Cpnhelp.org - Chlamydia Pneumoniae Treatment

Q, mostly we think of unpleasant reactions to ABXi as die off effects, the reason we think that is that as we get better we don't get the reactions any more.   Also in my case I get the dreadful heartburn (oesophagitis) when I take flagyl, not doxyi or at least not doxy any more.   Even the flagyl heartburn is getting better now...

I have had to manage this heartburn when it was at its worst, but I continued with the ABXi.   You could try just taking 100mg a day in two doses (cut the tablet in half - or buy some empty capsules and decant half into one, if your doxy comes in capsules).  Don't take less than 100mg a day. Stopping and starting is not a good idea, especially if you are only taking one ABX at the moment.   This is the sure fire way of building Cpni resistance.  

Michèle (UK) GFAi: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Q, hello again :).. perhaps you may need to start even SLOWER, i.e., try starting with 1 - 100 mg tab of doxyi per day.  Some people just have to start slower than others.    Perhaps adding NACi and the 100 mg/day of doxy will help you slowly build as well.

 Even though the protocol says to start with 100 mg 2 x's per day, the goal is for you to be able to "tolerate" the ABXi.  I had to start slowly.... and started with 100 mg. per day for about a month.  This is just my experience and it worked for me.

Perhaps you could back down until you are comfortable with how your body is reacting.  I know it's scarey in the beginning...  =:0 you will be okay (you may not feel great, but you'll be okay :)

I  have a tendency to "obsess" as well, so I know what you are going through...take a deep breath, relax and if you can, go for a walk on the beach :)!!

 JeanneRoz

Jeanneroz ~CPNi 4/2007; HHV6, EBVi, CFIDSi/FM- diagnosed: 6/07; IBSi, prior kidney infectionsi, food allergies, hypothyroid (RAI for Graves in 1998), Adrenal issues; prior bronchitis/sinus problemsi. 200 mg/doxy daily & 250 mg AZITH M/W/F, supplmnts

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JeanneRoz~CPNi diagnosed & started protocol 4/2007, also HHV6, EBVi. CFIDSi/FM diagnosed: 6/07; 100mg/doxyi/BID ~ 250 mg AZITH M/W/F ~1st Tinii pulse 4/17/08- 1 250 mg. tab for 2 days. Pulse 5: 9/28/08, 250 mg TINI BID, 3 days. Sup

Imagine this. Ten years from now, scientists 'discover' that all those side-effects listed on the bottles of prescription medicines are really indicators the patient has cpni, and the side effects aren't side-effects of the meds at all; they are reactions to the antibioticsi KILLING CPN! Before science knew cpn existed, antibiotics caused some rare side effects in people. Someday, looking backward and taking into account the existence and proliferation of cpn in the general population, I think many of those side effects will be seen for what they really are. As Michele said, we know they have to be cpn related, because they diminish over time. That's not a side effect of a drug; that's a reaction to killing the disease inside you.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Hi Q since we have ahad some exchanges before this I hope you will take this as a statement of careing.  If you have Cpni and you do not treat it it will continue to live happily ever after intracellularly, sucking up eaver increasing amounts of your ATP (energy for short) you will become slowly more incappacitated in whatever your specific ways of the isllness are and more perhaps. 

Listen to Jeanne whein she says she knows that she has to go slowly. 

Slow turtle progress is what some folks here need to do to kill of the pathogens steadily yet within the speed that lets them have a minimul life while doing it.

Louise

FS/ME.CPnPositive.BbPositive.Started6/24/07WheldonCAP.OnDoxy, Roxi,2/3/08TiniPulse#4DayFiveCompleted.BeginningToNoticeTheEffectsNow on day 7.  Cholestyramine1packetBedtimeforPorphoriaandDie-offSymptomsOf Fatigue,Brainfog,MoodDisturbances,BalanceFromApopt

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Louise  CFSi, CPN+/Bb+, Wheldon CAPi 6/07, Cholestyramine 1-2 pks @ HS for Porphyriai & Endotoxinsi PRN, Doxy100daily, Roxi300BID, Tinii 500mgBID pulses, VitD3-4000IU, Magnascent Iodine,{S.O.D.3/QD[KAL Brand], +Pyruvate 3.75G +SAM-e For Energy support

According to the Wheldon protocol as quoted in the CPni Handbook, the order of dosing for NACi and the antibioticsi is:

"When NAC is well tolerated, Doxycyclinei 100mg once daily is added. It is taken with plenty of water.  When the two above are well tolerated, Azithromycin 250mg orally, three times a week should be added. (Roxithromycini, 150mg twice daily, is an alternative.) When all three agents are well tolerated, the dose of Doxycycline is increased to 200mg daily." [formatting adjusted]

We're supposed to start Doxy at 100 mg once per day.  That seems like such a low dose I'm sure some people decide to just jump ahead to two a day.  I was one of those people and ended up not being able to tolerate starting with 2 100 mg capsules.   

I have to take Doxy with food (two slices of buttered toast work for me) to avoid stomach upset and a hypoglycemia-like feeling.   Once I restarted at 100 mg and made sure I was eating something and following the supplement and anti-porphyriai regimine closely, my problems with Doxy ceased and in just a few days I was able to add the azithromycin and then the second Doxy.

CAP for M.S. since 8/2007. Currently: 100 mg Dox. (2 x day), 250 mg Zith (3 x week). Fourth pulse metronidazolei completed 1/23/2008.

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CAPi for M.S. since 8/2007. Currently: 100 mg Dox. (2 x day), 250 mg Zithi (3 x week), 500 mg Amoxicillini (6 x day).  Thirteenth pulse metronidazolei + INHi completed 9/28/2008.

You all are giving me somthing to chew on thats for sure.    My doc says the insurance companys dont reconize the treatment for this.. and if I wanted to change doc's or get a 2nd opinion what type of doc would i see ?  an immuineolgist?   i hope you all don't get upset but I think i'm in a bit of denial at this point.. I was all gung ho untill I had such a horrible experince a few days ago.. I was ready to go to the ER..  it was bad.  thanks everyone for your patients.  

EBVi;hvs6; CPNi igGi 1024; HEP C in remission;high lead and mercury counts; medically senstive; medication. 2.5mg lexpro 3 x a week; vital ingreidents multivitamin;nadh;was taking corvalen Dribose, but i coulnd't sleep although it helped with energy.

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EBVi;hvs6; CPNi igGi 1024; HEP C in remission;high lead and mercury counts; medically senstive; medication. 2.5mg lexpro 3 x a week; vital ingreidents multivitamin;nadh;was taking corvalen Dribose, but i coulnd't sleep although it helped with energy.<

qckam, I am sitting here thinking of what you have said. Crankiness is not my usual frame of mind but my reaction to your statements is as follow: let me say first that any doctor can prescribe for you. If you read here, you will discover that there are stories from people who have gone to truly incredible lengths to do this IN ORDER TO SAVE THEIR LIVES. What you think you have been through is only a small taste of what your life could be without the CAPi. We who have been through our version (we all, especially those of us who began long ago - for me 3 1/2 years - have one). You are not being forced to do it - this is definitely a privilege. If you decide to do it, we will help all we can and if you don't, ok. We KNOW how it is.

 

Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAP Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 49 pulses NC USA

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Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 53 pulses LDNi Rifampin 8/08 again NC USA

l have to say in my experience the last 4 days have been worse for me than the whole year I spent on interferon.    I am still realling from over aciditiy. 

One thing I know about my body :My stomach is very senstive over the years I've had to cut out sodas, EmergenC's or more than 1 cup of coffee, tomoates or Oranges.. anything of this nature unless i want stomach pain and mouth sores.~    

"life is either a daring adventure or nothing at all."  Helen Keller

 

EBVi;hvs6; CPNi igGi 1024; HEP C in remission;high lead and mercury counts; medically senstive; medication. 2.5mg lexpro 3 x a week; vital ingreidents multivitamin;nadh;was taking corvalen Dribose, but i coulnd't sleep although it helped with energy.

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EBVi;hvs6; CPNi igGi 1024; HEP C in remission;high lead and mercury counts; medically senstive; medication. 2.5mg lexpro 3 x a week; vital ingreidents multivitamin;nadh;was taking corvalen Dribose, but i coulnd't sleep although it helped with energy.<

I would still take a really rocky road to health than the sure decline of untreated cpni.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

 qcam- you gotta slow it down! Dr. Stratton has sensitive responders start as slow as 100mg doxyi, wait a week, then two, etc. You don't have to worry about the resistance issue if you are building up to full dose and will be adding the second abxi. 200mg per day is the full dose you would eventually get to, not the starting dose for most people.

CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Protocol: 200mg Doxy, 500mg MWF Azith, Tinii 1000mg/day pulses; Vit D1000 units, Cytotec 100mg, Plaquenil 100mg, Magnascent Iodine 12 drps/day, T4 & T3

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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3

Thanks Jim,

I am definatly a sensitve responder.. my stomach is still giving me all kinds of heck and it's been 4 days since i stopped the doxyi.    One of my doc's told me to try the tablets and not the capsules  also said take  nexuim with it to make sure my stomach is coated..  the other doc said take probiotics.   all this is overwhleming and costing me a fortune.. I life in a studio with mold - i could probably get somewhat better by spending all this doctor money on rent and moving into a safer place.   anyway.  I'm really bummed the same time my stomach flared up my relationship ended.. luckily it was only a year long relationship, but still I lost my bestfriend, help and support  ..  I haven't been to work all week and don't know if my stomach can handle going tomorrow.     I am having a hard time taking care of myslef especailly after I work 45 hours a week and commute.  I am depleted.   sorry about the whinning.

 This too shall pass. 

EBVi;hvs6; CPNi igGi 1024; HEP C in remission;high lead and mercury counts; medically senstive; medication. 2.5mg lexpro 3 x a week; vital ingreidents multivitamin;nadh;was taking corvalen Dribose, but i coulnd't sleep although it helped with energy.

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EBVi;hvs6; CPNi igGi 1024; HEP C in remission;high lead and mercury counts; medically senstive; medication. 2.5mg lexpro 3 x a week; vital ingreidents multivitamin;nadh;was taking corvalen Dribose, but i coulnd't sleep although it helped with energy.<