Ephemeral fragrances

Some of the improvements I am feeling are so subtle. I can feel fabric against my legs. These things disappeared a long time ago and my brain had adjusted to the loss so as not to notice them anymore.

Some of the improvements are strong but fleeting. On a number of occasions of late my sense of smell has re-awakened momentarily, in full acuity. What an unconscious emotional power our sense of smell has. It is spring here, the flowers smell beautiful.


The sense of taste I was

The sense of taste I was talking about occurred gradually over a number of years, not months.  When taking all abxi but especially metronidazolei, my sense of taste was badly affected, but when I went onto intermittent treatment  I had long respites.  Now, though, my sense of taste and smell is superb:  I smell flowers with an intensity I hadn’t noticed since I was a young child and the food we eat smells better than it ever has, partly because we only buy organic, free range stuff and partly because my sense of taste and smell has improved. Smell is very important when eating: imagine eating a strawberry when all you can smell is smoky bacon!

This can work both ways, though:  I have always hated the smell and taste of bananas.  Now I hate them even more.........................Sarah

A  Journey through Light and Shadow

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Particularly during flagyli

Particularly during flagyli pulses, I would 'smell' burning electrical wires. I searched my loft for smoking wiring. I sniffed inside cabinets. I opened windows, thinking it must be something outside. Now, I figure it was my body readjusting its sense of smell, as the cpni was dying off and new, healthy cells were replacing the diseased ones.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Unfortunately my sense of

Unfortunately my sense of taste has been badly effected by the antibioticsi. I think this is an actual side-effect of the drugs themselves. Everything tastes weird! Rather than making me lose my appetite it seems to be having the opposite effect. I am eating myself stupid in a vain attempt to derive some sort of taste sensation! Bummer... (both metaphorically and literally).

RRMSi diagnosed 1996. Many years of weird symptoms before this. Started CAPi around 6/11? Minoi 200mg daily, Roxyi 300mg daily, Tinii pulses started 11/11 (very tentatively!) Major problems with headaches 01/12, substitued mino with doxyi.&l

Ditto what Sarah said. 

Ditto what Sarah said.  Before I was dxi'ed with M.S., I hated coffee. After.....I started liking it and became borderline addicted Laughing.  Then I started the CAPi and eventually came to hate the taste of coffee again.  My husband didn't understand until I explained to him that my taste buds had returned to a pre-M.S. "normal" state.  Thank god, I didn't shell out for the really fancy coffee equipment.

Same thing happened with spicy foods.  The M.S. had dulled my taste buds so much that everything I ate had to have a liberal sprinkle of hot sauce on it, just so I could enjoy it.  Now, I've almost had to give up curry because I can't handle the same amount of heat anymore.

Sugarglider, you might also

Sugarglider, you might also find that your sense of taste reawakens as well, smell and taste being intimately linked.   Both David and I have found this to be the case.   It is maybe why many older people comment on food not tasting like it used to. I know that my mother certainly does.  Of course, in many cases it doesn’t taste the same because of the amounts of chemicals pumped onto food crops, but the amount of germs carried by an older person must play a part ..........................Sarah

A  Journey through Light and Shadow

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Spring! Achoo!It's fall here

Spring! Achoo!

It's fall here and flooding from 2 hurricanes in a row. Mold! Achoo! 

PPMSi-misdiagnosed 2001-diagnosed 2006. Probably caught cpni in birth canal but it didn't pass BBBi until my 40s. Minocycline 7 mos.- resulting bronchitis 5 months.Go to private m.d. out-of-plan. Wheldon CAPi 3/2/07 Stopped 12/12; resumed 12/13



You have spent so long in

You have spent so long in the dark and dismal depths of winter.  I am glad that spring has come for you at last.  Stay with it, sugarglider, and one of these days you will know that spring is turning into summer.

It is spring in Brisbane too: the jasmine is blooming.  I snatch a sprig of it in the mornings on my way to my car and stick it into the airconditioning vent.  Smells gorgeous.  Can't wait for the jacarandas to flower. 


FM & chronic myofascial pain 2000; Cpni; EBVi; lead poisoning; CAPi since Jan 2009; Flagyli pulses & Azi M/W/F from Mar 2009; now also Cymbalta; Rivotril; Low Dose Naltrexone; Doxyi.  Pain-free and heading upwards again.