Don't leave out the NAC

This from Jim's blog in 2006.........

 

Of course, a Lyme doc could say we are treating for Lyme with the Cpni protocol, just as many Chlamydia pneumoniae folks might say people using Lyme protocolsi< are actually treating for Cpn! There is a lot of overlap in the meds. 

A couple things to note-- 
- Many folks probably are treating for both Cpn and Lyme, as well as other organisms (like mycoplasm, etc) as the scope of multiple co-infectionsi<i< is just beginning to be recognized.
- While all the Lyme's agents kill some phase of Cpn, there are agents (such as NACi<) used to kill Cpn in a particular phase which, as far as I know, do not have any effect on killing Borrealis. So, if you take NAC and get a die-off reaction (we call it the NAC flu) this would suggest that you have Cpn involved. If this is so, taking only the Lyme agents will leave Cpn in Elementary Bodyi< form still in your system and you will reinfect.

 

I think this is EXACTLY where I went wrong over the past few years.

 To recap...........I was treated for Lyme and Babesia for around 5 years with various combinations of antibiotics. Whilst i made

a lot of improvements in many areas, I was still far from well. 

At a couple of years into treatment I asked my LLMD about making sure that the treatment that I was on covered for CPn as

well, and she agreed.  So far so good! 

In December last year I just quit everything to see what I would be like off meds. The result was a rapid decline, with

symptoms  being as though my nose, sinuses, trachea and chest were inflamed++++++....as if I was just starting with

some infection, but it stayed like that and never developed. I NEVER had to blow my nose and only had a dry cough, never

coughing anything up. 

I looked back over my diary and noted that the one time, 3 years ago, that I felt the best, I was on Doxyi, Azithromycin,

Rifampin AND NAC. I then realised that I had not diligently kept the NAC going and had never done more than 3 or 4 weeks.

So maybe this was CPn that I was left with, and not anything to do with Lyme?  I did a test with NAC and, sure enough, had

a brisk response and am still drippy and blowing 4 weeks later. I have gradually increased to 2400mg per day  and have also 

restarted Doxy and Azithromycin.

Back 3 years ago, I did not appreciate the importance of NAC. I think there is an element of 'its just a supplement so not as

important as antibiotics"   I was very, very wrong.

I also tried to remember back to when I got sick in 1994....I remember having a mega-sinus infection and was draining what

seemed like huge amounts of yellow-green snot for several days. I wasn't ill with it, so didn't go to the doctor, just used pain

killers and decongestants and it 'got better by itself'. Or maybe not.....i have never had an event like that before or since.

Could well have been CPn, I guess. It was around then that I got Lyme, and I was also renovating an old house, stripping ALL

the old Lead paint with a hot air gun. No wonder the Lyme  and CPn took a hold. For 11 years I had a diagnosis of CFSi, until I

tested positive for Lyme.

Now I hope that getting back on track and treating CPn PROPERLY this time by keeping on the NAC will be beneficial.

I never thought that having a runny nose would make me this happy !!!!!!!!!!! 

Totally agree on the NACi; just went through a similar, though more brief, reaction. We are a weird bunch, happy with our negative reactions, aren't we?

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

I think that some of us are too sick for NACi. My reaction never let up and I finally had to give it up. My eyes teared too much for me to see. This was ok'ed by Sarah who had not used NAC while on the protocol.

I think that when I get better (it's only been 4 years), I will be able to tolerate it.

PPMSi-misdiagnosed 2001-diagnosed 2006. Probably caught cpni in birth canal but it didn't pass BBBi until my 40s. Minocycline 7 mos.- resulting bronchitis 5 months.Go to private m.d. out-of-plan. Wheldon CAPi 3/2/07 Stopped 12/12; resumed 12/13

Don’t forget one thing, though: hayfever, which I think should be renamed  blossom-pollen fever.  I still take NACi<  most days without thinking about it, but at this time of year I sneeze all day and could water my nasturtium seedlings with my nose!  Believe it or not, this is vastly better than it used to be, when my immunei system was working overtime....................Sarah

A Journey Through Light and Shadow
Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

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