsom package, or anywhere near that amount. I don't see anything about this in the literature, so I may have a phenomenon of my very own here. I am of course bipolar to begin with, very modestly. The GI effects may actually not be the result of Mg moving into the GI lumen, since Norman and I found in the literature that the kidney is supposed to strip out Mg from the serum quite rapidly when the concentration becomes elevated. There could be indirect effecs via the nervous system, which obviously does experience some effects, or I guess it is possible some of the good and bad effects I observe could come from the sulfate rather than the mag. If I can ride my bike through pastures in the hills, I don't absolutely have to know how the sausages are made. Hypervigilantly yours, EZ Johnson.