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Doctor called this evening...it's worse than I thought.Submitted by Minai on Wed, 2006-10-18 19:10.He just got my latest lab results back. On top of the EBVi that I already tested positive for, I just tested positive for: 1) Parvovirus 2) Mycoplasma 3) And, yes, for CPni!!! Why am I not surprised? --Minai ___________________________________________________________ »
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Oh Minai, Sorry to hear
Oh Minai, Sorry to hear that, but remember that the only difference between today and yesterday is that today you know more. My husband was positive for EBVi and CMV, but those are the only viruses he was tested for. I strongly suspect that, if he had been tested for a broader spectrum of viruses, he probably would have been positive for more than just those two. I'm very glad he's on two antivirals in addition to DW's CAPi. Now, what's your doc going to do about it?
Joyce~caregiver and advocate in Dallas for SteveJ (SPMSi): started CAP 8/21/06
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Joyce~caregiver-advocate in Dallas for Steve J (SPMSi). CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity.
Thanks, Joyce!Well, the
Thanks, Joyce!
Well, the doxyi and antiviral/immunomodulary Samento have sure been making a difference, it seems. But the Zithi, with no immunomodulation properties is causing problems for me. So, I informed my "marathon vs sprint doc, that I will be switching to the Roxi, I ordered, just as soon as it arrives! He actually agreed with this. And said that believes that I am on the right track with CAPi in that it is treatment for both CPni and mycoplasma. That, I should just stick with only the Samento antiviral treatment, for now.
Am going to have to check your blogs, again, to see what antivirals your Steve is taking. And, I think your suspicions about him maybe testing positive for even more pathogens could certainly be proven, too!
Oh, and since my doc's forte is Lyme as the primary cause, he was also quite surprised when these latest tests came back negative, too!
--Minai
Geez, you scared me--I
Geez, you scared me--I thought he was going to say you had MSi or something
.
I'll show my stupidity (somewhat easy lately).
What does testing postive for the viruses mean? Does it mean exposure, active infection,etc....
Furthermore, if these ARE henchmen viruses, might your body take care of these on its own once your bacterial loadi is down?
Curious about this.
Lexy
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--------------- "Chance favors the prepared mind." --Louis Pasteur Husband treating MSi with CAPi
Sorry, Lexy, LOL...I just
Sorry, Lexy, LOL...I just edited it from "much worse," to "worse."
I think I should reserve the "much" for the rest of the tests, I may eventually get. These were only the results of this lab's basic panel.
When I answered, the phone, the doctor asked, "Are you ready for this?" Me: "Lab results?" Him: "Yes, you tested positive for..." And after telling me which, he went one to explain that to him, there are no in-betweens of positives or negatives, one either has it, or they don't.
I will be picking up an actual copy of the results, tomorrow, and will post them. I'll be interested to see what else was included in this panel. Yes, I do think it likely that if I reduce the bacterial loadi, the viruses will be encouraged to take a hike, too. Hope so, anyway!
And, I should tell Sarah (and DW) that this Dr made it a point to thank me profusely for the printed copies of DW's PubMed draft and CAPi. He assured me that he has read them.
Oh, yeah, it could always be MUCH worse
--Minai
Minai. No need to go
Minai. No need to go looking...Steve's on valtrex and amantadine. I blogged very recently on this subject on the thisisms antibioticsi forum also. Joyce
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Joyce~caregiver-advocate in Dallas for Steve J (SPMSi). CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity.
Parvovirus antibodies
Parvovirus antibodies are found in at least 50% of adults, somewhat less than EBVi. Usually caught in childhood, it causes a mild, sometimes itchy red rash for a few days. Its not serious and if you have the antibodies you should be immunei to further infection.
As a child, I didn't catch any of the main childhood viruses or bacterial infectionsi. My mother sent me to spend the day at a friend's house in order to catch chicken pox. I didn't oblige. I must have already caught it in such a minor form that it didn't show. I never had measles, mumps or rubella. Since these were all part of my friends' childhood illnesses, I guess I was already immune to all of them. My younger sister got everything going. The only thing I did catch was scarlet fever, but that not badly. Of course we now know that somewhere along the line I contracted my first CPni infection and then what it gave me, but that wasn't known to be pathogeb=nic until the second half of the eighties when I was already an adult and already had MSi.
A friend nearby of my mother's age was an army nurse in the fifties who was found to have a dormant infection of TB last year. It was non-infective and caused her no problems and she will have had this since her nursing days. She was put on isoniazid (INHi) and rifampicin.
I've never been tested for any virus - we don't in the UK unless there is a reason. I was tested for TB before vaccination at the age of 14. That was negative, so I had the vaccination. My guess is that these are henchmen viruses which will be taken care off in due course, but samento, valtrex or amantadine are maybe good interim measures, because whilst none of these viruses cause MS they might well exacerbate the disease........Sarah___________________________________________________________
And, as promised here are
And, as promised here are my actual results...
Everyone, please do feel free to use these as just another example of why Lab Results cannot be depended on, exclusively, if at all, in making diagnoses!
CPni Qualitative Blood Test: Completely Negative
BUT:
CPn Serum Test: IgM Negative, IgGi 1.15 Positive ( >.90 = Positive)
Mycoplasma General Qualitative Blood Test: Completely Negative
BUT:
Mycoplasma Pn Serum Test: IgM Negative, IgG 2.24 Positive (>.91 = Positive)
Parvovirus Qualitative Blood Test: Completely negative
BUT:
Parvovirus Serum Test: IgM Negative, IgG 1.64 Positive (> .80 = Positive)
See the contradictary results between the blood and serum tests?! Maybe serum is more accurate, however, heed the warnings about pathogens that may be dormant and can't even be detected by this method.
Was also tested for Ureaplasma, Cytomegalovirus, and Lyme by the same methods, but all negative.
Also, this makes for yet another (my 4th!) Western Blot with negative results, in less than a year, too.
So, there you have it!
--Minai
Joyce, thanks for not
Joyce, thanks for not "making" me go looking. Will try to check out what you have about it, on ThisIsMS, too. But, it will probably take me awhile.
I think I really would be very hesistant in starting any new drugs, antiviral, or not. Yet, am curious as to whether either of those, have any immunomodulation properties, too.
That's what is nice about the Samento...it's all natural, antiviral, and immunomodulary. And, interestingly, enough; the Peruvian government (where it is grown) actually does recognize it as a drug.
--Minai
Sarah,I had never even
Sarah,
I had never even heard of Parvovirus before the Dr called. I immediately looked it up, with my husband standing over my shoulder. Our mutual response was, "That's it!!!" I have been suffering from exactly these skin symptoms, in exactly those places, for over a year now. Very different from the contact allergies I have from metals and laundry soaps, and much more mild, it hasn't responded to any treatments. But, initially, that's what we had thought it was related to, and spent even more money on new organic clothing, bedding, and even new latex mattresses! But, now, we have a name for this henchman...chronic parvovirus. It flared up when I started Doxyi and, even moreso since starting Zithi! Itching, no dry skin, macules, papules, raised areas, absesses... just a subtle pink hue, under the surface. And, in exactly the places mentioned...some on arms and thighs, worse on the upper portion of my...er, um...(I'll say it) of my buttocks.
Yes, I do remember you describing your childhood history, and how seemingly lucky you were, at the time. And, I told you about how I caught most childhood diseasesi, due to my mother's religious beliefs in having me exempted from vaccination. But, unlike you, I don't know that I had ever contracted Scarlet Fever. Both my great-grandparents had met at a school for the deaf, having become so, from Scarlet Fever. Of course, that was in the early 1900's.
And, my mother, as a child in the 50's, had tested positive for TB, too. Never suffered from it, that I know of. Of course, there's much that she doesn't talk about healthwise due to the religious beliefs that she adopted as an adult.
Anyway, yes, I'm sticking with CAPi, regardless of my latest lab test results...I need to go searching for any of your DW's or Dr. Stratton's mentions of mycoplasma, tho. Can't help but be curious as to why I test so much higher for that than for CPni.
However, I am posting and running for now...another project due, and so you may not even hear from me, again, until Sunday or Monday!
--Minai
Golly, I knew of
Golly, I knew of parvovirus, but not in as much detail as I do know! I don't think you have wasted money on latex mattresses and so on, even if allergies weren't the cause of the rash. I have a friend who developed all sorts of skin problems only in her twenties. I would dearly love her to be treated for CPni but she won't spend anything on herself, the children and husband always come first, although I tell her that if her health suffers, they all will. She is probably carrying around no end of henchmen with her as well.......Sarah
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Sarah,Maybe chronic
Sarah,
Maybe chronic parvovirus has also been another major factor in the anemia that I've had for so many years, as well.
Your friend sounds like how I was for so many years. But, I, once the caregiver, have now been struck down. Forced to learn the hard way...I hope all caregivers, here, know better than I did.
My GP wants to see what my draining lymph nodes look like. Will let you know what he says.
Latex mattresses are expensive, unless one buys them at IKEA. I think you have IKEAs in England, too, don't you.
Everytime, I think of henchmen, now; I have a vision of Raven's henchman drawing in my mind
--Minai