Flagyl and suicide

Does anyone else freak out when they do a Flagyli pulse?  I seem to get so depressed (on antidepressants anyway, depression runs in my family) during a pulse.  I yell at my husband, get so upset that my fibro gets a lot worse, think suicidal thoughts.  Horrible!!!  Anyone else?  It would make me feel better to know that it must be the Flagyl.  At least I know it will get better afterwards.  I am trying for 10 days this time.

Comments

Lynnp Hi thanks for that.I

Lynnp Hi thanks for that.I only really feel wired if I am taking pain killers.I am awake most of the night if i take them so now I very rarely do.The pain is better with them but I get no sleep.My pain moves from my back to my head and I am tender everywhere.I have found my pain has been worse again since I became more active and also my diet is a big factor.I have been on a salicilate free diet since Febuary (Nightmare) .I have recently been adding alot of stuff I shouldn't and have gone back to getting up in the morning and feeling like I have been beaten with a stick all over.This feeling had stopped when I was on the diet properly.I to have taken to art and crafts,weaving,knitting etc and some girlfriends and I are hoping to have a stall at Christmas.You have to find something hay to keep you sane.Keep fighting the fight.Takecare.x

sunshinecoast Australia.Fibromyalga suffer recently informed I have CPNi started on Doxyi 50ml twice a day 21.2.09 

Lynnp i used to feel like

Lynnp i used to feel like you did.I did 5 months (5 days a month) on half dose Flagil and then my doctor upt it to full dose over 5 days each month.The first 3 pulses  on  this where awful but my last one was amazing,no sickness and NO depresssion.I am now going to try 7 days a month.Still get the horrable taste in my mouth though.I take 5-HPT and melotonin to help with the anxitey and heart rasing.(Lynnp I also have Fibromialga,could you please tell me if your pain has improved at all.Mine is still cronic.My doctor tells me we will know when we have this beat as my pain will go.I have all my energy back and my legs work but my pain is still cronic.) It is the Flagil making you down, I truesly believe this as I am a very up-beat person but I was falling in a whole at every Flagil pulse.Know this alone and it will help you get through each one.It's not you going mad it's the medication and it will get better.Takecare.x

sunshinecoast Australia.Fibromyalga suffer recently informed I have CPNi started on Doxyi 50ml twice a day 21.2.09 

I was diagnosed with fmsi in

I was diagnosed with fmsi in 1997.  I had it for a couple of years before that but finally found the right doctor that believed me and did the trigger point test.  I went on disability (forced out of my job) in 1997 and spent 3 months in bed.  Sometimes I was almost too weak to breathe.  Very scary.  I have lived with chronic pain since 1995.  This year it seems to have moved into my neck and shoulders.  Sometimes it hurts so much that I want to scream.  I use lidocaine patches, ibuprofen, percocet.  I go to physcial reheb right now but I think my insurance may stop paying soon.  I don't seem to have any lasting improvement.  I think I am on my 14th visit.  I still don't have any energy.  Used to feel better in the winter (I think because of the allergies and so much swelling in spring, summer and fall).  I still don't feel better this year and I think we've already had our first frost.  I think these meds really make me feel worse.  I've been on this capi about a year now.  My doc says my blood looks a lot better (he said I had sticky blood which has something to do with strokes I think).  So he's kept me on it.  It sure would be nice to have some energy as I don't exercise or really get to do much of anything.  I am flying to Ohio in December and really dread it because by the time I get there I will be sick and have to rest for a few days.  That's hard to do when I am visiting my 4 grandkids and my son has activities planned. 

I am still waiting for the pain to go away and get some energy so I can have a life again.  Thankfully I make jewelry and crochet so I can at least feel like I am doing something.  I did a craft fair Thursday and by the end of it my neck and shoulder pain had me crying.  A friend helped me load up the car and by the time I got home it was bed and the heating pad again.  It's been 2 days and I am still exhausted.  But I did it!!!

I take 5htp too.  200mg a night.  It really helped me at first but I can't tell now.  I also take Ambien but it probably doesn't work since I have been on it since 1997! 

Do you find that you feel "wired" much of the time?  I really think it's the toxins making me feel that way.  Can't sleep at all when the toxins are worse.

FMSi/CFS 1995. tinnitus">i, ibsi, sinusitis, EBVi, NACi 2400mg, valtrex, cortef, armour, doxy, biaxin, tinii, vita c 5 - 10,000 daily 

Lynnp,I have been on

Lynnp,

I have been on Lamictal for many years and it works very well for me, no side effects at all and soft.  I take 200mg / day, very good for sadness-anger swings.  I also started Lithium 18 months ago for anger-pain issuses, 40% drop in two weeks.

Both Lamictal and Lithium are the number one drugs for bipolar in the U.S. according to my docs.  For the most part bipolars are not suppose to be on antidepressants also from my fine docs.  I took them on and off for years and they worked some but had bad side effects.

Cpni, Mycoplasma, Chronic EBVi, M.S.(MRI, Spinal Tap-greater than 5 oligoclonal bands and VEP), PANDAS(OCD). Wheldon CAPi (started 12/08), Azithromycin/Clarithromycin(12/09), Lithium, Lamictal, NACi(2.4g/day), D3(15,000IU/day)

My experience with Flagyli

My experience with Flagyli was that it would "supercharge" me on the days I was taking it and that I would crash the following week when the toxins hit me.  I never got suicidal, but I did consider "down-sizing" my family a few times.  The "moppers" make a big difference but you're still likely to be what Agatha's husband called "herxatious" for a few days each month.

CAPi for M.S. 8/2007 - 3/2009.  Twentieth pulse metronidazolei + INHi completed 3/12/2009.  Intermittent treatment thereafter until 11/20/2009.  

Agatha, you made up a new

Agatha, you made up a new word!  I like it!

FMSi/CFS 1995. tinnitus">i, ibsi, sinusitis, EBVi, NACi 2400mg, valtrex, cortef, armour, doxy, biaxin, tinii, vita c 5 - 10,000 daily 

My husband calls this kind

My husband calls this kind of thing 'an attack of herxatiousness'.

RRMsi diagnosed 2008 (symptoms for 20 years). Also sinusitis, recurrent UTIs, IBS  Wheldon protocol began 31/7/09 Doxyi 200mg, Azithro 250 3X week.  Supplementsi B12, D3 Vit C, multivit, Fish oil, probiotics, NACi, vit E, turmeric

I like it!

I like it!

CAPi for M.S. 8/2007 - 3/2009.  Twentieth pulse metronidazolei + INHi completed 3/12/2009.  Intermittent treatment thereafter until 11/20/2009.  

Thanks for all the kind

Thanks for all the kind words.  Now I need to tell my husband that it's the flagyli talking, not me!Think that will work???Ha!

FMSi/CFS 1995. tinnitus">i, ibsi, sinusitis, EBVi, NACi 2400mg, valtrex, cortef, armour, doxy, biaxin, tinii, vita c 5 - 10,000 daily 

Lynn, flagyli affected me

Lynn, flagyli affected me very badly, too.  This is one of my diary scribblings from earlier this year: "Dreadful.  Could not do much at all today.  Severe anxiety.  Dread.  Sick.  Could not eat.  Cannot get on top of it...  Consciousness is harsh, and hard to endure.  I seek oblivion.  I want to scream but cannot.  Wretched feeling."  That was 5 months ago.  I started another flagyl pulse yesterday and felt slightly light-headed, that's all.  I'm walking around with a big smile on my face these days.  I do think it will get better for you.  You will get through the flagyl horror.  It will pass one day.  Just hang in there.

LadybugSmile   

FM & chronic myofascial pain 2000; Cpni; EBVi; lead poisoning; CAPi since Jan 2009; Flagyli pulses & Azi M/W/F from Mar 2009; now also Cymbalta; Rivotril; Low Dose Naltrexone; Doxyi.  Pain-free and heading upwards again.

For some, tinii causes less

For some, tinii causes less depressive and milder mood distortions have been reported by some posters who have done metronidazolei first for a time and then switched to tinidazole.
  • CAPi(TiniOnly): 06/07-02/09 for CFSi<
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDNi 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support
  • <

The flagyli can affect you

The flagyli can affect you deeply and violently - as it did me.  Now the only effect - and I take it twice a day now - is a small flattening emotionally.  As I said last week-end at the State Fair - it steals your joy and flattens your emotions.  I think it will get better for you, Lynn.  It is attacking the root cause, I think.  Grit your teeth and repeat to yourself:  take that, and that...

Rica

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

This is the latest from

This is the latest from several psychiatrists I have had-very good ones, I was told and it held true for me.  Antidepressants should not work fast, several weeks at least.  If they kick in quickly, days, and then work for a while and then everything gets worse get off them.  I used many for several years and that is what they did.  Generally bipolars should not take antidepressants.  Antidepressants can also throw bipolars into mania with no way out.

I deal with severe depression and sadness / anger swings, warning stay away from me when this happens.  They said I was bipolar, whatever that is, and found Lamictal very good and soft for the mood swings.  I have been on Lamictal for years with no side effects at all.  Lithium was added for deep depression and anger, it knocked out 50% of it within one week.  One year on Lithium and no side effects.  Lithium is known to help fight infection.  Health food stores do have it, a different type, and have heard it works well, just cannot get a blood test for it from the docs.

I have always had no problems with any medication-except antidepressants, very lucky there. 

One more year on CAPi and I plan to get off all of them.  I do not like taking all the psychiatric drugs but rage and mania upset the neighbors.  "As good as it gets", thats close.

Flagyli does knock me out for 3-5 days, one year on CAP now.  Aches and pain went up two days after the Doxyi was added.

Suicidal thoughts less after Lamictal and then even less after Lithium.

Wasted several years messing with antidepressants.

This is just me but maybe it will help.

Cpni, Mycoplasma, Chronic EBVi, M.S.(MRI, Spinal Tap-greater than 5 oligoclonal bands and VEP), PANDAS(OCD). Wheldon CAPi (started 12/08), Azithromycin/Clarithromycin(12/09), Lithium, Lamictal, NACi(2.4g/day), D3(15,000IU/day)

I've been on Lamictal for a

I've been on Lamictal for a few years.  It really worked well at first.  My doc keeps saying I am not bipolar but my mom was and my sister is.  I think I will ask her to just put me on something for it and see how I do.  I've been on antidepressants since the 80's.  She changes them around from time to time.

FMSi/CFS 1995. tinnitus">i, ibsi, sinusitis, EBVi, NACi 2400mg, valtrex, cortef, armour, doxy, biaxin, tinii, vita c 5 - 10,000 daily 

It can be a sign of

It can be a sign of porphyriai.

Try gluccose and up your moppers.

Porphyrins build up over time and pulses are extra hard.

Good luck,Maria

Cpni since sep 2006. Autoimmune thyroid,hypofunction.levaxin,b12+folic acid">i.All classic cpn,porphyriai and toxinsymtoms.Not able to work.Selftreating cpninfection with AllicinMax(garlic), NACi, high vitamin D3. CAPi for over 3 years. Back to work and life

Lynn, its the flagyli pulse,

Lynn, its the flagyli pulse, worry not.  I never did more than five days for this reason, so it might be better both for you and your spouse not to try to do it for longer if it makes you feel that miserable................Sarah

An Itinerary in Light and Shadow

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.