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Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVii), cHSP60 (chlamydia heat schock proteinii) + 4,8.
Feelings after 2 years on Wheldon’s protokol
Submitted by Zdenicka on Mon, 2007-11-26 08:29. Dear “friends”. I am sitting in a train, drinking a good green tea from my thermo pot and writing my story for you, to support you in your bad or maybe even the worst times in your life. I am listening to nice calm music from my headphones and feeling sad and happy in the same time .... I feel like going to cry, when thinking of my past, watching the country through the window.
My diagnosis was chronic fatigue syndromei, chronic glandular fever (kissing disease) and Epstein-Barr virus. A few years later I made a small cheat on my doctor and ticked off a column of cHSP60 in a laboratory application form. It was extremely high + 4,8. But nevertheless, according to my immunei specialist, „I was absolutely healthy man” and this was „just some discrepancy“, because of the values of Chlamydia antibodies IgA, IgGi and IgM, which were boundary ….. so according to my immune specialist „that meant that I was healthy“, even I felt like I was a 80 years old man who was working really hard all of his life and did not sleep for many days.
The „treatment“ was about giving me injections to support my immune system, Isoprinosine etc. Sometimes, I felt better for a while, but later than the worse times were coming more often …. Anyway, I was curious why I was always feeling better when I was on antibioticsi. My condition was better for a few days/weeks but then … it was worse than before the antibiotics treatment. Nowadays, I know the answer ….. That was because of the Chlamydia infection. I remember very well my condition when I was in the Netherlands for an educational stay. I had antibiotics with me from my Czech family doctor as a precaution in case of having complaints there. I used them against angina pectoris and my condition was really bad a few weeks later. Later then I became even sicker. I did not recover from the angina and from one day to another day I had a very bad urethritis (interstitial cystitisi). That was one of my bad times. I was not even able to visit an emergency, so painful it was and so weak was I. In general, I was always sick even from my childhood. When I was a teenager, my body temperature was still around 35,7 and my doctor told me that it was normal at this age. Later than, I had always fever (from 37 to 37,5) and doctors thought that “it was nothing serious” ..... To be still sick and feel sick was normal according to the doctors. I knew there was something wrong but I still trusted to my doctors ... what I could do more in my age ..... but it was just wasting of time.
I argued with my immune specialist MUDr. Naděžda Švideková, at a famous big Prague hospital, which is known as one of the best in the Czech Republic.... I was angry that it was not really normal to feel like I was dying every day and was not able to climb up a few stairs or run a few metres to catch the bus... or when I was standing for a while I fainted. I was really not a young lady, I was a human wreck. I could not do anything, I could only sleep. No, even sleeping was a big problem for me; I was waking up because of the pains. Would you like to know my immune specialist’s answer? Really? Well. She recommended me to prepare myself on “being in disability pension” ... and recommended me to stop my university studies. According to her I was only torturing myself,..... And what more .... she was pretty sure I would not be able to finish my studies successfully .... because of my “incurable condition”. And the last “pearl at the end” of our appointment was that “even in disability pension is really possible to live a very nice full featured life” .... Oh My God, I was only 22 years old, when I got these recommendations from “my doctor, whom I trust to”. Other of many of my “nice” experiences with doctors was in another big hospital, at infection department. I came there to having done test for Chlamydia. An old doctor sent me to a mental specialist even she did not know me .... only after a few minutes in the surgery. According to her I was a mad person, who made up everything.... She was looking through the window and did not look at me..... She turned to me just after a few seconds of my speech and told me her viewpoint. And what more...... she was familiar only with the Chlamydia trachomatis, as almost every doctor, so she was looking at me as I would be a prostitute. “Some Chlamydophyla pneumonia was something strange what they have heard for the first time about from me. No comment ... there is no place to comment it, I can say. Even I had plenty of medical reports from emergencies because of my collapsing. Doctors did not care about my jumping heart pulse ...... doctors had always the answer ..... “There is no need to be worry that is normal. You study at university.... so that is really a strong stress ..... when we were students, we were also under such a pressure and were having complaints.” Once my problems were because of ”the exam period”, once because of “the late shock after exam period” ...... they always had the answer.
What seems funny nowadays to me is an advice from my father’s schoolmate, who is a good orthopaedist. He advised me, when I was 21 years old and studying the first year of university, that „I should have a baby“ .... He was sure that it would solve all my complaints that it was because of some hormones. I thought he drove himself insane ... That was an advice from my father’s good friend ....who was a doctor. Is not it „funny“? I think that it is rather to cry. Stupidity rules the world.
Doctors were set against „reading nonsense from the Internet“, when I was referring to many stories and facts from www.cpnhelp.org and new scientific research studies for example at the University of Vanderbilt. They usually recommended me to visit a mental specialist and start using medical pills against depression. That is a new world’s trend among doctors how to “treat” patients, I guess. “Having subjective symptoms? Use these pills, it will calm you down. You will not watch yourself so much ….”
Doctors argue: “That was not written in the books we had at university when we were students, so Chlamydia cannot cause your complaints that is only your subjective feelings!!!” Usually the patient has the feeling that the doctor wants to say “I am the doctor, I know everything, you do not understand anything, I have the diploma, I know everything, so shut up and do what I recommend to you!” My immune specialist told me once that I was only a student of agriculture so how could I advice her how she should treat me. This was the “last drop” for me.
So and now something about my start of CAPi treatment and my feelings during the CAP:
It took me around one year to have feelings or to be sure that CAP “is working”. When my father came with the fact I had to start CAP, I “was sure he drove himself insane”. I could not understand him .... To use antibiotics for many months or even years? Oh My God! That must be a stupid unsuccessful joke! But I did not have any other opening. My father told me about Sarah, Jim K. ..... but anyway I still could not believe it.... But after such experiences with doctors I told previously, I decided to “try it”. That time I was sure I did not have much time in front of me ..... I would once collapse and would not “wake up” .... my heart was really weak, it could not stand it for a long time, I am pretty sure with that.
The “moment” I decided to start CAP was one day I collapsed in the underground station when the train was coming into the station. I was falling down directly under the coming train. If there would not be one man and would not catch me .... I do not remember that. I remember only when the train was approaching and I went closer to the rail .... and then only a group of people above me .... I was lying on the floor. They told me that I almost felt under the train, that one man caught me at the really last moment and ripped off me back. That day I really decided I must do something with that by myself, when doctors did not help me. I really did not want to die .... and still do not want!!! I feel to young to die.
I was collapsing very often before the CAP, I can say I do not remember any day to feel well. My heart was still in a strong pain and nobody believed me. “How could you have problems with your heart in your age?” I had painful joints, muscles, head, heart, gallbladder, colon .... all my body was in a big pain .... but the worst was the heart and collapsing. You “can live” with the pain, but you cannot live with collapsing .... My complaints were getting even worse .... still more and more complaints were accumulating like gynaecological complaints, allergic asthmai, allergy (plants, animals, mildew, peanuts, dust, pollen, feather and down as well, microbes,.....), dyspnoea, feelings like lack of oxygen, burning pain of thorax, .... the heart pain was worse and worse and “at the end” before the CAP beginning it was even 24 hours a day ... I was really afraid of my life .... I had depressions, fear,.... feeling of hopelessness ... I felt when my heart “stopped” beating for a few hundredth of seconds and then started to beat like against the time ... many times a day ... I really cannot describe my feelings in those times .... It was the worst time in my life. I was always ill (flu, angina pectoris, common cold, infectionsi,....). My brain was “too lazy”, I could not study, I was drifting off, I did not “understand” anything ..... I almost finished unsuccessfully studies at university .... I was really “out of order”. I felt terribly. I could study and work in the same time a few months/years before .... that was over like I was a really old lady. 16 hours of sleep was not enough for me ....
My blood pressure was jumping from 45/55 to 220/190, heart pulse from 45 to 220 per minute ... and collapsing day by day. Doctors did not believe me even I had tons of announcements from emergencies,..... sometimes I really believed I was a fakir and could influence my organs and stop my heart beating and collapse ... Is not it crazy? I really started to believe I was a madman and hypochondriac.
So I started the CAP treatment. Because it was impossible to get antibiotics, I was “happy” to “gain” even one package of some antibiotics from the Wheldon’s Protocol. I started with Doxycyklin. The first month was terrible, I “got terrible flu” ... no, that was not flu, that was dying of Chlamydia. Then I add Azitromycin ....that was even worse. I started to have depressions, fear of death, all the health complaints were worse than before ....I was really afraid and did not know what to do. But I still trusted to CAP to “be working” and being the “right way” for me. I did not stop .... even my body was “screaming” to STOP ... I trusted and fought. Many nights of crying .... loss of sense of life ... but I could not say my feelings to my doctor or someone else. I did not have any other way and I did not want to die (I am sure I would die without CAP) ... so I pretended to be optimistic, feeling better,... Then some days of “good feelings” appeared and gave me optimistic mood, but immediately after that the worse times came back ......But something inside of my body .... something like instinct whispered me to being on the right way ... My instinct did not disappoint me.
One year later, there was something like a magic turn .... many problems disappeared, I felt very well like a healthy man ... so I continued with the CAP ... and I felt less of complaints month by month. I could study again for my exams, my brain was “fresh” again ...
It is 2 years nowadays since my CAP start. I feel very well ... only sometimes some small pain in my heart and tiredness .... but that is also because of my stress I have nowadays (job, last year ath the university,....). I continue according to Stratton.... hope it will not be necessary for more than one year. We will see.
Nowadays (March, 2008), I feel even better than when I was writing this story. I am finishing university, so I have to make pause with pulses, which made me terribly tired. When I am graduated (in 2 months), I will continue with pulses for a year. I cannot believe that I thought I was healthy when I was a teenager. I have never felt so free and well as I do now.
So, I would like to STROGLY EXPRESS MY THANKS TO JIM K., SARAH, DR. WHELDON AND STRATTON. Without these people I would not be so happy (maybe I would not be alive)..... And of course, I have to say "thank you" to my father. He was the man who found this website and decided to try CAP.
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Amazing. Simply
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
My light for tomorrow.
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16yrs RRMSi-2yrs SPMS. Rifampin, Azithromycin, Flagyl
Copaxone,Avonex,Novantrone, Provigil, 5gm NACi, 5gm VitC, 5000IU VitD3 & more. EDSS 5.5 to 6.5. Can't wait to wear real girl shoes!This is all so wonderful.
Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 48 pulses NC USA
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Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 52 pulses LDNi Rifampin 8/08 again NC USA
thank you so much for
thank you so much for sharing your story. I know how hard it is to relive the stories of doctors who think we are all crazy because "they" don't understand what is going on in our bodies.
You are very couragious to have gone through this on your own; especially, as we know, some things get worse before they get better.
Your english is far better than my Czech, very good.
Grace & peace as you continue down this road, I am sure, the last part of this marathon for you will go much easier. The worst may well be behind you now.
CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonini, GABA, tarazadone, temazepam, novocyclopine, allergy formula, 2 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 10-30-07 3rd pulse 2 X 250 mg 2day
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CFIDSi/ME 32 yrs, FMSi,
IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#13 1240 mg X 3 days 8-7-08I remember the trials and
I remember the trials and tribulations you went through and your anecdote about the doctor saying you needed to have a baby and everything would be OK. I'm so pleased that you have come through this and that your life in on track again. This is really good news. Well done for persevering in the face of so many difficulties at the beginning.
Michele (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006
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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006
Thank you so much, Zdenicka,
Thank you so much, Zdenicka, for your story! You've been through so much at such a young age, but now you can see you have your whole life ahead of you, and you are becoming well again. Your story is very encouraging to me as a beginner to the CAPi with ME/CFSi. You were indescribably ill, but you have improved. It give us all hope. Thank you!
Finch - Western PA USA
ME/CFS since 1991 - CPni diagnosed June 07 - began Cipro 750 mg 2x per day - added NACi 600 mg 2x per day July 07 - Stopped Cipro and began Doxyi 9/10/07 - 100mg 2x per day on 11/3/07 - Azith 250mg M-W-F started 10/10/07.
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Finch - Western PA USA
ME/CFSi since 1991 - CPni dx 6/07 - began Cipro 1500mg per day - added NACi 7/07 - switched to Doxyi 9/10/07 - 100mg 2x per day 11/3/07 - Azith 250mg M-W-F 10/10/07 - NAC 2400mg per day 1/08 - Flagyl 500mg 3/28/08 gradually inc
Wait I'm confused or maybe
Wait I'm confused or maybe really brain fogged. Are you a lady or a man?
I argued with my immunei specialist MUDr. Naděžda Švideková, at a famous big Prague hospital, which is known as one of the best in the Czech Republic.... I was angry that it was not really normal to feel like I was dying every day and was not able to climb up a few stairs or run a few metres to catch the bus... or when I was standing for a while I fainted. I was really not a young lady, I was a human wreck
One year later, there was something like a magic turn .... many problems disappeared, I felt very well like a healthy man ... so I continued with the CAPi ... and I felt less of complaints month by month. I could study again for my exams, my brain was “fresh” again ...
She's female, and doing one
She's female, and doing one heck of a job writing in English, which is not her native language!
I can't imagine ANY doctor, no matter how dense-headed, advocating that a man 'get pregnant' to resolve hormonal issues!
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
I know :( Even I have all
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Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.
Thanks a lot .... we will
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Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.
Yes ... when I was writing
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Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.
Yes, U R right ... in my
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Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.
Man does not mean only the
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Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.
Haha, maybe I know one My
Haha, maybe I know one
My father's doctor filled once the colon of "periods" as "periodic" .... So .... ? 
And I guess he also filled there that my father negates abortions ..... I think there is really nothing to say ....
Prague, The Czech Republic, on WP from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever (kissing disease) and Epstein-Barr virus (EBVi), cHSP60 was 4,8.
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Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.
Nice to read it. Thanks and
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Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.
Zdenicka this is a wonderful
Zdenicka this is a wonderful story and you tell it so well that I can imagine sitting in the train with you drinking green tea and listening to your words. Congratulations on coming so far in your quest for health, your persistencei is a fantastic example for others wanting the same level of recovery.
We have doctors here in England who say stupid things too, I was also told by an insultant that I should have a baby then I would be too busy to worry about my health!! Where do these people learn to be so insensitive? I was most indignant and upset at the time but later went on to have 3 babies........wonderful daughters but the very worst thing I could have done for my health while being infected with borrelia and Cpni, but at least now we know what to do if they start to show the same signs of illness.
Thank you for telling your tale and good luck with your health and studies.
Elinor ..... from England on CAPi, doxyi/roxi/tini for ME/CFSi/lyme borreliosis, positive Cpn and borrelia. Started Aug05, stopped Jan06, started again Sept 06.
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Elinor ..... from England on CAPi, doxyi/roxi/tini for ME/CFSi/lyme borreliosis, positive Cpni and borrelia. Started Aug05, stopped Jan06, started again Sept 06.
Regrettably it is all over
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Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.
I really hope you guys
I really hope you guys didn't think I was makin fun of the lady or man thing. I really am severly brain fogged sometimes and wanted to make sure I was correct before I addressed her post. It took me three times to comprehend the post anyway
Man does not mean only the "male gender". It is "human being" in this meaning :) But to assure you .... I am a woman :-D
Yes I'm well aware of this
I can't wait to read the rest of your story. Please do hurry
Zdenicka, Thank you for
Zdenicka, Thank you for getting back to us with your story as you promised us some time ago. Your example of continuing through the early months of treatment and becoming stonger and mentally clearer is what many of us here are working towards. your story is an inpiration to us.
Prescanario, I wondered briefly about her gender as you did. But I also remembered her previous posts and was relatively sure that this author was female. I can see your confusion.
Zdenicka, please keep in touch with us, occasionally as you progress in your life and in your treatment plan.
Thank you for taking the time and effort to write to us again.
Louise
CFSi/ME. CPni posititve, Bb positive. Started CAPi 6/24/07 Doxy & NACi 11/3/07 Macrolide 150mgBID added to Doxy100mgBID,NAC600mgBID 11/22/07 #1 Tini Full pulse 500mg BID 11/26/07Cholestyramine HS for porphoria/Lipo Endotoxini sxs x 1 week after pulses.
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Louise-CFSi, CPN+/Bb+ Wheldon CAPi 6/07, Cholestyramine1-2pksHSforPorphoria& Endotoxinsi, Doxy100daily,Roxi300BID,Tini500mgBIDpulses,VitD3-4000IU,MagnascentIodine,{S.O.D.3/QD[KAL Brand],+Pyruvate3.75G+SAM-eForEnergy}
Your story is inspiring.
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On CAPi since June 2006 for high blood pressurei, nasal allergies, restless legs, memory and cognitive problems. Currently: Doxyi 200 mg/day; Azith 250 mg 3X/wk; Flagyli pulses every three weeks 400 mg 3X/day for 5 days
MacK, you are funny &
MacK, you are funny & sharp
yes, it was the pregnancy statement that did it, that is for sure.
I was told that my horrific menses, huge pain & blood loss, would diminish if I had a baby as well!! That was 32 years ago & even then I was astounded.
CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonini, GABA, tarazadone, temazepam, novocyclopine, allergy formula, 2 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 10-30-07 3rd pulse 2 X 250 mg 2day
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CFIDSi/ME 32 yrs, FMSi,
IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#13 1240 mg X 3 days 8-7-08Hehe, U R funny Prague,
Prague, The Czech Republic, on WP from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever (kissing disease) and Epstein-Barr virus (EBVi), cHSP60 was 4,8.
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Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.
My plans are changed "a
Prague, The Czech Republic, on WP from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever (kissing disease) and Epstein-Barr virus (EBVi), cHSP60 was 4,8.
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Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.
Thanks and of course good
Thanks and of course good luck to you as well
Prague, The Czech Republic, on WP from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever (kissing disease) and Epstein-Barr virus (EBVi), cHSP60 was 4,8.
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Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.
The first part of your blog
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Combined Antibiotic Protocol minocycline, azithromycin, metronidazolei for muscle pain, insomnia, interstitial cystitisi, sinus, disphonia, dry eyes, stiff neck, veins, thyroid, TMJ.
U R right Prague, The
Prague, The Czech Republic, on WP from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever (kissing disease) and Epstein-Barr virus (EBVi), cHSP60 was 4,8.
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Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.
HI Zdenicka,
HI Zdenicka,
Thankyou you are truly an inspiration.I am newly diagnosed and am only in day 4 of my treatment!! yes day 4 but you have just given me the hope to caryy on to day 4,444 .................and beyond thanks.
Thanks for sharing with us all of your experiences, fears hopes dream and NIGHTMARES and most of all YOUR SUCCESS which i hope with all of my heart continues. bless you it was an insight that we are all too familiar with but a reality we all have to face i guess.
The very best of wishes for you
MICHELLE
You are welcome. I wish You
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Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.
Zdenicka, Paula has read
Zdenicka,
Paula has read your blog. She told me last night that your symptoms and what you went through with your CFSi are nearly a mirror image of her CFS. She was feeling a bit down last night as her fatigue has increased a lot since the Doxyi. She asked me to give her something to cheer her up. I read out your symptoms that you don't have now as listed in this post
http://www.cpnhelp.org/list_of_my_previous_diffi#comment-29500
This cheered her up a lot.
You will never know how much it means to people who are early on in the protocol, when they hear the hope being issued by people like you and the posts you post.
Thank you.
Mark
UK Carer of bedridden Severe ME/CFS Feb06. CPN dx. Apr07. Samento 15 drops per day July07. 2400mg NAC 200mg Doxy Jan 08.
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UK Carer of bedridden Severe ME/CFS Feb06. CPNi dx. Apr07. Samento 15 drops per day July07. 2400mg NAC 200mg Doxyi Jan08. 300mg Roxyi Apr08.
Ooops, I did not read these
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Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.