Cpnhelp.org

Great news, Reenie. You found your patch of sunshine! Keeping going. You are doing great!!! Raven

___________________________________________________________
Feeling 98% well and going for 100! Still testing + for Cpni since June '08.CAPi since 8-05 for Cpn and Mycoplasma P. for MSi and/or CFSi. Also EBVi and HHV6 NACi, Iodoral, T3, BHRT, Methylcobalamin injections, Nitro patch, LDNi and Methylation supplementsi

Happy to hear you are in the swim of things. <wink>

Give Sweetpea & Sly some special scratches & belly rubs from Auntie M.

___________________________________________________________

FM dx 2002. Started 2008: NACi 4/19 (2400 mg daily 7/21) Start list supplementsi + Iodoral 12.5 mg. daily: 6/19  FIRi sauna, 9/4 100 mg Minoi, 11/3 Azith - 12/1 MWF - 1/5 100 mg Mino

Well, swimming with your fur kids, that is some achievement.   Pleased to hear you a feeling a bit better.   Keep it coming.

___________________________________________________________

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 6.5 Wheldon CAP 16th March 2006

Ladies,

Thanks for the support! 

Michele, I suppose I needed to be reminded of how sick I am although I'd rather not have been.  As I've been lying awake in bed since 2:30 am (5 am now and heading back to bed shortly) I've been trying to sort out the major differences between now and this past springtime.  

If some of you may recall, I was working on my vacant rental and went on a motorcycle ride.  This was after I turned things around from the horrible relapse I had last fall which caused me to stop the MPi.  

My thoughts are that starting all of the supplementsi, Iodoral and NACi is what turned me around this springtime including the sunbathing and raising my 25D from 8 to 49.  I thought I'd stay in that state forever meaning I really hadn't counted on such a strong response to the CAPi which I only began late May.  

So, now, I feel like I'm going backwards although I realize I have to react to the CAP in order for it to do its work.  There's no way I would have been able to accomplish what I did this past spring if I had been feeling this miserably back then, although today was a much better day.  I suppose I have to learn to live within this new envelope with brief windows of sunshine and the rest of the time accept that CAP is doing its job.  

Raven, I can't wait to be where you are... 3 yrs into CAP and 98% well.  What a testimony! 

___________________________________________________________

NACi 2.4g, Zithi 250mg/MWF, minoi 200mg, Tinii 5day/1g/5 pulses, Valcyte
Iodoral 12.5mg, Supps, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Sec Addisons

Don't believe everything you think!  

Reenie, I finished my last Flagyli pulse on Aug 27 and today is the first day I am feeling good. That is such a coincidence, cause it's twelve days since my pulse too. My feet have burned a lot and my legs have been so weak. I have had trouble managing the stairs up to my bedroom and standing in the shower for the last week. Today, I feel stronger and my legs feel less like al dente fettucine. I may even get some work done today if it holds out. It's interesting how each pulse is different from the others. You think you have it down and then the next one is completely different with entirely different responses. Oh well, keep on keeping on. Take care kiddo. We'll make it.

___________________________________________________________

SPMSi< Supplementsi & NACi, Doxyi 200 mg, Azith 250 mg 3X/wk, most suppliments, currently Flagyli 1500 mg x 4 days once per month

Yeah!   Glad you are feeling better!  

Best,   Timaca

___________________________________________________________

Diagnosed with lyme disease 3/05. Diagnosed with chronic HHV-6, EBVi, VZV, and HSV1 6/07. Diagnosed with CPni 5/08. On antibioticsi for 2+ years, Valcyte (antiviral drug) for 9 months. Currently on 100 mg doxyi bid for Cpn and acyclovir for viruses.

Im glad you are feeling good as well. Funny how much we appreciate feeling good which most people take for granted.

___________________________________________________________

CPNi pcri and antibody positive , treating MSi, CFSi, TMJ, trigeminal neuralgia, IBSi neutropenia, pus found in facial bone, Doxyi 100x2,Doxy 200x2 zithro 250x1 alternate days. Metroi pulses each month.

yes, well I felt good last Friday (too good!) and look at me now! so 24 hours - what a difference a day makes.  be prepared they say - but unless you have a fire extinguisher to one hand and adreniline in the other - how do you cope with the changes?!

seriously, its good to know your feeling good swimming with your kids.  i went swimming with my one last week in a burst of energy last week, after many months of exhaustion & inactivity and i know it can feel almost surreal!!!!  i never made it by myself today, lets see months down the line  ...

 

___________________________________________________________
M.E./CFSi 20 years, intermittent.  Wheldon Protocol - Started NACi and supplementsi Sept 2007. Doxyi and Roxy full dose by Dec '07.  First Flagyli pulse January 2008.

blackfoot,

These are FUR kids.  (Jack Russells to be precise)

I only point this out because they TOTALLY get my bed hugging and are ready at a moment's notice to hop in the pool or take a nap.  They don't care as long as I'm here with them so it makes it alot less stressful than with HUMANS!  Ok, sometimes I like human company too, but you get the idea.  

FWIWi, I'm trying to deal with my envelope whatever it contains right now.  Mostly I'm housebound but I'm able to get up and move around and my attitude is up at the moment.  Life's not great but it's better than it was last week! 

___________________________________________________________

NACi 2.4g, Zithi 250mg/MWF, minoi 200mg, Tinii 5day/1g/5 pulses, Valcyte
Iodoral 12.5mg, Supps, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Sec Addisons

Don't believe everything you think!