My last blog post was title 'Smooth Sailing'... I was feeling good at the time, but since I have been up and down and all over the place. Sometimes I feel great and full of optimism (I ran for 25 minutes on Monday, a record) and at other times I am very fatigued, feeling low and a little desperate.
Today I am taking my first Flagyli dose, I plan to take 3x400mg pills today, one at each meal, and see how it goes. I am a little apprehensive as I have so much to accomplish work wise.
Malcolm
___________________________________________________________
Malcolm
Wheldon Protocol since July 07. Doxyii 200mg since 13 Sep 07 (100mg since 26 July 07), Naci 1200mg since 27 July 07 (600mg NAC since 9 July 07), Azi 250mg 3xweek since 31 Aug 07, Flagy pulses started 3 Oct 07, diagnosed MSii Aug 06.

Yes I agree. Based on my
Yes I agree. Based on my experience, the Flagyli was my biggest problem as far as die-off. Take one pill today and maybe one tomorrow if you don't react. Then wait a couple of weeks to make sure you don't have a delayed reaction.
Lynda- ME/CFSi, Fibro, IBSi, Hypothyroid, Lyme, Cpni, Diabetus Insipidus(DI). Stratton Protocol 8-06; Daily: NAC 2250mg, Doxy 200mg, Flagyl pulses
500 mg- 5days, Azith 250 mg MWF,LDNi,Armour Thyroid, Klonopin, Desmopressin, Zetia, suppleme___________________________________________________________
Lynda- ME/CFSi, Fibro, IBSi, Hypothyroid, Lyme, Cpni, Diabetus Insipidus(DI). Stratton Protocol 8-06; Daily: NAC 2250mg, Doxy 200mg, Flagyli pulses
1500mg- 5days, Azith 250 mg MWF,Armour Thyroid, Klonopin, Desmopressin, supplementsi.I took my first one (Metroi)
I took my first one (Metroi) last Thursday and only one tablet and felt awful until today, I don't feel wonderful now, but better than I did. All my MSi symptoms came back to bite me and things that I hadn't realised were part of this infection. Even an old surgery incision from when I was 14 joined in by itching tremendously.
My walking and balance were really bad - and I did try to keep walking on the Air Walker machine (thanks for the tip Sarah) but it was very hard.
I am waiting the full three weeks now before I try to increase the dose and I work from home - if I didn't I would not have been able to work.
Carol, Mucho Groucho
New Forest, UK. Progressive MSi dx 12/06 LDNi 3/07 CAPi 6/07: Wheldon
___________________________________________________________
Progressive MSi dx2006. LDNi & CAPi: Wheldon version. All supps. Doxyi 200mg. Zithi 250mg. Metroi 400mg.Pulses #13...I can because I think I can.
Well so far so good, have
Well so far so good, have taken 2 tabs so far and no adverse reaction.
Malcolm
Doxyi 200mg since 13 Sep 07 (100mg since 26 July 07), Naci 1200mg since 27 July 07 (600mg NAC since 9 July 07), Azi 250mg 3xweek since 31 Aug 07, Flagy pulses started 3 Oct 07, diagnosed MSi Aug 06.
___________________________________________________________
Malcolm
Wheldon Protocol since July 07. Doxyi 200mg since 13 Sep 07 (100mg since 26 July 07), Naci 1200mg since 27 July 07 (600mg NAC since 9 July 07), Azi 250mg 3xweek since 31 Aug 07, Flagy pulses started 3 Oct 07, diagnosed MSi Aug 06.
Carol, Glad to hear you are
Carol, Glad to hear you are feeling a bit better. Just wanted to know how long after that one tablet did you begin to feel the start of feeling awful?
Also I search for the Air Walker Machine. Looks like a good compromise the full oliptical versions are very big. The Brookstone one that I found was able to fold flat. Looks like something I could push myself on but not have to worry about balance in a big way. Thanks for mentioning it. I could see how keeping the nerves firing during the process could have advantages.
Louise
Louise, USA, Northern New England. CPni, Bb(Borrelia B., Lyme,) CFS. Started CAPi 6/24/07
Doxy400, NAC1200.Currently 9/24/07, Doxy 200 mg, NAC 1200 mg.___________________________________________________________
Louise-CFSi, CPN+/Bb+ Wheldon CAPi 6/07, Cholestyramine1-2pksHSforPorphoria& Endotoxinsi, Doxy100daily,Roxi300BID,Tini500mgBIDpulses,VitD3-4000IU,MagnascentIodine,{S.O.D.3/QD[KAL Brand],+Pyruvate3.75G+SAM-eForEnergy}
Well done
Well done Newbies....
proceed with respect & caution. I just did 2 days, 1 375 mg pill Sept 30/Oct 1 & I had some porphyriai, gas, kind of like you are dying from the inside out is the only comparison I can imagine. Lots of glucose & charcoal taken. I am cloudy, headache, very sore low back & I have not left the property since Sunday.
Tomorrow though, going to see Rain (beatles) so I will rest up for that.
Malcolm, you are blessed to be able to function doing aerobic exercise for 20 minutes. Many of us can only do small bouts of anaerobic. I hope that I will be back to my formerly fit self in 2008 or 2009, however long it takes. I am going to persist.
Blessings All
Ruth
CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonini, GABA, tarazadone, temazepam, novocyclopine, allergy formula, 2 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 8-21-07 1st pulse 1 X 250 mg Metroi
___________________________________________________________
CFIDSi/ME 32 yrs, FMSi,
IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#13 1240 mg X 3 days 8-7-08I felt really good for about
I felt really good for about a few hours after taking it in the evening, but that may have been the LDNi. The next day I was slammed...I am just hoping that there won't be any delayed reaction in the next 3 weeks.
I got the Carl Lewis walker from Amazon and yes it is pretty big, however it is very stable which is what I like about it. I have it in the living room for the time being - until we have unpacked all the boxes from moving in last year.
I have to say it is great when there is a boring programme on TV, well something I find boring anyway I can just switch off mentally and walk off the die-off.
New Forest, UK. Progressive MSi dx 12/06 LDN 3/07 CAPi 6/07: Wheldon
___________________________________________________________
Progressive MSi dx2006. LDNi & CAPi: Wheldon version. All supps. Doxyi 200mg. Zithi 250mg. Metroi 400mg.Pulses #13...I can because I think I can.
Hey Carol, I've got a
___________________________________________________________
Me, too, Sarah. Full dose
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
___________________________________________________________
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
I have completed my first
I have completed my first day and didn't notice anything until this morning when I was overcome by fatigue an hour after getting up, I slept for 90 minutes and feel fine. I do have an ache in my right shoulder, which is where I had a problem from before I was diagnosed with MSi. At the time I though it was repetitive strain injury as I work at a computer.
Last weekend I had similar fatigue, it starts with me getting grumpy and irritable, then I just have to get into bed where I fall into a deep sleep for upto 2 hours. It happened last Sunday and again on Monday, after which I felt great (this was before Flagyli).
I have been exercising regularly for ages and when I was dx with MS I was spurred on to exercise more, I used it as a measure of my ability. Since my first episode my main physical problem has been that I can't walk or run after about 20 minutes, I start to stagger and limp. Also my balance and hand eye coordination have been affected (one tennis opponent thought I was drunk!). I have also had periods of fairly intense brain fog and dizziness and various other symptoms, but to the casual observer I appear normal.
So I am hoping that I am tackling this issue early and that I am not going to have huge problems taking these abxi. It occurred to me yesterday that maybe the biggest thing I will have to deal with is these bouts of fatigue. I hope so anyway because sleeping is rather pleasant!
Malcolm
Doxyi 200mg since 13 Sep 07 (100mg since 26 July 07), Naci 1200mg since 27 July 07 (600mg NAC since 9 July 07), Azi 250mg 3xweek since 31 Aug 07, Flagy pulses started 3 Oct 07, diagnosed MS Aug 06.
___________________________________________________________
Malcolm
Wheldon Protocol since July 07. Doxyi 200mg since 13 Sep 07 (100mg since 26 July 07), Naci 1200mg since 27 July 07 (600mg NAC since 9 July 07), Azi 250mg 3xweek since 31 Aug 07, Flagy pulses started 3 Oct 07, diagnosed MSi Aug 06.