Doctor In Idaho/Eastern Washington

Hi folks

Would you know of any medical practitioners in the Idaho/E. washington area who are familiar with the CAPi? My doctor is willing to prescribe the meds but does not agree with the protocol and so can't be of much help. Many thanks.

 

Comments

LOL. I really dont think

LOL. I really dont think that my doctor has the time to read the forums and figure out who I am Laughing. But I am going to go next week and talk to her.
Diagnosed with FMSi 2003. Currently doing CAPi (started 12/1/10), Doxi 100 mg BIDi, Azithro 250 mg 3x week, last Flagyli pulse 1/23/11 for 5 2 days. 1st Tinii pulse (2 tabs 500 mg) on 4/8/11. Following Perfect Health Diet as much as i can.

You might as well see her

You might as well see her regarding your problems, since you've sent her to read this website and you're publicly posting here that you're having some issues. She'd probably prefer to hear it from you than read it here and feel you're not being honest with her.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

I've actually given her the

I've actually given her the site name and links. That is why she agreed to prescribe the Abxi. I've just been worried that if I go to her, she will stop prescribing because of the problems and then I wont have anyone to write my scrips. She's been very clear that she will write the scrips but that is it. I know, its surprising. She's been my doc for the past few years and is usu supportive of whatever new thing I am trying. Her attitude has been that docs dont know what causes FMSi, and dont have a cure so she is willing to try new things and support me in them. I really do appreciate that attitude, its just that I have been anxious about going to her with problems.

Actually 2 weeks ago I asked for some help with sleeping and anxiety and she was very open to meds for both. Perhaps I need to let go of my anxiety around going to her with problems. 

Diagnosed with FMSi 2003. Currently doing CAPi (started 12/1/10), Doxi 100 mg BIDi, Azithro 250 mg 3x week, last Flagyli pulse 1/23/11 for 5 2 days. 1st Tinii pulse (2 tabs 500 mg) on 4/8/11. Following Perfect Health Diet as much as i can.

The fact you have a doctor

The fact you have a doctor who will prescribe ABXi is step one.  I was in a similar situation.... my doctor knew CPNi was "nasty" and difficult to irradicate, but had no idea as to how to treat it.  After I was diagnosed (2007), I found this site--- he prescribed the med's and I would provide him with information.  I also printed out the whole handbook for him. (not necessary, but I did "flag" specific pages for him.)

I spent many hours of self-educating.  Also, learning from the "elders" was of more value than what any of the doctors could have done for me because these (and now me) are individuals who have gone before me and "been through it".  

If you read the older posts of those who follow the Wheldon and/or Stratton protocolsi you can learn alot.  Many times when I was scared and going through a physical situation, I would come to the site and find out that others had experienced what I was going through.  The unfortunate part is, it appears not many now feel comfortable to be as open in their posts as it was a couple of years ago; but,  you will get a response if someone has input.

I wouldn't worry at this point about your doc (I was able to train mine Wink ),  get the ABXi and get started on the supplements and protocol and listen to your body.  If she will give you meds, that's the BIGGEST hurdle  and you've already jumped that one!

JeanneRoz

 

JeanneRoz ~ DXi'd w/ CPNi 4/2007; 6/07 -"officially" dx'd w/CFIDSi/FM; also: HHV6, EBVi, IBSi-C, 100 Doxyi:BIDi<; 500 mg Biaxin BIDi; Tindamax Pulses, B12 shots, ERFA Dessicated Thyroid,Cortef, Iodoral 25 mg, Vit D-6,000 uni

If your doctor is willing to

If your doctor is willing to follow the Wheldon protocol then you are very fortunate.  It's interesting to hear of a doctor that will prescribe the abxi but not agree with the protocol.  Doctors are usually pretty stingy with abxi.  There is a chance your doctor will begin to believe in the CAPi as you start to show improvement.

FYI, if you can get to Sacramento once to see Dr. Powell or his PA, Michael, then the rest of the consults would be by phone.  If you have health insurance he is probably in your network.  The only downside to the phone consults are that they are not covered by insurance so you would have to pay out of pocket for those.

Started CAPi for Cpni on 11/14/10 - Per my doctor, paused Abxi 5/18/13 - NACi, T3, St Johns Wort, B-complex, Vit C, Vit D3 (8,000/day), Vit E, Astragalus, Chlorella, Chelation with Alpha Lipoic Acid">i. Started Buhner protocal (2nd edition) on 8/30/16.

For now, I am sticking to

For now, I am sticking to the Wheldon protocol  - a recent diarorhea bout led to my stopping the ABXi<i< and I was told that I should talk to my doc about this.  

You are taking probiotics as well as the antibiotics, I presume?  Make sure these are taken two hours apart and loose bowels should not be a problem................Sarah    
   
A Journey through Light and Shadow
Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

barefootHow fortunate you

barefoot

How fortunate you are to have a doctor who will prescribe.  Have you considered giving her the site name - there are many good physician pages here - she can learn all the history, the research, and the protocolsi and their reasons.  She can also call Dr. Stratton who confers with doctors who call him, including my husband.  He is very kind, nice and reasonable.

Rica

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Louisethat's pretty

Louise

that's pretty cost-prohibitive right now. For now, I am sticking to the Wheldon protocol  - a recent diarrhea bout led to my stopping the ABXi and I was told that I should talk to my doc about this. Not sure if I want to go to her given that she might decide to not prescribe meds anymore. So I thought I would see if there was someone in the area. You had used Fibro & Fatigue- do they follow the CAPi protocol?

Diagnosed with FMSi 2003. Currently doing CAPi (started 12/1/10), Doxi 100 mg BIDi, Azithro 250 mg 3x week, last Flagyli pulse 1/23/11 for 5 2 days. 1st Tinii pulse (2 tabs 500 mg) on 4/8/11. Following Perfect Health Diet as much as i can.

Could you get to Sacramento

Could you get to Sacramento for a consultation with Dr. P. ?   http://www.cpnhelp.org/comments_on_cap_variation<

 If your doctor is willing to provide the prescriptions based on a consultation with another doctor this may be a good coperative situation.   And if he is willing to prescribe at all take them, if you are stiking to the basic Wheldon protocol you may do well even if he does not interpert the results.   The major hurdle is getting the scripts.

  • CAPi(TiniOnly): 06/07-02/09 for CFSi<
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDNi 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support
  • <