Encouraging Stories

Hello everyone,

This is hell. I am on my 4th year of Abxi with Dr. Stratton's protocol. I'm currently taking a holliday from the Abxi suggested by him. I have no strgenth, and I am like a wet noodle, but my mind is sharp. I haven't had a glimmer of inprovement. I would really be grateful for an encouraging true story.
Thank you,
Rachel

Comments

Wishing you the best

Hi Rachel

Although I'm not a medical expert, it sounds to me like stopping the abxi may be a good idea for a while.  On the one hand, you want to kill Cpni asap; on the other, a small break may allow inflammationi to die down, allowing your body to make improvements now that it has both a smaller infectious burden and no new die-off effects.

I would really focus on as much anti-inflammatory intervention as possible now.  It might sound like a drop in the ocean, but improving gut health (if you haven't already attended to it) would be beneficial.  After the brain, it's probably the part of the body most in need of anti-inflammatory therapy because of it's direct communication with the nervous system.

You're probably aware of Terry Wahls and her diet which focuses on mitochondrial health, especially of the nervous system.  Have you experimented with any of her dietary recommendations?  I'd also read this post of Paul Jaminet's: http://perfecthealthdiet.com/2010/07/eleven-steps-for-overcoming-alzheimer%E2%80%99s-and-other-chronic-infectious-diseasesi/ Jaminet firmly believes in the infectious theory of many chronic diseases, including MSi.  The first five of these tips address the infection which you've done plenty of up to now.  The other six address any autoimmune/dietary issues you may also be experiencing.

Also, don't forget Terry Wahls' story is every bit as encouraging as Sarah's: she was wheelchair-bound for years. Now she cycles to work.

Lastly, and possibly unfashionably, may I offer you sympathy.  Hope and encouragement are important but I think sympathy helps too - I think it's nice to receive a compassionate word or action.  My level of disability is much lower than yours but I'd still say I've had a glimpse of what it must be like: my problems for the past 7/8 years have reduced my quality and enjoyment of life and I really do feel at least a little of your pain.  In case you've ever encountered an uncaring attitude from others, let it be known that someone knows and cares. We're to be found on this forum.

Now, don't give up!  This break is a new stage in your treatment!

All the best

H

Thank you for your

Thank you for your encouragement and sympathy.  My tenacity is fierce.

Rachel

Here is some encouraging news, Rachel

Rachel, the best encouraging story can be seen on my blog about high-dose biotin, posted just a few days ago. Kim you might remember from this site a few years ago, was doing very well, to the extent of never using her mobility scooter and even going tandem riding with Ken one weekend.  A couple of years ago she relapsed very badly and was slowly getting worse.  I suggested to Ken that he got her to take high-dose biotin as well as the abxi prescribed by Sriram.  She started on 300mg of biotin and after three weeks, Ken saw her walking upstairs like, to quote, 'a normal person' whereas previously she had been talking about them sleeping downstairs.

Based on the results of the French trials of just using biotin, I thought that CAPi and biotin might work very well together: the antibiotics to get rid of the primary infection and the biotin to aid in the rebuilding of the nervous system damage, bearing in mind that the brain and the whole nervous system starts out in life, in the first few days of the embryo as ectoderm, the same as skin, hair and nails, and biotin does amazing things  for people who are having trouble with those things.

I suggest you read carefully through my blog and then try it.  As an experiment I am trying 100mg of biotin nd I am having to file my nails back nearly every day because I hate long nails.  To David, I seem to be walking better and to me, I can certainly  use the ellipse better, having cut off a few seconds each time I do a straight kilometre every day this week.............................Sarah

http://www.cpnhelp.org/biotin_and_other_b_vitami<

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Upward and Onward

Thank you Sara for the suggestion. How long did she take the biotin at this dosage? Where can I get high dosage or bulk biotin? I am bed ridden and dizzy. Hopefully this will give me relief.

Thank you,

Rachel

Rachel, she took it for about

Rachel, she took it for about a month before she was able to  easily walk upstairs but I don't think she has ever been as bad as you are at the moment...................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Here is where I got Rick BULK Biotin

Hi Rachel,

I bought Biotin in bulk here:

BulkSupplements.com

They are in Nevada.  If this post is removed because it names the company, I can send it again via private message.

You will also want a very accurate scale and a pill maker.  Both are pretty cheap.

Best & Highest Regards,

Tom C

Proud Parent of Rick - R started CAPi in Nov. 13. Small measurable improvements as of 7/14, more by 10/14.  Holding Steady in early 2017.  "I will leave no stone unturned, no theory unexamined, to help my son." Tommi