Finally a Smoking Gun for Me (ME/CFS)?
I recently came across this Web site after reading James Kepner’s article on Immunesupport.com during one of the 1,000s of Google searches I have done trying to find an answer to my ME/CFSi. I usually expect to come up with nothing—at best news of some recent (underfunded) research just to know that at least some people are working on things to keep some semblance of optimism going.
It’s hard for me to be optimistic after having been sick for over 13 years and having spent thousands of dollars on everything from Candida diets to sinus surgery to acupuncture to neurofeedback—with zero improvement whatsoever.
Still, after reading Mr. Kepner’s article, I almost feel like I’ve got a smoking gun for the first time.
I became ill very suddenly in the fall of 1993.
The genesis of my illness was a wicked sinus infection that quickly progressed into a brutal case of bronchitis.
After being sick for nearly a month (I waited way too long), I finally went to the doctor and got a prescription for antibioticsi. The yellow-green mucus almost immediately turned clear when I started taking them.
Like a dumbass, I stopped before completing the prescribed regimen because I was feeling better. This resulted in a wicked rebound--I apparently killed off the weak germs leaving the strong ones to survive and multiply.
For the rest of the semester I was on antibiotic after antibiotic—nothing could seem to kill it. Still, I trudged on to the end of the semester, figuring that I would catch up on rest then.
Although I slept for the entire month of January 1994, and 12-14 hours/day (sometimes more) since, I have never caught up.
In addition to being constantly exhausted, I developed a great deal of cognitive impairment and have seen my physical strength reduced to a shell of what it was.
I had always seen a ton of stuff on post-viral etiologies. Still, I had always believed that my initial infection was bacterial—but I never saw anything related to this pathway—until now.
So now, two big questions (they are related) . . .
(1) Who is considered the premier physician in the US who treats ME/CFS patients with a chlamydia pneumonia protocol? From looking through the archives here, it appears that Dr. Stratton is pretty much focused on MS as this point.
(2) What is the premier lab to test for chlamydia pneumonia, and exactly what tests should be requested? From reading the archives on this forum, I seem to see that the lab at Vanderbilt was closed because of budgetary constraints.
Any guidance down the CPNi path would be much appreciated.
Thanks a ton in advance