NEW QUESTON. ( I can't see how to just start a whole new question with a new thread. Sorry. - so I'll ask here. ) I see my doctor in about 5 hours (yes, Sat. afternoon 5/10) so hope to learn this:
just ONE question (for now): is there an alternate to DOXYi ?
this is why I ask:
Preparing to begin. Cpnii IgGii was over 1:1024 - ref is 1:16; IgMi, fine, matching the ref. range; IgAi is 1:256 - ref. is 1:16 - test was done 10 days ago by my ND who wants to do a modified protocol.
Today, I hope to ask my PCP if he's would be on board, as then them meds would be covered by insurance. ND is guiding this, but her protocol is not exactly as this and I want to be clear on differences, noting that I prefer to stick to this exactly. My PCP might agree to call Dr. Stratton.
I cannot take doxy as, within 1-3 hours, I break out in about a dozen silver-dollar sized rashes that itch and burn terribly. Each circle itself is torture and I could not bear to have it continue. After stopping with the first dose, the torture lasts for days.
I used to be able to take it just fine (for lyme, but never had a real lyme doctor) and it would lessen hyperacusis and prevent sound-triggered seizures. But then the rash. Tried it several times later. Same thing.
It takes a week to subside and then some grey scaring is left for months. the circles are always in the exact same place (not a bulls-eye, though, but a bit redder in center, so it may be lyme die off - or a developed allergy. My PCP thinks it begins too soon as he says it wouldn't even be in my system yet, but it does happen - for up to 5 tries over a couple years. It used to help my fly, when nothing else worked to soften effects of sounds.
Since I never had a lyme doctor (positive for 3 TBI 10 yrs. ago) and getting one is not an option, and I do have very high (chronic persistent) Cpn results, treating that is what I'm set to address - straight on with full attention to this protocol.
A common substitution for Doxy, Minocyclinei sends tinnitusii to the moon and is ototoxic for my tender ears. the NACii with the Cpn protocol may help prevent that, though, so I'm so glad to see NAC widely used.
Still, is there a suggestion for substitution of the doxy (other than minoi) - or can you direct me to place that might discuss that?
I'm new here and reading as fast as I can, but I've not found that. Guess most people have no trouble with doxy.
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I think I may have posted in
I think I may have posted in the wrong place. I had to pick a forum, but now sure if this is a place to begin a question. Also, it seems that I cannot edit my original post above. Anyone see a way ?
many thanks.
Keebs! You made it!
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
Re: Doxyi substitute? -
Re: Doxyi substitute? - MacKintosh,
thanks. I just saw the lymenet post from you. Unfortunately, Dr. W's protocol is doxy, too.
Perhaps, by taking the NACi first for two weeks as I saw suggested here somewhere and then during the start of doxy, the rash may not happen.
If it does, I could not continue. I have put up with much over the years, the but intensity of the hot, burning itch is more than I can take. Even 50 mg. of doxy produces the rash.
well, I'll check back over the next few hours. It's noon PT; I leave at 4:00 for doctor.
my guess is, that, even with a suggestion, it's best to have my doctor ask a seasoned Cpni doctor / author. Still, it would sure be nice to hear of a workable substitute.
And that brings me to allicin - might that do some of the same? I know it's on the supplement list, but any thought to how it might act along these lines?
Hi Keebler, I'll watch this
Hi Keebler,
I'll watch this thread to see if anyone has any alternatives for you.
I asked once about demeclocycline because I have a bunch of it and it's supposedly one molecule away from minocycline so maybe you could use that too if that would be ok?
Or maybe one of the other tetracycline drugs?
Please keep us up to date on what you decide to use and whether or not using NACi might help get rid of enough of the preliminary infection by destroying enough EBs that you might not react so horribly to the mino or doxyi.
MP for 3 1/2 yrs. NAC 1200 mg/2x day, Iodoral 25 mg, myco+ I (still) want my life back! CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addison's
When I change what I believe I change what I do
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NACi 2400 mg, Zithi 250mg MWF, minoi 100 mg/2x day, Iodoral 25 mg, Recommended Supplementsi, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addisons
When I change what I believe I change what I doThis may be too late but you
This may be too late but you can consider Rifampin coupled with a macrolide in place of doxyi and/or minoi. You possibly could also consider Bactrim DS with a macrolide in place of doxy/mino
Daisy - Husband on CAPi 5/07. Roxyi, Diflucan round three 4-4, Rifampin, Bactrim DS, Mepron 4-6,
Prednisone,Novantrone, Doxy, Azithromycin, Flagyli, Mino___________________________________________________________
Daisy - Husband on CAPi 5/07. Roxithromycin, Rifampin, Bactrim DS, Tindamax 6-23, Tetracycline 7-3