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Glucose is Dextrose is cheaper as a powder............

Submitted by Sarah on Sat, 2008-06-14 10:39.
And you can buy it as a powder from I Herb and then mix as much as you need with water.  Add lemon or other flavoring if you really don't like the innocuous flavour of the glucose. It is much less expensive than all those glucose containing sports drinks. 
Good if you are embarrassed by going to the local home brew shop to buy some there........Sarah

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Completed Stratton/Wheldon regime for aggressive secondary progressive MSii in June 2007, after nearly four years, three of which intermittent.   Still slowly improving and no exacerbation since starting. EDSSii was 7, now 2, less on a good day.

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Here I am and here is the

Submitted by Sarah on Sat, 2008-06-14 10:43.

Here I am and here is the link.

An Itinerary in Light and Shadow...........Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after nearly four years, three of which intermittent.   Still slowly improving and no exacerbation since starting. EDSSi was 7, now 2, less on a good day.

___________________________________________________________

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after nearly four years, three of which intermittent.   Still slowly improving and no exacerbation since starting. EDSSi was 7, now 2, less on a good day.

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I buy boxes of glucose in

Submitted by Andesine on Sat, 2008-06-14 10:44.

I buy boxes of glucose in Boots or Lloyds chemist. Is a home brew shop cheaper or bulk? 

Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.

NACi 2400mg. All supplementsi. Doxyi 200mg. Zithi 250mg M/W/F.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April 2008.

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Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.

NACi 2400mg. All supps. Doxyi 200mg. Zithi 250mg. Metroi 400mg.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April 2008. First pulse June 2008

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Both, I would

Submitted by Sarah on Sat, 2008-06-14 10:52.
Both, I would guess..............Sarah

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Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after nearly four years, three of which intermittent.   Still slowly improving and no exacerbation since starting. EDSSi was 7, now 2, less on a good day.

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I can get now foods

Submitted by mrhodes40 on Sat, 2008-06-14 13:34.
I can get now foods products ordered for me with no shipping at my local grocery that caters to natural food selections. Others may find their local natural food coop or somthing can do this as well. I'm glad yo posted this Sarah! marie On CAPi since Sept '05 for MSi, RA, Asthmai, sciatica. EDSSi at start 5.5.(early cane) Now 6 (cane full time) Currently on: Doxyi 200, Azith 3x week, Tinii cont. over summer '07, back to pulses of flagyli winter '08 all supplementsi. "Color out side the lines

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On CAPi since Sept '05 for MSi, RAi, Asthmai, sciatica. EDSSi at start 5.5.(early cane) Now 6 (cane full time) Currently on: Doxyi 200, Azith 3x week, Tinii cont. over summer '07, back to pulses of flagyli winter '08 all supplementsi. "Color out side the lines

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Thank you Marie!  I only

Submitted by Sarah on Sun, 2008-06-15 08:07.
Thank you Marie!Laughing  I only found it when someone from here wondered about trying to get Lucozade sent from the UK to the US.  So I looked up where you could get the powder, which here is much cheaper in the UK from a home brew place than from a pharmacy...........Sarah

___________________________________________________________

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after nearly four years, three of which intermittent.   Still slowly improving and no exacerbation since starting. EDSSi was 7, now 2, less on a good day.

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Thank you, Sarah. I did

Submitted by Minai on Sun, 2008-06-15 11:57.
Thank you, Sarah. I did order the NOW dextrose powder. Glucose does seem to be the only thing helping. Benadryl, Allegra, Famatodine, Prednisone, Benfotiamine, Bentonite, Actos, Welchol, Neurontin, and charcoal, haven't. Defintely think that I made the SP worse with all of the Gatorade (sucrose and fructose) that I was consuming. I do wish that Lucozade contained only glucose without the aspartame and other weird things. Thankfully, I do have a 2 liter of Lemon-Lime Seltzer water that I can drink whie waiting on the Dextrose to arrive. Seltzer water is also mentioned in the patent. And, I have bags and bags of Smarties that may help out, too. --Minai RRMSi, diagnosed 2/04. NACi 4/06. Started Wheldon/Stratton regime 8/30/06. Doxycycline, 8/06, Azith, 10/06. Switched to Roxithromycin 11/06. Psuedo relapse/die-off with hospitalization 1/07. GAD-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY. LDNi 4/07. 1st Tinidazole Pulse, 8/11/07. Keflex 2/08. IV Rocephini 3/08. IV Clindamycin 5/08. USA
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Smarties washed down with

Submitted by Sarah on Sun, 2008-06-15 12:23.
Smarties washed down with seltzer water should do the trick, but charcoal and constipation don't mix.  To this end keep up the apricots as well!............Sarah

___________________________________________________________

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after nearly four years, three of which intermittent.   Still slowly improving and no exacerbation since starting. EDSSi was 7, now 2, less on a good day.

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Just took the smarties with

Submitted by Minai on Sun, 2008-06-15 13:45.
Just took the smarties with seltzer. First thing I've eaten all day. Am scared of apricots because of fructose and they are dried fruit that may need to be washed. The SP is making me even more constipated. Even with an enema I can't go unless I have just gotten up and haven't eaten. May eat apricots after dinner when I've consumed enough carbs? --Minai
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I eat fresh pineapple to

Submitted by Twickle Purple on Sun, 2008-06-15 14:05.

I eat fresh pineapple to keep regular, if that's helpful.

--
Corinna. GFAi. NACx2400mg, D3x5000mg, B12x1000mcg.

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Corinna | GFAi. Wheldon Protocol: 4 – 8/08. Stepping back to recoup. Prednisone, Tramadol, Probiotics.

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Thanks, Corinna. I love

Submitted by Minai on Sun, 2008-06-15 14:43.
Thanks, Corinna. I love fresh pineappple and it probably would help. Yet, in my situation I couldn't prepare it due to spasticity. Even looked into taking Bromelain, made from pineapples, supposed to help with SP. Yet am so sensitive to such things, might make it worse. --Minai
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Oh Minai, that is

Submitted by Twickle Purple on Sun, 2008-06-15 15:28.

Oh Minai, that is unfortunate.  I also find moderately high doses of Vitamin C, milk of magnesia, psyllium and natural senokot helpful and they now make a senokot wheatbran to add to meals which is helpful for folks that can eat wheat products.  But, I'm not that familiar with your spasticity situation so none of this may benefit you. Frown

Good luck with this, I hate it when I get all bunged up.

Best wishes,
Corinna 

 

--
Corinna. GFAi. NACx2400mg, D3x5000mg, B12x1000mcg.

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Corinna | GFAi. Wheldon Protocol: 4 – 8/08. Stepping back to recoup. Prednisone, Tramadol, Probiotics.

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Hi Minai try the 4ap it is

Submitted by jak7ham9 on Sun, 2008-06-15 15:34.

Hi Minai try the 4ap it is helpful with spasticity also mag . Baclofen never orked for me. BarbaraNAC and glutathione push for years all supplementsi in protocol)IV vitaminsi b1-12,C50gm,magDoxy200 10-/14/07, NAC 2400Doxy200mgAzithMWF10/29/07 roxy300,doxy200,rifampin300aziyh mwfMS flagyli 1day 500x2 11/23/20074th pulse 2.8.081500mg 8days

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NACi and glutathione push for years all supplementsi in protocol)IV vitaminsi b1-12,F10/29/07 roxy300,doxy200,rifampin300aziyh mwfMS flagyli 1day 500x2 11/23/20074th pulse 2.8.081500mg 8days 7/08 finished 10th pulse on 300 rifamp bid, doxybid 7/2008

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  Well, buy clean dried

Submitted by Sarah on Sun, 2008-06-15 16:08.
 

Well, buy clean dried apricots!  I eat them still by the ton, suffered from very little porphyriai and am never bunged up.  (I never wash them either.)  Last week you were addicted to them........Sarah

An Itinerary in Light and Shadow...........Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after nearly four years, three of which intermittent.   Still slowly improving and no exacerbation since starting. EDSSi was 7, now 2, less on a good day.

___________________________________________________________

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after nearly four years, three of which intermittent.   Still slowly improving and no exacerbation since starting. EDSSi was 7, now 2, less on a good day.

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Hi Barbara, Am keeping it

Submitted by Minai on Sun, 2008-06-15 18:11.
Hi Barbara, Am keeping it in mind. But it does seem a little extreme in that it was used as a bird killer. Would probably have reaction from it, but not necessarily in a good way. --Minai
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Thanks for the well wishes,

Submitted by Minai on Sun, 2008-06-15 18:19.
Thanks for the well wishes, Corinna. Vitamin C does help and so has Milk of Mag. Can't tolerate the psyllium for some reason. Was taking Benefiber but it seemed to make me worse. Have taken senna and it did help. May try it, again. Good idea. --Minai
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You're right, Sarah. These

Submitted by Minai on Sun, 2008-06-15 18:25.
You're right, Sarah. These should be fine, labelled as organic. I do still crave them. And as you, and my husband, remind me; it probably is because my body does need something in them. Will have to look at that link that you sent, again. --Minai
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I was always bunged up. I

Submitted by Andesine on Sun, 2008-06-15 18:55.

I was always bunged up. I used to have to force myself to go and it was like bullets. Now I take Benefibre plus Chlorella plus probiotics and Activia or Yakult and I'm regular as clockwork. 10am and the bathroom calls.

Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.

NACi 2400mg. All supplementsi. Doxyi 200mg. Zithi 250mg M/W/F.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April 2008.

___________________________________________________________

Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.

NACi 2400mg. All supps. Doxyi 200mg. Zithi 250mg. Metroi 400mg.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April 2008. First pulse June 2008

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  Good grief, I started

Submitted by Sarah on Mon, 2008-06-16 06:17.
 

Good grief, I started this about where you could buy glucose powder from!  Fruit though, is full of fibre, even though it by definition also contains fructose, but the important thing to get rid of porhyrins or endotoxinsi is to get rid of them regularly, hence the fibre in whatever form, and dried apricots are delicious:

http://www.whfoods.com/genpage.php?tname=foodspice&dbid=3 ............Sarah

An Itinerary in Light and Shadow...........Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after nearly four years, three of which intermittent.   Still slowly improving and no exacerbation since starting. EDSSi was 7, now 2, less on a good day.

___________________________________________________________

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after nearly four years, three of which intermittent.   Still slowly improving and no exacerbation since starting. EDSSi was 7, now 2, less on a good day.

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People have asked me why the

Submitted by Todybear on Mon, 2008-06-16 08:06.

People have asked me why the glucose. I can't answer that, why does glucose work for porphyriai? What does it do? My husband is an Emergency Medical Responder and they know glucose to be used for hypoglycemia or diabetics, but why do we take it? 

SPMSi< Supplementsi & NACi, Doxyi 100 mg, Azith 250 mg 3X/wk

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SPMSi< Supplementsi & NACi, Doxyi 200 mg, Azith 250 mg 3X/wk, starting flagyli slowly

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You might to read this

Submitted by Michele on Mon, 2008-06-16 08:46.

You might to read this thread.   Also our experience has confirmed that consuming pure carbohydrate  can relieve symptoms rather quickly.

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

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