Finally a Smoking Gun for Me (ME/CFS)?

 

I recently came across this Web site after reading James Kepner’s article on Immunesupport.com during one of the 1,000s of Google searches I have done trying to find an answer to my ME/CFSi. I usually expect to come up with nothing—at best news of some recent (underfunded) research just to know that at least some people are working on things to keep some semblance of optimism going.

It’s hard for me to be optimistic after having been sick for over 13 years and having spent thousands of dollars on everything from Candida diets to sinus surgery to acupuncture to neurofeedback—with zero improvement whatsoever.

Still, after reading Mr. Kepner’s article, I almost feel like I’ve got a smoking gun for the first time.

I became ill very suddenly in the fall of 1993.

The genesis of my illness was a wicked sinus infection that quickly progressed into a brutal case of bronchitis.

After being sick for nearly a month (I waited way too long), I finally went to the doctor and got a prescription for antibioticsi. The yellow-green mucus almost immediately turned clear when I started taking them.

Like a dumbass, I stopped before completing the prescribed regimen because I was feeling better. This resulted in a wicked rebound--I apparently killed off the weak germs leaving the strong ones to survive and multiply.

For the rest of the semester I was on antibiotic after antibiotic—nothing could seem to kill it. Still, I trudged on to the end of the semester, figuring that I would catch up on rest then.

Although I slept for the entire month of January 1994, and 12-14 hours/day (sometimes more) since, I have never caught up.

In addition to being constantly exhausted, I developed a great deal of cognitive impairment and have seen my physical strength reduced to a shell of what it was.

I had always seen a ton of stuff on post-viral etiologies. Still, I had always believed that my initial infection was bacterial—but I never saw anything related to this pathway—until now.

So now, two big questions (they are related) . . .

(1)  Who is considered the premier physician in the US who treats ME/CFS patients with a chlamydia pneumonia protocol? From looking through the archives here, it appears that Dr. Stratton is pretty much focused on MS as this point.

(2) What is the premier lab to test for chlamydia pneumonia, and exactly what tests should be requested? From reading the archives on this forum, I seem to see that the lab at Vanderbilt was closed because of budgetary constraints.

Any guidance down the CPNi path would be much appreciated.

Thanks a ton in advance

-The Aftermath

 Welcome to our strange world, where people will congratulate you for having yucky but familiar reactions to antibioticsi and supplementsi

Actually, Dr. Stratton has treated the full range of Cpni related diseasesi, but does not have a clinical practice at this time. He has generously offered to consult with physicians treating with the CAPi though. I'd say the most experienced doc in the US treating CFSi/ME/FMSi using a CAP is Dr. Michael Powell in Sacramento. As a rheumatologist he has been using the Vanderbilt work, and his own additions to that protocol to cover other organisms and the screwy imbalances in hormones and other body systems typical of CFS patients, for a number of years. I think he also has the most thoughtful and programatic approach to mitigating the endotoxini reactions that I've seen.

There may be other doc's in your area who have experience with the CAP. You don't really need a premier doc, just one willing to learn and consult.

Testig is another issue. Mine was done through Quest, one of the big standard labs. There is a link on our link pages for Immunosciences which some think highly of.  

CAP for Chlamydia pneumonia since 11/04. 25yrs CFS & FMS- Currently: 200 Doxycycline, 500mg MWF Azithromycin, Tinii pulses.

A motto, not an aspiration: "Anything worth doing is worth overdoing."

 

CAPi for Cpni 11/04. Dxi: 25+yrs CFSi & FMSi. Currently: 250 aithromycin mwf, doxycycline 100mg BIDi, restarted Tinii pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

Welcome aftermath, Though I have always screamed that we must use antibioticsi judiciously, it probably would not have mattered in this case because this bug works that way and probably would have gotten you anyway in the end. However, the fact remains that it did and here you are and you are fortunate to have found us. This protocol works for this bug - chlamydia pneumonia - which causes many diseasesi. Read, read, read. Michele will send you a letter very soon with suggestions. You will understand shortly why the questions about the tests and doctors are not of greatest urgency. Go to the left and find Cpni Simple. Other people will come with soother pointers but you are on here now so I want to post this.

 

Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 47 pulses NC USA

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.

Welcome aftermath to the great ship Crazy CAPpers.

Before starting the protocol you will want to review the supplementsi list as many of them are for support of the liver - cleansing organ.

The testing is a whole other thing.  CPni might show up in your blood & then again, it might not.  If you start the NACi - N Acetyl Cysteine & experience the "flu" like symptoms it may mean you are CPn positive.

Best wishes for a complete marathon like recovery.  Steady wins the race.

CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpn, (insomnia - melatonini, GABA, tarazadone, temazepam, novocyclopine, allergy formula, 2 gm tryptophan), Natural HRT peri-M, NAC 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 10-30-07 3rd pulse 2 X 250 mg 2day

CFIDSi/ME, FMSi, MCS, IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplementsi+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyli/day-5 days<

Jim and others,

Thanks so much for your prompt and thoughtful replies.

Katman, I am looking at the left side of the page and I cannot seem to find a link for "CPNi simple." Is it on the standard navigation?

I noticed the info about NACi before my first post. I’m just wondering if it will jeopardize the results of any blood test that I may have done at a later date if I start with it.

One of the main things that kept me reading here on CPNhelp is non-profit nature of the site. I’m sure that you guys have been down this road—where 2 out of 3 sites you find while searching for ME/CFSi info are trying to sell yet another unproven nutritional remedy to ME/CFS. That being said, is there any preferred brand of NAC, or are they all pretty much the same?

One other question… I have been reading through the Patient Stories, specifically the ME/CFS ones. The one area they are a bit thin on is previous remedies attempted to gain resolution of symptoms. I am curious as to what other attempts those seeing relief from the Stratton Protocol tried first and with what results...

Please do not take the above as disrespect (e-mail, etc have no voice inflection and are taken out of context quite easily). Still, I have thrown good money after bad (in the range of tens of thousands of dollars) at this illness and have seen no substantive relief. I’m very optimistic about the etiology of my illness being CPN related after seeing some of the materials on this site, but before going forth with something that can be potentially harmful to bone marrow, etc, I want to collect a little more info.

Also, speaking of non-profits… I just fired off a $35.00 donation, as I think what you are doing is terrific.Aftermath

ME/CFSi 13 years. Started CAPi 12/20/07 w/ NAC 2400 and azithromycin. Plaquenil added 12/25/07

Cpni simple link:

http://www.cpnhelp.org/http%3A//www.cpnhelp.org/%3Fq%3Dsimple 

There; that should do it! 

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Welcome Aftermath, I have sent you the welcome message you will find it in your inbox (on the left of the page in the blue edged box).  

Although a test that confirms the presence of an infection is reassuring, Cpni is difficult to detect and you may get a test with a negative result but still have the cryptic formi of Cpn.   A number of us have not been tested but reacted to NACi and the antibioticsi and therefore we embarked on the treatment with confidence.

My daughter has MS, and has reached a position of stability and recovery I did not think possible when she was so ill.  I do not have MS or CFSi, or anything that has a name, but I do have a Cpn infection that has affected me in many different ways, the most visible being alopeciai.   This is much improved after 18 months of treatment but is not yet fully eradicated, so be aware that this treatment requires patience and determination, and that everyone is different and will have different reactions and take different lengths of time to get better.

Michele (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.

Welcome, Aftermath,  I found this site by google by searching chlamydia pneumoniae, specifically with the e on the end.  When I googled chlamydia pheumonia without the e it did not show up on the first or second page.  So wonderful you found us. and So wonderful I found us. 

Much of what you say I say me too.  However my years of decline did not have me searching the alopathic treatment model or internet for answers.

Hence I was dxi for C.Pn. the first time I "entered the system".  I could write a long story about my resistance in asking for help however I chalk it up to knowing to much about the way things work in the industry , both alopathic and complementary. 

I have been on the antibiotic treatment since June 24, 2007.  It is a solid plan from my perspective and based on sound sciencefrom what I have reviewed.  You sound like a persistent soul and those that seem to stick around here and do this process seem to be cut from the cloth of persistencei

We have many presentations, there are a number of Systemic Intracellular  Bacterial Infectionsi that can be addresses and "covered by these CAPi variations.  And may of us don't really know all of the SIBIs that could potentially be active for us. And in some opinions knowing is not ultimately important, if I may be so radical in stating that, In my humble Opinion IMHOi.

We all have had to learn more than we would have ever really wanted to know about many aspects of many topics to make informed decisions and promote these protocolsi to local providers.

To directly answer your question about the premier physician, since you do not apparently have MSi then the Vanderbilt U physicians and clinic may not be an option unless there is something I have missed here at CPNhelp.  And that is entirely possible. 

Currently, IMHO this is no primier here or there, for folks with CFSish and other non-MS presentations.  Folks sell the protocol to providers that they deal with directly and sometimes have to search them out, by word of mouth and door to door.

To answer lab tests from my individual perspective I had drawn and submitted to Quest Diagnotics Lab (per the physicians decision and choice, I did not even know about C.Pn. at the time) chlamydia Pneumoniae titer IGGi, and Chlamydia Pneumoniae Titer IGA and there may be Chalmydia Titer IGM but if there is I did not have that one if it does exist. The normal reference ranges are reported with the results so you get numerical data. 

My work up was done at a FFC a fee for service medical clinic.  There are about 14 nationwide.  And at those centers, as in all situations, you are dealing with each individual provider at each individual location.  www.fibroandfatigue.com and yes they sell neutraceuticals etc often found at better prices locally.  And to say once again there are many reasons to be unrelentingly fatigued.  Still they do have something to offer and as in most situations medical, to be informed,  to be knowledgeable about yourself and what you want and need is most important.

However as I stress there are a number of Intracellular Systemic Bacterial Infections and that likely have impact on a bodie's energy reserves if you in fact harbour any of them.  Fortunately, many of them are sensitive to these CAP variations, the Wheldon Protocol being supported by Dr Stratton from what I can see from the free posts on this website. 

I hope that this has been a bit helpful and that it is known that I speak purly for myself and my point of view.

 

Louise CFS. CPn posititve, Bb(Borrelia B.)positive. 

CAP 6/24/07 Initial Doxyi and NACi started.

10/31/07 Macrolide Abxi. added to Doxy and NAC.

11/3/07 Doxy 100mg BIDi, Macrolide 150mg BIDi, NAC600mg BID

  • CAPi(TiniOnly): 06/07-02/09 for CFSi
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDNi 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support

 Aftermath, for testing, I had chlamydia pneumonia IgGi and chlamydia pneumonia IgM drawn. My IgG came back positive, which meant chronic infection. IgM came back negative, which meant no acute infection.  Some people have IgA drawn and i'm not sure what that means.  

In regards to this statement, "before going forth with something that can be potentially harmful to bone marrow'I want to collect a little more info", I respect  this and am a big advocate of knowledge is power.  I feel that before starting this program, you need to have faith in the program b/c things get worse before they get better.  There is 2 or 3 people that I have told about this. Most of their response is 'can't being on antibioticsi that long not be good for you, cant is hurt you, cant it make you build up resistance to antibiotics. etc'.  My response is this "having cpni that has caused me to be hypothyroid, CFSi, damaged by adrenal glands, bottom out all my hormones is not good for me".  The CPN was slowly and methodically taking over my body and killing me.  My doc says that studies are showing that CPN has been related to breast cancer due to inflammatory process of CPN.  Coincidentally or not, I had double mastectomies 1 year ago (before being diagnosed with CPN) for precancerous condition- lobular carcinoma insitu, with 6 other findings-one being 'breast with foreign body inflammatory reaction'.  So, long story short, I felt like I had no other options than to pursue this avenue.  I would not let CPN kill me. 

I wish you well in your research and your thirst for knowledge. 

Mphs, TN. CFS, hypoT, weak adrenals, 37 w/hormones of 80 yo. 6/26/07- CPN Titer 1:256 (normal 1:16); 6/27/07- NACi; 7/2/07- doxyi 100, 2xday; 7/19/07-9/7/07- Biaxin. 9/8/07-azith 250 mg m/w/f. 10/18/07-1st flagyli pulse

Mphs, TN. CFSi, hypoT (Hashi), adrenal fatigue, hormonal inbalance. right arm neuropathy-getting better. cpni, myco, EBVi, CMV, HHV-6. Capi began in 6/07. NACi 2400mg, minoi 100mg bidi, biaxin 500mg bidi. cytomel, flagyli bid continuously.



"Coincidentally or not, I had double mastectomies 1 year ago (before being diagnosed with CPNi) for precancerous condition- lobular carcinoma insitu, with 6 other findings-one being 'breast with foreign body inflammatory reaction'.  So, long story short, I felt like I had no other options than to pursue this avenue. "


Sharon-I find this to be really interesting and relevant.  I, too, had breast cancer-DCIS which means non-invasive.  I had a lumpectomy and radiation and am considered "cured".  However, I have always maintained that there was some kind of connection to this cancer and my MSi.  I didn't know if it was the MS per se or the medications I take for it that caused the cancer or something else.  But I always believed there was some relationship.  It makes a lot of sense to me the CPn could be the connection.  It is one of those "aha" moments for me.
As an aside, I also take LDNi 4.5 mg, which is said to benefit breast cancer as well as MS.  So I figured I had 2 reasons to go on the LDN.  But wouldn't that be something if the antibioticsi arrest the cancer cells also!
The more I learn the more excited I get!
Lori
Minocycline 100 mg QDi, NACi 400 mg QD, vitamin B12 injection weekly, varous supplementsi, anxiously awaiting appointment at Vanderbilt Dec 17 so I can get started on full protocol.
 Started Vanderbilt protocol 1/9/08  Rifampin twice a day, Tindamax  monthly,   b12 injection monthly , vitamin Di 50,000 IU weekly

Thanks for the replies once more.

 Can I grab just any bottle of NACi at a GNC at the mall, or is there a preferred brand?

ME/CFSi 13 years. Started CAPi 12/20/07 w/ NAC 2400 and azithromycin. Plaquenil added 12/25/07
Any brand will do, I think. It is usually in 600mg capsules. Try just one to begin with to see what your reaction will be and work up to 2400mg per day.

 

Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAP Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 47 pulses NC USA

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.

Thanks again. I will be picking up a bottle at GNC. They are overpriced, but the house brand products are known for being of good quality.

Louise/Sharon with regard to this being a tough road, I have the stomach for it. If things suddenly took a turn for the worse, I could deal with it, as it would be indicative that something is actually working.

In the five months since you have started, have you experienced any noticeable changes (for better or worse)?

Also, I am curious as to what treatments you have tried in the past without success... I did the candida yeast-free diet w/ antifungals that was a 6 month long miserable waste. I got nothing from it.

Speaking of things being based on sound science, the "candida cures" strike me as being based on anything but. From my review of the literature, candida overgrowth is a sign that results from a depressed immunei system, not a causitive agent.

I had two doctors treat me with this and convince me that antibioticsi were the devil that caused this problem.

ME/CFSi 13 years. Started CAPi 12/20/07 w/ NAC 2400 and azithromycin. Plaquenil added 12/25/07
Well, we've noticed once or twice that even doctors can be wrong! ;-) Now you'll get very proficient at spotting those two for one vitamin sales. NACi is wicked expensive, otherwise.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Aftermath, I tried no other treatments.  

I've been on protocol for about 5 months. I declined pretty fast the last 4 months before my diagnosis.  I would say that I am where I was last november.  So, i'm better.  At least I'm  no longer on the couch on beautiful saturday afternoon watching back to back episodes of Grease 1 and Grease 2.   I can track my symptoms back to about 10 years ago. So, I know this is going to take time. 

For about 1 year prior to my diagnosis, my right arm would feel heavy and fatigue for about 1 min. This would happen 2-3 times a week. Almost to vague to mention. Well, after being on treatment, my right arm hurts more, I have lost some strength and sometimes drop things.   

For me, the getting better part and getting worse part means the treatment  is working.  This is why I say that you must have faith in program.  

  Mphs, TN. CFSi, hypoT, weak adrenals, 37 w/hormones of 80 yo. 6/26/07- CPNi Titer 1:256 (normal 1:16); 6/27/07- NACi; 7/2/07- doxyi 100, 2xday; 7/19/07-9/7/07- Biaxin. 9/8/07-azith 250 mg m/w/f. 10/18/07-1st flagyli pulse

Mphs, TN. CFSi, hypoT (Hashi), adrenal fatigue, hormonal inbalance. right arm neuropathy-getting better. cpni, myco, EBVi, CMV, HHV-6. Capi began in 6/07. NACi 2400mg, minoi 100mg bidi, biaxin 500mg bidi. cytomel, flagyli bid continuously.

Ok, I'm convinced and taking the plunge. I had been meaning to start a long time ago, but I wanted to get some bloods drawn before I started taking anything. That has been done, and I just downed my first NACi.

FYI, NY state sucks. Doctors in NY are not allowed to send things to out of state labs like Immunosciences unless that lab is licensed in New York. Apparently, this is next to impossible (I think it is on the outside lab to prove that what they offer is not offered by any one else within the state). I heard this from a doc I saw back a few years ago. Supposedly, it is nothing other than protectionist tactics for the labs in the state.

I had the igs drawn with Quest. I have another doc in NJ that is looking into getting the Immunosciences kit.

 My doc here in NY started me on azithromycin and Plaquenil. I asked for doxyi, but she said that she would add it later (apparently one of the infectious disease bigwigs at BU uses this protocol).

 In any case, I will keep everyone posted.

ME/CFSi 13 years. Started CAPi 12/20/07 w/ NAC 2400 and azithromycin. Plaquenil added 12/25/07
Protectionist tactics between states of the US are highly unconstitutional ... but I can believe NY state would try it.
Well, yay! Good luck with the tests, but many of us started without tests and we are SO much better now! Knock 'em dead (the cpni, that is).

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Hi Aftermath,

 

Welcome.

 

Since you mention NJ, here's another lab that might be considered:  MDL

 

Their ELISAs worked for me.

 

Definitely the sux about NY!

 

--Minai

 

RRMSi, diagnosed 2/04. NACi 4/06. Started Wheldon/Stratton regime 8/30/06. Doxycycline, 8/06, Azith, 10/06. Switched to Roxithromycin 11/06. Psuedo relapse/die-off with hospitalization 1/07. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY Restarted CAPi with NAC and Doxy 2/07. LDNi 4/07. Stopped NAC, started Roxi, again 5/07. Now on full doses of Doxy and Roxi. NAC, again, 7/07. 1st Tinidazole Pulse, 8/11/07. USA

Does anyone have any comment about Plaquenil?

It's not something I see mentioned often on this forum.

ME/CFSi 13 years. Started CAPi 12/20/07 w/ NAC 2400 and azithromycin. Plaquenil added 12/25/07
There was just a rather lengthy discussion of it in the past week or two. Have you tried searching it?

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

 Dr. Powell uses it in his protocol. It has anti-chlamydial effects according to Dr. Stratton, but appears to also make the antibioticsi more effective by some effect (sorry, don't recall exactly and can't find the reference) on the cell membranes. Also is said to alkalinize the cell compartments.. this may contribute to the antibiotic effectiveness. 

CAPi for Cpni 11/04. Dxi: 25yrs CFSi & FMSi. Protocol: 200mg Doxyi, 500mg MWF Azith, Tinii 1000mg/day pulses; Vit D1000 units, Cytotec 100mg, Plaquenil 100mg, Magnascent Iodine 12 drps/day, T4 & T3

 

CAPi for Cpni 11/04. Dxi: 25+yrs CFSi & FMSi. Currently: 250 aithromycin mwf, doxycycline 100mg BIDi, restarted Tinii pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

Jim, just as an FYI... not sure if you are aware of this, but I believe Immunoscience Labs are no longer in business

per this link

http://www.immuno-sci-lab.com/ClientLTR%20w%20Ltrhd.pdf

Jeanneroz 

 

Jeanne ~CPN  4/2007; HHV6, EBVi, CFIDS/FM- diagnosed '07; IBSi, prior kidney infectionsi, food allergies, hypothyroid (RAI for Graves in 1998), Adrenal issues (hypo); prior bronchitis/sinus problemsi. 200 mg/doxyi daily & 250 mg AZITH M/W/F, supplement

JeanneRoz ~ DXi'd w/ CPNi 4/2007; 6/07 -"officially" dx'd w/CFIDSi/FM; also: HHV6, EBVi, IBSi-C, 100 Doxyi:BIDi; 500 mg Biaxin BIDi; Tindamax Pulses, B12 shots, ERFA Dessicated Thyroid,Cortef, Iodoral 25 mg, Vit D-6,000 uni

Aftermath,

Just a quick note to say "hello" and welcome --  you are in the right place! I started CAPi in March of this year after coming down with a severe case of bronchitius for a second time in 4 months.

 In restrospect, most of my previous  health issues were probably caused by this bacteria. I tested positive for chlamydia pneumoniae (I think most of the CFSer's on this site have been tested-- most MSi'ers, it seems, started treatment empirically). 

I have CFS/FM along with the other ailments in my signature.  We're here to help! 

Be well and blessed,

Jeanneroz 

Jeanne ~CPN  4/2007; HHV6, EBVi, CFIDS/FM- diagnosed '07; IBSi, prior kidney infectionsi, food allergies, hypothyroid (RAI for Graves in 1998), Adrenal issues (hypo); prior bronchitis/sinus problemsi. 200 mg/doxyi daily & 250 mg AZITH M/W/F, supplement

JeanneRoz ~ DXi'd w/ CPNi 4/2007; 6/07 -"officially" dx'd w/CFIDSi/FM; also: HHV6, EBVi, IBSi-C, 100 Doxyi:BIDi; 500 mg Biaxin BIDi; Tindamax Pulses, B12 shots, ERFA Dessicated Thyroid,Cortef, Iodoral 25 mg, Vit D-6,000 uni

 Jeanne- Your link didn't work for me, but the website http://www.immuno-sci-lab.com is still there and doesn't announce any closure.

CAPi for Cpni 11/04. Dxi: 25yrs CFSi & FMSi. Protocol: 200mg Doxyi, 500mg MWF Azith, Tinii 1000mg/day pulses; Vit D1000 units, Cytotec 100mg, Plaquenil 100mg, Magnascent Iodine 12 drps/day, T4 & T3

 

CAPi for Cpni 11/04. Dxi: 25+yrs CFSi & FMSi. Currently: 250 aithromycin mwf, doxycycline 100mg BIDi, restarted Tinii pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

Jim.. you need to go to your link, then click on the "To our Valued Clients" (in Red) you will then get this letter... 

 

July 17, 2007

To Our Valued Clients;

Please be informed that Immunosciences Lab., Inc, will cease clinical testing by

July 21st, 2007. We will not accept any samples arriving after 12 noon on this date.

Immunosciences’ research and development division will remain in operation.

Thank you for your loyal support throughout these many years.

Sincerely,

Aristo Vojdani, Ph.D., C.L.S.

CEO-Owner

This was posted on another board (I think the Immunesupport.com site) that it's supposedly closed...

JeanneRoz ~ DXi'd w/ CPNi 4/2007; 6/07 -"officially" dx'd w/CFIDSi/FM; also: HHV6, EBVi, IBSi-C, 100 Doxyi:BIDi; 500 mg Biaxin BIDi; Tindamax Pulses, B12 shots, ERFA Dessicated Thyroid,Cortef, Iodoral 25 mg, Vit D-6,000 uni

jeanneroz, I followed the link and view that copy as well.  I could not lift it as it was in PDF, see that you got it from another posting of it.  The lose of another valuable service to the public.  Thanks for your sharing.

Louise

CFSi/ME.  CPni posititve, Bb positive. Started CAPi 6/24/07 Doxy & NACi 11/3/07 Macrolide 150mgBID added to Doxy100mgBID,NAC600mgBID 11/22/07 #1 Tini Full pulse 500mg BID 11/26/07Cholestyramine HS for porphoria/Lipo Endotoxini sxs x 1 week after pulses.

  • CAPi(TiniOnly): 06/07-02/09 for CFSi
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDNi 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support

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