Diplopia, Nystagmus and Heart Problems (and many more)

Hello Everyone

After reading the forum for quite some type I decided to make my first post, first of all I want to thank you for all the information that you provide, I also want to apologize for my poor English.

I will start by giving a quick description of my health deterioration in the last few years. Although the last 5+ years I could sense that something was wrong with me, it started to get really ungly at December 2013 when I become ill, it was like flu or a cold but this time I was feeling REALLY sick, I didn't pay too much attention at this time but some days or weeks later I started to have some scary faintings, a few times I was waking up at 04:00 or 05:00 in the morning just to faint, at times I also had a strange sensation that I wasn't able to get much air through my lungs although I was breathing normally.

The next days I visited a pathologist but he cound not find anything wrong with me, at that time I also had some minor pains in different parts of the body like near my ribs or back or in muscle groups, but nothing to make me to seriusly worry about.

Some more days passed and then the first signs of Diplopia apeared, at first I tried to ignore it and hoped to resolve by it's own, but the scary faintings returned, so after having diplopia for 3 days I decided to visit an ophthalmologist and he then send me to an neulologist, The morning I was going to my second appointent with the neurologist I was feeling so sick and faint that I visited the Hospital ER, while my brother was driving me there, I was in the back sits feeling faint for 60minutes.

I stayed in the hospital for 3 days, after 2 MRI's, 1 CT scan, lumbar puncture and lots of other tests the doctors could not find anything wrong, every test was normal, the only abnormal test was that lymphocytes(both absolute number and percentage value) were below reference values. At that time I learned that I also had nystagmus and also my right face was really weak and I could not raire my right  eyebrown or smile normaly. After 3 days X 1g methylpredisone I was able to leave the hospital with some signs of improvement in my diplopia, later I recieved test results that showed that I had oligoclonal bands, both in serum and spine fluid and it was supposed to be something good.

Next days and weeks diplopia slowly started to go away but faintings and some other new weird symptoms remained. Waking up one morning I could not close my fists, my grip was non existant in both my hands, another visit to the neuro, but nerve conduction test was normal, the strange thing was that if I started slowly jogging there was a noticable improvement in my grip.

At about that time my heart also started beating somewhat strange, initially nothing to worry about but later I was feeling pressure, like someone had griped my heart and squezed it, burning pain in the area and sometimes cutting/tearing pain, lately I could feel like the area was somewhat swollen, most recently I also have missed beats, the heart issues is something that really worries me. even though my cardiologist says "all is fine"

Almost 2,5 years passed since my admission to the hospital, and after many more long lasting fainting episodes and numerous other symptoms(tinnitus">i, tendons pain, yawing when trying to jog, nausea fainting in the morning) I visited a total of 8 different doctors and no one could help me.

I finally saw the video in youtube about C. Pneumoniae Sarah and Dr Wheldon, I learned about this site and Dr Wheldon's page so I did a C. Pnemoniae IgGi,IgM test. Results was IgM Negative IgG 512  and a small memo saying "Titers equal or greater to 512 is indicative of an accute infection" Btw I left the best part for the end, about 12 years ago I had a severe case of walking pneumoniae I was coughting non stop all the time(no blood in cought but it was a terible experience) and the cought never went away, I saw a major improvement in cought only after I started CAPi about 3 months ago.

Althought its prety obvious that cpni is involved I would like to hear your opinions too, before I close this large post I would like to mention that after fainting there were two times that I had blood test drawn within 8 hours and the results in both cases showed that lymphocytes absolute number and percentage number was below reference values(-8% -25%), a third test done 24 hours after another fainting returned marginal normal results, is there any possible explanation for this? I think I read somewhere that cpn infects some white cells but I can't remember if it had anything to do with accute low lymphocyte drop.

Sorry for this stupidly long post and thanks in advance for any replies.

If anyone knows any doctor in Greece I could contact please send me a message.

Your English is wonderful, so never apologize again!  Cool

Please read the post Dr. Wheldon put up today about cardiac issues.  It should ease your mind.  I'm so glad the protocol is already helping you!

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

I guess that since you have already started CAPi you are well on the way to recovery, but do remember not to stop treatment too soon just because you feel so much better: people have done this before and ended up back at square one.....................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Thank you both for your replies, I'm going to continue with CAPi at least for 1,5 year maybe more and I'm not going to stop unless I'm 110% sure that cpni is fully eliminated.

Btw I'm 36 years old male and my name is panos  (my social skills are terrible I know)

I have one question though about metronidazolei(Flagyl) I did two small pulses so far and not only I did not had any bad reactions to it but I can say that it probably made me feel better while on it, the question is, should i stick to 500mg x 3 times per day for the rest of the pulses or I can take metronidazole twice per day for a bit longer per pulse(for 7-8 days)? Taking a pill every 12hours instead of 8h is a lot easier for me but if it is not as effective then I will stay with the recomended 3 pills per day as the protocol recomends.

For the record so far I'm taking the following suplements daily....

NACi 2400 

Vitamin C 2000mg

Probiotics 4billion acidophilus lactobacilus twice per day

AlphaLipoicAcid 300mg

Co-Enzyme Q10 30mg

B12 1000μg oral methylcobalamin

Selenium 200μg

FolicAcid 400μg

Chlorella 520mg

Olive Leaf Extract  and some oregano oil(those two gave me some reactions at start, don't know if it was just coincidence)

vitamin D3 2000UI (mostly its like every other day in summer), my levels were below the normal range even in August, although I live in Greece(I don't like the sun too much) 

 

Diplopia, nystagmus, right facial weaknes, feeling VERY sick and fainting, chronic cough for more than 10 years, heart palpitations, skiped beats, heart area discomfort and pain, weak hands grip, minor pains in body parts, nausea, insomnia and many

Olive leaf extract!  Darren!  Please comment on this?  (P, I think the olive leaf extract is a problem with the antibioticsi.  Darren has commented on this recently.  I believe it negates the antibiotics.  Hopefully, he'll see this and comment soon.)

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Hi there. Yes Olive leaf extract while very good WILL stop the antibioticsi from working 100%. Also you are taking Oreganio... This is a strong herb and can be dangerous if taken for a prolonged period. The most you should ever take Oreganio for is one month. 

remember herbs and supplementsi are quite potent in their own right and mixing them with antibiotics could cause problems...

my my advise to you is stop taking olive leaf while on antibiotics and don't take Oreganio fior too long.

regards

D

The Greatest Risk of all is Not taking the Risk...

Darren - do you have any research showing the actual effects of OLE on abxi please? I'm asking because I know a lot of LLMDs are using both together as part of their treatment protocolsi. Perhaps it's a case that any slight reduction in the effects of the abxi is outweighed by the benefits of using the OLE to deal with viruses? A quick google search suggests there are many who do not feel there is an issue in using both.

Neuroi symptoms & many health problems from 1989. NACi+all supps(04/11) CAPi(05/11)

Yes there seems to be a lack of research out there but I will follow what my herbalist says also my own experience... I wrote about this a while back... I think! I had to take a Hep B vaccine and done the three rounds of injections and got my levels checked. my level came back as 0... Pretty low... The doctor was saying that even if I wasn't taking to the Hep B it should have still showing up with some level... He repeated the blood test two weeks later just in case the bloods got mixed up in lab and still came back at zero. I remember what the herbalist said about OLE and I was taking ole for a year or so at the time of getting vaccine so I went off ole and got another round of Hep B injections done 5 months later. Got levels checked and they came back over 1000. 

The other time I got a bad infection in my finger and doctor had to go and prescribe not one not two but three different antibioticsi To get the infection under control.... It was a bad infection but nothing mad... he was again confused at why it was so hard to clear it and even questioned if I was taking the antibiotics correctly! He also dabbles in alternative medicine and I did mention to him some time later when I was getting a general check up that I was taking OLE and a few other herbs and he remarked that OLE has the ability to inhibit antibiotics and vaccines from working and that could explain what happened to me.

so I always recommend now to people not to take both together... With the lack of research some doctors don't think it's important but from my own experience I think it is.

regards

D

The Greatest Risk of all is Not taking the Risk...

Many thanks for your reply, Darren. Much appreciated.

Neuroi symptoms & many health problems from 1989. NACi+all supps(04/11) CAPi(05/11)

Thanks Darren

Diplopia, nystagmus, right facial weaknes, feeling VERY sick and fainting, chronic cough for more than 10 years, heart palpitations, skiped beats, heart area discomfort and pain, weak hands grip, minor pains in body parts, nausea, insomnia and many

A somewhat urgent question, today my pharmacist informed me that there is a shortage of Doxycycline(in Greece) and that the only brand(Vibramycin from Pfizer) might not be available again. I don't know how probable/accurate this is to happen but I have only 7 days of doxycycline left and I don't want to take any risks. After some search and reading in the forum, I got the conclusion that replacing Doxycycline with Minocycline would be the best option and the dosage can be 200mg per day, but can I take all 200mg at once like I do with Doxy? 

Thanks for any replies. 

Btw I'm on standard Wheldon protocol for 4 months right now 200mg Doxy/day 250Azithro MWF, 2 small flagyli pulses so far and will do a full pulse in about one week, although not every day is the same, generaly I feel a lot of improvemet from the time I started CAPi! Smile  

Diplopia, nystagmus, right facial weaknes, feeling VERY sick and fainting, chronic cough for more than 10 years, heart palpitations, skiped beats, heart area discomfort and pain, weak hands grip, minor pains in body parts, nausea, insomnia and many

A small update

It seems that the information my pharmacist passed to me about doxyi was total nonsense, no shortage or anything like that and there seems to be more brands available, anyway.

I finished my 3rd flagyli pulse some days ago, 4 days x3 500mg, this time it was not an easy cruise, I would like to do 5 days but because of some burn and tear pain/anoyance in the heart area and return of skiped beats, I reconsidered and stoped at 4th days. Also I had the return of some very minor tendon pains in the forearms while on flagyl.

One Question about Epstein Barr

I had an IgGi test in the past and it returned 59.80 IV

(reference values)

Negative < 0.75

Doubt 0.75-1.0

Positive > 1.0

It's definetly positive but isn't 59.80 IV too high? the lab told me it was past infection and I should not worry, I never paid attention to it but recently I saw some other forum members reporting 1.09 as high, I would apreciate any input on this. Thanks. 

Diplopia, nystagmus, right facial weaknes, feeling VERY sick and fainting, chronic cough for more than 10 years, heart palpitations, skiped beats, heart area discomfort and pain, weak hands grip, minor pains in body parts, nausea, insomnia and many

Panc, here is my experienceof flagyli: I started it three months after the other two antibioticsi and found that I could do the full dose of 400mg three times a day for the full five days.  This only made me very depressed, but for five days I could cope with it.  After a year I changed to tinidazole because the osage for that meant I just had to take it twice a day.  Also it wasn't quite so depressive for me, so I found it much better.....................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Thanks for your reply Sarah, this pulse wasn't something terible that I could not hadle, it just made me think that pulsing for 4 full days is ok for a 3rd pulse and I shouldn't push harder, maybe the fact that I started drinking 1-2 coffees everyday(100-200mg caffeine) before the pulse played a small factor too, but I can be totally wrong in this.    

Diplopia, nystagmus, right facial weaknes, feeling VERY sick and fainting, chronic cough for more than 10 years, heart palpitations, skiped beats, heart area discomfort and pain, weak hands grip, minor pains in body parts, nausea, insomnia and many

Oh, caffeine:  I seem to remember that a few years go taking caffeine was thought to be beneficial by some peoplewhen taking flagyli, aiding the killing process.  If it is a fact, that might have been what you were experiencing.  Although I have always had either coffee, green tea or hot chocolate in the morning, all three high in caffeine: maybe it worked with me but without the discomfort!.................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

4th Pusle Update

I finished the 4th pulse about 3 weeks ago, it was only sligthly easier than the 3rd pusle, I chickened to take the last flagyli pill of the 5th day.

It's almost 10 days now that I have also added 3mg of melatonin">i, 1300mg of fish oil(715 EPA, 286 DHA) and a B complex vitamin that has a "small" amount of niacin">i(50mg), A noticeable improvement occured after a few days especially in my heart area sensations and pains. From what I have read in the forum here, perhaps melatonin and the "small" amount of niacin give some extra help that can make a difference!

My 5th pulse starts in a few days...

 

Diplopia, nystagmus, right facial weaknes, feeling VERY sick and fainting, chronic cough for more than 10 years, heart palpitations, skiped beats, heart area discomfort and pain, weak hands grip, minor pains in body parts, nausea, insomnia and many

5th Pulse ended easy 10 days ago, a few times I felt somewhat sick sometime after the flagyli dose but nothing serious at all.

Skiped/missed/iregular heart beats are a thing of the past.

Occationally I still feel some weird anoyance/pressure/"pain" in the heart area when I go to sleep lying on my stomach, but overall there is improvemnt in this too.

Diplopia, nystagmus, right facial weaknes, feeling VERY sick and fainting, chronic cough for more than 10 years, heart palpitations, skiped beats, heart area discomfort and pain, weak hands grip, minor pains in body parts, nausea, insomnia and many

Well done Panc: it is so good to see posts of regular improvements!.................................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

"Skiped/missed/iregular heart beats are a thing of the past."

I too found this. I am sure I had runs of atrial fibrillation  - very worrying. Now these have been gone for over ten years and have not returned.

D W - [Myalgia and hypertension">i (typically 155/95.) Began (2003) taking doxycycline and macrolide and later adding metronidazolei. No medication now. Morning BP typically 110/75]

Thank you both guys!

Diplopia, nystagmus, right facial weaknes, feeling VERY sick and fainting, chronic cough for more than 10 years, heart palpitations, skiped beats, heart area discomfort and pain, weak hands grip, minor pains in body parts, nausea, insomnia and many

6th Pulse ended about a week ago, only a few headaches this time but I'm not sure if it was flagyli or coincedence.

Diplopia, nystagmus, right facial weaknes, feeling VERY sick and fainting, chronic cough for more than 10 years, heart palpitations, skiped beats, heart area discomfort and pain, weak hands grip, minor pains in body parts, nausea, insomnia and many

7th and 8th pulses update

After the end of the 6th pulse I noticed a strange patern when I looked in my hand writen notes, 4 to 5 days after the end of the flagyli pulse there is a period of about a week that I feel a lot better (I feel great would probably be a better description!), This also happened with pulses 7 and 8.

What I find strange is that this "I feel great week"  stops and is followed by a somewhat "subpar ok" period and then the next pulse week(5 days) starts.

Does the above make any sense? Anyone else noticed something similar?

9th Pulse starts in a few days...

 

Diplopia, nystagmus, right facial weaknes, feeling VERY sick and fainting, chronic cough for more than 10 years, heart palpitations, skiped beats, heart area discomfort and pain, weak hands grip, minor pains in body parts, nausea, insomnia and many

I get worst symptoms the week before the next pulse is due... Recognised by my hubby who always asks when I'm off 'Are you ready to take your extra tablet?' I feel best not long after my pulses

Started NACi Sept'14... 100mg Doxyi Dec'14...  Roxi 13Dec '14 Supplementsi...

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