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> I'm actually able to take both the Doxycyclinei and the Azithromycini on an empty stomach.  Therefore, I'm not too frightened of the Flagyl (yet).

Good thing you put that (yet) in there.  

Seriously, go slow.  Avoid the temptation to take more because you haven't had anything happen for 24 hours - as I read the blogs here, you may not feel anything for three, five or ten days.  If by that time you've knocked back five days worth of Flagyl when you should have only taken one and your reaction doesn't start until day seven, you will not have a fun time.

Remember to follow the anti-porphyriai/anti-endotoxini regime.  

Please let us know how it goes.  I don't know if its because we draw inspiration from it or it's just that misery loves company, but we do want to know.

With any luck, you will be like me and have  relatively mild reactions that don't even give you an excuse to stay home from work (that late night trip to a Chicago Emergency Room not withstanding - although that really had to do with not taking the anti-porphyria/anti-endotoxin regime as seriously as I should).  

CAPi for M.S. since 8/2007. Currently: 100 mg Dox. (2 x day), 250 mg Zith (3 x week) ceased 3/2008, 150 mg Roxi (2 x day) starting 3/2008. Sixth pulse metronidazolei completed 3/15/2008.

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CAPi for M.S. since 8/2007. Currently: 100 mg Dox. (2 x day), 250 mg Zithi (3 x week).  Sixteenth pulse metronidazolei + INHi completed 12/20/2008.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Thanks for the encouragement and wise advice HD and Mack.  I know it's only been two days since my first toe-dip, and it was only one tablet, but I'm rather excited to report a runny nose!  Of course, it could also be the cold that my husband now has.  In any case, I feel like I'm inching closer to actually getting on that Mr. Toad's Wild Ride!  I will give it two weeks before I try again, then it will only be two tablets.  I'm wondering whether it's better to take two tablets in one day, or to take one tablet per day for two days?  Any advice? 

Finch - Western PA USA

ME/CFSi since 1991 - CPni dx 6/07 - began Cipro 750 mg 2x per day - added NACi 7/07 - switched to Doxyi 9/10/07 - 100mg 2x per day 11/3/07 - Azith 250mg M-W-F 10/10/07 - NAC 2400mg per day 1/08 - 1 Flagyli 300mg 3/28/08

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Finch - Western PA USA

ME/CFSi since 1991 - CPni dx 6/07 - began Cipro 1500mg per day - added NACi 7/07 - switched to Doxyi 9/10/07 - 100mg 2x per day 11/3/07 - Azith 250mg M-W-F 10/10/07 - NAC 2400mg per day 1/08 - Flagyl 500mg 3/28/08 gradually inc

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

I am in the same boat.  I just received my 100 tablet bottle of flagyli courtesy of India.  I have been on doxyi 4 months and azith2 months now.  I am looking at the bottle of flagyl like some kind of new designer drug, not sure if I'll have a good trip, or a bad one.  I just gobbled 200 mg doxy and the azith, so I probably should wait till dinner for the flagyl.  I think I will do the same, one tablet and see how it goes.   I'll do this tonight.  Hopefully Finch and I will not have anything too bad to report.

I have a question about the charcoal though.  If the endotoxinsi are released into the blood and the charcoal has it's main action on stomach contents, then how is it going to affect blood bound endotoxins?  I have been taking it, but still miffed on that part of the equation.

 G

MSi since 2001, Rebif 3 last years, Doxy 200mg, azith MWF, NACi 600mg, B12, Bcomplex, multi vit, quercetin, Vit D, Omega 3s, charcoal

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MSi since 2001, Rebif 3 last years, Doxy 200mg, azith MWF, Flagyli pulse #2, NAC 600mg, B12, Bcomplex, multi vit, quercetin, Vit D, Omega 3s, charcoal, chitosan. No Dr. oversight - Going it solo

So Grumpster - have you tried that Flagyli yet?  Because believe everyone when they tell you to go slowly and take only one!  I was decent for a couple of days, then got progressively worse (except for one day of feeling better after an acupuncture treatment).  I really didn't expect one tablet to hit me so hard.  Today is the 10th day after, and I feel lots better.  Although it was very hard, I'm very pleased with my reaction. 

A question for the vets - does this count as a pulse yet, or do I start counting after I get to the full dosage for five days? 

Finch - Western PA USA

ME/CFSi since 1991 - CPni dx 6/07 - began Cipro 750 mg 2x per day - added NACi 7/07 - switched to Doxyi 9/10/07 - 100mg 2x per day 11/3/07 - Azith 250mg M-W-F 10/10/07 - NAC 2400mg per day 1/08 - 1 Flagyl 300mg 3/28/08

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Finch - Western PA USA

ME/CFSi since 1991 - CPni dx 6/07 - began Cipro 1500mg per day - added NACi 7/07 - switched to Doxyi 9/10/07 - 100mg 2x per day 11/3/07 - Azith 250mg M-W-F 10/10/07 - NAC 2400mg per day 1/08 - Flagyl 500mg 3/28/08 gradually inc

Grumpster, the Charcoal moves into the small intestine and the bile enters the small intestine to breakdown fats.  This bile contains a combination of substances, which include fat soluble prophorins and liposacaride endotoxinsi.  Much of these would be reabsorbed with the broken down food products.  The Charcoal or cholestyramine absorb some of the fats and porphorins and endotoxins and carries them out with the waste.  Does that answer your question?

Louise

CFSi/ME.CPnPositive.BbPositive.WheldonCAPbegan6/24/07. NowNAC,Doxyi, Roxi, TiniPulse#4 Ended2/3/08. Cholestyramine at BedtimeforPhorphoria&liposacarideEndotoxinDie-OffExperiences.

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Louise  CFSi,CPNi+/Bb+(Lyme) Cholestyramine 1-2 pks @ HS for Porphyriai +fattyEndotoxins HS PRN, Wheldon CAPi 6/07,all supps, Doxyi 200QD, Roxi 300BID, Tinidazole 500 BIDx20day Pulses, VitD3-10,000IU,Iodoral25mg,SAM-e100mgQD+B-vits, Pyruvate3.75Gm at 1PM

Finch, remember that pole last fall about pulsing?  As I recall one pill once was considered a pulse per the instructions.  So I count my one pill pulse is #1.  I went to full pulse with the next in about two weeks time.   I am looking forward to your reports of your pulses.

Louise

CFSi/ME.CPnPositive.BbPositive.WheldonCAPbegan6/24/07. NowNAC,Doxyi, Roxi, TiniPulse#4 Ended2/3/08. Cholestyramine at BedtimeforPhorphoria&liposacarideEndotoxinDie-OffExperiences.

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Louise  CFSi,CPNi+/Bb+(Lyme) Cholestyramine 1-2 pks @ HS for Porphyriai +fattyEndotoxins HS PRN, Wheldon CAPi 6/07,all supps, Doxyi 200QD, Roxi 300BID, Tinidazole 500 BIDx20day Pulses, VitD3-10,000IU,Iodoral25mg,SAM-e100mgQD+B-vits, Pyruvate3.75Gm at 1PM

Yeah Finch,

Glad you made it through the pulse #1.  As we discussed, that is all I did for #1 - 250 MG.  I have to report that my pulse #8 of 750 MG for 4 days & the last day 250 MG was my toughest during pulse ended 3-24.  I was managing the die off etc until Apr 6 & 7.  So, the increased doseage makes a difference, imhoi & support my 15 days after pulse I can react.

I have to travel on the 14th, & recuperate from the transition back to my home where the weather changes every 10 minutes (slight exageration).  When that is done I will hit Pulse #9 & shoot for 750 mg all 5 days.  So, if all goes good, at my one year mark I will have 10 pulses by June.

Blessings & gooo Pens!  The Oil are waiting for the golf courses to open up, lol.  But, there is next season!

CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonini, GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse8 750mg 4day,375X1 3-24-8

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CFIDSi/ME 32 yrs, FMSi, IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, Full CAP 6-2-08, all supplementsi +Sea Kelp, Chitosan Pulse 16 1-4-09 1gm Flagyli/day-3 days

Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 50 pulses NC USA

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Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 55 pulses LDNi Rifampin 8/08 again NC USA

Thanks Rica,

After AZ warmed up from one of the coldest winters in quite a long time, it agreed with me.  I used my time here to ramp up pulses, enjoy the creative juices that have started peaking through again.  They have been sleeping for a long time!  I praise God for their return & all the blessings we have on this site.

I would share a few photos if I could figure out how to post them!

CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonini, GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse8 750mg 4day,375X1 3-24-8

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CFIDSi/ME 32 yrs, FMSi, IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, Full CAP 6-2-08, all supplementsi +Sea Kelp, Chitosan Pulse 16 1-4-09 1gm Flagyli/day-3 days

Ruth, posting pics is fairly easy here.  I did it one night just for fun.  Simply go to your create content link and instead of creating a blog entry pick "image." 

Then, the rest is similar to a blog with an upload for your pics.  There's prob other ways to do it but that would work and I'm sure we'd all love to see! 

MP for 3 1/2 yrs. NACi 1200 mg/2x day, myco+ I (still) want my life back! CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addison's

When I change what I believe I change what I do

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NACi 2.4g, Zithi 250mg/MWF, minoi 200mg, Tinii 5day/1g/5 pulses, Valcyte
Iodoral 12.5mg, Supps, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Sec Addisons