Few simple questions of newcomer - please help :)

Hello everybody,

 Since yesterday I know I am Cpni positive. I have few simple questions: 

1) I went to a doctor. He prescribed me 30 days treatment of combined Clarithromycinum and azithromycinum. Is right treatment to get rid of it completely?

2) If the answer for first question is negative - what kind of treatment is recomended for Cpn?

3) Should I expect that following symptoms will disapear after treatment?: muscle fatigue, respiratory issues, heavy work of heart, repeating infectionsi, short time memory losses?

4) What to do in order to not allow reinfection? If it goes from person to person like flu - what to do to protect myself after treatment?

 I am 29 year old now. I think I have Cpn since 10 years - from that time I feel everything is less real, I do not have that much energy as before, I started to have troubles with breathing 3 years ago and I suffer repeated infections.

 

I will be very thankfull if any of You could share with me recomendations for treatment and most important is it possible to be 100% healthy again?

 

 Yours faithfully

L.

 

 

Answers:

1)  If you have had Cpni infection for 10 years, no, the 30 days won't do it.

2)  The best treatment is the one you will find in the handbook on this site or the one on David Wheldoni's site.

3)  If you've had Cpn long enough to have those symptoms, don't expect them to stay away for long after 30 days of treatment.

4)  After you have done the Vanderbilt/Wheldon CAPi, continued use of NACi will be a good insurance against re-infection.

Best wishes, 

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi).  CAP since August 06, Cpn, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity. 

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi).  CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity. 

Hello Mairj

Go and read this page< which is the treatment information for the Wheldon Protocol. Start halfway down the page where it says A schedule of treatment then come back and ask any questions you may have. 

30 days definitely won't do it.

Welcome to the forum though and there will be plenty of assistance here for you so don't panic if you don't understand a lot of the medical terms. 

Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.

NACi 600mg Feb 9th. Increased to 2400mg Feb 19th plus all supplementsi.
No GP/Neuroi support. Self medicating with assistance from David Wheldoni.
Started Doxyi 100mg 20th April 200

Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.

NACi 2400mg. All supps. Doxyi 200mg. Zithi 250mg. Metroi 400mg.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April

The heart symptoms may be from secondary porphyriai caused by the Cpni. See the page on this in the handbook. It's a lot of information to absorb, but will answer a lot of questions. 

CAPi for Cpn 11/04. Dxi: 25yrs CFSi & FMSi. Protocol: 200mg Doxyi, 250mg MWF Azith, Tinii 1000mg/day pulses; Vit D1000 units, Iodoral 50mg, T4 & T3

 

CAPi for Cpni 11/04. Dxi: 25+yrs CFSi & FMSi. Currently: 250 aithromycin mwf, doxycycline 100mg BIDi, restarted Tinii pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

Hi L,

welcome to our site, you have stumbled into the right place.  It is soo awesome that you are so young.  We are noticing more young people coming which is a good thing.  This will mean that you won't get all the problems many of us have due to 25 + years of untreated infectionsi.

Please keep us posted as to your progress.

CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonin">i, GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse8 750mg 4day,375X1 3-24-8

CFIDSi/ME, FMSi, MCS, IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplementsi+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyli/day-5 days<

Thanks a lot for Your posts! God bless Internet :)

Sounds like I need to find a good doctor now willing to apply CAPi on me! You know I was trying to convince many doctors 10 years ago that something is wrong with me but no one even thought it might be Cpni!!!

I am practising sports 4-5 days in a week, I was able to graduate the University, find a good job and live normal life of person in my age and I thought all symptoms I have are because I am getting older!!! :)

I am frustrated that so obvious symptoms I have were not matched with Cpn by any doctor and now when I figured out on my own it is Cpn they do not know how to treat it!!!

Sounds like I was right 10 years ago that something went wrong with my health. Good to know it is not because of getting older - everything has it's reasons!

I am wondering myself how it was possible for me to play basketball at almost proffesional level being Cpn possitive. Probably I damaged my heart :(

I will go to another doctor now showing what you wrote about last treatment proposal! I keep You posted about my progress!

 

 

Your Doctor's reactions are typical. When I was in my late teens I used to get strong palpitations and pains in my knees. I saw several Doctors, most diagnosed "growing pains", one asked me when was the last time it happened. I replied I was at a Disco so he told me to stop going to Discos.

My mother had underactive thyroid and was complaining of palpitations so I questioned her a bit more and a light came on. I trotted off to my new Doctor and asked to be tested for thyroid. He was reluctant but eventually agreed.

When I went back for the results he was leaping up and down with glee. "It's fantastic!" he said "You have a hyperactive thyroid which is really difficult to diagnose. I'm so pleased with myself that I managed to find it and the rest of the practice Doctors are really impressed."

Ummmmm excuse me? Who diagnosed it? Blooming cheek!

Since then it's all been downhill. Every time I see a Doctor I get told "it's your age you know". Undecided

Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.

NACi 600mg Feb 9th. Increased to 2400mg Feb 19th plus all supplementsi.
No GP/Neuroi support. Self medicating with assistance from David Wheldoni.
Started Doxyi 100mg 20th April 200

Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.

NACi 2400mg. All supps. Doxyi 200mg. Zithi 250mg. Metroi 400mg.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April

Marj- There is a Polish site, I'll have to find the link somewhere, where you might be able to find some help with the protocol and doctors. Try these:

http://chlamydiapl.blogspot.com/<

http://forum.chlamydioza.pl/portal.php?show=4<

 

CAPi for Cpni 11/04. Dxi: 25yrs CFSi & FMSi. Protocol: 200mg Doxyi, 250mg MWF Azith, Tinii 1000mg/day pulses; Vit D1000 units, Iodoral 50mg, T4 & T3

 

CAPi for Cpni 11/04. Dxi: 25+yrs CFSi & FMSi. Currently: 250 aithromycin mwf, doxycycline 100mg BIDi, restarted Tinii pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

Wecome L.  I hope the Polish site works for you and do please keep in touch with us here.  It will be a joy to hear about your eventual improvements should you be able to follow this CAPi.

  Louise

CFSi/ME.CPnPositive.BbPositive.WheldonCAPbegan6/24/07. NowNAC,Doxyi, Roxi, TiniPulse#4 day 4 in in process. Cholestyramine at BedtimeforPhorphoria&liposacarideEndotoxinDie-OffExperiences.

  • CAPi(TiniOnly): 06/07-02/09 for CFSi<
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDNi 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support
  • <

Those Polish sites have equivalent content as this site - I guess it was simply translated. I thought that it is typical only to eastern european doctors to have difficulties to diagnose something more complex than cold :)

I have made some research and found a doctor that seems to know enough to propose suitable treatment. Lets see.

First symptoms appeared to me 11 years ago but I remember that 9 years ago I had a treatment for helicobacter pylori and it improved my overall condition for long time (I guess 1 month antibiotic treatment sufficient against Cpni as well). After that all mentiond health issues connected with throat, lungs, muscles, heart and brain are slowly increasing it's presence.

 Let's see if right treatment is able to eliminate them or just stop progressing.

Thanks for Your help and fast reply! 

Mairj-i live in finland but i am also from eastern EU (hungary). I have to tell you it is not western-easter doctor problem, but global. I cant find a doctor here in finland either. Furthermore hungarian doctors seemed to be even better to know about the idea that CPNi can cause a long chronic infection (even if they have no idea how to deal with it). I find a doctor who would be oppened to it but barely find one who can actually understand it.
doxy200, azith250, NACi 2400, Metroi 1250(once a month), supplementsi, vitaminsi.

To be fair to the doctors, though, many have never heard of chlamydia pneumoniae, as the bacteria is 'newly' discovered and its complicated life stages are relatively unknown. If this means that we must be the means to educate more and more doctors, then so be it.

What I find impossible to accept is, when presented with fact and sound science, doctors who refuse to learn, or worse yet, who denigrate those of us who have troubled ourselves to learn! 

 

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Mac- I agree! I meant exactly this. I dont mind if a doctor isnt the best with CPNi but the information we can provide (Wheldon, Stratton...etc.) is quite significant. The problem is that if they dont even want to make the effort to educate themselves a bit. I can understand things with my simple mind and i am not a doctor. They could understand it much quicker i guess! Am i right? :)))
doxy200, azith250, NACi 2400, Metroi 1250(once a month), supplementsi, vitaminsi.

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